Archive | November, 2011

Another example of a “leading scientist” on the supposed “vaccine safety” side

30 Nov

Earlier this year a meeting was held in Jamaica as the self-named “Vaccine Safety Conference”.

Part of the “mission” of the meeting was “The conference will bring together leading scientists whose research has raised concerns about aspects of vaccine safety”.

Aside from Andrew Wakefield, who were among the “leading scientists”? Lawrence Palevsky, MD, FAAP. Dr. Palevsky is a holistic practitioner. I.e., alternative medical practitioner. His talk? “Rethinking the germ theory”. Yes, germs are a theory. The idea that viruses and bacteria are the causes of diseases is something which, after a bachelor’s degree and an MD, deserves more than a moment’s question.

Why?

Acute symptoms, such as fever, vomiting, diarrhea, rash, cough, runny nose, mucus production and wheezing, are all important ways in which children discharge stored accumulations of wastes or toxins from their bodies. These toxins enter and are stored in their bodies from repeated exposures to in utero, air, food, water, skin, nervous system stress, and injected materials, that for whatever reason, don’t easily exit their bodies through the normal means of detoxification. These toxins are too irritating to children’s bodies and must be removed. Eventually, a critical level of the toxins is reached, and children get sick with symptoms to purge them. Children, therefore, must be allowed to be sick, in order for them to get well.

Emphasis added.

You see, it isn’t the germs that cause disease. It is the build up of toxins. Children develop symptoms in order to purge the toxins.

How does one treat illness? In specific, how does one deal with fevers? Well, since “Dr. Palevsky does not recommend the use of over-the-counter medicine for fever reduction. He does not believe these medicines are safe for human consumption…” one should embrace fevers as an opportunity to purge toxins. So, instead of using these over-the-counter drugs to alleviate discomfort (or to ward off a really high fever, or protect your seizure prone kid from going into status epliepticus…) one can

To help your child feel better with the symptoms of fever, use one drop of lavender or German chamomile essential oil rubbed undiluted on the tops of both ears, and in the space between the largest vertebrae in the base of their neck and the vertebrae below it.

If there’s evidence and a good theory for that, it isn’t cited by the good doctor.

But wait, there’s more. Put your kid to bed with wet socks on. No, I am not making this up:

Use the wet sock treatment after the warm bath: put a pair of wet, cool, cotton socks on your child’s feet, followed by a pair of dry, wool socks, and put your child to bed. Dr. Palevsky thanks his naturopathic physician colleagues for this smart therapeutic intervention. Many parents report how much it helps to improve their children’s symptoms of fever and upper respiratory issues.

Once again, if there is a hypothesis (much less evidence) for why sleeping with wet socks is therapeutic, it isn’t discussed on his website.

I’ll leave with this paragraph talking about his speaking engagements:

Attendees will also learn that the expression of these symptoms is not necessarily caused by bacteria and viruses. Instead, these symptoms and illnesses occur as a sign our children are healthy; that their bodies are working to bring to the surface, and cleanse, any accumulation of wastes from deep inside, perhaps even with the aid of bacteria and viruses. You will come to understand that we are harming children with the constant use of over-the-counter medications, antibiotics, drugs and vaccines that treat and suppress common and necessary childhood symptoms and illnesses.

Yes, we should welcome these helping viruses and bacteria in our quest to cleanse ourselves of toxins.

Boggles the mind.

Tracking cognitive changes in new-onset epilepsy: functional imaging challenges

29 Nov

Does the onset of epilepsy bring on a change in cognition? I’ve heard people, people who purport to know, state clearly yes…and clearly no.

A recent article poses the question of if such studies could be performed with the fairly recent advances in fMRI and ERPs.

Tracking cognitive changes in new-onset epilepsy: functional imaging challenges.

Functional imaging has potential for tracking changes in cognition during the onset and evolution of epilepsy. Although the concept of imaging such changes over time is an exciting new direction, feasibility remains an open question. The current article outlines a case example in which functional magnetic resonance imaging (fMRI) and event-related potentials (ERPs) were used to monitor memory changes before and after selective temporal lobe resection. From this example, three key methodologic challenges for new-onset epilepsy are identified and discussed. The first challenge relates to the interpretation of results in regions near epileptogenic tissue. We argue that this is best addressed by collecting information from multiple modalities to test for convergent evidence. The second challenge relates to optimizing the methods for sensitivity to detecting changes. In this case, enhanced imaging methods and a region-of-interest approach provide necessary focus. The third and final challenge relates to the practical difficulties of conducting research in new-onset epilepsy cases. We suggest that greater integration of imaging research within the clinical setting is needed.

