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	<title>Comments on: Mother Warriors &#8211; the cost</title>
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	<description>Autism news and opinion</description>
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		<title>By: Vaccines cause "microvascular strokes" that cause autism? [Respectful Insolence]</title>
		<link>http://leftbrainrightbrain.co.uk/2008/09/mother-warriors-the-cost/#comment-53784</link>
		<dc:creator>Vaccines cause "microvascular strokes" that cause autism? [Respectful Insolence]</dc:creator>
		<pubDate>Thu, 16 Oct 2008 12:00:32 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=1428#comment-53784</guid>
		<description>[...] all this dubious science is a panoply of equally or even more dubious &quot;treatments&quot; for autism. As Kevin Leitch points out, there are at least 150 scientifically unsupported treatments for autism out there [...]</description>
		<content:encoded><![CDATA[<p>[...] all this dubious science is a panoply of equally or even more dubious &#8220;treatments&#8221; for autism. As Kevin Leitch points out, there are at least 150 scientifically unsupported treatments for autism out there [...]</p>
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		<title>By: Science-Based Medicine &#187; Autism&#8217;s false prophets revealed</title>
		<link>http://leftbrainrightbrain.co.uk/2008/09/mother-warriors-the-cost/#comment-53431</link>
		<dc:creator>Science-Based Medicine &#187; Autism&#8217;s false prophets revealed</dc:creator>
		<pubDate>Mon, 29 Sep 2008 13:02:30 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=1428#comment-53431</guid>
		<description>[...] of autism and treatments designed to help autistic children, rather than subjecting them to a mind-dizzying panoply of &#8220;biomedical&#8221; interventions that are not only expensive but useless and potentially [...]</description>
		<content:encoded><![CDATA[<p>[...] of autism and treatments designed to help autistic children, rather than subjecting them to a mind-dizzying panoply of &#8220;biomedical&#8221; interventions that are not only expensive but useless and potentially [...]</p>
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		<title>By: misha_k</title>
		<link>http://leftbrainrightbrain.co.uk/2008/09/mother-warriors-the-cost/#comment-53418</link>
		<dc:creator>misha_k</dc:creator>
		<pubDate>Sun, 28 Sep 2008 20:18:04 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=1428#comment-53418</guid>
		<description>&lt;i&gt;But that one line, about the child’s teachers and therapists “being amazed by his unprecedented progress?” Well, I call bull on that.

----

Its part of every single ‘recovery’ story I’ve ever heard. The US must be full of constantly amazed teachers.
&lt;/i&gt;


I sometimes wonder if the parents who think this do so because they see words like &quot;unprecedented&quot; and &quot;exceptional&quot; and &quot;remarkable&quot; used in evaluations, (along with wanting to believe they see the teacher&#039;s/therapist&#039;s completely amazed reaction).  I know I&#039;ve seen those words enough times over the years in several of J&#039;s evaluations and plan summaries.  I finally asked one therapist why she put that when she and I both know it&#039;s just J making natural progress at his own pace.  There&#039;s nothing &quot;unprecedented&quot; about it.  She told me they use words like that to justify MA continuing to pay for the therapy.  MA sees progress and the therapy continues.  So they claim my son has made &quot;exceptional progress&quot; so his speech therapy can continue when really his progress has been a steady one over a period of time.  I&#039;m still not sure how I feel about that, especially if the progress is deemed so good by MA that it decides a child doesn&#039;t need anymore therapy.  I&#039;ve had that happen and I had to fight to get J&#039;s therapy continued. I want to see progress, but not at the risk of having my son&#039;s therapy cut short.  But, I think, for those parents desperate enough seeing those words are all they need to believe their child is recovering. 

