IAN, the Interactive Autism Network, the UJA Federation of New York and the Autism Science Foundation have teamed up to sponsor the Adult with ASD Survey.
The survey closes on December 31, so time is short to participate. You can take the survey here.
Here is a description of the effort from the ASF:
As many of you know, there is little information about the changing needs of adults with autism spectrum disorders (ASD) to guide those planning programs and services. That is why the UJA Federation of New York and the Autism Science Foundation are asking adults with ASD (and their parents or guardians) to complete a survey addressing what is going well in daily life, and what is a challenge. The results of this survey will inform decision making with regard to which programs should be expanded and which may no longer be of value.
We invite you to take this survey by joining the Interactive Autism Network (IAN)—the world’s largest online autism research project—and then completing the UJA Adult with ASD Survey. As a member of IAN, you’ll be informed about future surveys and studies, with a chance to provide ongoing input regarding the experience of adults with ASD over time.
Your participation is critical, and will inform those planning programs about which resources and services adults with ASD and their families need most.
Eligibility for Study Participation:
You are eligible to participate in IAN and the UJA Adult with ASD Survey if you are:
An 18-35 year old adult with ASD who is independent (that is, you are not under anyone’s legal guardianship)
The parent of an independent 18-35 year old adult with ASD (that is, your adult son or daughter with ASD is not under legal guardianship and maintains the right to make their own medical and legal decisions)
The legally authorized representative of a dependent 18-35 year old adult with ASD (For example, you may have legal guardianship or medical power of attorney for the adult with ASD)
IAN registration and this survey can be completed entirely online and will take approximately 20 minutes.
If you’d like to read the IAN Research study consent form, including privacy policies, before continuing, click here:
Principal Investigator: Dr. Paul A. Law
Contact Information: If you have any questions, the IAN team is happy to answer them for you. You can contact them at 1-866-348-3440 or firstname.lastname@example.org.
To begin registration and the survey, click on the link below:
By Matt Carey