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	<title>Comments on: Lupron called &#8216;Junk Science&#8217;</title>
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	<description>Autism news and opinion</description>
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		<title>By: Sullivan</title>
		<link>http://leftbrainrightbrain.co.uk/2009/05/lupron-called-junk-science/#comment-59297</link>
		<dc:creator>Sullivan</dc:creator>
		<pubDate>Thu, 25 Jun 2009 21:16:41 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=2378#comment-59297</guid>
		<description>&lt;blockquote&gt;Is there a comment caught in the spam queue by chance?&lt;/blockquote&gt;


Not any more!</description>
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<blockquote>Is there a comment caught in the spam queue by chance?</p></blockquote>
<p>Not any more!</p>
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		<title>By: Joseph</title>
		<link>http://leftbrainrightbrain.co.uk/2009/05/lupron-called-junk-science/#comment-59296</link>
		<dc:creator>Joseph</dc:creator>
		<pubDate>Thu, 25 Jun 2009 20:33:04 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=2378#comment-59296</guid>
		<description>Is there a comment caught in the spam queue by chance? 

Anyway, the gist of it was that if you simply search &quot;pink disease mercury&quot; or &quot;acrodynia mercury&quot; prior to 1960 over at Google Scholar, you&#039;ll see that the Yahoo poster&#039;s &quot;tale&quot; is just that - a tale, one with no basis in reality.</description>
		<content:encoded><![CDATA[<p>Is there a comment caught in the spam queue by chance?</p>
<p>Anyway, the gist of it was that if you simply search &#8220;pink disease mercury&#8221; or &#8220;acrodynia mercury&#8221; prior to 1960 over at Google Scholar, you&#8217;ll see that the Yahoo poster&#8217;s &#8220;tale&#8221; is just that &#8211; a tale, one with no basis in reality.</p>
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		<title>By: calliarcale</title>
		<link>http://leftbrainrightbrain.co.uk/2009/05/lupron-called-junk-science/#comment-59293</link>
		<dc:creator>calliarcale</dc:creator>
		<pubDate>Thu, 25 Jun 2009 18:07:42 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=2378#comment-59293</guid>
		<description>I know we&#039;ve gone on into discussions of mercury, but I just wanted to address one thing the Yahoo! posted had to say, to give him some more useful information.

&quot;I also learned, according to the national institute of health, by the way, that celiac disease is associated with epilepsy, lupus, lymphoma, thyroid problems and a bunch of other stuff. Since my grandmother died from complications from late-diagnosed celiac disease, her brother died in an institution due to epilepsy, my dad died of lymphoma, I (and an aunt, a cousin, and my grandmother) have thyroid problems and my dad’s sister has lupus, yeah, I pretty much went gluten free right away because at that point it seemed kind of obvious that my family is allergic to gluten.&quot;

If there is celiac disease in your family, it is a good idea to learn more about it.  One of the first things you need to learn is that it is *not* an allergy.  It&#039;s an autoimmune disorder, and allergies are also autoimmune disorders, but it&#039;s more complex than your typical histamine reaction.  Rather than a systemic reaction as in the case of, say, your typical nut allergy, the reaction in celiac sprue is confined to the villi of the small intestine.  They get relentlessly attacked by antibodies.  The damage leads to varying degrees of gut problems, which usually resolve just fine once gluten is removed from the diet.  But since this is usually the only symptom, it can go undiagnosed for a long time, especially if the person has a relatively mild case.  (Some can tolerate oats, and just get bowel discomfort if they eat wheat.  Others end up with a completely shut-down digestive tract from the slightest bit of gluten.)

The reason celiac disease is connected to those other things is because it is an autoimmune disorder, and those can definitely run in families.  They can be hard to diagnose, so while I wouldn&#039;t stay up at nights worrying about them, it might help your doctor diagnose one more quickly if they know there&#039;s a family history.

Oh, and about going gluten-free?  You may already know this, but in case you don&#039;t, be warned that it can be harder to avoid gluten than it looks.  It&#039;s not just bread that you have to worry about.  Whiskeys and most beers are problematic.