Meanwhile, I&#039;ve watched my son progress and develop at a pace comfortable for him.  He&#039;s had speech and OT with awesome therapists, a wonderful education system with dedicated teachers, and the love and support from everyone around him.</description>
		<content:encoded><![CDATA[<p><i>But that one line, about the child&#8217;s teachers and therapists &#8220;being amazed by his unprecedented progress?&#8221; Well, I call bull on that.<br />
&#8212;&#8212;<br />
Its part of every single &#8216;recovery&#8217; story I&#8217;ve ever heard. The US must be full of constantly amazed teachers.<br />
</i></p>
<p>I sometimes wonder if the parents who think this do so because they see words like &#8220;unprecedented&#8221; and &#8220;exceptional&#8221; and &#8220;remarkable&#8221; used in evaluations, (along with wanting to believe they see the teacher&#8217;s/therapist&#8217;s completely amazed reaction).  I know I&#8217;ve seen those words enough times over the years in several of J&#8217;s evaluations and plan summaries.  I finally asked one therapist why she put that when she and I both know it&#8217;s just J making natural progress at his own pace.  There&#8217;s nothing &#8220;unprecedented&#8221; about it.  She told me they use words like that to justify MA continuing to pay for the therapy.  MA sees progress and the therapy continues.  So they claim my son has made &#8220;exceptional progress&#8221; so his speech therapy can continue when really his progress has been a steady one over a period of time.  I&#8217;m still not sure how I feel about that, especially if the progress is deemed so good by MA that it decides a child doesn&#8217;t need anymore therapy.  I&#8217;ve had that happen and I had to fight to get J&#8217;s therapy continued. I want to see progress, but not at the risk of having my son&#8217;s therapy cut short.  But, I think, for those parents desperate enough seeing those words are all they need to believe their child is recovering.</p>
<p>Meanwhile, I&#8217;ve watched my son progress and develop at a pace comfortable for him.  He&#8217;s had speech and OT with awesome therapists, a wonderful education system with dedicated teachers, and the love and support from everyone around him.</p>
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		<title>By: bullet</title>
		<link>http://leftbrainrightbrain.co.uk/2008/09/mother-warriors-the-cost/#comment-53405</link>
		<dc:creator>bullet</dc:creator>
		<pubDate>Sun, 28 Sep 2008 10:03:14 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=1428#comment-53405</guid>
		<description>In the first quote, if the witer is going to talk about her child&#039;s progress then it would help if she didn&#039;t include things that would be considered perfectly normal for any under three year old. Plenty of under threes are still in nappies. Plenty of under threes engage in repetitive behaviours. Plenty of under threes aren&#039;t interested or know their shapes, colours etc.  Yes, some of those children will be autistic, but the vast majority won&#039;t be.</description>
		<content:encoded><![CDATA[<p>In the first quote, if the witer is going to talk about her child&#8217;s progress then it would help if she didn&#8217;t include things that would be considered perfectly normal for any under three year old. Plenty of under threes are still in nappies. Plenty of under threes engage in repetitive behaviours. Plenty of under threes aren&#8217;t interested or know their shapes, colours etc.  Yes, some of those children will be autistic, but the vast majority won&#8217;t be.</p>
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		<title>By: Ms. Clark</title>
		<link>http://leftbrainrightbrain.co.uk/2008/09/mother-warriors-the-cost/#comment-53385</link>
		<dc:creator>Ms. Clark</dc:creator>
		<pubDate>Fri, 26 Sep 2008 19:04:00 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=1428#comment-53385</guid>
		<description>My favorite quote from Mark Blaxill in a transcript from an IOM meeting on autism and the &quot;environment&quot;

&lt;blockquote cite=&quot;&quot;&gt;I’m sure that 50 percent of the therapies that we are trying are absolutely worthless. I just 
don’t know which 50 percent, ...&lt;/blockquote&gt;

I have a feeling that Blaxill has tried all of those 150 treatments on Stan&#039;s list.  But I doubt he would share which half he thinks were worthless for his daughter.  

What&#039;s funny is that the children of the activists aren&#039;t cured, and frequently the activists have had the best of the best of the DAN! dox supervising their kid&#039;s &quot;recovery&quot;.  Bradstreet supposedly was Lenny Schafer&#039;s kid&#039;s doctor.  Lenny used to have a statement on his SAR website that Bradstreet was treating Lenny&#039;s son for free.  It was like the statement was the payment to Bradstreet for seeing Lenny&#039;s son... though maybe all the consultations took place in absentia, like over the phone.  

The activist parents who have a cured kid show up out of nowhere with the cured kid, like Julia Berle with Baxter, and Jenny McYeasty with Evan.  They aren&#039;t moms who have a public history of what they were doing to cure their kid like many of the mercury parents.  It&#039;s possible to document what some of them have tried and when and what they thought the results were by looking at Internet bulletin boards.  It&#039;s fun to do because you can find all these contradictions in what they claimed their kid was doing at a particular time.

&lt;a href=&quot;http://autismdiva.blogspot.com/2007/08/dr-amy-holmes-and-mikes-story.html&quot; rel=&quot;nofollow&quot;&gt;
Dr. Amy Holmes is a good example of that.  &lt;/a&gt;

