Archive by Author

#StopCombatingMe: A New PSA from ASAN

16 Apr

Below is an email message sent out by the Autistic Self Advocacy Network (ASAN)

The Autistic Self Advocacy Network is proud to release our newest advocacy PSA, #StopCombatingMe. Produced in collaboration with We Are St. Elmo’s Fire, #StopCombatingMe provides a powerful perspective on the deeply flawed Combating Autism Act and urges for badly needed reforms and action. You can watch the PSA here.

ASAN is working to try and reform CAA to align its goals with those of the Autistic community: self-determination, community integration, acceptance, and meaningful advocacy. Unfortunately, the usual suspects are lobbying intensely, urging Congress to re-authorize the Combating Autism Act at all costs, even if changes aren’t made to fix the problems hurting self-advocates and our families. In fact, these groups are lobbying to make additional catastrophic changes which would wall the Autistic community off from the protections currently serving the rest of the disability community.

Congress has heard from us over and over again on why this proposed legislation will hurt our community. If we want them to listen, they need to hear from you.

1) Sign our action alert to contact your Members of Congress and ask them to support reforming the Combating Autism Act to make it about supporting autistic people, not “combating” us. Share our action alert with your friends, family and networks to help us get this message out far and wide.

2) Share our PSA and action alert with your friends, families, and networks. Post on social media about why you believe CAA has to be reformed using the hashtag #StopCombatingMe. Tweet our video to your Members of Congress, and post it to their pages with a note to let them know why fixing the Combating Autism Act is so important.

3) Schedule an appointment with your Member of Congress’ District Office. Every Congressperson keeps offices in their home district as well as in DC; constituents can make appointments to visit these offices and express concerns. In-person meetings, even with Congressional staff, are the most effective means of creating real change in legislation. You can use our fact sheet and memo on CAA Re-authorization to guide your advocacy, and share our joint letter from the disability community. Find the district offices nearest to you here. If you have any questions or need help arranging a meeting, ASAN’S Director of Public Policy, Samantha Crane, can be reached at Scrane@autisticadvocacy.org

With the re-authorization bill set to be introduced within the next few weeks, it’s critical that your Members of Congress hear from you now. Tell Congress that it is past time to Stop Combating Autistic People.

Nothing About Us, Without Us!

Jenny McCarthy tries to position herself as in the “grey area” on vaccines

16 Apr

Jenny McCarthy seems a bit angry at bloggers. She’s written an op-ed for the Chicago Sun Times Jenny McCarthy: The gray area on vaccines. She’s not antivaccine, she wants us to know.

Well, Jenny, I don’t call you antivaccine. I call you irresponsible. And I stand by that. Mostly for your promotion of autism “therapies” which range from useless to abusive. Will you be speaking at the AutismOne conference this year? If so, will you speak out on forcing disabled children to drink diluted bleach solutions or undergo repeated diluted bleach solution enemas? Really, it’s time to grow a spine and stop lending your name to nonsense.

Back to vaccines, here’s what you say now:

For my child, I asked for a schedule that would allow one shot per visit instead of the multiple shots they were and still are giving infants.

But only a few short years ago you told us you wouldn’t vaccinate if you had another child. A very different statement. What are young parents supposed to listen to? “I’m pro vaccine” or “I wouldn’t vaccinate my child”.

Irresponsible.

You hide behind straw-man arguments, even now:

I believe in the importance of a vaccine program and I believe parents have the right to choose one poke per visit. I’ve never told anyone to not vaccinate. Should a child with the flu receive six vaccines in one doctor visit? Should a child with a compromised immune system be treated the same way as a robust, healthy child? Shouldn’t a child with a family history of vaccine reactions have a different plan? Or at least the right to ask questions?

