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	<title>Comments on: I am an autism parent</title>
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	<description>Autism news and opinion</description>
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		<title>By: NightStorm</title>
		<link>http://leftbrainrightbrain.co.uk/2009/11/i-am-an-autism-parent/#comment-69443</link>
		<dc:creator>NightStorm</dc:creator>
		<pubDate>Fri, 13 Nov 2009 16:50:19 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=3236#comment-69443</guid>
		<description>&lt;i&gt;Sheryl: “Every single autistic person gets disability payments their entire adulthood.”&lt;/i&gt;

State your source...</description>
		<content:encoded><![CDATA[<p><i>Sheryl: &#8220;Every single autistic person gets disability payments their entire adulthood.&#8221;</i></p>
<p>State your source&#8230;</p>
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		<title>By: Sullivan</title>
		<link>http://leftbrainrightbrain.co.uk/2009/11/i-am-an-autism-parent/#comment-69442</link>
		<dc:creator>Sullivan</dc:creator>
		<pubDate>Fri, 13 Nov 2009 16:49:38 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=3236#comment-69442</guid>
		<description>&lt;i&gt;Other than that, I agree that autistic people should not be called “heroes.” That strikes me as condescending. My son is not heroic. He’s my son, and that’s remarkable enough.&lt;/i&gt;

I don&#039;t think all autistics are heroes.  But, when we parents talk about our children&#039;s achievements I think it is right to focus the acknowledgment on the child, not the parent.

I am incredibly proud of my child.  I acknowledge that some of the achievements are at least as remarkable as those achievements conventionally considered outstanding by parents and teachers.

Certainly parental pride is acceptable. If admiring other kids with similar achievements is condescending, I am good with that.</description>
		<content:encoded><![CDATA[<p><i>Other than that, I agree that autistic people should not be called &#8220;heroes.&#8221; That strikes me as condescending. My son is not heroic. He&#8217;s my son, and that&#8217;s remarkable enough.</i></p>
<p>I don&#8217;t think all autistics are heroes.  But, when we parents talk about our children&#8217;s achievements I think it is right to focus the acknowledgment on the child, not the parent.</p>
<p>I am incredibly proud of my child.  I acknowledge that some of the achievements are at least as remarkable as those achievements conventionally considered outstanding by parents and teachers.</p>
<p>Certainly parental pride is acceptable. If admiring other kids with similar achievements is condescending, I am good with that.</p>
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		<title>By: Joseph</title>
		<link>http://leftbrainrightbrain.co.uk/2009/11/i-am-an-autism-parent/#comment-69438</link>
		<dc:creator>Joseph</dc:creator>
		<pubDate>Fri, 13 Nov 2009 15:17:46 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=3236#comment-69438</guid>
		<description>&lt;blockquote&gt;Sheryl: “Every single autistic person gets disability payments their entire adulthood.”&lt;/blockquote&gt;
&lt;blockquote&gt;Umm… that statement is just so bloody wrong that it’s hard to know where to start refuting it.&lt;/blockquote&gt;

Correct. In fact, the NHS survey found that autistic adults in the UK are mostly not getting services. It&#039;s also clear the vast majority do not live in institutions.

Other than that, I agree that autistic people should not be called &quot;heroes.&quot; That strikes me as condescending. My son is not heroic. He&#039;s my son, and that&#039;s remarkable enough.

