ABC Nightline video on the Judge Rotenberg Center

1 Jul

“No detrimental effects whatsoever”. That’s what Matthew Isreal has to say about the shocks used as aversives. I somehow remain unconvinced. The Judge Rotenberg Center has now come under the scrutiny of the United Nations Special Rapporteur on Torture, who has called on the Obama administration to investigate the center.

Obviously, major electrical shocks can be quite harmful. The most serious physical damage occurs when current passes through organs, like the heart. The JRC device appears to be designed to keep the shocks local. At about 50 seconds into the video they apply an electric shock from one of the JRC’s devices to the Nightline commentator. The shock is applied to her arm, but watch her leg twitch. The effects aren’t exactly localized, are they? That is troublesome to me because we don’t know what is going on internally from the shock.

As to emotional long term side effects, who knows? Seriously, can Dr. Isreal really make the claim of “no detrimental effects whatsoever”? Based on what evidence?

From a previous press release criticizing the JRC

The Judge Rotenberg Center (JRC) in Canton is believed to be the only facility in the country that uses often painful electric shock therapy on disabled children in order to alter behavior. In 2007, the State launched a criminal investigation into an incident where a prank phone call to the school led to the repeated electric shocking of two individuals in the dead of night. One of them, a child, was shocked 29 times, the other was shocked 77 times – sometimes while restrained, causing burns so severe they needed to be treated at a hospital. That investigation is apparently ongoing. In October 2009, the JRC made headlines again when Director Matthew Israel was fined by the Massachusetts Division of Professional Licensure for allowing 14 unlicensed employees at the school to use the title “psychologist.”

http://abcnews.go.com/assets/player/walt2.6/flash/SFP_Walt.swf

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91 Responses to “ABC Nightline video on the Judge Rotenberg Center”

  1. Nicholas malkentzos July 20, 2010 at 03:30 #

    Joseph I am not passing judgement I am speaking from experience regarding the side effects of Psychotropic Drugs. When my son was given Risperal he became constipated then could not control his bowel movements, swollen face, lost his speech and seemed to be in a daze like a zombie then a sleeping disorder to name just a few of the side effects; It is also sweetened with Aspartame which is a known to cause cancer and banned in most countries around the world. wNo one knows how the drugs will effect his kidney and liver 10 years from now. I am not here to debate that just look at any pharm. web sites or the Long warning label attached to any Psychotropic Drug. Those are only the short term no one knows the long term but that does not matter to most people unfortubately but it does to me.
    I am not here to promote JRC or justify using any avesives I am just trying to make an informed decision on what is best for my child. I have heard many people critical of using avserives but not many with viable alternatives. Before anyone says there are plenty again PLEASE name them!!!!!! An enough with the 20 year old accusations..
    Studio 3 seems to be an outsource training it sounds good but I can not see my sons school or any school paying an agency from the UK to come here and do staff dev. when they can just give their students drugs its easier and cheaper even profitable to many Psychiatrists.

    This is where I read the story about Matt whio is not my son
    look under Pearl Klien who is Matt’s grandmother.

    http://blogs.villagevoice.com/runninscared/archives/2006/10/school_that_sho.php

  2. stanley seigler July 20, 2010 at 12:14 #

    Mike Stanton say re

    re; being the parent of a severely disabled child does not give you the right to cast slurs on the character and motivation of those with whom you disagree. Nor does it give you the right to invent your own facts.

    agree…and ad hominems not smart…but/tho, someone said (voltaire maybe): “I disapprove of what you say, but I will defend to the death your right to say it”…well not to the death…

    more appropriate what l.rex said (on another blog subject): “this the blog world, not academia, anything goes, it’s Punch and Judy” … and there may be a pony in the manure pile…an alternate to JRC.

    certainly no one should invent facts…hope no one took the inventions as fact…

    re: Are you saying that vaccines cause challenging behaviour?

    careful NicholasM, dont go there… you will lose.

    re: Thanks to Cory Doctorow for this excellent summary

    THANKS to Mike Stanton for posting the excellent summary…and other facts/comments…also;

    MJ say: In 1982, the California Department of Social Services compiled a 64-page complaint that read like a catalog of horrors, describing students with bruises, welts, and cuts…

    stanley seigler

  3. stanley seigler July 20, 2010 at 12:54 #

    I said/ask in previous post: “.thought you said earlier your child was not at JRC…but you were thinking of enrolling him…is matt your son”

    apologies…i missed that all Nicholas malkentzos’ comments quoted Matthew Slaff’s grandmother…ie;

