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	<title>Comments on: Age of Autism to Autism Families: Make your children suffer</title>
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	<link>http://leftbrainrightbrain.co.uk/2009/11/age-of-autism-to-autism-families-make-your-children-suffer/</link>
	<description>Autism news and opinion</description>
	<lastBuildDate>Sun, 21 Mar 2010 14:29:38 +0000</lastBuildDate>
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		<title>By: Sullivan</title>
		<link>http://leftbrainrightbrain.co.uk/2009/11/age-of-autism-to-autism-families-make-your-children-suffer/#comment-76078</link>
		<dc:creator>Sullivan</dc:creator>
		<pubDate>Thu, 11 Feb 2010 00:48:10 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=3649#comment-76078</guid>
		<description>I have no problem with supplements when there is a clear need.  The idea that a &quot;traditional&quot; doctor doesn&#039;t understand that is not something I will take seriously.

If I am told by a non-specialist--like a DAN doctor--that my regular doctor or my specialist &quot;doesn&#039;t understand&quot; what he/she is doing, I am out the door.  Fast.

&quot;Seriously, the basis for biomed and DAN is nutrition&quot;

Is chelation &quot;nutrition&quot;?

Is lupron &quot;nutrition&quot;?

Are antifungals &quot;nutrition&quot;?

Is IVIG &quot;nutrition&quot;?

Is HBOT &quot;nutrition&quot;?

The answer to the above is all &quot;no&quot;.

Have I seen evidence of alternative medical practitioners prescribing megadoses of supplememnts--well beyond the need to balance a measured deficiency?  Yes.

Are there any real studies which can allow me to judge what the adverse reaction risk is to the therapies offered? No.</description>
		<content:encoded><![CDATA[<p>I have no problem with supplements when there is a clear need.  The idea that a &#8220;traditional&#8221; doctor doesn&#8217;t understand that is not something I will take seriously.</p>
<p>If I am told by a non-specialist&#8212;like a <span class="caps">DAN</span> doctor&#8212;that my regular doctor or my specialist &#8220;doesn&#8217;t understand&#8221; what he/she is doing, I am out the door.  Fast.</p>
<p>&#8220;Seriously, the basis for biomed and <span class="caps">DAN</span> is nutrition&#8221;</p>
<p>Is chelation &#8220;nutrition&#8221;?</p>
<p>Is lupron &#8220;nutrition&#8221;?</p>
<p>Are antifungals &#8220;nutrition&#8221;?</p>
<p>Is <span class="caps">IVIG </span>&#8220;nutrition&#8221;?</p>
<p>Is <span class="caps">HBOT </span>&#8220;nutrition&#8221;?</p>
<p>The answer to the above is all &#8220;no&#8221;.</p>
<p>Have I seen evidence of alternative medical practitioners prescribing megadoses of supplememnts&#8212;well beyond the need to balance a measured deficiency?  Yes.</p>
<p>Are there any real studies which can allow me to judge what the adverse reaction risk is to the therapies offered? No.</p>
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		<title>By: Tanya</title>
		<link>http://leftbrainrightbrain.co.uk/2009/11/age-of-autism-to-autism-families-make-your-children-suffer/#comment-76074</link>
		<dc:creator>Tanya</dc:creator>
		<pubDate>Thu, 11 Feb 2010 00:28:56 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=3649#comment-76074</guid>
		<description>Seriously, the basis for biomed and DAN is nutrition.  I am not harming my child by changing his diet, and giving him nutritional supplements that labwork has proven he is deficient in.  Traditional doctors have very little education in nutrition and the healing effects that it has on the body.  They know drugs.  There is no autism drug.  But there is nutrition. There is no harm in feeding your kids right and giving them some extra help to help their bodies work correctly.  My son has made great improvements with these changes alone.  Yes, we do the traditional therapies as well.  We&#039;ve so far seen more improvements with the dietary changes.  Now he is in a better place to let the traditional therapies help him.  It&#039;s all about balance and finding what works for your child.  Is DAN alne the answer.  No.  Is ABA alone the answer.  No.  but the right combination of unique therapies for each child leads to success.  It is a spectrum disorder after all.  Remember, no two children are alike, autistic or not.</description>
		<content:encoded><![CDATA[<p>Seriously, the basis for biomed and <span class="caps">DAN</span> is nutrition.  I am not harming my child by changing his diet, and giving him nutritional supplements that labwork has proven he is deficient in.  Traditional doctors have very little education in nutrition and the healing effects that it has on the body.  They know drugs.  There is no autism drug.  But there is nutrition. There is no harm in feeding your kids right and giving them some extra help to help their bodies work correctly.  My son has made great improvements with these changes alone.  Yes, we do the traditional therapies as well.  We&#8217;ve so far seen more improvements with the dietary changes.  Now he is in a better place to let the traditional therapies help him.  It&#8217;s all about balance and finding what works for your child.  Is <span class="caps">DAN</span> alne the answer.  No.  Is <span class="caps">ABA</span> alone the answer.  No.  but the right combination of unique therapies for each child leads to success.  It is a spectrum disorder after all.  Remember, no two children are alike, autistic or not.</p>
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		<title>By: Mary Jo</title>
		<link>http://leftbrainrightbrain.co.uk/2009/11/age-of-autism-to-autism-families-make-your-children-suffer/#comment-70709</link>
		<dc:creator>Mary Jo</dc:creator>
		<pubDate>Wed, 02 Dec 2009 13:47:04 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=3649#comment-70709</guid>
		<description>If you google &quot;thimerosal&quot; with &quot;IVIG&quot; there are a couple of sites that state IVIG should not be given to individuals who have a sensitivity to thimerosal.  If some preparations of IVIG contain thimerosal,how are these docs recovering children by infusing them with the same product they claim is causing the condition?</description>
		<content:encoded><![CDATA[<p>If you google &#8220;thimerosal&#8221; with &#8220;IVIG&#8221; there are a couple of sites that state <span class="caps">IVIG</span> should not be given to individuals who have a sensitivity to thimerosal.  If some preparations of <span class="caps">IVIG</span> contain thimerosal,how are these docs recovering children by infusing them with the same product they claim is causing the condition?</p>
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		<title>By: lilandtedsmum</title>
		<link>http://leftbrainrightbrain.co.uk/2009/11/age-of-autism-to-autism-families-make-your-children-suffer/#comment-70607</link>
		<dc:creator>lilandtedsmum</dc:creator>
		<pubDate>Tue, 01 Dec 2009 08:54:59 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=3649#comment-70607</guid>
		<description>Andrew,