Moms are also not &quot;warrior moms&quot; though. There are simply moms who assume their responsibilities as parents and those who do not. There are also those who moan all the time about the types of children they happen to have gotten. Experimenting biomedically on children with all sorts of completely implausible (and possibly dangerous) crap does not make one warrior-like.</description>
		<content:encoded><![CDATA[<p>
<blockquote>Sheryl: &#8220;Every single autistic person gets disability payments their entire adulthood.&#8221;</p></blockquote>
<p></p>
<blockquote><p>Umm&#8230; that statement is just so bloody wrong that it&#8217;s hard to know where to start refuting it.</p></blockquote>
<p>Correct. In fact, the <span class="caps">NHS</span> survey found that autistic adults in the UK are mostly not getting services. It&#8217;s also clear the vast majority do not live in institutions.</p>
<p>Other than that, I agree that autistic people should not be called &#8220;heroes.&#8221; That strikes me as condescending. My son is not heroic. He&#8217;s my son, and that&#8217;s remarkable enough.</p>
<p>Moms are also not &#8220;warrior moms&#8221; though. There are simply moms who assume their responsibilities as parents and those who do not. There are also those who moan all the time about the types of children they happen to have gotten. Experimenting biomedically on children with all sorts of completely implausible (and possibly dangerous) crap does not make one warrior-like.</p>
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		<title>By: kath</title>
		<link>http://leftbrainrightbrain.co.uk/2009/11/i-am-an-autism-parent/#comment-69433</link>
		<dc:creator>kath</dc:creator>
		<pubDate>Fri, 13 Nov 2009 14:39:08 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=3236#comment-69433</guid>
		<description>Got three young friends with Aspergers, I love them all, especially one of them, he&#039;s my angel, life is hard for any 15 year old  and these lads have it worse as they fight within themselves everyday, they are my little heros and I rejoice at their courage and fortitude,  and celebrate their acheivements, howver small they seem to other people, its a victory for them.
An earlier post says she signed up for parenthood whatever the concequenses, I have two children, my son is Dyslexic, but that doesnt stop him, but he&#039;s been labelled at school. Good wishes to all of you, with the challenges of parenthood. As to whatever NORMAL is is what&#039;s happening to you, everyone is different. Normal children in one family wont be normal to another. Dont get too wrapped up with red tape and try to keep strong, these kids are worth it.</description>
		<content:encoded><![CDATA[<p>Got three young friends with Aspergers, I love them all, especially one of them, he&#8217;s my angel, life is hard for any 15 year old  and these lads have it worse as they fight within themselves everyday, they are my little heros and I rejoice at their courage and fortitude,  and celebrate their acheivements, howver small they seem to other people, its a victory for them.<br />
An earlier post says she signed up for parenthood whatever the concequenses, I have two children, my son is Dyslexic, but that doesnt stop him, but he&#8217;s been labelled at school. Good wishes to all of you, with the challenges of parenthood. As to whatever <span class="caps">NORMAL</span> is is what&#8217;s happening to you, everyone is different. Normal children in one family wont be normal to another. Dont get too wrapped up with red tape and try to keep strong, these kids are worth it.</p>
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		<title>By: David N. Andrews M. Ed., C. P. S. E.</title>
		<link>http://leftbrainrightbrain.co.uk/2009/11/i-am-an-autism-parent/#comment-69417</link>
		<dc:creator>David N. Andrews M. Ed., C. P. S. E.</dc:creator>
		<pubDate>Fri, 13 Nov 2009 09:56:14 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=3236#comment-69417</guid>
		<description>Sheryl: &quot;Every single autistic person gets disability payments their entire adulthood.&quot;

Umm... that statement is just so bloody wrong that it&#039;s hard to know where to start refuting it. Firstly, it is patently untrue: if it were true, then the not-yet-diagnosed autistic person would be getting them and clearly that cannot happen! Secondly, many people who are diagnosed with an autistic spectrum condition (F84.0, F84.1, F84.5) do NOT get disability payments throughout their adult lives. Many people don&#039;t get them during childhood, even with the diagnosis. My clinical picture as a child was that of a high-IQ classically autistic child (basically, what Kanner described), but the typical thing that happens in autistic development happened to me (see Kanner&#039;s 1973 30-year follow-up paper on the original 1943 paper examinees) - and I have an adult diagnosis of F84.5 (Asperger syndrome). I got disability payments in the UK for about a year, and then I moved to Finland, where I get absolutely nothing. And I am by no means the only one in this category.

For a doctor, you don&#039;t show the reading or thinking skills one would expect of such a professional if you go about making such sweeping statements as you have done. 

