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	<title>Comments on: NIH to study recovered autistics</title>
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	<link>http://leftbrainrightbrain.co.uk/2010/03/nih-to-study-recovered-autistics/</link>
	<description>Autism news and opinion</description>
	<lastBuildDate>Fri, 10 Sep 2010 14:27:34 +0000</lastBuildDate>
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		<title>By: daedalus2u</title>
		<link>http://leftbrainrightbrain.co.uk/2010/03/nih-to-study-recovered-autistics/#comment-79722</link>
		<dc:creator>daedalus2u</dc:creator>
		<pubDate>Mon, 15 Mar 2010 18:40:07 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=4717#comment-79722</guid>
		<description>I think they should also look at the cohort of children who had a temporary reduction in autism symptoms with fever.  

http://www.ncbi.nlm.nih.gov/pubmed/18055656

A temporary acute reduction implies that the reduction is due to acute regulation and not changes in neuroanatomy.  

I have a long post on my blog as to what I think the physiology of that change in acute regulation is.</description>
		<content:encoded><![CDATA[<p>I think they should also look at the cohort of children who had a temporary reduction in autism symptoms with fever.</p>
<p><a href="http://www.ncbi.nlm.nih.gov/pubmed/18055656" rel="nofollow">http://www.ncbi.nlm.nih.gov/pubmed/18055656</a></p>
<p>A temporary acute reduction implies that the reduction is due to acute regulation and not changes in neuroanatomy.</p>
<p>I have a long post on my blog as to what I think the physiology of that change in acute regulation is.</p>
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		<title>By: Broken Link</title>
		<link>http://leftbrainrightbrain.co.uk/2010/03/nih-to-study-recovered-autistics/#comment-79172</link>
		<dc:creator>Broken Link</dc:creator>
		<pubDate>Thu, 11 Mar 2010 01:27:18 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=4717#comment-79172</guid>
		<description>Thanks for the comments, Sullivan.  I agree that it is clear that if there were thousands (even hundreds) of recovered autistic kids, they&#039;d be flocking to the study.

I&#039;d encourage your readers to have a look at this ABC news article.  There, parents are claiming recovery.  Let them know about this study.

http://abcnews.go.com/Health/TheLaw/doctors-sued-autism-chelation-therapy/story?id=10045951</description>
		<content:encoded><![CDATA[<p>Thanks for the comments, Sullivan.  I agree that it is clear that if there were thousands (even hundreds) of recovered autistic kids, they&#8217;d be flocking to the study.</p>
<p>I&#8217;d encourage your readers to have a look at this <span class="caps">ABC</span> news article.  There, parents are claiming recovery.  Let them know about this study.</p>
<p><a href="http://abcnews.go.com/Health/TheLaw/doctors-sued-autism-chelation-therapy/story?id=10045951" rel="nofollow">http://abcnews.go.com/Health/T.....d=10045951</a></p>
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		<title>By: Sullivan</title>
		<link>http://leftbrainrightbrain.co.uk/2010/03/nih-to-study-recovered-autistics/#comment-79130</link>
		<dc:creator>Sullivan</dc:creator>
		<pubDate>Wed, 10 Mar 2010 18:15:18 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=4717#comment-79130</guid>
		<description>Broken Link,

I forgot to add--part of my frustration comes from a recent blog post by Jenny McCarthy on the Huffington Post (&lt;a href=&quot;http://scienceblogs.com/insolence/2010/03/jenny_mccarthy_drives_the_stupidity_to_e.php&quot; rel=&quot;nofollow&quot;&gt;discussed in detail by Orac&lt;/a&gt;).  She&#039;s on the board of Generation Rescue, and probably the most well known spokesperson for the cause of a whole cluster of organizations.  In her piece she makes the comment:

&lt;blockquote&gt;Most doctors in our community share a common trait: their own child regressed into autism. They fixed their kid first and knew they&#039;d have to spend their lives helping parents do the same, accepting the loss of &quot;mainstream&quot; status in their field.