The example given (monitoring changes after temporal lobe resection) is something quite distinct from new onset epilepsy, but the authors are presenting it as a starting point for what questions to ask and what problems might arise. “feasibility remains an open question” is a major understatement. How does one track an individual before onset of epilepsy or very soon after onset (the third challenge)? And, what regions should be tracked? It gets to be a very hairy problem. But I appreciate the proposal.

WPI v. Judy Mikovits: “The story keeps getting stranger”

28 Nov

A blog at Nature starts out succinctly: “The story keeps getting stranger.” In affidavits filed in the case of Judy Mikovits, the former Whittemore Peterson Institute (WPI) researcher who spearheaded the research which purported to link a mouse virus (XMRV) to chronic fatigue syndrome (CFS). She also publicly stated, based on unpublished results, that there could be a link between XMRV and autism.

After being terminated by WPI, the Institute filed a civil lawsuit claiming that Ms. Mikovits was involved in removal of intellectual property. This resulted in her being arrested and jailed. She has since been released on US$100,000 bail.

What is interesting in this is that more details have become public about what is alleged to have occurred in the removal of the lab notebooks and other items from WPI. These items were not in Ms. Mikovits’ possession when she was let go, as many assumed. Rather, she instructed a former colleague to remove them for her.

In World-known researcher set to be released on bail, the Ventura County Star reports:

Before a civil hearing on Tuesday in Nevada, they filed an affidavit by another researcher at the institute. He said he took notebooks containing about five years of research involving several scientists away from the facility at Mikovits’ request.

Nature has been kind enough to post the affidavits on their website (one and two).

The affidavits claim that Ms. Mikovits intended to use the information removed from WPI to take her research, including her grants, away from WPI. Where she intended to do this research is unclear as she apparently doesn’t have another position at this time.

Her grants were from the National Institutes of Health (NEW STRATEGIES TO DECIPHER THE PATHOPHYSIOLOGY OF CHRONIC FATIGUE SYNDROME) which includes funding in 2009, 2010 and 2011, for $335,600, $311,316 and $302,866, respectively).

The Phoenix Rising blog has a more detailed description of the events.

It is a very, very strange story and it just keeps getting stranger.

Today’s the day: Autism Science Foundation Sometimes it Pays to be Small fundraiser

26 Nov

Here’s a chance to participate in a fundraiser at no net cost to yourself. The Autism Science Foundation is participating in American Express’ “Small Business Saturday” event.

Register your American Express card
https://sync.americanexpress.com/sbs2011

Donate $25 to ASF
http://www.autismsciencefoundation.org/about/donate

American Express will credit you back $25

Today’s the day!! It’s American Express Small Business Saturday. Go to http://www.autismsciencefoundation.org/about/donate and make an online donation to the Autism Science Foundation using your registered American Express Card and Amex will give you a $25 statement credit.   If you make a $25 donation today, it’s like Amex is making the donation for you!!  

Every dollar counts for autism research. Please donate today!
 -Alison

Here is the original announcement:

Sometimes it pays to be small.

The Autism Science Foundation will be participating in American Express’ Small Business Saturday. Please register your American express card at https://sync.americanexpress.com/sbs2011  Then, on Saturday November 26, make a $25 dollar online donation to ASF and you will receive a $25 credit on your Amex bill. This means that Amex is actually making the donation!!  Learn more about the event here: http://smallbusinesssaturday.com/

You must register your AMEX card asap to participate in this program and you must make your donation to ASF on Nov 26 using that registered amex card.  Also, each Amex card will only receive one $25 statement credit so if you use your card at other registered small businesses that day you will only receive the one credit.

We’ll send a reminder the morning of November 26.  Thanks in advance. Every dollar counts!!!

XMRV researcher sued, jailed

21 Nov

XMRV (Xenotropic murine leukemia virus-related virus) has been proposed as being somehow linked to Chronic Fatigue Syndrome (CFS) and autism. The link was made largely by a group led by Judy Mikovits of the Whittemore Peterson Institute.