    [Nicholas malkentzos] would rather hear from parents or relatives with children who attend JRC like Matthew Slaff’s grandmother. “I am 95 years old, very much capable of speaking for myself and my family, and capable of speaking out against injustices done to people who are handicapped. Matthew goes to Judge Rotenberg Center.

    stanley seigler

  4. Nicholas malkentzos July 20, 2010 at 14:29 #

    I do not know who you think I am casting slurs on and what facts am
    I making up? Youy seem to be the oe making up justifications for who or what I have no clue but I am speaking from experience not what is fed to me by the pharma controlled media and schools.
    I do not have a clue what you are trying to get across by taking something that is obliviously taken out of context.
    “. and there may be a pony in the manure pile…an alternate to JRC.”

    I think this is enough good luck and you have every right to raise your children the way you want to and live what you deem moral.
    Just don’t push your “morals on me or any other parents who are doing the best they can with their children. You have every right to express your opinion but it does not seem Moral to me to take
    something a child who is under distress out of context to push your agenda or do take reports which were obviously made to protect an agency from a parent who was looking for a lottery lawsuit. Come on this is not rocket science… Follow the $$$$$$$ BEfore you comment on how musch Dr. Isreal is making take a look @ how much the Dr.’s who are promoting Multi Billion $ pharma companies are making.
    Namaste

  5. Nicholas malkentzos July 20, 2010 at 15:00 #

    Besides first hand experience here are a few sources you can read about so the next time you visit the Dr. for your magic pill or support such a caring moral industry you may want to reconsider who you trust!

    SOURCE 1: Massive medical fraud exposed: pharmaceutical company paid doctors to prescribe drugs and run sham clinical trials

    http://www.naturalnews.com/001298.html

    Here’s a must-read article for anyone interested in learning how the pharmaceutical industry really operates. It’s a case of aggressive marketing gone bad, with a mixture of corrupt physicians, underhanded payola and a near-total disregard for patient health. And yet it’s business as usual in the pharmaceutical industry: drug maker Schering-Plough, one of the largest drug companies in the world, has been outright bribing physicians
    to prescribe drugs and operate sham clinical trials.

    Here’s how it would work: doctors who prescribed the drug company’s products and avoided competing drugs were paid “consulting fees” of tens of thousands of dollars. And what kind of consulting did these doctors do? The kind of consulting that requires nothing more than signing a blank sheet of paper and cashing the check, of course. And thousands of doctors participated in this criminal scam, collecting untold sums of money in exchange for hyping Schering-Plough’s pharmaceuticals to patients. (Medical ethics, anyone?)

    SOURCE 2: Which Drug To Prescribe? / Are Doctors Influenced By Pharmaceutical Sales Reps?

    http://arthritis.about.com/od/arthritismedications/a/drugsalesreps.htm

    An article in U.S. News & World Report (2/19/2001) took aim at the impact pharmaceutical sales reps have on the prescribing habits of physicians. Are the decisions doctor’s make about which drugs to prescribe based on knowledge, expertise, your needs, or are they influenced by drug sales reps?

    There have been a few doctor’s offices which have closed their doors to drug sales reps, realizing that it is the job of the rep to sway them toward new and heavily promoted drugs. However, the key word here is “few”. It is not the majority of doctors taking this action.

    Most doctors claim they are not influenced by marketing ploys but research has shown otherwise. A study published in a 1994 issue of JAMA, reveals that doctors who made specific requests to insurance companies that a particular drug be added to the formulary list were 13 times more likely to have met with a rep promoting the drug than doctors not making any such request.

    SOURCE 3: Kickbacks – payments to physicians by pharmaceutical industry for product promotion

    http://findarticles.com/p/articles/mi_m0815/is_n185_v19/ai_15852403/

    Last month, the Office of the Inspector General, Department of Health and Human Services (DHHS) issued a “Special Fraud Alert” targeting aggressive drug industry marketing involving cash and other payments to doctors and pharmacists to promote specific products. The Inspector General warned that such schemes may be in violation of Medicare and Medicaid anti-kickback laws (American Medical News, 29 August 1994). DHHS is concerned that aggressive promotional incentives could harm patients if they influence doctors to make medically inappropriate prescribing choices.