Who&#039;s afraid of autism recovery? Perhaps it&#039;s the diagnosticians and pediatricians who have made a career out of telling parents autism is a hopeless condition.&lt;/blockquote&gt;

Besides the fact that most DAN doctors I&#039;ve read about have not recovered their kids, she seems to be pushing the same tactic--no one is concerned about &quot;recovered&quot; kids.  One wonders whether Ms. McCarthy is ignorant of the facts or if she and her orgs are &quot;afraid&quot; of what will happen as the ideas of improving the wellbeing of autistics is separated from the &quot;vaccine injury&quot; message.</description>
		<content:encoded><![CDATA[<p>Broken Link,</p>
<p>I forgot to add&#8212;part of my frustration comes from a recent blog post by Jenny McCarthy on the Huffington Post (<a href="http://scienceblogs.com/insolence/2010/03/jenny_mccarthy_drives_the_stupidity_to_e.php" rel="nofollow">discussed in detail by Orac</a>).  She&#8217;s on the board of Generation Rescue, and probably the most well known spokesperson for the cause of a whole cluster of organizations.  In her piece she makes the comment:</p>
<p>
<blockquote>Most doctors in our community share a common trait: their own child regressed into autism. They fixed their kid first and knew they&#8217;d have to spend their lives helping parents do the same, accepting the loss of &#8220;mainstream&#8221; status in their field.</p></blockquote>
<p>Who&#8217;s afraid of autism recovery? Perhaps it&#8217;s the diagnosticians and pediatricians who have made a career out of telling parents autism is a hopeless condition.</p>
<p>Besides the fact that most <span class="caps">DAN</span> doctors I&#8217;ve read about have not recovered their kids, she seems to be pushing the same tactic&#8212;no one is concerned about &#8220;recovered&#8221; kids.  One wonders whether Ms. McCarthy is ignorant of the facts or if she and her orgs are &#8220;afraid&#8221; of what will happen as the ideas of improving the wellbeing of autistics is separated from the &#8220;vaccine injury&#8221; message.</p>
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		<title>By: Sullivan</title>
		<link>http://leftbrainrightbrain.co.uk/2010/03/nih-to-study-recovered-autistics/#comment-79129</link>
		<dc:creator>Sullivan</dc:creator>
		<pubDate>Wed, 10 Mar 2010 18:06:16 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=4717#comment-79129</guid>
		<description>Broken Link,

thanks for that information.  I missed that.  Interestingly, the recruitment started over 6 months ago.  I would think that Lyn Redwood and Mark Blaxill, members of SafeMinds and participants in the IACC would be making great publicity out of this.  I would think that the IACC watchers on the Age of Autism blog would make a big deal out of this.  Here is a fragment of a recent comment (Jan 2010) on AoA, in response to a post highly critical of the IACC:

&quot;&#039;Here&#039;s a thought Dr. Rice, if you haven&#039;t been able to find the &quot;origin&quot; of autism - why not try it the other way? Go to the recovered children&#039;s families and ask - What the heck did you do to help your child?&quot;

Did anyone correct this person?  Did the blogger actually inform this person that the study was already underway?

When it comes to issues like the truth that the budgets recommended by the IACC are heavily weighted towards environmental causation and the fact that the &quot;remitted&quot; autism study is ongoing, I&#039;m covering it.  Blogs like the Age of Autism are silent on these issues, letting their readership think that the IACC ignores their wishes.