Read these for some more information:
http://emedicine.medscape.com/article/171805-overview
http://www.csaceliacs.org/</description>
		<content:encoded><![CDATA[<p>I know we&#8217;ve gone on into discussions of mercury, but I just wanted to address one thing the Yahoo! posted had to say, to give him some more useful information.</p>
<p>&#8220;I also learned, according to the national institute of health, by the way, that celiac disease is associated with epilepsy, lupus, lymphoma, thyroid problems and a bunch of other stuff. Since my grandmother died from complications from late-diagnosed celiac disease, her brother died in an institution due to epilepsy, my dad died of lymphoma, I (and an aunt, a cousin, and my grandmother) have thyroid problems and my dad&#8217;s sister has lupus, yeah, I pretty much went gluten free right away because at that point it seemed kind of obvious that my family is allergic to gluten.&#8221;</p>
<p>If there is celiac disease in your family, it is a good idea to learn more about it.  One of the first things you need to learn is that it is <strong>not</strong> an allergy.  It&#8217;s an autoimmune disorder, and allergies are also autoimmune disorders, but it&#8217;s more complex than your typical histamine reaction.  Rather than a systemic reaction as in the case of, say, your typical nut allergy, the reaction in celiac sprue is confined to the villi of the small intestine.  They get relentlessly attacked by antibodies.  The damage leads to varying degrees of gut problems, which usually resolve just fine once gluten is removed from the diet.  But since this is usually the only symptom, it can go undiagnosed for a long time, especially if the person has a relatively mild case.  (Some can tolerate oats, and just get bowel discomfort if they eat wheat.  Others end up with a completely shut-down digestive tract from the slightest bit of gluten.)</p>
<p>The reason celiac disease is connected to those other things is because it is an autoimmune disorder, and those can definitely run in families.  They can be hard to diagnose, so while I wouldn&#8217;t stay up at nights worrying about them, it might help your doctor diagnose one more quickly if they know there&#8217;s a family history.</p>
<p>Oh, and about going gluten-free?  You may already know this, but in case you don&#8217;t, be warned that it can be harder to avoid gluten than it looks.  It&#8217;s not just bread that you have to worry about.  Whiskeys and most beers are problematic.</p>
<p>Read these for some more information:<br />
<a href="http://emedicine.medscape.com/article/171805-overview" rel="nofollow">http://emedicine.medscape.com/.....5-overview</a><br />
<a href="http://www.csaceliacs.org/" rel="nofollow">http://www.csaceliacs.org/</a></p>
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		<title>By: Sullivan</title>
		<link>http://leftbrainrightbrain.co.uk/2009/05/lupron-called-junk-science/#comment-59292</link>
		<dc:creator>Sullivan</dc:creator>
		<pubDate>Thu, 25 Jun 2009 17:48:59 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=2378#comment-59292</guid>
		<description>glad to only have to read the abbreviated version.  While, yes, the teething powders were a very bad mistake that hurt people, the rest of your post is a terrible stretch.   Sorry, when the history is written, Pink Disease will be in the chapter of &quot;here&#039;s a product that hurt people&quot; and thimerosal in vaccines will be in the chapter of &quot;another failed theory as to why the autism rates were climbing&quot;.</description>
		<content:encoded><![CDATA[<p>glad to only have to read the abbreviated version.  While, yes, the teething powders were a very bad mistake that hurt people, the rest of your post is a terrible stretch.   Sorry, when the history is written, Pink Disease will be in the chapter of &#8220;here&#8217;s a product that hurt people&#8221; and thimerosal in vaccines will be in the chapter of &#8220;another failed theory as to why the autism rates were climbing&#8221;.</p>
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		<title>By: Joseph</title>
		<link>http://leftbrainrightbrain.co.uk/2009/05/lupron-called-junk-science/#comment-59291</link>
		<dc:creator>Joseph</dc:creator>
		<pubDate>Thu, 25 Jun 2009 15:02:41 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=2378#comment-59291</guid>
		<description>&lt;blockquote&gt;I found this an astonishing tale and wondered that anyone in favor of keeping thimerosal in vaccines would point to this as any sort of evidence in their favor.&lt;/blockquote&gt;

It is an astonishing tale. Like most altie tales, it appears to be mostly revised and exaggerated. It&#039;s kind of like the tale that scientific evidence favored the tobacco companies. 

