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	<title>Comments on: Eric London resigns from Autism Speaks</title>
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	<link>http://leftbrainrightbrain.co.uk/2009/07/eric-london-resigns-from-autism-speaks/</link>
	<description>Autism news and opinion</description>
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		<title>By: calliarcale</title>
		<link>http://leftbrainrightbrain.co.uk/2009/07/eric-london-resigns-from-autism-speaks/#comment-59509</link>
		<dc:creator>calliarcale</dc:creator>
		<pubDate>Tue, 14 Jul 2009 20:02:10 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=2560#comment-59509</guid>
		<description>ranjansen088, you say that the neurodiversity folks trivialize a profoundly handicapping disorder, but then go on to say that your experience with autism is having a child with PDD-NOS who is now grown and no longer qualifies for the diagnosis.  I also have a child with PDD-NOS who is expected to do the same, though at age 5, she has a long ways to go obviously.  I&#039;m glad for you and your daughter, but I think *you* trivialize how profoundly handicapping autism is if you think your experience is representative.  PDD-NOS isn&#039;t even on the spectrum; it&#039;s just barely off it.  Some of the people you accuse of trivializing autism have children who will never be able to live independently.  By suggesting that you know better than they do, it is *you* who are trivializing autism.

Why would a genetic origin of autism be disrespectful?  How does it make the child &quot;defective&quot;?  I have a cousin with celiac sprue, a very clearly genetic disorder; I wouldn&#039;t dream of calling her defective.  Why would I think of an autistic child as defective?  They&#039;re not.  They&#039;re just different.  They think differently, they learn differently, and if we teach them differently, they can still have the same fair chance at those inalienable rights we hold so dear: life, liberty, and the pursuit of happiness.

Thing is, I don&#039;t understand the obsession with &quot;proving&quot; that autism isn&#039;t caused by genetics.  I think your choice of words is very revealing, though.  You can&#039;t seem to separate the words &quot;genetic&quot; and &quot;defective&quot;.  You don&#039;t want your daughter&#039;s condition to be genetic, because to you, that would imply she was defective.  Why?  Why is it somehow more palatable to believe her condition was an injury?  Why does the *manner* of the disability matter?  Isn&#039;t it more important that she is your daughter, and you love her, and you want her to achieve great things?

I think that prejudice against the disabled still has a long way to go, if we&#039;re still fighting words like &quot;defective&quot;.</description>
		<content:encoded><![CDATA[<p>ranjansen088, you say that the neurodiversity folks trivialize a profoundly handicapping disorder, but then go on to say that your experience with autism is having a child with <span class="caps">PDD</span>-NOS who is now grown and no longer qualifies for the diagnosis.  I also have a child with <span class="caps">PDD</span>-NOS who is expected to do the same, though at age 5, she has a long ways to go obviously.  I&#8217;m glad for you and your daughter, but I think <strong>you</strong> trivialize how profoundly handicapping autism is if you think your experience is representative.  <span class="caps">PDD</span>-NOS isn&#8217;t even on the spectrum; it&#8217;s just barely off it.  Some of the people you accuse of trivializing autism have children who will never be able to live independently.  By suggesting that you know better than they do, it is <strong>you</strong> who are trivializing autism.</p>
<p>Why would a genetic origin of autism be disrespectful?  How does it make the child &#8220;defective&#8221;?  I have a cousin with celiac sprue, a very clearly genetic disorder; I wouldn&#8217;t dream of calling her defective.  Why would I think of an autistic child as defective?  They&#8217;re not.  They&#8217;re just different.  They think differently, they learn differently, and if we teach them differently, they can still have the same fair chance at those inalienable rights we hold so dear: life, liberty, and the pursuit of happiness.</p>
<p>Thing is, I don&#8217;t understand the obsession with &#8220;proving&#8221; that autism isn&#8217;t caused by genetics.  I think your choice of words is very revealing, though.  You can&#8217;t seem to separate the words &#8220;genetic&#8221; and &#8220;defective&#8221;.  You don&#8217;t want your daughter&#8217;s condition to be genetic, because to you, that would imply she was defective.  Why?  Why is it somehow more palatable to believe her condition was an injury?  Why does the <strong>manner</strong> of the disability matter?  Isn&#8217;t it more important that she is your daughter, and you love her, and you want her to achieve great things?</p>
<p>I think that prejudice against the disabled still has a long way to go, if we&#8217;re still fighting words like &#8220;defective&#8221;.</p>
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		<title>By: Joseph</title>
		<link>http://leftbrainrightbrain.co.uk/2009/07/eric-london-resigns-from-autism-speaks/#comment-59382</link>
		<dc:creator>Joseph</dc:creator>
		<pubDate>Wed, 08 Jul 2009 21:52:11 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=2560#comment-59382</guid>
		<description>@RAJ: I find some of your views on autism, and opinions about some  autistic people, to be demeaning and insulting.</description>
		<content:encoded><![CDATA[<p>@RAJ: I find some of your views on autism, and opinions about some  autistic people, to be demeaning and insulting.</p>
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		<title>By: Sullivan</title>
		<link>http://leftbrainrightbrain.co.uk/2009/07/eric-london-resigns-from-autism-speaks/#comment-59373</link>
		<dc:creator>Sullivan</dc:creator>
		<pubDate>Wed, 08 Jul 2009 03:40:08 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=2560#comment-59373</guid>
		<description>I note that you are unable to abandon your straw men.  As you are well aware, I have acknowledged that autism is not only a genetic condition.