The study went from publication in the highly prestigious journal Science in 2009, to multiple studies which couldn’t replicate those findings, to a nine-center study which tested the original samples and showed the results were “spurious”.

The lead researcher, Judy Mikovits was fired from the WPI. In the latest chapter in the story, Ms. Mikovits has been sued (Lawsuit Filed Against Chronic Fatigue Syndrome Researcher by Former Employer) and now jailed (Controversial CFS Researcher Arrested and Jailed). In a statement from WPI quoted by ScienceInsider:

“The Whittemore Peterson Institute was required to report the theft of its laboratory materials to law enforcement authorities. These authorities are taking the actions that they deem necessary.”

I’m having a tough time figuring out exactly why Ms. Mikovits was arrested and jailed in this. ERV (who has covered the XMRV/CFS story as thoroughly as anyone, and much more thoroughly than me) discusses this as well in today’s article (XMRV and chronic fatigue syndrome: I fought the lawl and the lawl won).

For those wishing a bit of history:

From a science perspective, the XMRV/CFS link quickly unraveled as multiple groups failed to replicate the results. In July Science published an Editorial Expression of Concern, including the statement:

Since then, at least 10 studies conducted by other investigators and published elsewhere have reported a failure to detect XMRV in independent populations of CFS patients. In this issue, we are publishing two Reports that strongly support the growing view that the association between XMRV and CFS described by Lombardi et al. likely reflects contamination of laboratories and research reagents with the virus.

In September, Science published two articles and a partial retraction on XMRV research. In False Positive, they reported that:

An October 2009 paper in Science found XMRV in the blood of two-thirds of the CFS patients examined, but more than a dozen labs have failed to replicate it to date. Millions of dollars have gone into clarifying the question, which has had far-reaching consequences for people with CFS and, if the virus lurked in the blood supply, the public at large. A nine-lab study published online this week by Science found that none of the labs could reproducibly detect XMRV or relatives of the virus in blood samples distributed under a blinded code

“False Positive” was a “news focus” article (i.e. not a research result) commenting on the research article, Failure to Confirm XMRV/MLVs in the Blood of Patients with Chronic Fatigue Syndrome: A Multi-Laboratory Study .

The online supplemental material for the partial retraction finishes with: “We conclude the results in Figures 1 and S2 and Table S1 of Lombardi et al.(1) were spurious due to contamination with XMRV plasmid DNA.”

Simply put: Researchers from nine groups looked hard at the original samples for the paper linking XMRV with chronic fatigue syndrome. They found the results in the original paper were “spurious”, false positives, due to contamination. This led to the original paper being partially retracted.

To paraphrase one of the researchers involved with the nine-center check on the XMRV/CFS link: all three legs have been kicked out from under the stool supporting the idea that XMRV is linked to CFS.

And, now, the latest turn:

Last week ScienceInsider had an article, Lawsuit Filed Against Chronic Fatigue Syndrome Researcher by Former Employer

A little more than 1 month after firing Mikovits, the Whittemore Peterson Institute for Neuro-Immune Disease (WPI) on 4 November filed suit against its former research director. According to WPI, after Mikovits was terminated on 29 September, she wrongfully removed laboratory notebooks and kept other proprietary information on her laptop and in flash drives and in a personal e-mail account. WPI, a nonprofit organization that’s based on the campus of the University of Nevada, Reno, also won a temporary restraining order that forbids Mikovits from “destroying, deleting, or altering” any of the related files or data.

Mikovits attorney, Lois Hart, said her client cannot speak to the media about the case, but she strongly denies any wrongdoing. In an e-mail to ScienceInsider, Hart stressed that “Dr. Mikovits’ integrity goes to the bone.”

and, this weekend’s report that the police had arrested Judy Mikovits (Controversial CFS Researcher Arrested and Jailed)

Let’s recall, the idea that XMRV is related to autism had even less support than the XMRV/CFS link. The “link” is by anecdotal report. This was first broadly promoted as far as I can tell by David Kirby (Is Autism Associated with A Viral Infection?). Since that time, no paper has come forth from the WPI group. Instead, two papers showing no link have: Lack of infection with XMRV or other MLV-related viruses in blood, post-mortem brains and paternal gametes of autistic individuals and PCR and serology find no association between xenotropic murine leukemia virus-related virus (XMRV) and autism. These are the only two papers I find with a search of pubmed with the search terms XMRV, autism.