  6. stanley seigler July 20, 2010 at 18:06 #

    in stanley seigler post, 7/19/10; 00:58:46, response to Nicholas malkentzos: i missed the close quotation mark…so comments i attributed to nicholas were actually by Matthew Slaff’s [JRC client] grandmother.

    so i should not have asked if mathew was nicholas’ son…comment “you do not have to justify your decision to place matt in JRC to anyone” not applicable to nicholas, maybe to the grandmother

    the quote: “To the person (Mother Jones) that has written this horribly biased article I say: You have never lived with our children nor studied their conditions” was NOT by nicholas, but by the grandmother.

    there maybe other opines/comments not applicable.

    apologies to nicholas and all…

    stanley seigler

  7. Synesthesia July 20, 2010 at 20:38 #

    How about someone talk to the actual kids at JRC candidly, without the staff around and let them tell how they feel. This can’t be healthy for a child. Physically or mentally. I just do not trust that place.

    • Sullivan July 20, 2010 at 22:37 #

      Synesthesia,

      I agree with what you propose. I would go even further, though.

      Here’s what I see. First, this discussion has too much “big pharma” and “overdrugging” involved. Those are red herrings. Let’s say that Big Pharma is overdrugging kids–does that make it OK to apply electric shocks? No, they are separate questions.

      The methods used at JRC are illegal in my state. And, yet, children from my state are placed at JRC with waivers to the law. Those waivers mean that I, in effect, am approving of the methods used. I am a citizen of this state and my government is allowing this.

      I need more than the word of Matthew Isreal and his cherry picked data to make this decision. A question was posed above as to whether any of us are experts in torture. To that I would answer that I am thankfully not an expert. Why not open the JRC up to inspection by people who are? Why not require that JRC provide some sort of proof that there is no long term side effect, as they claim?

      The data shown by JRC to prove their point is obviously incomplete. I can go into details if anyone wants, but I will just say for now–there is not enough information there to make a reasonable decision in favor of JRC. It is carefully selected and culled data to generate the impression they want to promote. I would like to see closer oversight and reporting.

      I would like someone explain to me how electric shocks can be applied to citizens of my state when our laws don’t allow for it. I would like to understand how electric shocks can be applied to individuals for 10 years and it is considered successful. I would like proof that no one has suffered long term harm from the shocks. I would like to know why electric shocks can be applied to disabled youths, when the use of them are banned for use on adults in prison.

      If Nicholas malkentzos or someone else can start to answer some of those questions without trying to side track us into discussions of drugs, I would welcome it.

  8. stanley seigler July 20, 2010 at 22:17 #

    Nicholas malkentzos say re;

    re: Follow the $$$$$$$ BEfore you comment on how musch Dr. Isreal is making take a look @ how much the Dr.’s who are promoting Multi Billion $ pharma companies are making. Namaste

    believe all know big pharma (BP)…like BP oil, wall st and much of corp USA are greedy, immoral, free market, a-hole, bastards…however, in this discussion BP is your straw man…BP has done more harm than JRC could ever do…this does not excuse or justify JRC torture…

    OTOH appropriate meds under supervision of a knowledge, compassion, psychiatist could be part of an effective program…dont throw out baby with bath water…

    the choices are not big phama or JRC…they are the worst of all possible worlds…there are alternates…eg;

    re: Studio 3 seems to be an outsource training it sounds good but I can not see my sons school or any school paying an agency from the UK to come here and do staff dev. when they can just give their students drugs its easier and cheaper even profitable to many Psychiatrists.

    it is not your sons school…it’s a state’s department of developmental services that have the responsibility to provide necessary services…your school will not pay for JRC…some state (tax payers) will…sadly NY and others take the easy out vice looking at alternates … and pay JRC $200-250,000…do mike stantons math…and;

    there are similar programs in the USA…not sure where you are located…how much research have you done … i looked after getting proper support for my daughter (went from atlanta to lalaland in 1968)…do you or i have the resp to find appropriate support for your son…at 75 i am tired…if you want to settle for JRC…then;

    as you said i do not have the right judge you or any parent…OTOH one day, you may have to justify your decision to yourself and your son…seems like you try to do that now…

    stanley seigler

  9. Kent July 21, 2010 at 00:22 #

    http://vlex.com/vid/malkentzos-debuono-retardation-alcoholism-37702346

    Not sure if this is the same person or not.