Parents have the right to pick their schedule. You know that. You said that in your “Green Our Vaccines” rally (3:20). The schedule is “recommended”. Children need to be vaccinated to attend school, but no one checks when they got their vaccines. Why do children need to be vaccinated? Well, for one thing, those children with compromised immune systems you talk about. They are at high risk for infectious diseases. They are not treated the same as other children, either by their pediatricians (yes, I’m calling you out on a straw man there) nor in school, where we are expected to help protect them.

Here’s what I call irresponsible: scaring people about vaccines with your ill founded opinions. Telling people that you wouldn’t vaccinate your baby, but claiming to be “pro vaccine”.

KING: Jenny, will you agree that some cases have nothing to do with vaccines, which makes it more puzzling?

MCCARTHY: Absolutely. You know, environmental toxins play a role. Viruses play a role. Those are all triggers. But vaccines play the largest role right now and something needs to be done. You know, testing these kids for immune issues, you know, that would help so much, changing the schedule. You know, I don’t understand — as a precautionary measure, why don’t they do this?

So, vaccines play the largest role right now? Based on what data? I’ve seen your “studies” and they are junk. Do you still believe that “vaccines play the largest role”? The evidence is even more against you now. You had a chance to clarify your position on autism and vaccines in your op-ed and you avoided it.

Here are more scary statements, without evidence:

But I believe that’s — it’s an infection and/or toxins and/or funguses on top of vaccines that push children into this neurological downslide which we call autism.

Here you are with Mr. Carrey:

MCCARTHY: Go back to 1989 schedule when shots were only 10 and the MMR was on that list. I don’t know what happened in 1990, there was no plague that was killing children that we had to triple the amount of vaccines.

CARREY: What happened back in 1989 that warranted 26 more vaccines?

MCCARTHY: Greed.

CARREY: Are all of them absolutely necessary?

KING: Because they want to make money?

MCCARTHY: Of course.

Vaccines are only necessary because people want to make money. That’s “pro vaccine”? More to the point, that’s responsible? Sure, let’s go back to the time when Hib infections caused lasting harm or even death. Let’s go back to the 1980′s. The vaccine is just there to feed greed, right?

Irresponsible.

I can go on and on with various irresponsible quotes of yours. Again, your statement that you would not vaccinate if you had another child is probably the most irresponsible when it comes to vaccines. Here’s what the founder of your autism organization had to say about his team’s efforts:

With less than a half-dozen full-time activists, annual budgets of six figures or less, and umpteen thousand courageous, undaunted, and selfless volunteer parents, our community, held together with duct tape and bailing wire, is in the early to middle stages of bringing the U.S. vaccine program to its knees.

You once shouted down someone saying that vaccines were beneficial, shouting “bullshit” on Larry King live. When you have the guts to distance yourself from the above statement, perhaps I’ll agree that you have guts. That you mean what you say. For now, it’s just Jenny McCarthy, putting her name in the press, yet again. Jenny McCarthy, selectively quoting herself to make herself seem responsible.


By Matt Carey

IACC Issues Statement Regarding Implications of Changes in the Diagnostic Criteria for Autism Spectrum Disorder

7 Apr

The update of the DSM to the DSM-5 was met with a great deal of discussion by the autism communities. The U.S. Interagency Autism Coordinating Committee (IACC) has prepared a statement “IACC Statement Regarding Scientific, Practice and Policy Implications of Changes in the Diagnostic Criteria for Autism Spectrum Disorder“. The statement can be found online and as a pdf.

The press release for the statement is below.

