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	<title>Comments on: The Myth of Recovery</title>
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	<description>Autism news and opinion</description>
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		<title>By: HN</title>
		<link>http://leftbrainrightbrain.co.uk/2007/09/the-myth-of-recovery/#comment-44192</link>
		<dc:creator>HN</dc:creator>
		<pubDate>Fri, 21 Sep 2007 19:06:44 +0000</pubDate>
		<guid isPermaLink="false">http://www.kevinleitch.co.uk/wp/?p=615#comment-44192</guid>
		<description>Actually, after I read the book I did an AltaVista search on it (it was before Google).  I found at least one site that showed Bratt&#039;s book was part of the required reading in a hospital support group for parents with disabled children.

Of course, I can&#039;t find that anymore.  But that book would be a good thing to give to any parent shortly after they get a diagnosis of some sort.  Not just autism or cerebral palsy, but any of the several kinds of childhood disabilities.

It certainly made me feel better after the frustration I had after reading a couple of Glenn Doman&#039;s stupid books!</description>
		<content:encoded><![CDATA[<p>Actually, after I read the book I did an AltaVista search on it (it was before Google).  I found at least one site that showed Bratt&#8217;s book was part of the required reading in a hospital support group for parents with disabled children.</p>
<p>Of course, I can&#8217;t find that anymore.  But that book would be a good thing to give to any parent shortly after they get a diagnosis of some sort.  Not just autism or cerebral palsy, but any of the several kinds of childhood disabilities.</p>
<p>It certainly made me feel better after the frustration I had after reading a couple of Glenn Doman&#8217;s stupid books!</p>
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		<title>By: Ms. Clark</title>
		<link>http://leftbrainrightbrain.co.uk/2007/09/the-myth-of-recovery/#comment-44191</link>
		<dc:creator>Ms. Clark</dc:creator>
		<pubDate>Fri, 21 Sep 2007 18:35:06 +0000</pubDate>
		<guid isPermaLink="false">http://www.kevinleitch.co.uk/wp/?p=615#comment-44191</guid>
		<description>&quot;A still small voice&quot; commented this about that book, HN:

&quot;An honest and thoughtful account of one parent&#039;s growing disillusionment with the Doman/Delacato &quot;patterning&quot; therapy for her son with cerebral palsy. An effective counter-balance to the tendency of accounts of &quot;miracle&quot; alternative treatments to describe only the isolated &quot;miracle cures&quot; results and ignore with the far more common &quot;failures&quot;, it also includes an appended summary of the scientific research on Doman&#039;s therapies which quietly and devastatingly demolishes the claims made for them.

I totally agree with the previous reviewer that this book should be compulsory reading for anyone even considering Doman&#039;s therapies, but it should also be relevant and interesting to a wider audience. **Bratt examines the complex psychological issues involved in the pursuit of a &#039;cure&quot; for a child with special needs - how parents are made to feel (and make themselves feel) that they are positively immoral unless they are willing to try anything that holds out even the faintest hope of a cure (at whatever cost), the costs of an exhausting and coercive treatment plan on the family as a whole, the psychological effect on a child of a treatment which implies so clearly that he&#039;s not OK as he is and needs to be &quot;fixed&quot;, and the emotional consequences for both child and parents when such a cure fails to materialize and they finally have to accept the child&#039;s disability as a permanent part of his life. *** At the end of the book, her description of her acceptance of Jamie as he is, disability and all, is deeply moving.

Of course, a quiet and intelligent book like this will never win even a tenth of the readership of the sensational and mendacious books that sell the promise of miracles. All people who really care about children with special needs should regret this&quot;