  10. stanley seigler July 22, 2010 at 04:25 #

    [kent say] Not sure if this is the same person or not

    regardless of who the person is…the link provides a prime example of the TORTURE bureaucrats (from sea to shining sea) put families through.

    NY no worse than most…but that “Nearly 60 percent [of JRC clients] come from New York” and what they put person in link through speaks volumes to their lack of compassion/understanding (aka stupidity)…

    money spent by states/school districts denying programs would be better spent ensuring appropriate programs are available.

    stanley seigler

  11. Arthur Golden July 22, 2010 at 08:17 #

    Apparently just hours before this blog entry was posted on 1 July 2010, there was an earlier blog entry on the same subject entitled “”UN Calls Shock Treatment at Judge Rotenberg Center ‘Torture'”. On that blog entry, “advocateautie” posted a comment and then I posted a comment directed to advocateautie which went unanswered. Less than 4 hours ago, advocateautie posted a new comment on that other blog entry and I just posted there the following comment (comments are welcome from anyone reading this):

    advocateautie,

    After 3 weeks, I see you have posted here again. So let me repeat my comment directed to you and ask if you could reply to me now? Actually, this thread has been inactive while there has been an active discussion on the LBRB blog entry “ABC Nightline video on the Judge Rotenberg Center”. I plan to post my comment there and I think it would be preferable if you answered there.

    Art

    And following is my original comment directed to you:

    advocateautie,

    1. Did anyone try Daily Life Therapy? If so, what happened? If not, why not?

    2. Did anyone try Facilitated Communication? If so, what happened? If not, why not?

    3. Please quantify the actual data (per week) on “an occasional skin shock.”

    4. Is this the factual information about an actual person or is it hyperbole?

    Arthur Golden

  12. stanley seigler July 25, 2010 at 05:04 #

    [BA say] Here’s my blog post on this issue. You may feel free to harass me due to my not wanting to choose a black and white position: http://www.psychologytoday.com

    [BA blog say] there are situations in which problem behavior is life-threatening and does not respond to standard protocols of functionally analyzing problem behavior and implementing function-based treatments

    OTOH [BA blog say] I have not and never would use skin shock as treatment for severe problem behavior.

    does BA imply he would not treat cases that do not respond to standard protocols…

    it’s this confusing rhetoric that has contributed to JRC’s existence…ie, as anon say on BA blog:

    “as I’m sure you realize, despite all your ambivalent blather, electric shock, restraint, isolation, &tion in an institution, are not teaching methods, they are tools of torture.”

    stanley seigler

  13. Arthur Golden July 25, 2010 at 06:30 #

    Stan,

    I just posted to BA’s blog entry the following comment, which is based on the comment I posted here 3 days ago and before that here and elsewhere. I would greatly appreciate a response from BA or anyone else:

    subject: two alternatives to try before skin shock
    Submitted by Arthur Golden on July 24, 2010 – 10:18pm. PDT

    In response to the use of skin shock at JRC, my son and I have posted in several places two alternatives to try before skin shock. So, to anyone considering the use of skin shock as used at JRC or who has actually been involved in doing so, I would ask the following:

    1. Did anyone try Daily Life Therapy? If so, what happened? If not, why not?

    2. Did anyone try Facilitated Communication? If so, what happened? If not, why not?

    Arthur Golden

  14. stanley seigler August 3, 2010 at 02:30 #

    FYI from a reliable source

    One man from JRC moved into his own apartment in New York City and did fine. A good number moved into behaviorally-oriented community provider programs and did fine. One of their most severely disturbed young men is living in a center in Florida with two staff and a great many restrictions. However, it seems to me that nobody read his medical chart — the person had frontal lobe atrophy discovered right before his major behavioral problems started around age four. People have been shocking this guy or using behavioral techniques on him for 20 years….. and it ALL may very well be neurological (frontal lobes control inhibition). Good grief. Today we are just much better at behavioral techniques and provision of the natural enviornments where people do much better. So our good providers seem to do well with the people who came out of JRC. Some again do better on the medications that JRC keeps them from, for example a man who was shocked for behavior that was related to Tourette syndrome.

    stanley sigler

  15. David N. Andrews M. Ed., C. P. S. E. August 4, 2010 at 05:28 #

    Stanley Seigler:

    “One man from JRC moved into his own apartment in New York City and did fine.”

    Probably because he finally managed to get away from the bloody place…

    “A good number moved into behaviorally-oriented community provider programs and did fine.”

