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	<title>Comments on: Katie Wright and Autism Speaks &#8211; woo confirmed</title>
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	<link>http://leftbrainrightbrain.co.uk/2007/03/katie-wright-and-autism-speaks-woo-confirmed/</link>
	<description>Autism news and opinion</description>
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		<title>By: generic lipitor</title>
		<link>http://leftbrainrightbrain.co.uk/2007/03/katie-wright-and-autism-speaks-woo-confirmed/#comment-38086</link>
		<dc:creator>generic lipitor</dc:creator>
		<pubDate>Wed, 23 May 2007 16:47:21 +0000</pubDate>
		<guid isPermaLink="false">http://www.kevinleitch.co.uk/wp/?p=522#comment-38086</guid>
		<description>I have this work friend who has a daughter of 5 and recently she got some very serious improvements on speech, but most striking one is in eye to eye contact. He said he used some unconventional medicine for thins, but I do not trust in herbs doing something like this. Is it possible?</description>
		<content:encoded><![CDATA[<p>I have this work friend who has a daughter of 5 and recently she got some very serious improvements on speech, but most striking one is in eye to eye contact. He said he used some unconventional medicine for thins, but I do not trust in herbs doing something like this. Is it possible?</p>
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		<title>By: Kassiane</title>
		<link>http://leftbrainrightbrain.co.uk/2007/03/katie-wright-and-autism-speaks-woo-confirmed/#comment-36252</link>
		<dc:creator>Kassiane</dc:creator>
		<pubDate>Thu, 19 Apr 2007 20:13:47 +0000</pubDate>
		<guid isPermaLink="false">http://www.kevinleitch.co.uk/wp/?p=522#comment-36252</guid>
		<description>I agree on curing seizures rather than autism. Seizures can kill people. Autism never has. Autism doesn&#039;t even have to give anyone a headache provided the people around the autistic folks aren&#039;t too difficult to deal with.</description>
		<content:encoded><![CDATA[<p>I agree on curing seizures rather than autism. Seizures can kill people. Autism never has. Autism doesn&#8217;t even have to give anyone a headache provided the people around the autistic folks aren&#8217;t too difficult to deal with.</p>
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		<title>By: Tito Rajarshi Mukhopadhyay</title>
		<link>http://leftbrainrightbrain.co.uk/2007/03/katie-wright-and-autism-speaks-woo-confirmed/#comment-36226</link>
		<dc:creator>Tito Rajarshi Mukhopadhyay</dc:creator>
		<pubDate>Thu, 19 Apr 2007 12:26:32 +0000</pubDate>
		<guid isPermaLink="false">http://www.kevinleitch.co.uk/wp/?p=522#comment-36226</guid>
		<description>Thank you for making me understand how terrible it is. 
I admire you for being so brave and facing it. 
I hope it gets better one day soon. 
I think siezure disorder is more important to get cured than autism. 
Regards
Tito Rajarshi Mukhopadhyay</description>
		<content:encoded><![CDATA[<p>Thank you for making me understand how terrible it is.<br />
I admire you for being so brave and facing it.<br />
I hope it gets better one day soon.<br />
I think siezure disorder is more important to get cured than autism.<br />
Regards<br />
Tito Rajarshi Mukhopadhyay</p>
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		<title>By: Kassiane</title>
		<link>http://leftbrainrightbrain.co.uk/2007/03/katie-wright-and-autism-speaks-woo-confirmed/#comment-36216</link>
		<dc:creator>Kassiane</dc:creator>
		<pubDate>Thu, 19 Apr 2007 05:49:55 +0000</pubDate>
		<guid isPermaLink="false">http://www.kevinleitch.co.uk/wp/?p=522#comment-36216</guid>
		<description>A siezure has more waves/sec. of smaller amplitude. On me the only lobe that stays the same is right temporal, and thats because it switches between theta and delta waves regardless of sleep or wake and emotional states, it&#039;s really not doing a blessed thing other than sleeping...