My daughter used to head bang - she no longer does.  My daughter used to run into the road - she no longer does. My daughter used to wake during the night - she no longer does.  My daughter used to have no verbal communication - she now communicates efficiently, my daughter used to ignore other children, she is now interacting.  My daughter started at a special needs pre-school and is going to attend main-stream school.

All of the above without a single DAN practitioner or BioMed treatment in sight.  All of the above without risk to my child.

So your point is?

I&#039;m delighted at the improvement that your son has shown, I&#039;m just not convinced in the slightest as to your reasons for this improvement.

As for me being ashamed of myself.  I&#039;m not.  I fully accept my child for who she is.  I have never put her at risk by using unrpoven methods or &quot;remedies&quot;.  I have worked hard using education and proven therapies to help her to develop to the best of her ability but I also understand that above all I want her to be happy and not to feel pressured in any way by other people&#039;s expectations of what a child should be.</description>
		<content:encoded><![CDATA[<p>Andrew,</p>
<p>My daughter used to head bang &#8211; she no longer does.  My daughter used to run into the road &#8211; she no longer does. My daughter used to wake during the night &#8211; she no longer does.  My daughter used to have no verbal communication &#8211; she now communicates efficiently, my daughter used to ignore other children, she is now interacting.  My daughter started at a special needs pre-school and is going to attend main-stream school.</p>
<p>All of the above without a single <span class="caps">DAN</span> practitioner or BioMed treatment in sight.  All of the above without risk to my child.</p>
<p>So your point is?</p>
<p>I&#8217;m delighted at the improvement that your son has shown, I&#8217;m just not convinced in the slightest as to your reasons for this improvement.</p>
<p>As for me being ashamed of myself.  I&#8217;m not.  I fully accept my child for who she is.  I have never put her at risk by using unrpoven methods or &#8220;remedies&#8221;.  I have worked hard using education and proven therapies to help her to develop to the best of her ability but I also understand that above all I want her to be happy and not to feel pressured in any way by other people&#8217;s expectations of what a child should be.</p>
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		<title>By: Sullivan</title>
		<link>http://leftbrainrightbrain.co.uk/2009/11/age-of-autism-to-autism-families-make-your-children-suffer/#comment-70566</link>
		<dc:creator>Sullivan</dc:creator>
		<pubDate>Mon, 30 Nov 2009 22:57:49 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=3649#comment-70566</guid>
		<description>&lt;blockquote&gt;So I can rejoice in your child&#039;s progress while remaining unconvinced by the reasons you give for his success.&lt;/blockquote&gt;