    This is not unheard of. However – as I posted elsewhere – I’m not of the opinion that JRC is behaviourist in its orientation. What it is, I cannot discuss here – what I have to say about that place would get this blog shut down and it’s JRC I want shutting down, not this blog.

    “One of their most severely disturbed young men is living in a center in Florida with two staff and a great many restrictions. However, it seems to me that nobody read his medical chart—the person had frontal lobe atrophy discovered right before his major behavioral problems started around age four. People have been shocking this guy or using behavioral techniques on him for 20 years….. and it ALL may very well be neurological (frontal lobes control inhibition).”

    In a situation like that, behavioural methods can be used effectively to strengthen the neural connections that might result in learning that would be too difficult for a person with frontal lobe atrophy to do unaided. For such a person, using shocks to punish undesired behaviour when the person’s behaviour is largely guided by a problematic frontal lobe is just – inhuman (for one thing) and scientifically unjustified (for another). And science is what I want in interventions and how they become standard practice.

    “Good grief.”

    Regardless of earlier drawn swords, I can honestly say that I echo that sentiment very strongly (and with much coarser words).

    “Today we are just much better at behavioral techniques and provision of the natural enviornments where people do much better.”

    One of the issues with campus-based behavioural regimes is that they do not transfer well into the community setting. The gains quickly go. This is not a fault of behavioural regimes: it’s the fault of adminstrators who insist on them being implemented in campus settings and then release the person back into the wild (as it were) to fend for him/herself. Behavioural interventions aimed at improving problematic behaviour or behaviours of concern are better implemented in the place where the skills gained are going to be used, not in what is essentially a quasi-laboratory setting!

    “So our good providers seem to do well with the people who came out of JRC.”

    I’dsay because they got away from there.

    “Some again do better on the medications that JRC keeps them from, for example a man who was shocked for behavior that was related to Tourette syndrome.”

    Exactly. There are some people who think they are behaviourists but who are not. The cannot get out of this ‘mind-as-little-black-box’ mentality and this is bad for… well… service provision, really (and those to whom services are provided). A good behaviour analyst/consultant will figure into the whole scenario the various medically-determined issues that a client faces and will factor them into any analysis of that person’s behavioural repertoire in various settings. This would enable the BA/BC to accurately determine the questions that an FBA would give the starting information to ask. In the case just mentioned, the implementation of a behavioural intervention with that client would have never included electro-shock as a means to control behaviour that is mediated through the neurological configuration that ends up with a diagnosis of Tourette’s.

    And you buggers at the back – stop singing Kumbayaa!

  16. Roe August 13, 2010 at 04:51 #

    Come’on grownups! Let’s save those kids!
    A name and an email address can make you a hero to a disabled abused child…
    The infamous Judge Rotenberg Center for disabled kids, even the United Nations has declared this school in MA an institution of torture. Now despite its high financial clout you can join human rights groups the world over in ending the abuse, and preventing more deaths! All you need is a name and email address to sign the online petition and show the UN what Americans think of state sponsored torture!
    Sign the petition here…

    http://www.petitiononline.com/mod_perl/petition-sign.cgi?ASDADVO

    Read more about it here…

    http://www.narpa.org/ABC_News-UN_Calls_Shock_Treatment_at_JRC_Torture.htm

  17. marionbarry August 15, 2010 at 11:47 #

    I worked there many years ago and it’s God awful. But that reporter was really hamming it up when she got shocked. There’s absolutely no way that her leg would twitch and she’d freak out like that. I’ve seen co-workers get this shock and there’s little if any re-action. The kids don’t behave like that reporter either.

  18. stanley seigler October 4, 2010 at 16:13 #

    State reviews of the techniques used at the Judge Rotenberg Center (JRC) in Canton, Mass., and the center’s Web site have cited skin shocks, shock chairs, shock “holsters,” shackles and social isolation — some of which are applied to school-age children. [ref say]

    stanley seigler

    ref xxxxxxxxxxxxxxxxxxxxxxx
    From: Disability Rights International [mailto:info@disabilityrightsintl.org]
    Sent: Saturday, October 02, 2010 10:47 AM
    Subject: DRI Torture Op-Ed Featured in Today’s Washington Post

    Washington, DC — October 2, 2010

    Disability Rights International’s “Torture, not Treatment” Op-Ed Published in The Washington Post

    Dear Supporter,

    I am excited to share with you an Op-Ed I authored concerning the egregious abuses taking place against children with disabilities at the Judge Rotenberg Center in Massachusetts, which was published today in The Washington Post.