I’d like to predict that the CFS community will have a segment who will continue to believe in the XMRV/CFS link and will be showing support for Ms. Mikovits, but that is already true. Comments from ScienceInsider already include:

Dr Mikovits and the WPI have done so much good work on ME/CFS in just 2 years.

I hope there work continues.

and

I have donated to the Mikovits Legal Defense Fund and suggest others who want to see the truth do so as well

I could also “predict” that instead of moving on from this theory, it will just morph into a new version (think “MMR causes autism” morphing into “mercury causes autism” which have both morphed into “vaccines in general cause autism). From ScienceInsider (emphasis added):

Less than a day after a new study dealt what many consider a lethal blow to the controversial theory that a newly detected virus, XMRV, is linked to chronic fatigue syndrome (CFS), proponents and skeptics of the theory squared off in a meeting. Judy Mikovits, the main champion of the idea that XMRV and its relatives play a role in CFS, didn’t make the case for XMRV, but instead, she offered new evidence that people with CFS had a virus “highly related” to XMRV. Her opponent, heavyweight retrovirologist John Coffin, stated that all three legs of the stool the hypothesis rested on had been kicked out from under it. Mikovits’s presentation underwhelmed several of the scientists attending.

One wonders if the drama of the lawsuit and arrest will only add to the support she is getting. If the CFS community has a parallel convention to AutismOne, one suspects that Ms. Mikovits will be given standing ovations and a “Gallileo Courage in Service to the Community” award. Given the purported autism/XMRV link, I wouldn’t put it past AutismOne to invite her.

People often decry the “conservative” nature of medicine. Here is a great example why. Some people put a lot of home into the XMRV story, both for CFS and autism. Some people will never let that hope go.

Congratulations to Kathryn Bjornstad and Corina Becker

18 Nov

In case you missed it in the 5th anniversary announcement for ASAN, they presented Kathryn Bjornstad and Corina Becker an award for exceptional services to the autistic community. This for their work to create “Autistic Speaking Day”.

1st Annual Award for
Exceptional Services to the Autistic Community

Kathryn Bjornstad and Corina Becker
Creators of Autistics Speaking Day

Award given to those who have helped to build the Autistic community through exceptional advocacy, ingenuity or service.

Here is a video played at the ASAN anniversary event.

Since the topic of the title of “Autistic Speaking Day” has been somewhat controversial in some quarters, it’s good to point out the obvious: “autistics listen”. Check the autistics speaking Day blog and you will find a post: Changing the Name of Autistics Speaking Day

The message begins with:

I came up with the name Autistics Speaking Day rather impulsively, when it was mainly a jab at Communication Shutdown and somewhat towards a certain big-name “Autism fundraising” organization, and when I didn’t expect my proposal to be so well received. I kept the name mainly for the history of it and the nifty acronym it created. However, there is an issue with it, an issue that I have been all too aware of from the very beginning.

The issue of the word “Speaking”.

Mum’s plea: ‘Don’t miss MMR’ jab

17 Nov

The past couple of weeks has seen a lot of stories on vaccines again here at Left Brain/Right Brain. We’d all like to move along, but stories like “Mum’s plea: ‘Don’t miss MMR’ jab” just point out some of the real dangers involved, the real risks taken, when people don’t vaccinate.

Yes, there are people who can not vaccinate. Those of us who can vaccinate owe those people whatever protection we can offer.

She said confusion over the research by Dr Andrew Wakefield in the 1990s, which suggested the jabs could cause autism and bowel cancer, had convinced her not to allow her child to be inoculated.

However the 15-year-old was left in intensive care after being struck down with mumps.

His mother, who asked not to be named, said : “The doctor said to me it that if he didn’t have the MMR he would probably be okay because there would never be an epidemic.

There are a number of themes that come up repeatedly in discussions of vaccination online. Yes, Andrew Wakefield’s research has frightened (and continues to frighten) parents away from vaccination. Yes, there are doctors and parents counting on herd immunity to protect children (think Dr. Sears). Yes, these diseases are still dangerous, even in the developed world (for another example, read the story And another SSPE case: Angelina is dying and So predictable – so sad, Natalie dies of SSPE)

read the rest (it is relatively short) here.