And of course if you look at what Jenny McAirhead has been claiming about her son it changes from month to month whether or not he is &quot;recovered&quot; and what &quot;recovered&quot; means, and it&#039;s vague for whom recovery is possible.  So it&#039;s like you have to start immediately &quot;working your a** off&quot; according to Jenny and spend a gajillion dollars even if you don&#039;t have it (did anyone else picture Marie Antoinette and &quot;Then let them eat cake&quot;?), because the window is closing and you have to reach through and drag your baby out of the window... but then even though the window is closing fast and you have to hurry before it&#039;s shut, it never shuts because you can&#039;t give up hope for the older kids whose parents never hit on the right combo of junk to drag their kid through that window!</description>
		<content:encoded><![CDATA[<p>My favorite quote from Mark Blaxill in a transcript from an <span class="caps">IOM</span> meeting on autism and the &#8220;environment&#8221;</p>
<p>
<blockquote cite="">I&#8217;m sure that 50 percent of the therapies that we are trying are absolutely worthless. I just<br />
don&#8217;t know which 50 percent, ...</p></blockquote>
<p>I have a feeling that Blaxill has tried all of those 150 treatments on Stan&#8217;s list.  But I doubt he would share which half he thinks were worthless for his daughter.</p>
<p>What&#8217;s funny is that the children of the activists aren&#8217;t cured, and frequently the activists have had the best of the best of the <span class="caps">DAN</span>! dox supervising their kid&#8217;s &#8220;recovery&#8221;.  Bradstreet supposedly was Lenny Schafer&#8217;s kid&#8217;s doctor.  Lenny used to have a statement on his <span class="caps">SAR</span> website that Bradstreet was treating Lenny&#8217;s son for free.  It was like the statement was the payment to Bradstreet for seeing Lenny&#8217;s son&#8230; though maybe all the consultations took place in absentia, like over the phone.</p>
<p>The activist parents who have a cured kid show up out of nowhere with the cured kid, like Julia Berle with Baxter, and Jenny McYeasty with Evan.  They aren&#8217;t moms who have a public history of what they were doing to cure their kid like many of the mercury parents.  It&#8217;s possible to document what some of them have tried and when and what they thought the results were by looking at Internet bulletin boards.  It&#8217;s fun to do because you can find all these contradictions in what they claimed their kid was doing at a particular time.</p>
<p><a href="http://autismdiva.blogspot.com/2007/08/dr-amy-holmes-and-mikes-story.html" rel="nofollow"><br />
Dr. Amy Holmes is a good example of that.  </a></p>
<p>And of course if you look at what Jenny McAirhead has been claiming about her son it changes from month to month whether or not he is &#8220;recovered&#8221; and what &#8220;recovered&#8221; means, and it&#8217;s vague for whom recovery is possible.  So it&#8217;s like you have to start immediately &#8220;working your a** off&#8221; according to Jenny and spend a gajillion dollars even if you don&#8217;t have it (did anyone else picture Marie Antoinette and &#8220;Then let them eat cake&#8221;?), because the window is closing and you have to reach through and drag your baby out of the window&#8230; but then even though the window is closing fast and you have to hurry before it&#8217;s shut, it never shuts because you can&#8217;t give up hope for the older kids whose parents never hit on the right combo of junk to drag their kid through that window!</p>
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		<title>By: Kev</title>
		<link>http://leftbrainrightbrain.co.uk/2008/09/mother-warriors-the-cost/#comment-53381</link>
		<dc:creator>Kev</dc:creator>
		<pubDate>Fri, 26 Sep 2008 18:02:50 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=1428#comment-53381</guid>
		<description>&lt;blockquote cite=&quot;&quot; &gt;But that one line, about the child’s teachers and therapists “being amazed by his unprecedented progress?” Well, I call bull on that.&lt;/blockquote&gt;

Its part of every single &#039;recovery&#039; story I&#039;ve ever heard. The US must be full of constantly amazed teachers.

Alyric - Stan&#039;s dyslexic so we can let him off that one ;) but the Lupron protocol - yeah, I forgot about that.</description>
		<content:encoded><![CDATA[<p>
<blockquote cite="" >But that one line, about the child&#8217;s teachers and therapists &#8220;being amazed by his unprecedented progress?&#8221; Well, I call bull on that.</p></blockquote>
<p>Its part of every single &#8216;recovery&#8217; story I&#8217;ve ever heard. The US must be full of constantly amazed teachers.</p>
<p>Alyric &#8211; Stan&#8217;s dyslexic so we can let him off that one ;) but the Lupron protocol &#8211; yeah, I forgot about that.</p>
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		<title>By: alyric</title>
		<link>http://leftbrainrightbrain.co.uk/2008/09/mother-warriors-the-cost/#comment-53379</link>
		<dc:creator>alyric</dc:creator>
		<pubDate>Fri, 26 Sep 2008 17:30:05 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=1428#comment-53379</guid>
		<description>Sully