For Immediate Release
Wednesday, April 2, 2014

Contact: Office of Autism Research Coordination/NIH
E-mail: IACCPublicInquiries@mail.nih.gov
Phone: (301) 443-6040

IACC Issues Statement Regarding Implications of Changes in the Diagnostic Criteria for Autism Spectrum Disorder (PDF – 115 KB)

Today, on World Autism Awareness Day 2014, the Interagency Autism Coordinating Committee (IACC) issued a statement regarding the scientific, practice, and policy implications of changes in the diagnostic criteria for Autism Spectrum Disorder (ASD) that were made in the most recent update of the Diagnostic and Statistical Manual of Mental Disorders (DSM). This link exits the Interagency Autism Coordinating Committee Web site

In 2013, DSM was revised for the release of its fifth edition, consolidating previous autism-related diagnoses together into a single “autism spectrum disorder” diagnosis defined by two groups of symptoms—social communication impairments and restricted, repetitive behaviors—while including intellectual and language disabilities as additional labels that can be added onto a primary ASD diagnosis.[1, 2] To address a variety of issues surrounding the implementation of the new criteria, the IACC assembled a planning group composed of IACC members and invited experts in the field to advise the IACC on this subject.[3] Based on the group’s findings, the IACC issued a statement, describing a range of scientific, practice, and policy implications that have arisen as a result of the changes in the DSM criteria, and providing recommendations for future research and implementation of the new criteria.

“The new criteria reflect advances in our understanding of ASD. At the same time, many in the community have raised questions about how the changes will affect people in the community,” stated Dr. Geraldine Dawson, who chaired the DSM-5 planning group. “In this report, we considered how the diagnostic changes might affect individuals and families, as well as the future of the field, and tried to anticipate needs that will arise in the research, clinical practice, and services arenas. We hope this report will help address some of the concerns that have been raised and provide valuable guidance to individuals, families and professionals.”

In the statement, the IACC acknowledged concerns about the potential for changes in the diagnostic criteria to impact access to services, urging that, “Any revision of the diagnostic criteria must be made with great care so as to not have the unintended consequence of reducing critical services aimed at improving the ability of persons with autism.” The Committee recommended research to further assess the reliability and validity of the DSM-5 ASD criteria, and to understand the potential impact of these new criteria on diagnosis, prevalence estimates, and access to services.

The IACC also identified several key practice and policy issues that will be important for the community to consider as DSM-5 is implemented in real-world settings, especially with respect to services. As the new criteria have not yet been rigorously tested in young children, adults and ethnically-diverse populations, the Committee cautioned clinicians to pay special attention to individuals with obvious ASD symptoms who narrowly missed being diagnosed with ASD according to the new criteria. In addition, the Committee strongly emphasized that, “Services should be based on need rather than diagnosis; it would not be appropriate for a child to be denied ASD-specific services because he or she does not meet full DSM-5 criteria if a qualified clinician or educator determines that the child could benefit from those services.”

With this statement and its list of recommendations for future research, practice and policy, the IACC endeavors to support implementation of DSM-5 with appropriate caution and rigor. Using these criteria to benefit people with ASD remains the primary goal, ensuring access to interventions, services and supports that will help people on the autism spectrum optimize their health and well-being, and meaningfully participate in all aspects of community life.

References

1 American Psychiatric Association. 2013. Diagnostic and Statistical Manual of Mental Health Disorders: DSM-5 (5th ed.). Washington, DC: American Psychiatric Publishing.

2 Diagnostic Criteria for ASD from the Fifth Edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM-5)

3 Roster of the IACC DSM-5 Planning Group

DSM-5 Resources

Additional resources related to the DSM-5 and autism spectrum disorder can be found on the IACC website.

Note: I serve as a public member to the IACC but my statements here and elsewhere are my own.


By Matt Carey

Presidential Proclamation — World Autism Awareness Day, 2014

6 Apr

April is Autism Awareness month and April 2nd was World Autism Awareness day. Below is the Presidential Proclamation about this.

Presidential Proclamation — World Autism Awareness Day, 2014

BY THE PRESIDENT OF THE UNITED STATES OF AMERICA

A PROCLAMATION

Each year, people across the globe take time to recognize the millions of people living on the autism spectrum, including 1 out of every 68 American children. Americans with autism contribute to all aspects of society and are an essential thread in the diverse tapestry of our Nation. On World Autism Awareness Day, we offer our support and respect to all those on the autism spectrum.