And Nightstorms&#039;s question, based on your statement (&quot;You parents who refuse to make the effort with trying anything that will help, no matter how difficult or expensive blows my mind&quot;), is valid. Unlike your attitude.</description>
		<content:encoded><![CDATA[<p>Sheryl: &#8220;Every single autistic person gets disability payments their entire adulthood.&#8221;</p>
<p>Umm&#8230; that statement is just so bloody wrong that it&#8217;s hard to know where to start refuting it. Firstly, it is patently untrue: if it were true, then the not-yet-diagnosed autistic person would be getting them and clearly that cannot happen! Secondly, many people who are diagnosed with an autistic spectrum condition (F84.0, <span class="caps">F84</span>.1, <span class="caps">F84</span>.5) do <span class="caps">NOT</span> get disability payments throughout their adult lives. Many people don&#8217;t get them during childhood, even with the diagnosis. My clinical picture as a child was that of a high-IQ classically autistic child (basically, what Kanner described), but the typical thing that happens in autistic development happened to me (see Kanner&#8217;s 1973 30-year follow-up paper on the original 1943 paper examinees) &#8211; and I have an adult diagnosis of <span class="caps">F84</span>.5 (Asperger syndrome). I got disability payments in the UK for about a year, and then I moved to Finland, where I get absolutely nothing. And I am by no means the only one in this category.</p>
<p>For a doctor, you don&#8217;t show the reading or thinking skills one would expect of such a professional if you go about making such sweeping statements as you have done.</p>
<p>And Nightstorms&#8217;s question, based on your statement (&#8220;You parents who refuse to make the effort with trying anything that will help, no matter how difficult or expensive blows my mind&#8221;), is valid. Unlike your attitude.</p>
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		<title>By: NightStorm</title>
		<link>http://leftbrainrightbrain.co.uk/2009/11/i-am-an-autism-parent/#comment-69398</link>
		<dc:creator>NightStorm</dc:creator>
		<pubDate>Fri, 13 Nov 2009 04:40:20 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=3236#comment-69398</guid>
		<description>So Sheryl I have a question. Do you think it&#039;s ethical to give your children untested probably dangerous treatments without them understanding why?</description>
		<content:encoded><![CDATA[<p>So Sheryl I have a question. Do you think it&#8217;s ethical to give your children untested probably dangerous treatments without them understanding why?</p>
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		<title>By: betsbetsbets</title>
		<link>http://leftbrainrightbrain.co.uk/2009/11/i-am-an-autism-parent/#comment-69388</link>
		<dc:creator>betsbetsbets</dc:creator>
		<pubDate>Fri, 13 Nov 2009 01:28:06 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=3236#comment-69388</guid>
		<description>Sharyl: It&#039;s clear you&#039;ve been at the Jenny McCarthy-flavored Kool-Aid with all this &quot;warrior mom&quot; ridiculousness.  Let me make this perfectly clear to you:  my stepson is not neurotypical.  It doesn&#039;t mean he&#039;s damaged, poisoned, toxic, or what have you.  It means he has a human right to own the neurology he was born with.  And if you think that I, or anyone of us here is neglecting our children because we don&#039;t chelate them, or stuff them in hyperbaric chambers, or subject them to other ghastly experimental indignities not approved by the AMA, then you are sadly deluded.  Because we don&#039;t put them through unnecessary, and even cruel biomedical procedures, is because we have done our research and because we love them and would never, ever want to hurt them.  As for your contention that they&#039;ll somehow burden the state left to their neuro-atypical devices, I would tell you that there are many autistics who hold jobs, are self-sufficient, and aren&#039;t looking for a hand-out from you.  So save your GFCF mommy-warrior bullshite for AoA-- we don&#039;t need you here.</description>
		<content:encoded><![CDATA[<p>Sharyl: It&#8217;s clear you&#8217;ve been at the Jenny McCarthy-flavored Kool-Aid with all this &#8220;warrior mom&#8221; ridiculousness.  Let me make this perfectly clear to you:  my stepson is not neurotypical.  It doesn&#8217;t mean he&#8217;s damaged, poisoned, toxic, or what have you.  It means he has a human right to own the neurology he was born with.  And if you think that I, or anyone of us here is neglecting our children because we don&#8217;t chelate them, or stuff them in hyperbaric chambers, or subject them to other ghastly experimental indignities not approved by the <span class="caps">AMA</span>, then you are sadly deluded.  Because we don&#8217;t put them through unnecessary, and even cruel biomedical procedures, is because we have done our research and because we love them and would never, ever want to hurt them.  As for your contention that they&#8217;ll somehow burden the state left to their neuro-atypical devices, I would tell you that there are many autistics who hold jobs, are self-sufficient, and aren&#8217;t looking for a hand-out from you.  So save your <span class="caps">GFCF</span> mommy-warrior bullshite for AoA&#8212;we don&#8217;t need you here.</p>
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		<title>By: Sullivan</title>
		<link>http://leftbrainrightbrain.co.uk/2009/11/i-am-an-autism-parent/#comment-69378</link>
		<dc:creator>Sullivan</dc:creator>
		<pubDate>Thu, 12 Nov 2009 22:50:12 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=3236#comment-69378</guid>
		<description>Sharyl,