Wow.  Parents keep reinventing the wheel, and quacks keep taking advantage of parents in search of a cure.</description>
		<content:encoded><![CDATA[<p>&#8220;A still small voice&#8221; commented this about that book, HN:</p>
<p>&#8220;An honest and thoughtful account of one parent&#8217;s growing disillusionment with the Doman/Delacato &#8220;patterning&#8221; therapy for her son with cerebral palsy. An effective counter-balance to the tendency of accounts of &#8220;miracle&#8221; alternative treatments to describe only the isolated &#8220;miracle cures&#8221; results and ignore with the far more common &#8220;failures&#8221;, it also includes an appended summary of the scientific research on Doman&#8217;s therapies which quietly and devastatingly demolishes the claims made for them.</p>
<p>I totally agree with the previous reviewer that this book should be compulsory reading for anyone even considering Doman&#8217;s therapies, but it should also be relevant and interesting to a wider audience. **Bratt examines the complex psychological issues involved in the pursuit of a &#8216;cure&#8221; for a child with special needs &#8211; how parents are made to feel (and make themselves feel) that they are positively immoral unless they are willing to try anything that holds out even the faintest hope of a cure (at whatever cost), the costs of an exhausting and coercive treatment plan on the family as a whole, the psychological effect on a child of a treatment which implies so clearly that he&#8217;s not OK as he is and needs to be &#8220;fixed&#8221;, and the emotional consequences for both child and parents when such a cure fails to materialize and they finally have to accept the child&#8217;s disability as a permanent part of his life. *** At the end of the book, her description of her acceptance of Jamie as he is, disability and all, is deeply moving.</p>
<p>Of course, a quiet and intelligent book like this will never win even a tenth of the readership of the sensational and mendacious books that sell the promise of miracles. All people who really care about children with special needs should regret this&#8221;</p>
<p>Wow.  Parents keep reinventing the wheel, and quacks keep taking advantage of parents in search of a cure.</p>
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		<title>By: AngryMom</title>
		<link>http://leftbrainrightbrain.co.uk/2007/09/the-myth-of-recovery/#comment-44186</link>
		<dc:creator>AngryMom</dc:creator>
		<pubDate>Fri, 21 Sep 2007 17:56:02 +0000</pubDate>
		<guid isPermaLink="false">http://www.kevinleitch.co.uk/wp/?p=615#comment-44186</guid>
		<description>Thanks, HN! That sounds pretty fascinating. 

The Stacey&#039;s were big into some sort of cranial-sacral therapy. I can&#039;t remember the exact name of it. The practitioner told them on day one that their son had &quot;toxic exposure, probably in the womb&quot; and they spent the next two years keeping him in a perfect C-shape.

It&#039;s just a little odd to me that no specialist out of the myriad they saw ever saw fit to officially diagnose him. Yet he&#039;s cured.</description>
		<content:encoded><![CDATA[<p>Thanks, HN! That sounds pretty fascinating.</p>
<p>The Stacey&#8217;s were big into some sort of cranial-sacral therapy. I can&#8217;t remember the exact name of it. The practitioner told them on day one that their son had &#8220;toxic exposure, probably in the womb&#8221; and they spent the next two years keeping him in a perfect C-shape.</p>
<p>It&#8217;s just a little odd to me that no specialist out of the myriad they saw ever saw fit to officially diagnose him. Yet he&#8217;s cured.</p>
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		<title>By: HN</title>
		<link>http://leftbrainrightbrain.co.uk/2007/09/the-myth-of-recovery/#comment-44182</link>
		<dc:creator>HN</dc:creator>
		<pubDate>Fri, 21 Sep 2007 17:24:26 +0000</pubDate>
		<guid isPermaLink="false">http://www.kevinleitch.co.uk/wp/?p=615#comment-44182</guid>
		<description>Angrymom, that reminds me of a really good book I read about the Doman/Delcato method.  Doman was a physical therapist that promoted an intensive form of physical therapy.  He usually promoted it by selling books with titles like &quot;What To Do With Your Brain Damaged Child&quot;.  I checked a couple out from the library, and they were just long advertisements for his &quot;Institute&quot; in Pennsylvania.  

The author, a mom, created a special room and did many hours of exercises from the institute in Pennsylvania in hopes of helping her son with cerebral palsy.

In the end, it really did not help... and she learned to accept her son as he was.

She even used her research in getting a college degree.  The last part of the book shows the research that pretty much shows what a sham &quot;patterning&quot; is.