Stan Kurtz&#039; list does not contain the Lupron protocol.  Since upward of 800 autistic kids have been subjected to this barbaric treatment (more so than chelation), the omission is serious.  Perhaps Stan could rectify that before circulating the list further.   Might also be an idea to fix the misspellings.</description>
		<content:encoded><![CDATA[<p>Sully</p>
<p>Stan Kurtz&#8217; list does not contain the Lupron protocol.  Since upward of 800 autistic kids have been subjected to this barbaric treatment (more so than chelation), the omission is serious.  Perhaps Stan could rectify that before circulating the list further.   Might also be an idea to fix the misspellings.</p>
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		<title>By: Bink</title>
		<link>http://leftbrainrightbrain.co.uk/2008/09/mother-warriors-the-cost/#comment-53377</link>
		<dc:creator>Bink</dc:creator>
		<pubDate>Fri, 26 Sep 2008 16:30:03 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=1428#comment-53377</guid>
		<description>Same for us. What is described is just normal, natural progress for an autistic child. But that one line, about the child&#039;s teachers and therapists &quot;being amazed by his unprecedented progress?&quot; Well, I call bull on that. Any teacher or therapist would have seen exactly what that mother describes over and over, if it really is a mother and not a DAN&#039;s secretary being paid overtime to generate internet personae on her lunch break. &quot;Unprecedented&quot; my behind.</description>
		<content:encoded><![CDATA[<p>Same for us. What is described is just normal, natural progress for an autistic child. But that one line, about the child&#8217;s teachers and therapists &#8220;being amazed by his unprecedented progress?&#8221; Well, I call bull on that. Any teacher or therapist would have seen exactly what that mother describes over and over, if it really is a mother and not a <span class="caps">DAN</span>&#8217;s secretary being paid overtime to generate internet personae on her lunch break. &#8220;Unprecedented&#8221; my behind.</p>
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		<title>By: Bunny</title>
		<link>http://leftbrainrightbrain.co.uk/2008/09/mother-warriors-the-cost/#comment-53371</link>
		<dc:creator>Bunny</dc:creator>
		<pubDate>Fri, 26 Sep 2008 12:41:54 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=1428#comment-53371</guid>
		<description>Same for us, Judi. My son is now showing interest in other kids, has an easier time getting &quot;unstuck&quot; from a perseveration, goes on &quot;playdates,&quot; etc. None of this was happening a year ago. But in the last year we have not changed a thing. He can eat anything the rest of us eat, he sees a regular pediatrician once a year for the standard well visit, and is only getting the therapies (OT and speech) that the school system provides (we can&#039;t afford any private therapies).

My son was diagnosed a year ago by a developmental pediatrician who told us that, although our son&#039;s development was going to be different from that of a typical kid, he would certainly continue to develop and &quot;improve&quot; with time. Now, if we&#039;d seen a DAN doctor instead, I assume we would have been told our child would need supplements, treatments of all kinds, etc., in order to &quot;improve.&quot;</description>
		<content:encoded><![CDATA[<p>Same for us, Judi. My son is now showing interest in other kids, has an easier time getting &#8220;unstuck&#8221; from a perseveration, goes on &#8220;playdates,&#8221; etc. None of this was happening a year ago. But in the last year we have not changed a thing. He can eat anything the rest of us eat, he sees a regular pediatrician once a year for the standard well visit, and is only getting the therapies (OT and speech) that the school system provides (we can&#8217;t afford any private therapies).</p>
<p>My son was diagnosed a year ago by a developmental pediatrician who told us that, although our son&#8217;s development was going to be different from that of a typical kid, he would certainly continue to develop and &#8220;improve&#8221; with time. Now, if we&#8217;d seen a <span class="caps">DAN</span> doctor instead, I assume we would have been told our child would need supplements, treatments of all kinds, etc., in order to &#8220;improve.&#8221; </p>
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		<title>By: Judi</title>
		<link>http://leftbrainrightbrain.co.uk/2008/09/mother-warriors-the-cost/#comment-53370</link>
		<dc:creator>Judi</dc:creator>
		<pubDate>Fri, 26 Sep 2008 11:52:00 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=1428#comment-53370</guid>
		<description>That story of &quot;recovery&quot; sounds A LOT like my Andrew&#039;s progress over the last 2 years.
This amazing progress is attributed to old fashioned government funded SLP and OT, the dedication and patience of his wonderful therapists Rachel and Terri, and an infinite amount of love from all the people in his life.  I find it just as amazing as you that people with loaded bank accounts can dare tell me how to spend my money, particularly when I don&#039;t have any, lol.</description>
		<content:encoded><![CDATA[<p>That story of &#8220;recovery&#8221; sounds <span class="caps">A LOT</span> like my Andrew&#8217;s progress over the last 2 years.<br />
This amazing progress is attributed to old fashioned government funded <span class="caps">SLP</span> and OT, the dedication and patience of his wonderful therapists Rachel and Terri, and an infinite amount of love from all the people in his life.  I find it just as amazing as you that people with loaded bank accounts can dare tell me how to spend my money, particularly when I don&#8217;t have any, lol.</p>
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