Let&#039;s see evidence that scientific consensus was against the mercury etiology of pink disease, for example. If you simply search Google Scholar for &quot;&lt;a href=&quot;http://scholar.google.com/scholar?q=pink+disease+mercury&amp;hl=en&amp;lr=&amp;as_yhi=1960&amp;start=10&amp;sa=N&quot; rel=&quot;nofollow&quot;&gt;pink disease mercury&lt;/a&gt;&quot; prior to, say, the year 1960, it&#039;s clear that mainstream science was on the case.

It&#039;s a poor historical analogy for other reasons. The main difference is that pink disease mostly went away after removal of mercury from teething powders. Additionally, medical findings in pink disease are completely consistent with mercury poisoning.</description>
		<content:encoded><![CDATA[<p>
<blockquote>I found this an astonishing tale and wondered that anyone in favor of keeping thimerosal in vaccines would point to this as any sort of evidence in their favor.</p></blockquote>
<p>It is an astonishing tale. Like most altie tales, it appears to be mostly revised and exaggerated. It&#8217;s kind of like the tale that scientific evidence favored the tobacco companies.</p>
<p>Let&#8217;s see evidence that scientific consensus was against the mercury etiology of pink disease, for example. If you simply search Google Scholar for &#8220;<a href="http://scholar.google.com/scholar?q=pink+disease+mercury&#038;hl=en&#038;lr=&#038;as_yhi=1960&#038;start=10&#038;sa=N" rel="nofollow">pink disease mercury</a>&#8221; prior to, say, the year 1960, it&#8217;s clear that mainstream science was on the case.</p>
<p>It&#8217;s a poor historical analogy for other reasons. The main difference is that pink disease mostly went away after removal of mercury from teething powders. Additionally, medical findings in pink disease are completely consistent with mercury poisoning.</p>
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		<title>By: me.yahoo.com/a/qc5d7PVsi_L65oE9VDybWB6V</title>
		<link>http://leftbrainrightbrain.co.uk/2009/05/lupron-called-junk-science/#comment-59290</link>
		<dc:creator>me.yahoo.com/a/qc5d7PVsi_L65oE9VDybWB6V</dc:creator>
		<pubDate>Thu, 25 Jun 2009 11:52:21 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=2378#comment-59290</guid>
		<description>I just lost a very lengthy and if I may say so myself very interesting post (self-deprecating laughter), lucky for you I am now forced to give you the abbreviated version:  sorry I dropped out of this debate, life and all that, you know; I found the story of pink disease to be astonishing indeed when I read it -- it is the story of a medical mystery in which industry, pharmacists and conventional medicine fought to keep dangerous chemical powders on the market and unconventional doctors chelated patients without having done a double-blind controlled trial, children who had pink disease but no history of mercury exposure, thousands of children using the powders without developing pink disease, and in the end, only a jury of laypeople in a court of law finally ruled that the powders did indeed cause the pink disease.  It was not the industry, nor the conventional doctors, nor the conventional scientists, nor the government who finally took the powders off the market.  I found this an astonishing tale and wondered that anyone in favor of keeping thimerosal in vaccines would point to this as any sort of evidence in their favor.</description>
		<content:encoded><![CDATA[<p>I just lost a very lengthy and if I may say so myself very interesting post (self-deprecating laughter), lucky for you I am now forced to give you the abbreviated version:  sorry I dropped out of this debate, life and all that, you know; I found the story of pink disease to be astonishing indeed when I read it&#8212;it is the story of a medical mystery in which industry, pharmacists and conventional medicine fought to keep dangerous chemical powders on the market and unconventional doctors chelated patients without having done a double-blind controlled trial, children who had pink disease but no history of mercury exposure, thousands of children using the powders without developing pink disease, and in the end, only a jury of laypeople in a court of law finally ruled that the powders did indeed cause the pink disease.  It was not the industry, nor the conventional doctors, nor the conventional scientists, nor the government who finally took the powders off the market.  I found this an astonishing tale and wondered that anyone in favor of keeping thimerosal in vaccines would point to this as any sort of evidence in their favor.</p>
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		<title>By: dr treg</title>
		<link>http://leftbrainrightbrain.co.uk/2009/05/lupron-called-junk-science/#comment-59199</link>
		<dc:creator>dr treg</dc:creator>
		<pubDate>Sun, 07 Jun 2009 00:26:33 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=2378#comment-59199</guid>
		<description>The drug companies must have known about the difference between EPA and FDA mercury exposure standards when designing their drugs. They also have details of adverse reactions after the initial thiomersal immunisations were introduced in clinical trials in humans.