Because our whole Nation benefits when Americans with autism succeed, we must ensure our health care and education systems work for them. Thanks to the Affordable Care Act, insurers can no longer deny coverage to people because they have autism, and new plans must cover preventive services — including autism and developmental screenings — at no out-of-pocket cost to parents. My Administration remains committed to eliminating discrimination against students with autism and to giving schools the resources to help them hone unique talents, overcome difficult challenges, and prepare for bright futures.

We must also do more to improve our understanding of the autism spectrum, which is why I was proud to sign legislation that continued critical investments in research, early detection, and support services for children and adults with autism. Last year, I launched the Brain Research through Advancing Innovative Neurotechnologies (BRAIN) Initiative, a program that aims to revolutionize our understanding of the human mind. By unlocking new knowledge of the brain, we can pave the way for myriad medical breakthroughs, including a greater appreciation for the science of autism. What makes America exceptional are the bonds that hold together the most diverse Nation on earth. Today, let us celebrate our differences — but let us also acknowledge our responsibilities to each other and move forward as one.

NOW, THEREFORE, I, BARACK OBAMA, President of the United States of America, by virtue of the authority vested in me by the Constitution and the laws of the United States, do hereby proclaim April 2, 2014, World Autism Awareness Day. I encourage all Americans to learn more about autism and what they can do to support individuals on the autism spectrum and their families.

IN WITNESS WHEREOF, I have hereunto set my hand this first day of April, in the year of our Lord two thousand fourteen, and of the Independence of the United States of America the two hundred and thirty-eighth.

BARACK OBAMA


By Matt Carey

IACC Meeting this Tuesday

6 Apr

The U.S. Interagency Autism Coordinating Committee (IACC) will meet this Tuesday, April 8. The meeting will be held at the NIH campus in Bethesda, Maryland. For those who can not attend in person, the meeting is videocast live and a listen-in conference call number is available (Dial: 888-950-8042, Access code: 8689681)

The draft agenda is below.

9:00 AM Welcome, Introductions, Roll Call and Approval of Minutes

Thomas Insel, M.D.
Director, National Institute of Mental Health (NIMH) and Chair, IACC

Susan Daniels, Ph.D.
Director, Office of Autism Research Coordination (OARC), NIMH and
Executive Secretary, IACC

9:15 Science Update

Thomas Insel, M.D.
Director, NIMH and Chair, IACC

9:30 CDC Prevalence

Jon Baio, Ed.S.
Epidemiologist
U.S. Centers for Disease Control and Prevention (CDC)

10:00 Birth to 5: Watch Me Thrive!

Linda Smith
Deputy Assistant Secretary and Inter-Departmental Liaison
Early Childhood Development
Administration for Children and Families (ACF)

10:15 Break

10:30 The White House BRAIN Initiative

Story Landis, Ph.D.
Director, National Institute of Neurological Disorders and Stroke (NINDS)

10:45 Autism Research Program (ARP), Congressionally Directed Medical
Research Programs (CDMRP)

Donna Kimbark, Ph.D.
Program Manager, Autism Research Program, Congressionally Directed
Medical Research Programs
U.S. Department of Defense (DoD)

11:15 Teaching a Neurodiversity Course

John Elder Robison
Self Advocate, Parent, Author
Neurodiversity Scholar in Residence
College of William & Mary

11:35 Lunch

1:00 PM Public Comment

1:45 Discussion of Public Comment

2:00 Services Research for Autism Spectrum Disorder across the Lifespan
(ServASD)

Denise Juliano-Bult, M.S.W.
Program Chief, National Institute of Mental Health (NIMH)

2:15 TBD

2:30 Committee Business

Thomas Insel, M.D.
Director, National Institute of Mental Health (NIMH) and Chair, IACC

Susan Daniels, Ph.D.
Director, Office of Autism Research Coordination (OARC), (NIMH) and
Executive Secretary, IACC

3:30 Break

3:45 Committee Business – continued

4:00 Round Robin

5:00 Adjournment

Note: I serve as a public member to the IACC but all statements here and elsewhere are my own.