Well said, Mike.</description>
		<content:encoded><![CDATA[<p>
<blockquote>So I can rejoice in your child&#8217;s progress while remaining unconvinced by the reasons you give for his success.</p></blockquote>
<p>Well said, Mike.</p>
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		<title>By: Mike Stanton</title>
		<link>http://leftbrainrightbrain.co.uk/2009/11/age-of-autism-to-autism-families-make-your-children-suffer/#comment-70565</link>
		<dc:creator>Mike Stanton</dc:creator>
		<pubDate>Mon, 30 Nov 2009 22:54:44 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=3649#comment-70565</guid>
		<description>Andrew,

As a toddler my child was non-verbal, had chronic ear infections and disordered sleep  patterns. He learned to speak, his health settled down and he went to school. He was bullied by pupils and misunderstood by his teachers. He had terrible tantrums and rages. He suffered from depression and obsessive compulsive disorder and stopped going to school. 

With guidance and counselling we weathered the storm. He has graduated from college with a foundation degree. He is active in the community, has a driving licence and an active social life. He has friends and is seeking work in his chosen profession. 

So we also have proof; proof that autistic children develop and make progress over time. What we do not have is proof for the reasons why this happens or why some children make more progress than others. 

My child&#039;s progress without biomed does not prove that biomed is false. Your child&#039;s progress with biomed does not prove that biomed works. Proof depends on science properly done, not our anecdotal evidence. So far the record is not good. Every time independent scientists look at the science behind the biomedical movement in autism that science is found wanting. 

So I can rejoice in your child&#039;s progress while remaining unconvinced by the reasons you give for his success.</description>
		<content:encoded><![CDATA[<p>Andrew,</p>
<p>As a toddler my child was non-verbal, had chronic ear infections and disordered sleep  patterns. He learned to speak, his health settled down and he went to school. He was bullied by pupils and misunderstood by his teachers. He had terrible tantrums and rages. He suffered from depression and obsessive compulsive disorder and stopped going to school.</p>
<p>With guidance and counselling we weathered the storm. He has graduated from college with a foundation degree. He is active in the community, has a driving licence and an active social life. He has friends and is seeking work in his chosen profession.</p>
<p>So we also have proof; proof that autistic children develop and make progress over time. What we do not have is proof for the reasons why this happens or why some children make more progress than others.</p>
<p>My child&#8217;s progress without biomed does not prove that biomed is false. Your child&#8217;s progress with biomed does not prove that biomed works. Proof depends on science properly done, not our anecdotal evidence. So far the record is not good. Every time independent scientists look at the science behind the biomedical movement in autism that science is found wanting.</p>
<p>So I can rejoice in your child&#8217;s progress while remaining unconvinced by the reasons you give for his success.</p>
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		<title>By: Sullivan</title>
		<link>http://leftbrainrightbrain.co.uk/2009/11/age-of-autism-to-autism-families-make-your-children-suffer/#comment-70564</link>
		<dc:creator>Sullivan</dc:creator>
		<pubDate>Mon, 30 Nov 2009 22:37:56 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=3649#comment-70564</guid>
		<description>&lt;blockquote&gt;I’ve known autistics who’ve graduated from college without any help from a DAN! practitioner. They’re not automata, after all. They’re capable of learning. They just have to go about it the hard way. It’s sad that some people don’t believe that, and rip the credit for their achievements away from their own children and ascribe it instead to a therapy which cannot plausibly do anything helpful at all.&lt;/blockquote&gt;

Precisely.

There are a number of autistic adults online who have attended and or graduated from college.  It is pretty clear that they didn&#039;t get the full &quot;biomed&quot; approach, as it is a fairly recent approach.