But, then again, I seem to recall you coming up with a poor argument against a recent genetic study.  I encouraged you to actually contact the author for clarification, and you quietly declined.  I had to do your work for you.   It would have been nice for you to acknowledge your mistake in that thread, rather than to quietly slink away.   Just as it would be nice for you to acknowledge your actions in this thread. Nice to have you back in the discussions again, though.  Don&#039;t be such a stranger.</description>
		<content:encoded><![CDATA[<p>I note that you are unable to abandon your straw men.  As you are well aware, I have acknowledged that autism is not only a genetic condition.</p>
<p>But, then again, I seem to recall you coming up with a poor argument against a recent genetic study.  I encouraged you to actually contact the author for clarification, and you quietly declined.  I had to do your work for you.   It would have been nice for you to acknowledge your mistake in that thread, rather than to quietly slink away.   Just as it would be nice for you to acknowledge your actions in this thread. Nice to have you back in the discussions again, though.  Don&#8217;t be such a stranger.</p>
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		<title>By: Sullivan</title>
		<link>http://leftbrainrightbrain.co.uk/2009/07/eric-london-resigns-from-autism-speaks/#comment-59372</link>
		<dc:creator>Sullivan</dc:creator>
		<pubDate>Wed, 08 Jul 2009 03:34:17 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=2560#comment-59372</guid>
		<description>&lt;blockquote&gt;The answer as I went to great lengths to explain is no, and your editorial comment is one you are now backing away from. Are you now willing to concede that Autism Speaks is doing more for autistics and their families than say ASAN.&lt;/blockquote&gt;

I am not backing away from anything.  

I made it very clear that I see ASAN doing more important work for autistics than ASAN.  I don&#039;t see why you feel the need to pretend otherwise.

If you believe that &quot;my crowd&quot; is rude, then take the high road.  Apologize.  When you find my approach rude, go ahead and call me out on it.  I don&#039;t apologize for other people, nor do I take credit for their successes.

I don&#039;t see any neurodiverse people using the word &quot;defective&quot;.  It is an attempt to be insulting, and, as I said before, it is intentional on your part.  You can rise above the muck or swim in it.  You appear to be choosing the latter.</description>
		<content:encoded><![CDATA[<p>
<blockquote>The answer as I went to great lengths to explain is no, and your editorial comment is one you are now backing away from. Are you now willing to concede that Autism Speaks is doing more for autistics and their families than say <span class="caps">ASAN</span>.</p></blockquote>
<p>I am not backing away from anything.</p>
<p>I made it very clear that I see <span class="caps">ASAN</span> doing more important work for autistics than <span class="caps">ASAN</span>.  I don&#8217;t see why you feel the need to pretend otherwise.</p>
<p>If you believe that &#8220;my crowd&#8221; is rude, then take the high road.  Apologize.  When you find my approach rude, go ahead and call me out on it.  I don&#8217;t apologize for other people, nor do I take credit for their successes.</p>
<p>I don&#8217;t see any neurodiverse people using the word &#8220;defective&#8221;.  It is an attempt to be insulting, and, as I said before, it is intentional on your part.  You can rise above the muck or swim in it.  You appear to be choosing the latter.</p>
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		<title>By: rajensen088</title>
		<link>http://leftbrainrightbrain.co.uk/2009/07/eric-london-resigns-from-autism-speaks/#comment-59371</link>
		<dc:creator>rajensen088</dc:creator>
		<pubDate>Wed, 08 Jul 2009 03:10:07 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=2560#comment-59371</guid>
		<description>Sullivan (my apologies to Kev) you wrote:

&quot;The big question is whether Autism Speaks is just another Vaccines-Cause-Autism organization but hiding under a cloak of science. If so, they should let the donors know so they can take their money elsewhere:.

