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Protesting Kerri Rivera and Chlorine Dioxide Abuse

26 Jun Featured Image -- 14361

Sullivan (Matt Carey):

You always hear from groups promoting false cures “listen to the parents”. Well parents, like me, see MMS (Miracle Mineral Solution) aka CD (Chlorine Dioxide) as abusive. There is no evidence that it works. There is no good explanation for why it should work as a therapy. And there is the chance of adverse reactions.

No benefit and a risk. Risk/reward ratio is 0.

Originally posted on The Skeptical Beard:

Guest Post by Alison Bernstein of Mommy, PhD

This past Saturday, a small group gathered outside the Loews Chicago O’Hare Hotel to protest the presentation by Kerri Rivera at the AutismOne conference. Kerri Rivera promotes the use of chlorine dioxide, or CD, an industrial bleaching agent, for bleach enemas to “cure” children with autism. Here, I am sharing stories from three of the protesters. (If you haven’t read about this issue before, please see the end of the article to learn about CD, Kerri Rivera and why we were protesting her presentation at AutismOne.)


Rebecca F is a mom to two boys, one with autism. She joined to promote awareness and respect for her son and all those with autism. She wanted the opportunity to talk directly to parents because so many people try to exploit special needs parents, both financially and emotionally.

Kim Z is a mom who participated…

View original 2,360 more words

Illinois to Kerri Rivera: Show that MMS works or stop making claims.

26 Jun

MMS is a scam, plain and simple. And it has been very frustrating to watch as people make grandiose claims with no one making them actually back those claims up.

Which is why I appreciate that the State of Illinois basically asked Kerri Rivera “Put up or Shut Up”. And she chose the latter. At least in Illinois.

NBC Chicago has an article up: State Takes Action Against “Miracle Treatment” For Children

In that article they quote the Illinois Attorney General:

“I’m very thankful that NBC 5 actually brought this to our attention,” said Illinois Attorney General Lisa Madigan. “Because clearly, you have a situation where there are people, complete quacks, that are out there promoting a very dangerous chemical being given to young children.”

And, further:

Madigan’s office dispatched investigators to a Rivera appearance at a suburban Chicago hotel in late May. After her seminar, they served her with a subpoena, demanding that she substantiate the claims she had made of her protocol’s effectiveness in treating autistic children.

Madigan’s office said Rivera entered into what is known as an assurance of voluntary compliance, where she agrees not to conduct future seminars in Illinois.

Substantiate the claims: put up.

Agree not to conduct future seminars: shut up.

Here’s the agreement.

This autism parent thanks the State of Illinois for stepping up and taking action. MMS is a scam and it is about time people started taking action to stop the overblown claims.


By Matt Carey

TED Talk: Steve Silberman: The forgotten history of autism

22 Jun

Steve Silberman has been researching the history of autism for 5 years.  I met him at the start of this journey, at IMFAR in San Diego and even then he had a good grasp of autism.  Since then he has unearthed a great deal and I am eagerly awaiting his book (which I have already pre-ordered).

Recently, Mr. Silberman gave a TED talk: The forgotten history of autism.  And it is now online.

By Matt Carey

More California Advicacy Needed: take 20 seconds to protect services

22 Jun

Take 20 seconds and use the link to send a message to your legislators that we are angry tha the proposed state budget removed the increase for disability services.

Or, take more than 20 seconds and go into more detail about how this “compromise” budget fails to keep the promise we as a state have made to our own.

The letter below is from The Arc & United Cerebral Palsy California Collabortation.

Next step to save our services: more 20-second emails needed

Take Action!
Dear Developmental Disability Community Friends,

If you want to skip the explanations and take more action now to save our community services, just click on the blue “Take Action!” button at the top right of this Action Alert. Then fill in the blanks to send emails to your local state senator and assemblymember.

It will take you about 20 seconds — unless you want to elaborate beyond the short canned email I’ve given you. If you’re distressed or angry about the new state budget that includes zero to top our service system from continuing to disintegrate, as so many people in our communirty are, feel free to say so.

Last time I sent you one of these point-and-click Action Alerts, we generated more than 10,000 emails, going to every one of the 120 legislators. I know firsthand that it got attention. This time, let’s get 20,000.

And now for those who want the explanation – it’s grim, but there’s hope — click here.

Thank you for your advocacy.
Greg

Greg deGiere
Public Policy Director
The Arc & United Cerebral Palsy California Collabortation

Yes, this is a repeat of an article posted over the weekend. But weekends get low traffic and we need to keep this effort moving forward. And I am adding the message I sent my legislators below.

As a citizen (born here!) of California, I made a promise to disabled Californians that I would help support them. I do this with my taxes and have for years.

Now that I have a disabled child, I see that the level of support we offer has been low and recently has been diminishing.

We Californians made a promise, we need to keep it.

I am extremely disappointed with the Legislature for caving in to Governor Brown and passing a budget with not one dime to stop the deterioration of our developmental services.

Please do much, much better in the special legislative session. Give the developmental disability community the emergency 10% across-the-board funding increase we need starting NOW. Anything less won’t stop the service system from collapsing, just slow it down.