thanks for demonstrating that some people don&#039;t read for content. 

&quot;You parents who refuse to make the effort with trying anything that will help, no matter how difficult or expensive blows my mind.&quot;

Where the hell does that statement come from, if you will excuse me for being rather blunt?  You have zero idea how much effort I have put out.  Zero.

If I chose the safety of my child over the gamble that some unproven &quot;treatment&quot; based on junk science may help, that is my choice and my responsibility as a parent.  

If I chose to praise my child for the extreme efforts involved in overcoming challenges, that is my right as a parent.  My child is a hero.

&lt;blockquote&gt;You are NOT warriors. Letting your kid “be themself” and putting them in an institution or private house is not the way of a warrior.&lt;/blockquote&gt;

It is not my way either.  Thank you very much.  Where ever did you get that idea?  But, as far as being a warrior goes, thank you.  I accept that I am not a warrior.  

Don&#039;t let the spotlight you have placed on yourself blind you too much.</description>
		<content:encoded><![CDATA[<p>Sharyl,</p>
<p>thanks for demonstrating that some people don&#8217;t read for content.</p>
<p>&#8220;You parents who refuse to make the effort with trying anything that will help, no matter how difficult or expensive blows my mind.&#8221;</p>
<p>Where the hell does that statement come from, if you will excuse me for being rather blunt?  You have zero idea how much effort I have put out.  Zero.</p>
<p>If I chose the safety of my child over the gamble that some unproven &#8220;treatment&#8221; based on junk science may help, that is my choice and my responsibility as a parent.</p>
<p>If I chose to praise my child for the extreme efforts involved in overcoming challenges, that is my right as a parent.  My child is a hero.</p>
<p>
<blockquote>You are <span class="caps">NOT</span> warriors. Letting your kid &#8220;be themself&#8221; and putting them in an institution or private house is not the way of a warrior.</p></blockquote>
<p>It is not my way either.  Thank you very much.  Where ever did you get that idea?  But, as far as being a warrior goes, thank you.  I accept that I am not a warrior.</p>
<p>Don&#8217;t let the spotlight you have placed on yourself blind you too much.</p>
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		<title>By: sheryl</title>
		<link>http://leftbrainrightbrain.co.uk/2009/11/i-am-an-autism-parent/#comment-69366</link>
		<dc:creator>sheryl</dc:creator>
		<pubDate>Thu, 12 Nov 2009 21:02:35 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=3236#comment-69366</guid>
		<description>What is wrong with you people?  A victim is not a hero/warrior.  A warrior/hero does something heroic.  Being autistic and prefering to be alone and have no positive influence or part in any community (as one comment suggested) is not being a hero.  &quot;Warrior moms&quot; focuses on the struggle to do something good for you kid--trying a very difficult to manage diet, doing your own research, standing up to people who put you down when what you&#039;re doing for your kid is working--even if it&#039;s not &quot;scientifically accepted&quot; by the AMA.  And about letting a child wallow in autism because they&#039;d rather be alone in their own state funded house with support staff is also not heroic and not okay.  I myself would LOVE to have the state pay for my house and allow me to be alone most of the time to do whatever I want.  But I&#039;m a doctor and have the stress of running a business, paying down my student loans, and interacting with family, friends, and patients because I am a warrior and I&#039;m helping people. Letting people continue in their autism cost us ALL.  Every single autistic person gets disability payments their entire adulthood. Every IEP in the school costs local tax dollars.  You parents who refuse to make the effort with trying anything that will help, no matter how difficult or expensive blows my mind. You are NOT warriors.  Letting your kid &quot;be themself&quot; and putting them in an institution or private house is not the way of a warrior.</description>