And i&#039;ve been saying that about hyperbarics for ages. But they don&#039;t listen to ME....I&#039;ve got my EEG reports memorized as well as the mechanisms of action for every damn drug Ive failed (all but the ones I&#039;m on and the ones they can&#039;t put me on, and I know the MOAs for most of those too)...but I cant know ANYTHING because of the young female autistic thing. Blegh.</description>
		<content:encoded><![CDATA[<p>A siezure has more waves/sec. of smaller amplitude. On me the only lobe that stays the same is right temporal, and thats because it switches between theta and delta waves regardless of sleep or wake and emotional states, it&#8217;s really not doing a blessed thing other than sleeping&#8230;</p>
<p>And i&#8217;ve been saying that about hyperbarics for ages. But they don&#8217;t listen to ME&#8230;.I&#8217;ve got my <span class="caps">EEG</span> reports memorized as well as the mechanisms of action for every damn drug Ive failed (all but the ones I&#8217;m on and the ones they can&#8217;t put me on, and I know the MOAs for most of those too)...but I cant know <span class="caps">ANYTHING</span> because of the young female autistic thing. Blegh.</p>
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		<title>By: daedalus2u</title>
		<link>http://leftbrainrightbrain.co.uk/2007/03/katie-wright-and-autism-speaks-woo-confirmed/#comment-36214</link>
		<dc:creator>daedalus2u</dc:creator>
		<pubDate>Thu, 19 Apr 2007 03:46:49 +0000</pubDate>
		<guid isPermaLink="false">http://www.kevinleitch.co.uk/wp/?p=522#comment-36214</guid>
		<description>How do they look different?  Frequency respose?  magnitude?  

Seizures can reliably be induced by hyperbaric O2.  That is enough O2 for long enough will always induce a seizure.</description>
		<content:encoded><![CDATA[<p>How do they look different?  Frequency respose?  magnitude?</p>
<p>Seizures can reliably be induced by hyperbaric O2.  That is enough O2 for long enough will always induce a seizure.</p>
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		<title>By: Kassiane</title>
		<link>http://leftbrainrightbrain.co.uk/2007/03/katie-wright-and-autism-speaks-woo-confirmed/#comment-36213</link>
		<dc:creator>Kassiane</dc:creator>
		<pubDate>Thu, 19 Apr 2007 03:37:52 +0000</pubDate>
		<guid isPermaLink="false">http://www.kevinleitch.co.uk/wp/?p=522#comment-36213</guid>
		<description>Having seen meltdowns (mine) and seizures (also mine) on EEG...they look different. Even when the events look the same...good ol&#039; &quot;rage seizures&quot;...the outside looks the same but electrically it looks soooo different.</description>
		<content:encoded><![CDATA[<p>Having seen meltdowns (mine) and seizures (also mine) on <span class="caps">EEG</span>&#8230;they look different. Even when the events look the same&#8230;good ol&#8217; &#8220;rage seizures&#8221;...the outside looks the same but electrically it looks soooo different.</p>
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		<title>By: Ms. Clark</title>
		<link>http://leftbrainrightbrain.co.uk/2007/03/katie-wright-and-autism-speaks-woo-confirmed/#comment-36211</link>
		<dc:creator>Ms. Clark</dc:creator>
		<pubDate>Thu, 19 Apr 2007 02:56:20 +0000</pubDate>
		<guid isPermaLink="false">http://www.kevinleitch.co.uk/wp/?p=522#comment-36211</guid>
		<description>I would think that meltdown&#039;s have different appearances on an EEG.  I don&#039;t know if reaching the point of having a meltdown (the internal changes of the stress leading up to the meltdown) would trigger a seizure.

My biggest experience with seizures is with my dog, who has pretty serious seizures about once a month.  She doesn&#039;t defecate or urinate during them, which I understand means and even worse seizure (for a dog)...

the dog isn&#039;t on meds for them, because I don&#039;t want to go down that road.  She seems ok in between seizures.</description>
		<content:encoded><![CDATA[<p>I would think that meltdown&#8217;s have different appearances on an <span class="caps">EEG</span>.  I don&#8217;t know if reaching the point of having a meltdown (the internal changes of the stress leading up to the meltdown) would trigger a seizure.</p>
<p>My biggest experience with seizures is with my dog, who has pretty serious seizures about once a month.  She doesn&#8217;t defecate or urinate during them, which I understand means and even worse seizure (for a dog)...</p>
<p>the dog isn&#8217;t on meds for them, because I don&#8217;t want to go down that road.  She seems ok in between seizures.</p>
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		<title>By: daedalus2u</title>
		<link>http://leftbrainrightbrain.co.uk/2007/03/katie-wright-and-autism-speaks-woo-confirmed/#comment-36210</link>
		<dc:creator>daedalus2u</dc:creator>
		<pubDate>Thu, 19 Apr 2007 02:40:39 +0000</pubDate>
		<guid isPermaLink="false">http://www.kevinleitch.co.uk/wp/?p=522#comment-36210</guid>
		<description>There can also be brain damage associated with seizures.  A process that is called &quot;excito-toxicity&quot;.  If some brain cells are activated too much, they ablate themselves to avoid over activating down stream cells too (but I think that happens more early in the course of what ever is causeing the seizures, which is why seizures in children can be quite serious and need to be considered carefully).  