By Matt Carey

Yep, measles is still a killing disease

21 Mar

Vaccines are a side show to the autism discussion, I know. And, yes, I know I spend a lot of time on this side show. One reason is that the autism parent community has a segment which does a lot to harm public health by creating fear of vaccines. With the resurgence of measles in the U.S., we are seeing the discussion rise again. For example, Dr. Robert “Bob” Sears has chimed in on facebook (see a discussion at Respectful Insolence here) as has Dr. Jay Gordon on twitter (see a discussion at The Poxes).

Inevitably these discussions include statements about how people suffer injuries or even death from measles. This is then countered by claims that with good nutrition, sanitation and vitamin A, no one will suffer lasting consequences. The CDC makes this very clear:

Even in previously healthy children, measles can be a serious illness requiring hospitalization. As many as 1 out of every 20 children with measles gets pneumonia, and about 1 child in every 1,000 who get measles will develop encephalitis. (This is an inflammation of the brain that can lead to convulsions, and can leave the child deaf or mentally retarded.) For every 1,000 children who get measles, 1 or 2 will die from it. Measles also can make a pregnant woman have a miscarriage, give birth prematurely, or have a low-birth-weight baby.

But people think this is an acceptable risk, or downplay this risk. One way they do this is to estimate risk of harm by the fraction of the total population, not the fraction of the population infected. That made some sense in the old days when a sizable fraction of the population was infected each year and everyone would be infected at some point in their lives.

Consider this old graph. In a bit we will get to the edit that was done and how deceptive that is (click figure to enlarge):

measlesmortalityusa1971-75_1

The rate of measles infection dropped by about 30x between 1964 (before the introduction of the vaccine) and 1971. With that came a drop in deaths from measles. A factor that is very interesting, and very much misused, is the fact that the death rate from measles was steadily dropping before the introduction of the vaccine. Hence the “vaccines didn’t save us” myth. Had we just waited, the death rate would have dropped to the same level anyway. There’s a line extrapolating from the data that “shows” that.

First off–hooray for medical advances. They have improved the survival rate from measles. Damned glad they did. But, what about that line? Well, you can draw a line through pretty much anything if you try hard enough. It doesn’t mean anything if you don’t understand the mechanism causing the trend. Why should we expect the trend before 1965 to continue for the next 45 years?

While engaging in online discussions about measles outbreaks, I ran across this website from the U.K.. The table is “Measles notifications and deaths in England and Wales, 1940-2013″. The public health officials in the UK are supposed to be “notified” of every person infected with measles, so “notifications” are “cases”. Let’s consider the notifications. (click figure to enlarge)

Measles Notifications UK

This isn’t normalized to the total population, it’s just the raw number of cases in any given year. I’ve taken the liberty to point out some events which happen to coincide with changepoints in the graph. First is the introduction of the measles vaccine, after which the number of cases per year dropped dramatically. Second is the introduction of the MMR vaccine which, again, was followed by drops in the number of cases. Lastly we see the publication of Andrew Wakefield’s now-retracted Lancet study. Shortly after which, the number of cases started to rise again. Yes, correlation is not causation, but time after time, with vaccine after vaccine we see the same thing: introduce a vaccine and the incidence of that disease decreases.

OK, we’ve looked at notifications. What about deaths? Let’s take the number of deaths and normalize by the number of notifications. In other words, let’s look at what fraction of those infected died.

Measles Deaths UK

Pre 1960 there was a steady drop in the fraction who died. Again, yay medicine. And, yes, yay nutrition and sanitation. After 1960, though, the fraction who died leveled off. 2-3 people per 1000 infected died. (it averages to about 2.6/1000 from 1960 onward).