    The Washington Post Disabled children at Mass. school are tortured, not treated
    By Laurie Ahern Saturday, October 2, 2010

    “We don’t torture,” President Obama said just days after taking office. Perhaps he is not aware of what is happening in his backyard — to children with disabilities in Massachusetts.

    During investigations into treatment of detainees at Guantanamo Bay and Abu Ghraib, detainees reported being short-shackled, verbally abused, isolated, hooded and threatened in ways designed to induce fear of injury, pain and death — including threats that they might be tortured with electric shocks.

    State reviews of the techniques used at the Judge Rotenberg Center (JRC) in Canton, Mass., and the center’s Web site have cited skin shocks, shock chairs, shock “holsters,” shackles and social isolation — some of which are applied to school-age children.

    Click Here to Read the Full-Length Op-Ed

    http://www.washingtonpost.com/wp-dyn/content/article/2010/09/17/AR2010091705376.html

    This publicity is a great first step in making the Obama Administration, the public, and the media pay real attention to the abuses being leveled against our most vulnerarable children–But it is only a first step. If you are outraged that a rogue facility in the US can use taxpayer money to literally shock and restrain children, then please, join the conversation. Write a Letter-to-the-Editor of The Washington Post, and let’s keep this momentum going! With your help, we can put an end to these abuses against children and adults with disabilities.

    Sincerely,

    Laurie Ahern, President
    Disability Rights International
    http://www.disabilityrightsintl.org

    Forward email

    Disability Rights International | 1156 15th Street, NW | Suite 1001 | Washington | DC | 20005

  19. Laila May 11, 2011 at 08:12 #

    Well I prayed for them because I know this is wrong. If these same people think spanking is child abuse than how can they possibly justify this. This is just so wrong, and none of these children could help the way they are born. America has turned into a crap hole I’m ashamed to admit I was born here. The people who ignore this, and talk about celebrities all day disgust me. Please see what government is doing to you, and your money.

  20. Laila May 11, 2011 at 08:14 #

    Obama thinks kids are punishments. He could care less about these kids he could have done something already what a phony.

  21. Chris May 11, 2011 at 08:31 #

    Laila:

    Obama thinks kids are punishments. He could care less about these kids he could have done something already what a phony.

    Citation to the statement that your are referencing please.

  22. Shock'N'Awe June 25, 2011 at 15:15 #

    When a JRC staffer reaches for his/her shock belt to zap a “student,” often, several students see this and start screaming before the student supposedly acting up gets zapped. This is needless trauma to those who weren’t acting up at all. No practitioner in their right mind could possibly justify this as being medically sound.

    Furthermore, some of the kids who scream because they think they are about to be shocked are then shocked for showing their fear. How’s that for a sick form of torture Israel and others at JREC (a.k.a. JERK),

  23. Laila September 29, 2011 at 08:27 #

    This has to stop. This country is a bunch of hypocrits, and we have no right telling other countries what to do. Especially when we treat our most citizens in need worse than animals. I have prayed, and written a nasty note to this center. Someday it will be gone, and those staff will have alot to answer to when their time comes. Obama is not a leader he is a tyrant. What screwed up government we have, and people need to help others. All we have is a bunch of greedy nasty people here who could don’t care about someone elses suffering. Better yet why don’t we test the device on the people who work there zap them a hundred times. If these kids were loved, and were well cared for there would be no need for them to get angry. This makes me sick, and I just pray to God to control my anger against these people who work, and fund this place because I want to end this all now. They are mind controling mentally retarded children the nazi tests have not stopped. Look up MK ULTRA mind control, and Wizard of Oz programing. Look at their website, and compare what you read to that this is all true. Close this place down before someone else does. You can’t call yourself christian, and not do anything about this a prayer anything. These things are still going on it didn’t end at Penhurst State Hospital or all the other places that were shut down.

    • Sullivan September 29, 2011 at 17:09 #

      “Look up MK ULTRA mind control, and Wizard of Oz programing.”

      You aren’t exactly helping make the point with comments like this.