One of the things that happens following strokes sometimes is that sometimes inhibitory neurons are damaged, then without the inhibition that they provide, down stream neurons become over activated and die too, and that can propagate for weeks after a stroke.  That is one of the reasons they don&#039;t know how bad a stroke  is going to be for quite some time.

Seizures are really not something that has an upside.  

Ms Clark, what does a meltdown look like on an EEG?  does it look like a seizure?</description>
		<content:encoded><![CDATA[<p>There can also be brain damage associated with seizures.  A process that is called &#8220;excito-toxicity&#8221;.  If some brain cells are activated too much, they ablate themselves to avoid over activating down stream cells too (but I think that happens more early in the course of what ever is causeing the seizures, which is why seizures in children can be quite serious and need to be considered carefully).</p>
<p>One of the things that happens following strokes sometimes is that sometimes inhibitory neurons are damaged, then without the inhibition that they provide, down stream neurons become over activated and die too, and that can propagate for weeks after a stroke.  That is one of the reasons they don&#8217;t know how bad a stroke  is going to be for quite some time.</p>
<p>Seizures are really not something that has an upside.</p>
<p>Ms Clark, what does a meltdown look like on an <span class="caps">EEG</span>?  does it look like a seizure?</p>
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		<title>By: Kassiane</title>
		<link>http://leftbrainrightbrain.co.uk/2007/03/katie-wright-and-autism-speaks-woo-confirmed/#comment-36209</link>
		<dc:creator>Kassiane</dc:creator>
		<pubDate>Thu, 19 Apr 2007 02:37:45 +0000</pubDate>
		<guid isPermaLink="false">http://www.kevinleitch.co.uk/wp/?p=522#comment-36209</guid>
		<description>Seizures...are scary. I&#039;ve had most of the kinds there are (atonic, clonic-tonic, myoclonic, atypical absence, temporal lobe, frontal lobe, had occipital lobe as a child and occasionally as an adult). My adoptive father has them too, but his are mostly temporal lobe.

I don&#039;t remember much of mine except the waking up on the floor with a huge headache part, or wondering how I GOT on the floor. My frontal lobe seizures are nocturnal only and look like parasomnias (Tito, you seem very smart so I&#039;m going to talk as though you have my vocabulary. If I go &#039;over your head&#039; I don&#039;t mind explaining). If it weren&#039;t for the morning headaches the frontal lobe ones would be mostly funny because I say really strange stuff-like once I said I was off on an expedition to the center of the earth to kill the ice demon or something like that. I also tried to drive off, which is bad.

I&#039;ve never had the religious thing, but I have made incredibly stupid decisions in the period of time pre seizure, and so has my dad. But I hit the ground and start twitching a lot faster than he does, he walks around and says the same word over and over, I flop and wake up with a headache and cough and sometimes throw up. The time during and immediately before is gone, as is immediately after. Immediately after I cannot communicate very well either, I use a little sign language after a seizure and do so very BADLY. 