Here it is:
http://www.amazon.com/No-Time-Jello-Berneen-Bratt/dp/0914797565/</description>
		<content:encoded><![CDATA[<p>Angrymom, that reminds me of a really good book I read about the Doman/Delcato method.  Doman was a physical therapist that promoted an intensive form of physical therapy.  He usually promoted it by selling books with titles like &#8220;What To Do With Your Brain Damaged Child&#8221;.  I checked a couple out from the library, and they were just long advertisements for his &#8220;Institute&#8221; in Pennsylvania.</p>
<p>The author, a mom, created a special room and did many hours of exercises from the institute in Pennsylvania in hopes of helping her son with cerebral palsy.</p>
<p>In the end, it really did not help&#8230; and she learned to accept her son as he was.</p>
<p>She even used her research in getting a college degree.  The last part of the book shows the research that pretty much shows what a sham &#8220;patterning&#8221; is.</p>
<p>Here it is:<br />
<a href="http://www.amazon.com/No-Time-Jello-Berneen-Bratt/dp/0914797565/" rel="nofollow">http://www.amazon.com/No-Time-.....914797565/</a></p>
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		<title>By: AngryMom</title>
		<link>http://leftbrainrightbrain.co.uk/2007/09/the-myth-of-recovery/#comment-44179</link>
		<dc:creator>AngryMom</dc:creator>
		<pubDate>Fri, 21 Sep 2007 16:15:27 +0000</pubDate>
		<guid isPermaLink="false">http://www.kevinleitch.co.uk/wp/?p=615#comment-44179</guid>
		<description>What about Patricia Stacey&#039;s son? Her book is all about how she recovered her son using a combination of 7 hrs/day of Floortime and complete social isolation (of herself).

The book definitely raises the question of whether he had asd at all to begin with. They refuse all kinds of medical tests and he never actually receives a diagnosis from anyone. 

Does anyone know how he is doing now? I guess I would expect to hear from her a little more now, especially since her book was promoted by O Magazine a few years back.</description>
		<content:encoded><![CDATA[<p>What about Patricia Stacey&#8217;s son? Her book is all about how she recovered her son using a combination of 7 hrs/day of Floortime and complete social isolation (of herself).</p>
<p>The book definitely raises the question of whether he had asd at all to begin with. They refuse all kinds of medical tests and he never actually receives a diagnosis from anyone.</p>
<p>Does anyone know how he is doing now? I guess I would expect to hear from her a little more now, especially since her book was promoted by O Magazine a few years back.</p>
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		<title>By: Joseph</title>
		<link>http://leftbrainrightbrain.co.uk/2007/09/the-myth-of-recovery/#comment-44118</link>
		<dc:creator>Joseph</dc:creator>
		<pubDate>Thu, 20 Sep 2007 21:41:02 +0000</pubDate>
		<guid isPermaLink="false">http://www.kevinleitch.co.uk/wp/?p=615#comment-44118</guid>
		<description>&lt;i&gt;you really donâ€™t want to see or hear about kids improving using GFCF or ABA because it goes against your beliefs.&lt;/i&gt;

On the contrary, I love to hear stories of kids improving thanks to all sorts of treatments. I&#039;ve written a lot about that recently in &lt;a href=&quot;http://autismnaturalvariation.blogspot.com/&quot;&gt;my blog&lt;/a&gt;. Lots of impressive testimonials. Check it out.