		<content:encoded><![CDATA[<p>What is wrong with you people?  A victim is not a hero/warrior.  A warrior/hero does something heroic.  Being autistic and prefering to be alone and have no positive influence or part in any community (as one comment suggested) is not being a hero.  &#8220;Warrior moms&#8221; focuses on the struggle to do something good for you kid&#8212;trying a very difficult to manage diet, doing your own research, standing up to people who put you down when what you&#8217;re doing for your kid is working&#8212;even if it&#8217;s not &#8220;scientifically accepted&#8221; by the <span class="caps">AMA</span>.  And about letting a child wallow in autism because they&#8217;d rather be alone in their own state funded house with support staff is also not heroic and not okay.  I myself would <span class="caps">LOVE</span> to have the state pay for my house and allow me to be alone most of the time to do whatever I want.  But I&#8217;m a doctor and have the stress of running a business, paying down my student loans, and interacting with family, friends, and patients because I am a warrior and I&#8217;m helping people. Letting people continue in their autism cost us <span class="caps">ALL</span>.  Every single autistic person gets disability payments their entire adulthood. Every <span class="caps">IEP</span> in the school costs local tax dollars.  You parents who refuse to make the effort with trying anything that will help, no matter how difficult or expensive blows my mind. You are <span class="caps">NOT</span> warriors.  Letting your kid &#8220;be themself&#8221; and putting them in an institution or private house is not the way of a warrior.</p>
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		<title>By: daedalus2u</title>
		<link>http://leftbrainrightbrain.co.uk/2009/11/i-am-an-autism-parent/#comment-69280</link>
		<dc:creator>daedalus2u</dc:creator>
		<pubDate>Wed, 11 Nov 2009 18:28:44 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=3236#comment-69280</guid>
		<description>Sullivan, I think that FW2 made the statement that she doesn&#039;t blame her children for their autism because she has to blame someone. The blaming and the holding some party responsible so the &quot;evil&quot; that is autism can be displaced onto that responsible party and that party demonized is how she copes with &lt;i&gt;her feelings&lt;/i&gt; about autism. 

That is why the anti-vaccine hysteria won&#039;t go away. The anti-vaxers &lt;i&gt;need&lt;/i&gt; something to focus their feelings of anger and hatred on. It is a selfish act, an act that asuages their feelings rather than actually accomplishing something productive.</description>
		<content:encoded><![CDATA[<p>Sullivan, I think that <span class="caps">FW2</span> made the statement that she doesn&#8217;t blame her children for their autism because she has to blame someone. The blaming and the holding some party responsible so the &#8220;evil&#8221; that is autism can be displaced onto that responsible party and that party demonized is how she copes with <i>her feelings</i> about autism.</p>
<p>That is why the anti-vaccine hysteria won&#8217;t go away. The anti-vaxers <i>need</i> something to focus their feelings of anger and hatred on. It is a selfish act, an act that asuages their feelings rather than actually accomplishing something productive.</p>
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