Why were the drug companies allowed to introduce treatments which included mercury above the EPA recommendations in the first place?
&quot;The FDA noted that while the vaccination schedule at that time might have exceeded EPA standards for mercury exposure during the first 6 months of life, it did not exceed those of the FDA&quot;
http://en.wikipedia.org/wiki/Thiomersal_controversy
Why do the FDA and EPA disagree on mercury exposure standards?
Who really knows what to believe regarding mercury and the inflamed autistic brain?
&quot;2007 - In February, the U.S. National Institute of Mental Health (NIMH) halted an experiment that gave the chelating agent DMSA to children with autism whose blood had detectable but nontoxic mercury or lead. The experiment, by Susan Swedo, head of autism research at NIMH, had begun in September 2006 but was halted after a 2007 report showed that chelating agents could cause cognitive problems in rats; Swedo decided that NIMH&#039;s limited resources were better focused on a different experiment involving minocycline in children with regressive autism. Critics said the chelation experiment posed a risk to children for what is sure to be no medical gain for them; proponents said the therapy is in broad use and the experiment would provide scientific evidence about any benefits or dangers.[55]&quot;
Doesnt minocycline cause enamel defects in children? Chelation treatment continues so why not perform a double-blind controlled clinical trial?</description>
		<content:encoded><![CDATA[<p>The drug companies must have known about the difference between <span class="caps">EPA</span> and <span class="caps">FDA</span> mercury exposure standards when designing their drugs. They also have details of adverse reactions after the initial thiomersal immunisations were introduced in clinical trials in humans.<br />
Why were the drug companies allowed to introduce treatments which included mercury above the <span class="caps">EPA</span> recommendations in the first place?<br />
&#8220;The <span class="caps">FDA</span> noted that while the vaccination schedule at that time might have exceeded <span class="caps">EPA</span> standards for mercury exposure during the first 6 months of life, it did not exceed those of the <span class="caps">FDA</span>&#8221;<br />
<a href="http://en.wikipedia.org/wiki/Thiomersal_controversy" rel="nofollow">http://en.wikipedia.org/wiki/T.....ontroversy</a><br />
Why do the <span class="caps">FDA</span> and <span class="caps">EPA</span> disagree on mercury exposure standards?<br />
Who really knows what to believe regarding mercury and the inflamed autistic brain?<br />
&#8220;2007 &#8211; In February, the U.S. National Institute of Mental Health (NIMH) halted an experiment that gave the chelating agent <span class="caps">DMSA</span> to children with autism whose blood had detectable but nontoxic mercury or lead. The experiment, by Susan Swedo, head of autism research at <span class="caps">NIMH</span>, had begun in September 2006 but was halted after a 2007 report showed that chelating agents could cause cognitive problems in rats; Swedo decided that <span class="caps">NIMH</span>&#8217;s limited resources were better focused on a different experiment involving minocycline in children with regressive autism. Critics said the chelation experiment posed a risk to children for what is sure to be no medical gain for them; proponents said the therapy is in broad use and the experiment would provide scientific evidence about any benefits or dangers.[55]&#8221;<br />
Doesnt minocycline cause enamel defects in children? Chelation treatment continues so why not perform a double-blind controlled clinical trial?</p>
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		<title>By: Dawn</title>
		<link>http://leftbrainrightbrain.co.uk/2009/05/lupron-called-junk-science/#comment-59195</link>
		<dc:creator>Dawn</dc:creator>
		<pubDate>Sat, 06 Jun 2009 21:29:25 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=2378#comment-59195</guid>
		<description>@Sullivan:  guess I wasn&#039;t clear regarding the porphyrins paper (or I was typing while distracted with work...either way I wasn&#039;t clear as to my thinking).  I meant only that the porphyrins testing might be a useful screening test to identify those who might need the more specific and accurate diagnostic testing.  In medical thought, a general screening test can be used on a large population to identify the smaller population that needs more specific testing.  For example:  most women get mammograms after a certain age.  If the mammogram (a screening test) finds something that appears abnormal, the woman undergoes additional testing, for example, an ultrasound or a needle biopsy, to determine what the abnormal finding actually represents.  It might be a normal variation or it might be cancer.  The mammogram doesn&#039;t differentiate (as a sceenting test, it has a fair amount of false positives) but the diagnostic testing does.  If what I wrote said otherwise and confused people, I apologize.  