Seriously though, I don&#039;t want to hear about that just as much as a homosexual doesn&#039;t want to hear about reparative therapy curing 30-70% of homosexuals.</description>
		<content:encoded><![CDATA[<p><i>you really don&#226;&#8364;&#8482;t want to see or hear about kids improving using <span class="caps">GFCF</span> or <span class="caps">ABA</span> because it goes against your beliefs.</i></p>
<p>On the contrary, I love to hear stories of kids improving thanks to all sorts of treatments. I&#8217;ve written a lot about that recently in <a href="http://autismnaturalvariation.blogspot.com/">my blog</a>. Lots of impressive testimonials. Check it out.</p>
<p>Seriously though, I don&#8217;t want to hear about that just as much as a homosexual doesn&#8217;t want to hear about reparative therapy curing 30-70% of homosexuals.</p>
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		<title>By: 666sigma</title>
		<link>http://leftbrainrightbrain.co.uk/2007/09/the-myth-of-recovery/#comment-44116</link>
		<dc:creator>666sigma</dc:creator>
		<pubDate>Thu, 20 Sep 2007 21:17:28 +0000</pubDate>
		<guid isPermaLink="false">http://www.kevinleitch.co.uk/wp/?p=615#comment-44116</guid>
		<description>Joesph, thanks, I haven&#039;t watched that video in awhile. I can see why the neurologist removed the diagnosis. He&#039;s doing way better than all of those kids, except maybe one or two. His speech pattern is more fluid. Comparatively speaking, I think he would present himself more like ADD. But I can assure that his attention is exceptional. It&#039;s all language.

000epsilon, where was I bragging? What I think it boils down to is that you really don&#039;t want to see or hear about kids improving using GFCF or ABA because it goes against your beliefs.</description>
		<content:encoded><![CDATA[<p>Joesph, thanks, I haven&#8217;t watched that video in awhile. I can see why the neurologist removed the diagnosis. He&#8217;s doing way better than all of those kids, except maybe one or two. His speech pattern is more fluid. Comparatively speaking, I think he would present himself more like <span class="caps">ADD</span>. But I can assure that his attention is exceptional. It&#8217;s all language.</p>
<p>000epsilon, where was I bragging? What I think it boils down to is that you really don&#8217;t want to see or hear about kids improving using <span class="caps">GFCF</span> or <span class="caps">ABA</span> because it goes against your beliefs.</p>
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		<title>By: 999epsilon</title>
		<link>http://leftbrainrightbrain.co.uk/2007/09/the-myth-of-recovery/#comment-44055</link>
		<dc:creator>999epsilon</dc:creator>
		<pubDate>Thu, 20 Sep 2007 03:12:32 +0000</pubDate>
		<guid isPermaLink="false">http://www.kevinleitch.co.uk/wp/?p=615#comment-44055</guid>
		<description>_&quot;... he no longer fits the laundry list of DSM-IV for PDD-NOS, AS or any of the other PDDâ€™s. How many of you can say that about your ASD child?&quot;_

Well, I didn&#039;t realize it was a competition. However, since you boast, er, ask:  Several experts have suggested the same (ie no longer fits laundry list) about one of my young ASD family members, but that&#039;s neither here nor there.  BTW, Schadenfreude does not become you 666sigma.</description>
		<content:encoded><![CDATA[<p><em>&#8220;... he no longer fits the laundry list of <span class="caps">DSM</span>-IV for <span class="caps">PDD</span>-NOS, AS or any of the other <span class="caps">PDD</span>&#226;&#8364;&#8482;s. How many of you can say that about your <span class="caps">ASD</span> child?&#8221;</em></p>
<p>Well, I didn&#8217;t realize it was a competition. However, since you boast, er, ask:  Several experts have suggested the same (ie no longer fits laundry list) about one of my young <span class="caps">ASD</span> family members, but that&#8217;s neither here nor there.  <span class="caps">BTW</span>, Schadenfreude does not become you 666sigma.</p>
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		<title>By: 666sigma</title>
		<link>http://leftbrainrightbrain.co.uk/2007/09/the-myth-of-recovery/#comment-44042</link>
		<dc:creator>666sigma</dc:creator>
		<pubDate>Wed, 19 Sep 2007 22:23:21 +0000</pubDate>
		<guid isPermaLink="false">http://www.kevinleitch.co.uk/wp/?p=615#comment-44042</guid>
		<description>Joseph, I have watched the video. It&#039;s one of my favorites. The neurologist did not change his diagnosis to AS. That does not mean that he does not have deficits. He just doesn&#039;t fit the AS laundry list.

Bullet, at this point, it is still a mixed bag. Yes, he will ask for things he wants - all the time. He will tell you about things in the here-and-now. He still has trouble with past tense, but he is grasping future tense. 3-4 months ago, he could not have a conversation. Today, he can. He can tell you why he is upset. But don&#039;t expect him to talk about how someone else feels. One step at a time.