  24. Nick September 29, 2011 at 15:01 #

    Laila
    Unless you have a better alternative then the methods used @ JRC your criticism would be better served and appreciated by finding alternatives that work. While the methods used @ JRC may seem aversive to those who do not know of the severity of the behavior of the students and the more aversive alternatives like Psycho-tropical Drugs which has Many side effects the methods used @ JRC does not have side effects. I have seen the side effects of the methods used @ JRC and the Drug therapy used in the rest of the country and it is not even close in comparison the side effects of Drugs are much worse; It may make some people feel better to feed people drugs and naively think that taking a pill will make everything better but I have seen to many vibrant full of life children become vegetables not able to walk or talk. JRC does not need to pay off politicians to make laws to prevent anyone from suing them for aversive and deadly reactions to their therapy unlike the Drug industry which is the main alternative currently used for students with severe behavior issues. As a parent of a child who is now in JRC your assumption that all these students are not loved or cared for is offensive. You obviously do not have a child who has severe autism or behavior issues if you did then maybe you would do a little more unbiased research and be a little more understanding before passing judgement.

    • Sullivan September 29, 2011 at 17:04 #

      “While the methods used @ JRC may seem aversive….”

      They don’t seem aversive. They are aversive. I don’t think there is any argument on that. Electric shocks are aversive.

      “You obviously do not have a child who has severe autism or behavior issues….”

      You assume a lot.

      “…if you did then maybe you would do a little more unbiased research and be a little more understanding before passing judgement.”

      Can you point me to an unbiased report by an outside group who has been allowed to audit the practices of the JRC? I’d love to read such a report. In fact, as a taxpayer, I want such a report.

  25. Chris September 29, 2011 at 15:28 #

    Leila:

    Obama is not a leader he is a tyrant.

    And he is not the governor of Massachusetts. You might try complaining to the proper authorities in the state, and not the federal government.

  26. stanley seigler September 29, 2011 at 20:25 #

    [nick say] JRC does not need to pay off politicians to make laws to prevent anyone from suing them for aversive and deadly reactions to their therapy unlike the Drug industry which is the main alternative currently used for students with severe behavior issues…
    As a parent of a child who is now in JRC your assumption that all these students are not loved or cared for is offensive. [end say]

    COMMENT:
    know nick’s son is loved…but have never understood why nick juxtaposed JRC and big pharma (BP)…both are guilty of all 7 deadly sins.

    we have been around this bush…see posts beginning with “Nicholas malkentzos July 17th, 2010 13:39:57″…glad to hear nick has found an appropriate program for his most loved son.

    hope nick keeps us informed re son’s progress…also, if verbal, would be interested in son’s opine…

    stanley seigler

  27. stanley seigler September 30, 2011 at 01:54 #

    ps. one may want to read nick’s: Living with autism book (poem)

    http://www.epubbud.com/read.php?g=7Q3BCNTV

    stanley seigler

  28. Nick September 30, 2011 at 01:57 #

    What many of you fail to realize is that there are not a whole lot of choices for children like my son :It is not a matter of juxtaposing JRC with the drug industry it is because psychotropical therapy is the only current alternative in the northeast!! PLEASE do not assume there are plenty because there are Not if so please give me their name address and website which states that they do not use drugs!
    The only alternative I have been given in the whole northeast is Drugs. Stanely your mention of a school or program in the UK studio 3 I did look into and and I have tried some of the feel good therapies and they have not worked and I doubt if my school district would agree to hiring someone from the UK. It is a outsource program and not practical for children who need 24/7 supervision anyway.
    My son has been attending JRC for about a year. There has been no request by JRC to use a GED device; Prior to attending JRC my son was in a residential school in my state and for the last month
    that he attended the traditional residential school for students with autism and emotional behaviors he spent more time in a psychiatric hospital then the school because the school could not handle his behavior and their only solution was to drug him. Like most schools they told me they would only drug my son as a last resort I denied their request so they sent him to a psychiatric hospital as an emergency so they could legally drug him. This was one of the most painful times of my life. I agreed to pay JRC out of my own $ to get him out of there. It was worth it since attending JRC he has not had any psycho-tropical medication and has made progress.
    My son is verbal and he does like to come home on weekends but he also likes to return to JRC during the week for school.

    Sullivan here is just one independent report;

    http://www.judgerc.org/MADMRLevelIII.pdf

    If you are really that concerned about the children @ JRC why don’t you visit the alternative schools who currently use drug therapy for severe behavioral issues and ask them for independent data on how the drugs have been helping children with severe behaviors. Take a look at how happy the students are when they are drugged and can not walk or even pick up a spoon or folk to eat. That is what most of your taxes are going to not JRC the amount of $ is not even close to be comparable.
    Rather then closing JRC who has already done that and leaving parents with no alternative but drugging their children to death!