And please, don’t pass any more unfunded mandates on our community service providers. When you vote on Senate Bill 3 to raise the minimum wage and any other bills to make our providers spend more, insist that the state cover the full costs to prevent the loss of ever more of our services.

The people who take the front lines in supporting our disabled have one of the most demanding jobs in our State. I started out on the minimum wage and know the limitations of it. I’m support an increase.

Be compassionate with the minimum wage, but understand that we have to realize that this will impact our most vulnerable citizens.

Respectfully Submitted,

Matthew J. Carey

More California Advicacy Needed: take 20 seconds to protect services

21 Jun

Take 20 seconds and use the link to send a message to your legislators that we are angry tha the proposed state budget removed the increase for disability services.

Or, take more than 20 seconds and go into more detail about how this “compromise” budget fails to keep the promise we as a state have made to our own.

The letter below is from The Arc & United Cerebral Palsy California Collabortation.

Next step to save our services: more 20-second emails needed 

Take Action!
Dear Developmental Disability Community Friends,

If you want to skip the explanations and take more action now to save our community services, just click on the blue “Take Action!” button at the top right of this Action Alert. Then fill in the blanks to send emails to your local state senator and assemblymember.

It will take you about 20 seconds — unless you want to elaborate beyond the short canned email I’ve given you. If you’re distressed or angry about the new state budget that includes zero to top our service system from continuing to disintegrate, as so many people in our communirty are, feel free to say so.

Last time I sent you one of these point-and-click Action Alerts, we generated more than 10,000 emails, going to every one of the 120 legislators. I know firsthand that it got attention. This time, let’s get 20,000.

And now for those who want the explanation – it’s grim, but there’s hope — click here.

Thank you for your advocacy.
Greg

Greg deGiere
Public Policy Director
The Arc & United Cerebral Palsy California Collabortation

The Age of Autism hits another low: excusing shaken baby syndrome

17 Jun

The Age of Autism blog has been an embarrassment to the autism communities since it was founded. They take a very vaccine antagonistic stance, promote unproven and sometimes harmful fake “therapies” and attack those whom they disagree with. In their attacks on vaccines they have until now avoided one of the most ugly claims: that shaken baby syndrome is actually vaccine injury. It’s an excuse for child abuse, a way to build a smoke screen to try to excuse someone who has harmed a child.

They have avoided this claim. Until now.

Today I was informed that they had crossed that line with an article: When is ‘Shaken Baby’ Syndrome Possibly Vaccine Injury Instead?

Besides being a new low for Dan Olmsted’s team, what does this have to do with autism? Nothing.

If you want to read about the shaken baby syndrome as vaccine injury lie, here’s

Science Based Medicine: The antivaccine lie that just won’t die: The claim that shaken baby syndrome is really due to “vaccine injury”

The National Center on Shaken Baby Syndrome: The Role of Irresponsible Medical Expert Testimony in Creating a False Causal Connection

I long ago gave up on the so-called “editors” at the Age of Autism for demonstrating any ability to keep absolute nonsense off their blog. They lack leadership, they lack courage, they lack integrity.

They are an embarrassment to our communities. The autism communities stand apart from the ugly lie that shaken baby syndrome is vaccine injury.

By Matt Carey

San Jose (and across the State) Keep the Promise Rally

16 Jun

Just got this letter and am posting it here: Rallies are being held to advocate to protect the budget for disability services in California.  This letter focuses on the San Jose Rally, but also gives links for rallies across the state.

We need to do what we can to preserve services here in our state.  Now is the time to act–call, fax, attend a rally.

KEEP THE PROMISE RALLY

 

Friday, June 19

12:15 pm to 1:00 pm

San Jose City Hall Plaza

200 E. Santa Clara St.

 

Join Senator Jim Beall for an important rally with consumers and advocates from the developmental disabilities community to urge Governor Brown to approve the Legislature’s modest budget increase and reform proposal for the developmental disabilities services programs.

 

Programs are in crisis and closing at record numbers. The gains obtained in the Legislature’s budget cannot be lost.  We must keep lobbying because 280,000 people are counting on us.

And as you lobby the Governor and Leadership remember: Your stories matter and your advocacy has an impact.  Join us Friday and share your story directly with the Governor by following the instructions below.

 

Leave your message via these options:

Phone: 916-445-2841 // Fax: 916-558-3160

 

https://www.facebook.com/jerrybrown

https://clicktotweet.com/em7dn

https://govnews.ca.gov/gov39mail/mail.php

Advocates across the state have organized a statewide campaign to tell Governor Brown to support the budget and reform proposals for developmental services! Learn more about how you can participate and get involved.

 

Keep The Promise Rallies will be taking place at the following locations:

 

New! San Jose

www.tinyurl.com/06-LC-SJ

 Sacramento

www.tinyurl.com/LC-06-sac

 Oakland

www.tinyurl.com/LC-06-oak

New! San Francisco

www.tinyurl.com/06-LC-SF

New! Los Angeles (2 rallies)

www.tinyurl.com/06-LC-LA

San Diego

www.tinyurl.com/LC-06-SD

Online Vigil

http://thearcca.org/38.html

 

 

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