I could introduce Andrew to a number of children who would be considered &quot;recovered&quot; who were not &quot;treated&quot; with biomed.  There are numerous examples of non-recovered children who have been given the full gamit of biomed.  Does biomed help recovery?  Does it hurt?  That&#039;s the real question.  Read the online groups for any length of time and you will see numerous examples of bad reactions to biomed.  If alt-med doctors want to throw darts, they can find a different dart board than my kid.</description>
		<content:encoded><![CDATA[<p>
<blockquote>I&#8217;ve known autistics who&#8217;ve graduated from college without any help from a <span class="caps">DAN</span>! practitioner. They&#8217;re not automata, after all. They&#8217;re capable of learning. They just have to go about it the hard way. It&#8217;s sad that some people don&#8217;t believe that, and rip the credit for their achievements away from their own children and ascribe it instead to a therapy which cannot plausibly do anything helpful at all.</p></blockquote>
<p>Precisely.</p>
<p>There are a number of autistic adults online who have attended and or graduated from college.  It is pretty clear that they didn&#8217;t get the full &#8220;biomed&#8221; approach, as it is a fairly recent approach.</p>
<p>I could introduce Andrew to a number of children who would be considered &#8220;recovered&#8221; who were not &#8220;treated&#8221; with biomed.  There are numerous examples of non-recovered children who have been given the full gamit of biomed.  Does biomed help recovery?  Does it hurt?  That&#8217;s the real question.  Read the online groups for any length of time and you will see numerous examples of bad reactions to biomed.  If alt-med doctors want to throw darts, they can find a different dart board than my kid.</p>
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		<title>By: Calli Arcale</title>
		<link>http://leftbrainrightbrain.co.uk/2009/11/age-of-autism-to-autism-families-make-your-children-suffer/#comment-70560</link>
		<dc:creator>Calli Arcale</dc:creator>
		<pubDate>Mon, 30 Nov 2009 22:31:20 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=3649#comment-70560</guid>
		<description>I&#039;ve known autistics who&#039;ve graduated from college without any help from a DAN! practitioner.  They&#039;re not automata, after all.  They&#039;re capable of learning.  They just have to go about it the hard way.  It&#039;s sad that some people don&#039;t believe that, and rip the credit for their achievements away from their own children and ascribe it instead to a therapy which cannot plausibly do anything helpful at all.</description>
		<content:encoded><![CDATA[<p>I&#8217;ve known autistics who&#8217;ve graduated from college without any help from a <span class="caps">DAN</span>! practitioner.  They&#8217;re not automata, after all.  They&#8217;re capable of learning.  They just have to go about it the hard way.  It&#8217;s sad that some people don&#8217;t believe that, and rip the credit for their achievements away from their own children and ascribe it instead to a therapy which cannot plausibly do anything helpful at all.</p>
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		<title>By: Andrew</title>
		<link>http://leftbrainrightbrain.co.uk/2009/11/age-of-autism-to-autism-families-make-your-children-suffer/#comment-70555</link>
		<dc:creator>Andrew</dc:creator>
		<pubDate>Mon, 30 Nov 2009 21:59:13 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=3649#comment-70555</guid>
		<description>The proof, dear friends is in sight...come see my kid when he&#039;s graduating from college, and living out his full potential..your all invited!..And to &quot;lilandtedsmum&quot;.. Hell-yea..I am very proud to be &quot;saving&quot; him from &quot;banging his head against the wall, running into traffic, cronic constipation, screaming &amp; laughing in the middle of the night, being abused ..etc.&quot; ..should I go on?)..you ought to be ashamed of yourself!....Be happy!...we live in the USA, let me take care of my business, and you can take care of your&#039;s...Best to all!</description>
		<content:encoded><![CDATA[<p>The proof, dear friends is in sight&#8230;come see my kid when he&#8217;s graduating from college, and living out his full potential..your all invited!..And to &#8220;lilandtedsmum&#8221;.. Hell-yea..I am very proud to be &#8220;saving&#8221; him from &#8220;banging his head against the wall, running into traffic, cronic constipation, screaming &#038; laughing in the middle of the night, being abused ..etc.&#8221; ..should I go on?)..you ought to be ashamed of yourself!....Be happy!...we live in the <span class="caps">USA</span>, let me take care of my business, and you can take care of your&#8217;s&#8230;Best to all!</p>
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		<title>By: Graphictruth</title>
		<link>http://leftbrainrightbrain.co.uk/2009/11/age-of-autism-to-autism-families-make-your-children-suffer/#comment-70486</link>
		<dc:creator>Graphictruth</dc:creator>
		<pubDate>Mon, 30 Nov 2009 03:49:06 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=3649#comment-70486</guid>
		<description>When someone screams at me in capital letters asking how I dare accuse them of abusing their child when in fact I&#039;ve simply questioned whether what they are doing is in the best interest of the child - I am not convinced they ARE abusing their child, but I&#039;m quite sure that they are not completely sure they are not. 

Or in other words, if you feel the need to abuse people who are questioning your reasoning - your reasoning is questionable, and you need to face that fact. And thank those courteous and caring enough to point it out to you - for most will simply shrug and let you proceed as you are, without much care as to where you and your child might end up.</description>
		<content:encoded><![CDATA[<p>When someone screams at me in capital letters asking how I dare accuse them of abusing their child when in fact I&#8217;ve simply questioned whether what they are doing is in the best interest of the child &#8211; I am not convinced they <span class="caps">ARE</span> abusing their child, but I&#8217;m quite sure that they are not completely sure they are not.</p>
<p>Or in other words, if you feel the need to abuse people who are questioning your reasoning &#8211; your reasoning is questionable, and you need to face that fact. And thank those courteous and caring enough to point it out to you &#8211; for most will simply shrug and let you proceed as you are, without much care as to where you and your child might end up.</p>
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