I don’t get autism recovery. I don’t get what its supposed to be. I’ve been told (as has the world) that chelation can offer a 100% recovery, leaving the child indistinguishable from their peers.
I’ve been told that recovery means that a child no longer carries a diagnosis of autism.
I’ve been told that recovery simply means a previously non-vocal child now speaks.
I’ve been told that recovery is not the same as cure, but nobody gave me a cogent reason as to why not.
I’ve been told that recovery means a child can attend a mainstream scholastic setting.
There are so many ‘recovery’ merchants on the web (and also in Washington DC last Wednesday) who all want to tell the world that ‘recovery is possible’ and that their child is ‘recovered’.
On a popular biomed site for example there is a section where parents have sent in stories of their kids recovery. Oddly however, only 7% of those stories recount a child no longer having a diagnosis of autism.
Over on Kristina’s blog, a discussion regarding Jenny McCarthys latest interview turned up this nugget:
Jenny was jumping all over the board last night in the interview with Greta. She used “recovered” and “recovering”, then seemed to say that he was still autistic, but didn’t have any symptoms at all any more.
She stated that Evan had been diagnosed as autistic in the past, but that his current neurologist says that he never had autism. She reconciles this discrepancy as proof that Evan has been cured by her interventions.
McCarthy (who maybe concidentally was apparently still smoking in 2003/04 – two years after her sons birth) related an incident from May 2007 at the recent Autism One event:
Evan still suffers from seizures, the last one, he just had last May that no one kind of knows about yet, was horrible. He seized on and off for seven hours and then we had to put him in a coma for four days to make him brain dead to stop the seizing because he’d previously gone into cardiac arrest, and there’s so many kids out there with seizures had passed because of that reason. We had to induce a coma, it took him another month to walk again or talk again.
First off that is terrible. My heart went out to McCarthy when I was sent this. I cannot imagine how terrifying that must have been for her – and of course for young Evan too.
But does this sound like a recovered child to you? A child indistinguishable from his peers?
Thank goodness those (no doubt AAP members) mainstream doctors were there to help this poor little boy.
So what is recovery? To me, in all the YouTube videos I’ve seen posted by people convinced their child has recovered it seems most commonly to mean a clearly autistic child who has improved in certain key areas over time and has learnt a variety of coping mechanisms. Beyond that I have no idea.