The answer as I went to great lengths to explain is no, and your editorial comment is one you are now backing away from. Are you now willing to concede that Autism Speaks is doing more for autistics and their families than say ASAN. 

As far as rudeness is concerned, spare me. Your crowd routinely insults anyone not believing the neurodiversity drivel which continues to trivialize a profoundly handicaping disorder. The cause of autism is unkown and the majority of the ND crowd who believe autism is genetic are disrespecting autistic children and their families by claiming that autistic chidren are genetically defective therefore cannot be cured and continue searching for &#039;politically correct&#039; labels.

My daughter was diagnosed with PDDNOS and is a grown women cured of her problem , whatever it was, and yet your ilk dismiss her recovery by claiming she is just &#039;passing&#039; as normal which I find demeaning and insulting to her (that was Kristina Chew&#039;s comment about her recovery).</description>
		<content:encoded><![CDATA[<p>Sullivan (my apologies to Kev) you wrote:</p>
<p>&#8220;The big question is whether Autism Speaks is just another Vaccines-Cause-Autism organization but hiding under a cloak of science. If so, they should let the donors know so they can take their money elsewhere:.</p>
<p>The answer as I went to great lengths to explain is no, and your editorial comment is one you are now backing away from. Are you now willing to concede that Autism Speaks is doing more for autistics and their families than say <span class="caps">ASAN</span>.</p>
<p>As far as rudeness is concerned, spare me. Your crowd routinely insults anyone not believing the neurodiversity drivel which continues to trivialize a profoundly handicaping disorder. The cause of autism is unkown and the majority of the ND crowd who believe autism is genetic are disrespecting autistic children and their families by claiming that autistic chidren are genetically defective therefore cannot be cured and continue searching for &#8216;politically correct&#8217; labels.</p>
<p>My daughter was diagnosed with <span class="caps">PDDNOS</span> and is a grown women cured of her problem , whatever it was, and yet your ilk dismiss her recovery by claiming she is just &#8216;passing&#8217; as normal which I find demeaning and insulting to her (that was Kristina Chew&#8217;s comment about her recovery).</p>
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		<title>By: Sullivan</title>
		<link>http://leftbrainrightbrain.co.uk/2009/07/eric-london-resigns-from-autism-speaks/#comment-59370</link>
		<dc:creator>Sullivan</dc:creator>
		<pubDate>Tue, 07 Jul 2009 22:39:31 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=2560#comment-59370</guid>
		<description>&lt;blockquote&gt;The people who have resigned from Autism Speaks (Siger London) to form their own science organization are all parents who deeply believe they have produced genetically defective children, that there is no environmental component in autism, and the studies they want to fund are all genetic studies.&lt;/blockquote&gt;

You are just full of inaccuracies today.  Do you even look at the ASF website?  While they haven&#039;t shown yet what they will fund, here&#039;s a nice list of the research they find important.

http://www.autismsciencefoundation.org/2007-08research.html

Maternal antibodies....how exactly is that genetic?  Loss of family income?  Racial/ethnic disparities?

The &quot;genetically defective&quot; comment is quite rude, and, I expect, intended as such.