NVIC claims “intimidation” and “censorship” over Delta videos

16 Nov

The National Vaccine Information Center (NVIC) is angry with the American Academy of Pediatrics. It is very hard not to follow up a sentence like that with “so, what else is new?” The AAP promotes vaccines and vaccine safety. NVIC, not so much. What caused the present altercation? Both organizations were invited to place advertisements/information segments on Delta Airlines in flight entertainment for this month. After finding out that Delta would also host ads by NVIC, the AAP sent a letter to Delta.

In response, NVIC has issued a press release: “National Vaccine Information Center Calls Out AAP for Using Public Intimidation to Censor NVIC Flu Prevention Video Offered to Delta Travelers”

“Public Intimidation”? AAP sent a letter to Delta. That’s public intimidation? I (and others) obtained a copy of the letter and made it public. I guess that’s the “public” part. A weak argument. “Intimidation”? Sorry, just no evidence to support that word.

“Censor”? Strong words from Barbara Loe Fisher, who attempted to quash public discussion with her lawsuit against Paul Offit, Amy Wallace and Conde Nast. (a lawsuit she lost, just to remind you that free speech is still protected in the U.S.).

So, on the one hand we have NVIC and Barbara Loe Fisher who use lawsuits to try to change the public discourse, and the AAP who send letters on the other hand. And we are to believe it is the AAP who are promoting censorship?

Before we get to the NVIC press release, here is the letter that In Flight Media sent to organizations asking them to buy space for their “Lifestlye365-Cold, Flu, and Fall Allergy Season” series. Part of the offer by In Flight Media was the chance to advertise the organization.

Subject: IMA/Delta Air Lines Present “Lifestlye365-Cold, Flu, and Fall Allergy Season” Featuring [REDACTED]

Dear [REDACTED]

We would like to invite [REDACTED] to participate in our in-flight video series called Lifestyle 365, now airing on Delta Air Lines and Virgin America. We work with organizations around the globe creating in-flight video features that raise the profile on important topics affecting every ones lives. “Where you Live”…“How you Live”…and “What you Do”…it’s your Lifestyle 365.

For our November 2011 video segment we are producing a special health spotlight just in time for “Cold, Flu and Fall Allergy Season.” At a time of year when the weather is changing, kids are going back to school, and families are traveling for the holidays, it is important to raise awareness on the latest resources available for preventing and treating cold, flu and allergy symptoms. This is also a perfect time to remind our audience of the importance of adult and childhood vaccination by showing them when and where to go to get caught up on regular immunizations as well as this years’ flu vaccine. Why not take this opportunity to showcase your organization or product in front of millions of captive airline passengers!

We are proud to extend this opportunity to your organization and have attached additional details regarding pricing and exposure options for each airline. We are offering an exclusive 5-minute option for a rate of $49,500 (Standard is $75,000) with commitment by May 30, 2011.

Here’s a bit more on what you can expect by joining us in this program:

·Placement and production of content utilizing your raw footage within our Lifestyle365 program

·IMA to provide script, voice over and video production creative services at no additional charge, excluding all on- location shoot services.

·Delta Air Lines: Segment to air for a full calendar month on over 17,375 flights in front of an average of 2.5 million passengers

·Virgin America: Segment to air for 60 consecutive days, in front of 880,000 passengers on 7,500 flights

·Delta and Virgin America’s fleets are equipped with WIFI, passengers watching the program can log into your website right from their seat using their laptops or smart phones and instantly make a donation and learn more about your cause

·Show reference in Sky magazine and http://entertainment.delta.com/television/ (would link directly to your website).

·Your organization will maintain the rights to the completed piece to use in future marketing initiatives.

·Video placement on IMA’s YouTube channel, Facebook, and other social media sites

For more than a decade in the airline industry, In-Flight Media Associates (IMA) continues to bring the utmost level of innovation and creativity to organizations around the globe looking to reach the captive airline audience. With a core philosophy that entertainment attracts attention…advertising may not; they create and deliver messages that resonate with passengers in a non-intrusive way.