I guarantee that all of the naysayers on this blog, if you saw my son, you would all say that he&#039;s autistic and he&#039;s developing just like a lot of other autistic kids. The point is that he has developed to the point where he no longer fits the laundry list of DSM-IV for PDD-NOS, AS or any of the other PDD&#039;s. How many of you can say that about your ASD child?

It is my PERSONAL BELIEF that ABA is giving him the tools necessary to learn to communicate (in ways that the school system never will). It appears that diet and vitamins have improved his focus. I believe that we have positively affected his long term development by providing him with the necessary education at an early age.

Education does matter!</description>
		<content:encoded><![CDATA[<p>Joseph, I have watched the video. It&#8217;s one of my favorites. The neurologist did not change his diagnosis to AS. That does not mean that he does not have deficits. He just doesn&#8217;t fit the AS laundry list.</p>
<p>Bullet, at this point, it is still a mixed bag. Yes, he will ask for things he wants &#8211; all the time. He will tell you about things in the here-and-now. He still has trouble with past tense, but he is grasping future tense. 3-4 months ago, he could not have a conversation. Today, he can. He can tell you why he is upset. But don&#8217;t expect him to talk about how someone else feels. One step at a time.</p>
<p>I guarantee that all of the naysayers on this blog, if you saw my son, you would all say that he&#8217;s autistic and he&#8217;s developing just like a lot of other autistic kids. The point is that he has developed to the point where he no longer fits the laundry list of <span class="caps">DSM</span>-IV for <span class="caps">PDD</span>-NOS, AS or any of the other <span class="caps">PDD</span>&#8217;s. How many of you can say that about your <span class="caps">ASD</span> child?</p>
<p>It is my <span class="caps">PERSONAL BELIEF</span> that <span class="caps">ABA</span> is giving him the tools necessary to learn to communicate (in ways that the school system never will). It appears that diet and vitamins have improved his focus. I believe that we have positively affected his long term development by providing him with the necessary education at an early age.</p>
<p>Education does matter!</p>
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		<title>By: Joseph</title>
		<link>http://leftbrainrightbrain.co.uk/2007/09/the-myth-of-recovery/#comment-44010</link>
		<dc:creator>Joseph</dc:creator>
		<pubDate>Wed, 19 Sep 2007 14:49:04 +0000</pubDate>
		<guid isPermaLink="false">http://www.kevinleitch.co.uk/wp/?p=615#comment-44010</guid>
		<description>&lt;i&gt;My son lost his diagnosis. He is mainstreamed in school without support and is a model student. His language improves on a daily basis. He is increasingly social and is one of the best behaved kids.&lt;/i&gt;

How is he different from any child with an Asperger&#039;s diagnosis? Better yet, watch &lt;a href=&quot;http://www.youtube.com/watch?v=T4tFCFpH8Vw&quot;&gt;this video&lt;/a&gt; of non-recovered autistic children (who probably have not done biomed all that much - my guess). What&#039;s the difference? Let me suggest what the difference is. Some parents have a medical emphasis in how they view of autism and like to use words like &quot;recovering&quot;, &quot;improving&quot;, &quot;recovered&quot;. Other parents do not.</description>
		<content:encoded><![CDATA[<p><i>My son lost his diagnosis. He is mainstreamed in school without support and is a model student. His language improves on a daily basis. He is increasingly social and is one of the best behaved kids.</i></p>
<p>How is he different from any child with an Asperger&#8217;s diagnosis? Better yet, watch <a href="http://www.youtube.com/watch?v=T4tFCFpH8Vw">this video</a> of non-recovered autistic children (who probably have not done biomed all that much &#8211; my guess). What&#8217;s the difference? Let me suggest what the difference is. Some parents have a medical emphasis in how they view of autism and like to use words like &#8220;recovering&#8221;, &#8220;improving&#8221;, &#8220;recovered&#8221;. Other parents do not.</p>
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