I guess one of the &quot;special rights&quot; I want for people with autism is the right to be treated with respect.  You are able to trample that right, I just don&#039;t understand why you would want to.</description>
		<content:encoded><![CDATA[<p>
<blockquote>The people who have resigned from Autism Speaks (Siger London) to form their own science organization are all parents who deeply believe they have produced genetically defective children, that there is no environmental component in autism, and the studies they want to fund are all genetic studies.</p></blockquote>
<p>You are just full of inaccuracies today.  Do you even look at the <span class="caps">ASF</span> website?  While they haven&#8217;t shown yet what they will fund, here&#8217;s a nice list of the research they find important.</p>
<p><a href="http://www.autismsciencefoundation.org/2007-08research.html" rel="nofollow">http://www.autismsciencefounda.....earch.html</a></p>
<p>Maternal antibodies&#8230;.how exactly is that genetic?  Loss of family income?  Racial/ethnic disparities?</p>
<p>The &#8220;genetically defective&#8221; comment is quite rude, and, I expect, intended as such.</p>
<p>I guess one of the &#8220;special rights&#8221; I want for people with autism is the right to be treated with respect.  You are able to trample that right, I just don&#8217;t understand why you would want to.</p>
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		<title>By: Sullivan</title>
		<link>http://leftbrainrightbrain.co.uk/2009/07/eric-london-resigns-from-autism-speaks/#comment-59369</link>
		<dc:creator>Sullivan</dc:creator>
		<pubDate>Tue, 07 Jul 2009 22:32:41 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=2560#comment-59369</guid>
		<description>&lt;blockquote&gt;Despite many flaws Autism Speaks is the only organization with the political and financial strength to actually make a difference in the lives of families...&lt;/blockquote&gt;

You are very much incorrect there.  The Autistic Self Advocacy Network (ASAN) has shown that it isn&#039;t just money that speaks, but ideas and highly motivated people.  They &lt;em&gt;are&lt;/em&gt; making a difference in the lives of families.</description>
		<content:encoded><![CDATA[<p>
<blockquote>Despite many flaws Autism Speaks is the only organization with the political and financial strength to actually make a difference in the lives of families&#8230;</p></blockquote>
<p>You are very much incorrect there.  The Autistic Self Advocacy Network (ASAN) has shown that it isn&#8217;t just money that speaks, but ideas and highly motivated people.  They <em>are</em> making a difference in the lives of families.</p>
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		<title>By: Sullivan</title>
		<link>http://leftbrainrightbrain.co.uk/2009/07/eric-london-resigns-from-autism-speaks/#comment-59366</link>
		<dc:creator>Sullivan</dc:creator>
		<pubDate>Tue, 07 Jul 2009 22:11:00 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=2560#comment-59366</guid>
		<description>RAJ,

that was my comment, not Kev&#039;s.

Since I obviously wasn&#039;t clear enough, I thank you for pointing this out and giving me another chance to clarify.  I was referring to Autism Speaks&#039; &lt;a href=&quot;http://www.autismspeaks.org/press/autism_speaks_withdraws_support_for_strategic_plan.php&quot; rel=&quot;nofollow&quot;&gt;press release on the IACC strategic plan&lt;/a&gt;.  The Plan was finalized, and I didn&#039;t see any comments from AS about the issues that are important to me.  Perhaps I missed another press release?  If so, please post the link.  I would sincerely like to see Autism Speaks supporting important issues in the Plan.  I found&lt;a href=&quot;http://www.autismspeaks.org/inthenews/dec_12_2008_iacc_meeting_recap.php&quot; rel=&quot;nofollow&quot;&gt; this one &lt;/a&gt;on the Plan before it was implemented.  Some information on therapies and other issues.  Not much on lifespan issues, though.

&lt;blockquote&gt;To say Autism Speaks is simply an anti-vaccine organization is foolish, misleading and something that can be expected from the neurodiversity crowd.&lt;/blockquote&gt;

Do a quick search of this post and the comments.   The first and-at the time your wrote it--only mention of &quot;anti-vaccine&quot; is your comment.  Do you actually read the posts or do you just use this forum to make your own comments?  To do so is misleading and something that, unfortunately, is expected from some of our commenters.

You will also find, if you read carefully, that I very rarely use the phrase &quot;anti-vaccine&quot;.