Our portfolio can be viewed at http://www.in-flightmedia.com. I will contact you in a few days to add more details, but please feel free to contact me at 760-944-6575, or via email at allison@in-flightmedia.com should you have any questions.

Thanks in advance for your consideration. We look forward to helping build Your Image in the Sky®.

Sincerely,

Let me draw your attention to two statements in the above:

“Why not take this opportunity to showcase your organization or product in front of millions of captive airline passengers!”

and

Delta and Virgin America’s fleets are equipped with WIFI, passengers watching the program can log into your website right from their seat using their laptops or smart phones and instantly make a donation and learn more about your cause

Clearly, a big piece of the motivation for organizations (NVIC included) to purchase time was to advertise themselves. NVIC acts as though the complaints (including mine) were not about this at all. How can I tell? Well, the NVIC has responded with a press release. A press release quite full of straw-man arguments:

WASHINGTON, Nov 15, 2011 (BUSINESS WIRE) — The non-profit National Vaccine Information Center (NVIC) is calling public pressure placed on Delta Air Lines by the American Academy of Pediatrics (AAP) to censor an NVIC video about flu prevention an “act of intimidation” to block public access to full and accurate health information about influenza.

NVIC was offered the opportunity to be a paid sponsor of a video about staying well during the flu season that would be included in Delta’s in-flight programming during November 2011. On Nov. 7, Forbes magazine published an article with a copy of a letter signed by the AAP President Robert Block, MD, accusing Delta of “putting children’s lives at risk” by showing travelers the NVIC sponsored video because it contains “harmful messages.”

In the AAP letter, the Pharma-funded medical trade association alleged that “The [NVIC] ad urges viewers to become informed about influenza and how to stay well during the flu season without resorting to the influenza vaccine.”

NVIC co-founder and president Barbara Loe Fisher responded, “Without cause, the AAP has used their considerable financial resources and political influence to intimidate Delta for simply showing a video that offers accurate information about ways to stay healthy during the flu season, including talking with doctors about getting a flu shot. Censorship and attacks on consumer advocacy groups working to institute informed consent protections in public health policies should not be tolerated in this or any society that cherishes free speech and the right to self determination.”

The AAP letter stated that “influenza vaccine continues to be the best way to protect against the disease,” without acknowledging that a recently published scientific study found that the flu vaccine is less than 70 percent effective in preventing influenza, which confirms previous studies questioning influenza vaccine efficacy and effectiveness. A top flu expert at the CDC has said that about 80 percent of flu-like illness reported in the U.S. every year is not influenza but is caused by other viruses and bacteria.

“The AAP’s leadership is clearly threatened by educated consumers, who have every right to engage in critical thinking when making choices about how to stay healthy,” said Fisher. “Why is the AAP so afraid to admit that washing our hands, covering our mouths when coughing, eating nutritious foods, getting enough sleep, exercising, and lowering stress are also important ways to stay well during the flu season and all year around?”

In the letter to Delta, the AAP alleged that NVIC “opposes the nation’s recommended childhood immunization schedule and promotes the unscientific practice of delaying or skipping vaccines altogether.” During NVIC’s three-decades of work to secure vaccine safety and informed consent protections in U.S. public health laws, NVIC has criticized one-size-fits-all vaccine mandates and advocated for more and better quality vaccine safety science but has not told individuals to use a particular vaccine schedule or told them not to get vaccinated.

“NVIC is a non-profit charity led by educated health care consumers. We are not doctors and do not tell people how or when to vaccinate or advise people not to vaccinate,” said NVIC’s Fisher. “We have a long public record of promoting well-informed, voluntary health care decision-making.”

This is the second time this year that the AAP has publicly attacked NVIC and taken action to censor information NVIC has made available to the public. In April, the AAP publicized a similar letter sent to CBS in an unsuccessful attempt to strong arm CBS into removing NVIC’s 15-second message shown on the Jumbotron in Times Square through the month of April.

Parent co-founders of NVIC worked with Congress on the National Childhood Vaccine Injury Act of 1986 and were responsible for securing historic informing, recording and reporting safety provisions in that law. The AAP and vaccine manufacturers lobbied Congress to secure a shield from civil liability for vaccine injuries and deaths in the 1986 law.