As for the dentists error..my bad.  I misread the information about what type of mercury dentists used when I checked.  I blush in shame and admit that chemistry is not one of my stronger subjects.  Thanks for the correction.

Back to the coal mines.</description>
		<content:encoded><![CDATA[<p>@Sullivan:  guess I wasn&#8217;t clear regarding the porphyrins paper (or I was typing while distracted with work&#8230;either way I wasn&#8217;t clear as to my thinking).  I meant only that the porphyrins testing might be a useful screening test to identify those who might need the more specific and accurate diagnostic testing.  In medical thought, a general screening test can be used on a large population to identify the smaller population that needs more specific testing.  For example:  most women get mammograms after a certain age.  If the mammogram (a screening test) finds something that appears abnormal, the woman undergoes additional testing, for example, an ultrasound or a needle biopsy, to determine what the abnormal finding actually represents.  It might be a normal variation or it might be cancer.  The mammogram doesn&#8217;t differentiate (as a sceenting test, it has a fair amount of false positives) but the diagnostic testing does.  If what I wrote said otherwise and confused people, I apologize.</p>
<p>As for the dentists error..my bad.  I misread the information about what type of mercury dentists used when I checked.  I blush in shame and admit that chemistry is not one of my stronger subjects.  Thanks for the correction.</p>
<p>Back to the coal mines.</p>
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		<title>By: xpressionsbydesign</title>
		<link>http://leftbrainrightbrain.co.uk/2009/05/lupron-called-junk-science/#comment-59194</link>
		<dc:creator>xpressionsbydesign</dc:creator>
		<pubDate>Sat, 06 Jun 2009 21:02:20 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=2378#comment-59194</guid>
		<description>I agree with the writer above who said he was depressed after reading the amount of discourse when it comes to differing opinions on the causes and treatments of autism.  I&#039;ve read most of the posts in this topic and wonder if the point of it all is to make parents of children with autism (newly diagnosed and beyond) completely hopeless.  I&#039;ve read that DAN doctors are a crock, biomedical makes no sense, hyperbaric oxygen is a waste of money and that there is absolutely no connection between mercury in vaccinations and autism.  

That one is truly baffling because mercury in everything else is considered toxic (dental fillings, tuna) - I&#039;m no scientist, but how is a substance potentially toxic in one thing and not another? Is it the amount of mercury as in a little won&#039;t kill you or make you sick? How about the size of the person ingesting the mercury, infants - can they take all amounts safely?  How about medically fragile babies - same question? I would also not be so skeptical if there wasn&#039;t so much money tied to removing blame from vaccine companies.  Also, how about the work of Robert Kennedy Jr - is he also full of it?  And the vaccine injury court that awarded damages to 2 families in the last year - they just gave up and went along?  I&#039;m not trying to incite, but there does seem to be some conflicts in thinking.  