The groups with a focus on vaccines tend to push the concept of &quot;biomedical recovery&quot; and &quot;environmental causation&quot;, but they don&#039;t seem to care when the studies they supposedly called for are actually funded.</description>
		<content:encoded><![CDATA[<p>Broken Link,</p>
<p>thanks for that information.  I missed that.  Interestingly, the recruitment started over 6 months ago.  I would think that Lyn Redwood and Mark Blaxill, members of SafeMinds and participants in the <span class="caps">IACC</span> would be making great publicity out of this.  I would think that the <span class="caps">IACC</span> watchers on the Age of Autism blog would make a big deal out of this.  Here is a fragment of a recent comment (Jan 2010) on AoA, in response to a post highly critical of the <span class="caps">IACC</span>:</p>
<p>&#8220;&#8217;Here&#8217;s a thought Dr. Rice, if you haven&#8217;t been able to find the &#8220;origin&#8221; of autism &#8211; why not try it the other way? Go to the recovered children&#8217;s families and ask &#8211; What the heck did you do to help your child?&#8221;</p>
<p>Did anyone correct this person?  Did the blogger actually inform this person that the study was already underway?</p>
<p>When it comes to issues like the truth that the budgets recommended by the <span class="caps">IACC</span> are heavily weighted towards environmental causation and the fact that the &#8220;remitted&#8221; autism study is ongoing, I&#8217;m covering it.  Blogs like the Age of Autism are silent on these issues, letting their readership think that the <span class="caps">IACC</span> ignores their wishes.</p>
<p>The groups with a focus on vaccines tend to push the concept of &#8220;biomedical recovery&#8221; and &#8220;environmental causation&#8221;, but they don&#8217;t seem to care when the studies they supposedly called for are actually funded.</p>
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		<title>By: Ian MacGregor</title>
		<link>http://leftbrainrightbrain.co.uk/2010/03/nih-to-study-recovered-autistics/#comment-79118</link>
		<dc:creator>Ian MacGregor</dc:creator>
		<pubDate>Wed, 10 Mar 2010 14:01:04 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=4717#comment-79118</guid>
		<description>Everyone has jumped on the biomedical part of the study.  They also want to include children who have had behavioral treatments which I  imagine is ABA.</description>
		<content:encoded><![CDATA[<p>Everyone has jumped on the biomedical part of the study.  They also want to include children who have had behavioral treatments which I  imagine is <span class="caps">ABA</span>.</p>
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		<title>By: Broken Link</title>
		<link>http://leftbrainrightbrain.co.uk/2010/03/nih-to-study-recovered-autistics/#comment-79114</link>
		<dc:creator>Broken Link</dc:creator>
		<pubDate>Wed, 10 Mar 2010 12:41:30 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=4717#comment-79114</guid>
		<description>And yet another posting where Lori Knowles appears to be really trying hard to find those other recovered kids:

http://health.groups.yahoo.com/group/Autism-Mercury/message/272626</description>
		<content:encoded><![CDATA[<p>And yet another posting where Lori Knowles appears to be really trying hard to find those other recovered kids:</p>
<p><a href="http://health.groups.yahoo.com/group/Autism-Mercury/message/272626" rel="nofollow">http://health.groups.yahoo.com.....age/272626</a></p>
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		<title>By: Broken Link</title>
		<link>http://leftbrainrightbrain.co.uk/2010/03/nih-to-study-recovered-autistics/#comment-79113</link>
		<dc:creator>Broken Link</dc:creator>
		<pubDate>Wed, 10 Mar 2010 12:38:26 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=4717#comment-79113</guid>
		<description>Actually, Sullivan, this study has been advertised on many autism biomed yahoo groups, for example:

http://health.groups.yahoo.com/group/Autism-Mercury/message/264588

IIRC, the only responses were silence, or people who wished they could participate - if their child were recovered, rather than recovering.