“Twenty five years ago, the AAP got liability protection for their pediatrician members, who are no longer accountable in a court of law when the liability-free vaccines they give ending up hurting a child,” said Fisher. “Almost immediately following the 1986 law’s passage, the AAP narrowed medical contraindications to vaccination so that, today, almost no child qualifies for a medical exemption to vaccination. Now, the powerful AAP is lobbying in states like California and Washington to strip parents of the legal right to exercise informed consent to medical risk taking for their children or file non-medical vaccine exemptions. This is becoming a civil and human rights issue involving censorship, inequality, discrimination and persecution of citizens by medical doctors wielding too much power.”

The National Vaccine Information Center (NVIC.org) is a 501C3 charity founded in 1982 by parents of vaccine injured children and is dedicated to preventing vaccine injuries and deaths through public education and protecting the informed consent ethic in medicine.

I will say I found this statement amusing: “Without cause, the AAP has used their considerable financial resources and political influence to intimidate Delta …”

Yes, the AAP used “considerable financial resources and political influence”. No ordinary organization could send a letter! Why, they used the United States Government in the form of the Postal Service to deliver their message. Would that I could tap into that sort of “political influence”.

Without cause? Perhaps NVIC could review the AAP letter, or the many complaints others have made about Delta’s decision to host the NVIC video.

Let me put it simply: Delta should consider seriously whether they wish to promote an organization like the NVIC. Playing these advertisements was clearly a promotion of the organization, as spelled out in the letter In Flight Media sent.

“Censorship and attacks on consumer advocacy groups working to institute informed consent protections in public health policies should not be tolerated in this or any society that cherishes free speech and the right to self determination”

I find it hard to give Ms. Fisher the moral high ground on free speech issues after she sued Paul Offit (and lost), Wired Magazine and Conde Nast.

That said, why do I think that Delta should reconsider supporting NVIC? How about the NVIC press release?

The AAP letter stated that “influenza vaccine continues to be the best way to protect against the disease,” without acknowledging that a recently published scientific study found that the flu vaccine is less than 70 percent effective in preventing influenza, which confirms previous studies questioning influenza vaccine efficacy and effectiveness. A top flu expert at the CDC has said that about 80 percent of flu-like illness reported in the U.S. every year is not influenza but is caused by other viruses and bacteria.

First off, notice how NVIC glossed over the statement by the AAP that “influenza vaccine continues to be the best way to protect against the disease”? They don’t come out and say AAP is right or wrong. What they do is follow it with nonsequiturs which downplay the need for the vaccine.

It’s pretty slick. They get to give the impression that the AAP is incorrect about the statement, and retain deniability.

NVIC: how about a simple statement. Is the flu vaccine the best way to protect against the disease or not?

On with the paragraph. NVIC pose that the 70% efficacy of the flu vaccine as a bad thing that is being kept hidden. Hey, I’d like a flu vaccine that was more than 70% effective, but, 70% is well worth it. 70% less chance of being sick with the flu? 70% less chance of passing the flu on to someone who is vulnerable to injury or death from the illness? I’d say “sign me up” except that I already got my shot this year.

That said, can NVIC offer an alternative which is proven better than 70%? Can they provide a method which is better than the combination of taking care of one’s self, attention to hygiene, plus the vaccine?

The second sentence in that paragraph is also troubling. “A top flu expert at the CDC has said that about 80 percent of flu-like illness reported in the U.S. every year is not influenza but is caused by other viruses and bacteria.” So? The statement was “influenza vaccine continues to be the best way to protect against the disease”, not “influenza vaccine continues to be the best way to protect against the disease and every other disease which is similar.”

This is exactly the sort of message I disagree with NVIC about. Downplaying the need for vaccines. Does NVIC say, “80% of flu-like illnesses might be caused by other disease–so, we should be looking for vaccines to protect against those viruses and bacteria as well”? Or, “Influenza vaccines might be only 70% effective, so we want research into a more effective vaccine”? Hardly.

NVIC claims that the AAP is “accusing Delta of “putting children’s lives at risk” by showing travelers the NVIC sponsored video because it contains “harmful messages.”