I know of others who enjoy their seizures. I&#039;d much rather do without them. But mine are quite severe and I am educated on the damage repeated seizures do to a brain. When they happen as often as mine did untreated it is life threatening.</description>
		<content:encoded><![CDATA[<p>Seizures&#8230;are scary. I&#8217;ve had most of the kinds there are (atonic, clonic-tonic, myoclonic, atypical absence, temporal lobe, frontal lobe, had occipital lobe as a child and occasionally as an adult). My adoptive father has them too, but his are mostly temporal lobe.</p>
<p>I don&#8217;t remember much of mine except the waking up on the floor with a huge headache part, or wondering how <span class="caps">I GOT</span> on the floor. My frontal lobe seizures are nocturnal only and look like parasomnias (Tito, you seem very smart so I&#8217;m going to talk as though you have my vocabulary. If I go &#8216;over your head&#8217; I don&#8217;t mind explaining). If it weren&#8217;t for the morning headaches the frontal lobe ones would be mostly funny because I say really strange stuff-like once I said I was off on an expedition to the center of the earth to kill the ice demon or something like that. I also tried to drive off, which is bad.</p>
<p>I&#8217;ve never had the religious thing, but I have made incredibly stupid decisions in the period of time pre seizure, and so has my dad. But I hit the ground and start twitching a lot faster than he does, he walks around and says the same word over and over, I flop and wake up with a headache and cough and sometimes throw up. The time during and immediately before is gone, as is immediately after. Immediately after I cannot communicate very well either, I use a little sign language after a seizure and do so very <span class="caps">BADLY</span>.</p>
<p>I know of others who enjoy their seizures. I&#8217;d much rather do without them. But mine are quite severe and I am educated on the damage repeated seizures do to a brain. When they happen as often as mine did untreated it is life threatening.</p>
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		<title>By: Ms. Clark</title>
		<link>http://leftbrainrightbrain.co.uk/2007/03/katie-wright-and-autism-speaks-woo-confirmed/#comment-36207</link>
		<dc:creator>Ms. Clark</dc:creator>
		<pubDate>Thu, 19 Apr 2007 02:03:33 +0000</pubDate>
		<guid isPermaLink="false">http://www.kevinleitch.co.uk/wp/?p=522#comment-36207</guid>
		<description>Suffering is in the eye of the beholder, right?  A man who is habitually drunk is probably not suffering while he&#039;s drunk, but he may lose his job and become homeless, and the suffering is bound to catch up with him (or her) eventually.

Even some people with delusions, in schizophrenia, have nice, happy delusions.  Sometimes doctors will work with those patients to not drug the happy delusions out of existence.  There was a situation like that my friend told me about, she is a social worker.

It&#039;s unfortunate that many delusions make people feel very frightened, and that, it seems to me would be suffering... on the other hand some of the treatments that these people get are just as bad as the original pain of delusions, so treatments need to be measured out carefully for the benefit of the patient, not to the harm of the patient.

There&#039;s another feature of seizures that is kind of scary, that is in the period following the seizure, the person may act normally.  From their point of view they are normal, they are normal... except whatever they do for that time following the seizure they are not able to recall.  So they may drive their car to work (perfectly safe) but not recall ever having driven the car to work.

It&#039;s just scary because, say the husband can tell his wife something about what happened at work.  If she is in the post-ictal phase, she can engage in the conversation, but later remember none of the details of the conversation.  But the husband wouldn&#039;t necessarliy know that, and he might get very frustrated because his wife has no memory of the conversation.   She might say, &quot;you didn&#039;t tell me that...&quot;</description>
		<content:encoded><![CDATA[<p>Suffering is in the eye of the beholder, right?  A man who is habitually drunk is probably not suffering while he&#8217;s drunk, but he may lose his job and become homeless, and the suffering is bound to catch up with him (or her) eventually.</p>
<p>Even some people with delusions, in schizophrenia, have nice, happy delusions.  Sometimes doctors will work with those patients to not drug the happy delusions out of existence.  There was a situation like that my friend told me about, she is a social worker.</p>
<p>It&#8217;s unfortunate that many delusions make people feel very frightened, and that, it seems to me would be suffering&#8230; on the other hand some of the treatments that these people get are just as bad as the original pain of delusions, so treatments need to be measured out carefully for the benefit of the patient, not to the harm of the patient.</p>
<p>There&#8217;s another feature of seizures that is kind of scary, that is in the period following the seizure, the person may act normally.  From their point of view they are normal, they are normal&#8230; except whatever they do for that time following the seizure they are not able to recall.  So they may drive their car to work (perfectly safe) but not recall ever having driven the car to work.</p>
<p>It&#8217;s just scary because, say the husband can tell his wife something about what happened at work.  If she is in the post-ictal phase, she can engage in the conversation, but later remember none of the details of the conversation.  But the husband wouldn&#8217;t necessarliy know that, and he might get very frustrated because his wife has no memory of the conversation.   She might say, &#8220;you didn&#8217;t tell me that&#8230;&#8221; </p>
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