    • Sullivan September 30, 2011 at 02:23 #

      Sorry for replying with just a quick read of that document–but 8 years ago some people did a single day site visit (page 6). Is this sufficient oversight for a school using an extraordinary measure?

      The idea that there are other schools using other bad methods does not excuse anyone else from misconduct.

      I wish your son well, whatever program he is in. I wish the students being subjected to the electric shocks well too. In my view, their rights are best preserved with more oversight than is currently afforded by JRC. Why is there pushback to have oversight? Why is there resistance to having people spend a lot of time checking that the JRC is run approrpiately?

      The director left recently, correct? He left because it was found that he had destroyed incriminating evidence in the form of videotapes. I don’t feel it outlandish to request that perhaps, just perhaps, more oversight be placed on JRC.

  29. Nick September 30, 2011 at 04:02 #

    The MADMR was and is not the only over-site that JRC is subjected to. There are plenty more examples but nothing is more important to me then first hand experience and I can visit JRC or my sons residence anytime unannounced and visit and speak to him. There are cameras everywhere I have visited many residential schools in numerous states and none come close to being accountable for their actions then JRC. There is no need to get a judges order to drug a child with something that has an Extraordinary amount of side effects unlike A GED device which has no side effects but needs approval from a court approved judge to be used.

    If you believe that using a GED device to prevent a child from poking their eyes or banging their head into a concussion is misconduct that is your right not to send your child to a school that does this. But to prevent a parent from using a method that they are comfortable with and that helps their child then I find that to be misconduct! It is easy to be an idealist when you are not faced with any consequence;

    I agree there should be more over-site in every school and everyone and every industry should be held accountable it is interesting that the only industry that is not liable or held accountable is the pharma drug industry that stands to profit from your idealogical stance on not using GED! Yeh I know one has nothing to do with the other when you do not have a child that has no where to go and you have nothing to lose!

    I do appreciate everyone on this list and all those who are truly concerned with children whom have a disability; It is important to discuss the pros and cons of every type of therapy and school but to be critical of something that works for someone or their child and prevent them from using it and not have a viable alternative is not much help to those with the disability and those who love them.
    Thank you for your understanding !

  30. stanley seigler September 30, 2011 at 15:04 #

    [nick say] This was one of the most painful times of my life. I agreed to pay JRC out of my own $ to get him out of there. It was worth it since attending JRC he has not had any psycho-tropical medication and has made progress…My son is verbal and he does like to come home on weekends but he also likes to return to JRC during the week for school

    thanks for the update…glad your son is doing well…

    as said been around this bush and there is not much new…except that if you can afford $200-250,000 to send your son to JRC (and NY pays JRC similar $$ for people they send there)…then;

    it seems you and NY could afford to set up a supported living program providing 24/7, 1:1 support and appropiate programing and meds…perhaps based on microboard ideas.

    FYI: The history of the Microboard started with David and Faye Wetherow in Manitoba, Canada. David and Faye formed the first microboard around a young man leaving an institutional setting (Microboards and Microboard Association Design, Development and Implementation by David and Faye Wetherow : http://www.communityworks.info)

    David and Faye were also instrumental in providing the format to maintaining the critical requirements of the Microboard concept. Those critical requirements are: [if interested goto: http://www.bridges4kids.org/pdf/Golden-Microboards.pdf%5D

    stanley seigler

  31. Nick September 30, 2011 at 16:35 #

    Thanks for the info and support Stanley The Microboard looks to be a great resource for parents and advocates but as they state on their website it is not for everyone. I try to remain as positive as I possibly can but without being impractical. I agreed to pay JRC if my state refused to pay them
    not because I could afford to pay for it but because it was the most important thing I could do. While I was lucky that they agreed to pay JRC they still have not paid them.

    NY has also stopped all funding for residential housing for people with disabilities. So this is another concern I have when my son reaches 21 and ages out of JRC .
    I set up a school when my son was 2 years old it was not easy but I was younger and not concerned with what was going to happen to my son when I am no longer here which I have to start to do now.

    Thanks again for your understanding I hope your family is doing well it is difficult to understand
    where someone is coming from without walking in their shoes. I sure did not understand before having children with special needs.

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