See how they want to ignore anything outside of their video? Let’s take a look at the paragraph with the “putting children’s lives at risk” phrase:

By providing advertising space to an organization like the NVIC, which opposes the nation’s recommended childhood immunization schedule and promotes the unscientific practice of delaying or skipping vaccines altogether, you are putting the lives of children at risk, leaving them unprotected from vaccine-preventable diseases.

AAP are objecting to promotion of the NVIC in general, not just the video. I guess NVIC didn’t want to address the question of whether they promote delaying or skipping vaccines, and whether this is unscientific.

NVIC tries to frame itself as a “vaccine safety” organization, asking only for “safer vaccines”. As I pointed out in an earlier post, they never define “safe”. They don’t seem to have called any vaccine “safe”.

Frankly, this looks like an effort for NVIC to try to get more publicity. In doing so, they are probably guaranteeing that Delta will not accept their advertisements in the future (or they have given up on any future spots) .This is a public relations nightmare for Delta. Last thing they want is a public debate about how they are contributing to a group who is putting children’s lives at risk. And, let’s face it, the American Academy of Pediatrics is well respected.

I’ll close by responding to a statement in the press release: “NVIC is a non-profit charity led by educated health care consumers’

Left Brain/Right Brain is also a group of educated health care consumers. Educated enough to reject the NVIC’s message. The real message, not the one they hide behind. The message of a group that thinks that vaccines are a “holocaust of poison“.

Happy Birthday ASAN

16 Nov

The Autistic Self Advocacy Network is celebrating it’s 5 year anniversary today. While it is too late to register for the event, below is the announcement they put out.

Please Join Us for
The Autistic Self Advocacy Network’s
5 Year Anniversary Celebration

Join us for a special celebration and fundraising event
The National Press Club in Washington, DC
Wednesday, Nov. 16, 2011
6:30 – 9:00 pm
—-
1st Annual Award for
Exceptional Services to the Autistic Community

Kathryn Bjornstad and Corina Becker
Creators of Autistics Speaking Day

Award given to those who have helped to build the Autistic community through exceptional advocacy, ingenuity or service.

with Special Guest Commissioner Sharon Lewis, ADD
Honoree: Ms. Nancy Thaler, Executive Director, NASDDDS
Keynote Speaker: Dr. Alexa Posny, Assistant Secretary, SERS
Special Announcement: Ms. Subha V. Barry, Senior VP, Freddie Mac

Cocktails, hor d’oeuvres and dessert will be served.
Proceeds will support our advocacy work and programs for the coming year and allow us to continue working to empower disabled people across the country.

ASAN is a 501(c)(3) organization – Ticket amount above $50 and additional donations are tax deductible to the fullest extent allowed by law.

http://www.autisticadvocacy.org

ASAN Symposium on Ethical, Legal and Social Implications of Autism Research

16 Nov

The Autistic Self Advocacy Network (ASAN) is co-hosting a symposium on Ethical Legal and Social Implications of autism research. I wish I was local and could go see this. You can register to attend here.

The Autistic Self Advocacy Network, in conjunction with the Petrie-Flom Center for Health Law Policy, Biotechnology and Bioethics, the Harvard Law Project on Disability and the UNESCO Bioethics Chair American Unit, is proud to invite you, to join us on December 10th for a Symposium on Ethical, Legal and Social Implications of Autism Research at Harvard Law School. The free event will run from 9 AM to 3 PM at the Harvard Law School campus, Hauser Hall, Room 105. Topics covered will include prenatal testing, community participation in research methodologies, appropriate and inappropriate intervention goals and much more.

This symposium will serve a unique role in shedding light on ethics and values issues within the autism research community. By bringing together self-advocate and researcher participants, we hope this will serve as a starting point for meaningful dialogue between those conducting research on autism and the community of Autistic adults and youth. Confirmed participants include Administration on Developmental Disabilities Commissioner Sharon Lewis, ASAN President and IACC Public Member Ari Ne’eman, National Institute on Child Health and Human Developmental Director Alan Guttmacher, Harvard Law Professor Michael Stein, Paula Durbin-Westby, Emily Titon, Liz Pellicano, David Rose and many more.

This event is open to the general public without charge and is made possible by a grant from the Administration on Developmental Disabilities.
Get more information
Register Now!
I can’t make it
Please join us as we begin this exciting conversation. Space is limited, so please RSVP soon.

Sincerely,

The Autistic Self Advocacy Network