I don&#039;t expect the apology to be forthcoming.  Surprise me.</description>
		<content:encoded><![CDATA[<p><span class="caps">RAJ</span>,</p>
<p>that was my comment, not Kev&#8217;s.</p>
<p>Since I obviously wasn&#8217;t clear enough, I thank you for pointing this out and giving me another chance to clarify.  I was referring to Autism Speaks&#8217; <a href="http://www.autismspeaks.org/press/autism_speaks_withdraws_support_for_strategic_plan.php" rel="nofollow">press release on the <span class="caps">IACC</span> strategic plan</a>.  The Plan was finalized, and I didn&#8217;t see any comments from AS about the issues that are important to me.  Perhaps I missed another press release?  If so, please post the link.  I would sincerely like to see Autism Speaks supporting important issues in the Plan.  I found<a href="http://www.autismspeaks.org/inthenews/dec_12_2008_iacc_meeting_recap.php" rel="nofollow"> this one </a>on the Plan before it was implemented.  Some information on therapies and other issues.  Not much on lifespan issues, though.</p>
<p>
<blockquote>To say Autism Speaks is simply an anti-vaccine organization is foolish, misleading and something that can be expected from the neurodiversity crowd.</p></blockquote>
<p>Do a quick search of this post and the comments.   The first and-at the time your wrote it&#8212;only mention of &#8220;anti-vaccine&#8221; is your comment.  Do you actually read the posts or do you just use this forum to make your own comments?  To do so is misleading and something that, unfortunately, is expected from some of our commenters.</p>
<p>You will also find, if you read carefully, that I very rarely use the phrase &#8220;anti-vaccine&#8221;.</p>
<p>I don&#8217;t expect the apology to be forthcoming.  Surprise me.</p>
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		<title>By: Barry Morse</title>
		<link>http://leftbrainrightbrain.co.uk/2009/07/eric-london-resigns-from-autism-speaks/#comment-59359</link>
		<dc:creator>Barry Morse</dc:creator>
		<pubDate>Tue, 07 Jul 2009 10:50:32 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=2560#comment-59359</guid>
		<description>Please follow this hypothesis:
Plastic is the cause of the rapid rise in autism.
The human brain works primarily by electrical energy. Plastic is an excellent insulator. Plastics photo-degrade; they get smaller but remain as plastic. During the time of fetal neural development, at the moment that the nerves should make connection, they are blocked from doing so by a piece of plastic. I believe the autistic mind produces the same amount of electrical energy and that energy has fewer areas of diffusion.  This is evidenced by the heightening the various senses experienced by the autistic individual. Note the rapid rise in autism in the last twenty years and consider the time it would take for the plastics to infiltrate our ecosystem or the direct ingestion of photo-degraded liquid by pregnant women.
The easiest way to see this is to take a plastic bottle of drinking water and freeze it. Let it thaw and sit. Turn it upside down, turn it into the light and see the shiny plastic particles descend in the water that you are about to drink.
 I believe that this hypothesis bears investigation.</description>
		<content:encoded><![CDATA[<p>Please follow this hypothesis:<br />
Plastic is the cause of the rapid rise in autism.<br />
The human brain works primarily by electrical energy. Plastic is an excellent insulator. Plastics photo-degrade; they get smaller but remain as plastic. During the time of fetal neural development, at the moment that the nerves should make connection, they are blocked from doing so by a piece of plastic. I believe the autistic mind produces the same amount of electrical energy and that energy has fewer areas of diffusion.  This is evidenced by the heightening the various senses experienced by the autistic individual. Note the rapid rise in autism in the last twenty years and consider the time it would take for the plastics to infiltrate our ecosystem or the direct ingestion of photo-degraded liquid by pregnant women.<br />
The easiest way to see this is to take a plastic bottle of drinking water and freeze it. Let it thaw and sit. Turn it upside down, turn it into the light and see the shiny plastic particles descend in the water that you are about to drink.<br />
I believe that this hypothesis bears investigation.</p>
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		<title>By: Harry</title>
		<link>http://leftbrainrightbrain.co.uk/2009/07/eric-london-resigns-from-autism-speaks/#comment-59358</link>
		<dc:creator>Harry</dc:creator>
		<pubDate>Tue, 07 Jul 2009 08:35:46 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=2560#comment-59358</guid>
		<description>I think the organisation and running of Autism Speaks shows the victory of realpolitik and gut instincts and emotion over science (and/or common sense).

As much as I despair over the attitudes of the vaccine/bio-med gang, I also feel desperately sorry for them - they are just being used by their doctors and therapists.</description>
		<content:encoded><![CDATA[<p>I think the organisation and running of Autism Speaks shows the victory of realpolitik and gut instincts and emotion over science (and/or common sense).</p>
<p>As much as I despair over the attitudes of the vaccine/bio-med gang, I also feel desperately sorry for them &#8211; they are just being used by their doctors and therapists.</p>
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