So if everything biomedical is wrong or a waste of time, how do I explain the gastrointestinal distress my son continues to have? Do I continue to rely on ABA, TEACH, Floortime, RDI, Social Thinking and the countless other behavioral interventions available?  Believe me you can go just as broke relying on those approaches too also with little or no scientific justification.  Or do I just give up because they&#039;re all crooks preying on the desperation of parents with too little time and not enough support?  

The internet can be a wonderful thing, bringing people together to share information and support.  It can also be a cold heartless place reminding us all the time how truly screwed up this world is.  

Autism is a complex disorder - too complex to explain on line.  The children with autism are also so different that to say that one thing based on your understanding and your child is true for all others.  I just wish that I could find that voice of reason, like the writer above, who is above reproach that would take the time to understand my child&#039;s particular brand of autism and make recommendations that I could believe in and as a bonus - I wouldn&#039;t have to go bankrupt in the process.</description>
		<content:encoded><![CDATA[<p>I agree with the writer above who said he was depressed after reading the amount of discourse when it comes to differing opinions on the causes and treatments of autism.  I&#8217;ve read most of the posts in this topic and wonder if the point of it all is to make parents of children with autism (newly diagnosed and beyond) completely hopeless.  I&#8217;ve read that <span class="caps">DAN</span> doctors are a crock, biomedical makes no sense, hyperbaric oxygen is a waste of money and that there is absolutely no connection between mercury in vaccinations and autism.</p>
<p>That one is truly baffling because mercury in everything else is considered toxic (dental fillings, tuna) &#8211; I&#8217;m no scientist, but how is a substance potentially toxic in one thing and not another? Is it the amount of mercury as in a little won&#8217;t kill you or make you sick? How about the size of the person ingesting the mercury, infants &#8211; can they take all amounts safely?  How about medically fragile babies &#8211; same question? I would also not be so skeptical if there wasn&#8217;t so much money tied to removing blame from vaccine companies.  Also, how about the work of Robert Kennedy Jr &#8211; is he also full of it?  And the vaccine injury court that awarded damages to 2 families in the last year &#8211; they just gave up and went along?  I&#8217;m not trying to incite, but there does seem to be some conflicts in thinking.</p>
<p>So if everything biomedical is wrong or a waste of time, how do I explain the gastrointestinal distress my son continues to have? Do I continue to rely on <span class="caps">ABA</span>, TEACH, Floortime, <span class="caps">RDI</span>, Social Thinking and the countless other behavioral interventions available?  Believe me you can go just as broke relying on those approaches too also with little or no scientific justification.  Or do I just give up because they&#8217;re all crooks preying on the desperation of parents with too little time and not enough support?</p>
<p>The internet can be a wonderful thing, bringing people together to share information and support.  It can also be a cold heartless place reminding us all the time how truly screwed up this world is.</p>
<p>Autism is a complex disorder &#8211; too complex to explain on line.  The children with autism are also so different that to say that one thing based on your understanding and your child is true for all others.  I just wish that I could find that voice of reason, like the writer above, who is above reproach that would take the time to understand my child&#8217;s particular brand of autism and make recommendations that I could believe in and as a bonus &#8211; I wouldn&#8217;t have to go bankrupt in the process.</p>
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		<title>By: dr treg</title>
		<link>http://leftbrainrightbrain.co.uk/2009/05/lupron-called-junk-science/#comment-59192</link>
		<dc:creator>dr treg</dc:creator>
		<pubDate>Sat, 06 Jun 2009 00:50:29 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=2378#comment-59192</guid>
		<description>Anaphylactoid reaction is an extreme idiosyncratic immunogenic response - maybe there are less severe idiosyncratic immunogenic responses in genetically predisposed people.</description>
		<content:encoded><![CDATA[<p>Anaphylactoid reaction is an extreme idiosyncratic immunogenic response &#8211; maybe there are less severe idiosyncratic immunogenic responses in genetically predisposed people.</p>
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