I think this is a very interesting study, but my prediction is that they will be unable to find enough children who qualify for the REM-AUT group.</description>
		<content:encoded><![CDATA[<p>Actually, Sullivan, this study has been advertised on many autism biomed yahoo groups, for example:</p>
<p><a href="http://health.groups.yahoo.com/group/Autism-Mercury/message/264588" rel="nofollow">http://health.groups.yahoo.com.....age/264588</a></p>
<p><span class="caps">IIRC</span>, the only responses were silence, or people who wished they could participate &#8211; if their child were recovered, rather than recovering.</p>
<p>I think this is a very interesting study, but my prediction is that they will be unable to find enough children who qualify for the <span class="caps">REM</span>-AUT group.</p>
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		<title>By: Mekei</title>
		<link>http://leftbrainrightbrain.co.uk/2010/03/nih-to-study-recovered-autistics/#comment-79107</link>
		<dc:creator>Mekei</dc:creator>
		<pubDate>Wed, 10 Mar 2010 11:59:39 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=4717#comment-79107</guid>
		<description>I&#039;ve got a set of fraternal twins that would fit nicely into the AUT and TD groups, respectively.

@Ian - good point!</description>
		<content:encoded><![CDATA[<p>I&#8217;ve got a set of fraternal twins that would fit nicely into the <span class="caps">AUT</span> and TD groups, respectively.</p>
<p>@Ian &#8211; good point!</p>
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		<title>By: Laurentius Rex</title>
		<link>http://leftbrainrightbrain.co.uk/2010/03/nih-to-study-recovered-autistics/#comment-79099</link>
		<dc:creator>Laurentius Rex</dc:creator>
		<pubDate>Wed, 10 Mar 2010 10:25:58 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=4717#comment-79099</guid>
		<description>Whilst interesting perhaps as an essay in the sociology of medicine I am afraid that such a study would fail all the tests of a rigid Popperian science in that like faith it is a study based upon an unverifiable hypothesis.

That is to say it is one of Wittgensteins language games in that the notion is predicated upon how one defines autism at any one time, and that recovery is wholly dependent upon refining the categories across an age range. I cannot see, given that there are as yet no bio-markers for autism any wider validity at all.

It is essentially like defining recovery from epilepsy by observing people whose epilepsy is controlled by medication. You won&#039;t see it, (by the same tokens that even the so called gold standards of autism measure the phenomenon) but it is still there.

Heck if I walk into a room, shake hands politely with a physician, fake eye contact, sit down, make my excuses and then depart, you won&#039;t have measured autism or anything else unless you apply surmise and pseudo science to come up with your conclusion whatever that might be.

Larry</description>
		<content:encoded><![CDATA[<p>Whilst interesting perhaps as an essay in the sociology of medicine I am afraid that such a study would fail all the tests of a rigid Popperian science in that like faith it is a study based upon an unverifiable hypothesis.</p>
<p>That is to say it is one of Wittgensteins language games in that the notion is predicated upon how one defines autism at any one time, and that recovery is wholly dependent upon refining the categories across an age range. I cannot see, given that there are as yet no bio-markers for autism any wider validity at all.</p>
<p>It is essentially like defining recovery from epilepsy by observing people whose epilepsy is controlled by medication. You won&#8217;t see it, (by the same tokens that even the so called gold standards of autism measure the phenomenon) but it is still there.</p>
<p>Heck if I walk into a room, shake hands politely with a physician, fake eye contact, sit down, make my excuses and then depart, you won&#8217;t have measured autism or anything else unless you apply surmise and pseudo science to come up with your conclusion whatever that might be.</p>
<p>Larry</p>
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		<title>By: Science Mom</title>
		<link>http://leftbrainrightbrain.co.uk/2010/03/nih-to-study-recovered-autistics/#comment-79074</link>
		<dc:creator>Science Mom</dc:creator>
		<pubDate>Wed, 10 Mar 2010 02:36:14 +0000</pubDate>
		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=4717#comment-79074</guid>
		<description>The inclusion criteria read to me that they will accept children that have underwent &#039;biomed&#039;.  Am I correct with that interpretation?  In any event, this is an important study and great catch Sullivan.</description>
		<content:encoded><![CDATA[<p>The inclusion criteria read to me that they will accept children that have underwent &#8216;biomed&#8217;.  Am I correct with that interpretation?  In any event, this is an important study and great catch Sullivan.</p>
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