None of this is news. In Measles Elimination in the United States, a team from the CDC writes:

By the late 1950s, even before the introduction of measles vaccine, measles-related deaths and case fatality rates in the United States had decreased markedly, presumably as a result of improvement in health care and nutrition. From 1956 to 1960, an average of 450 measles-related deaths were reported each year (∼1 death/ 1000 reported cases), compared with an average of 5300 measles-related deaths during 1912–1916 (26 deaths/ 1000 reported cases)

Catch that–that’s people from the CDC saying “yay healthcare! Yay nutrition!” and “yay vaccines!”.

Did nutrition, sanitation and improved medical care reduce the fraction of people who died from measles infection? Absolutely. Was it enough? No. Can we draw lines from old data and claim that the number who would die today would be 4 in 100 million today? Well, sure, you can draw the line. It’s dishonest, but given the source that’s not surprising. As I wrote above, you can draw a line through anything. Doesn’t make it true. If you don’t know the reason why a trend is happening, or the limitations on that trend, it’s meaningless. In this case there was a “hard floor”. There are deaths from measles that sanitation, nutrition and modern medicine can’t prevent. People still die from measles. Measles deaths in France (modern sanitation, nutrition and medicine) were seen at a rate of 3/1000 in recent years. Pregnant women, fetuses, small children and the infirm are more likely to suffer. Which is why when people like “Dr. Bob” Sears and “Dr. Jay” Gordon downplay the risks of measles–in effect telling their readers to keep relying on the rest of us to provide herd immunity–people like me speak up. Yes it’s a diversion from autism, but it’s a diversion fed by some of my fellow autism parents. And it’s an important diversion.


By Matt Carey

Meeting of the Interagency Autism Coordinating Committee

11 Mar

The U.S. Interagency Autism Coordinating Committee (IACC) will meet next month. People are invited to attend in person, by phone or webinar. People are also invited to submit written comments or present comments live.

Note: I serve as a public member to the IACC but all comments and opinions here and elsewhere are my own.

Here is the announcement:

Meeting of the Interagency Autism Coordinating Committee

Please join us for an IACC Full Committee meeting that will take place on Tuesday, April 8, 2014 from 9:00 a.m. to 5:00 p.m. ET at the National Institutes of Health, 31 Center Drive, Building 31, C Wing, 6th Floor, Conference Room 10, Bethesda, MD 20892. Onsite registration will begin at 8:00a.m.

Agenda: The committee will discuss committee business, agency updates and issues related to autism spectrum disorder (ASD) research and services activities.

Meeting location:
National Institutes of Health
31 Center Drive
Building 31, C Wing, 6th Floor, Conference Room 10
Bethesda, MD 20892

Nearest Metro stop:
Medical Center – Red Line

In the interest of security, NIH has instituted stringent procedures for entrance onto the NIH campus. All visitor vehicles, including taxicabs, hotel, and airport shuttles will be inspected before being allowed on campus. Visitors will be asked to show one form of identification (for example, a government-issued photo ID, driver’s license, or passport) and to state the purpose of their visit.

Pre-Registration:
The meeting will be open to the public and pre-registration is recommended. Seating will be limited to the room capacity and seats will be on a first come, first served basis, with expedited check-in for those who are pre-registered. Please visit the IACC website for access and information about registering.

Public Comment – Deadlines:
Notification of intent to present oral comments: Tuesday, April 1st by 5:00p.m. ET
Submission of written/electronic statement for oral comments: Wednesday, April 2nd by 5:00p.m. ET
Submission of written comments: Wednesday, April 2nd by 5:00p.m. ET

Remote Access:
The meeting will be remotely accessible by videocast (http://videocast.nih.gov/) and conference call. Members of the public who participate using the conference call phone number will only be able to listen to the meeting.

Conference Call Access
USA/Canada Phone Number: 888-950-8042
Access code: 8689681

Individuals who participate using this service and who need special assistance, such as captioning of the conference call or other reasonable accommodations, should submit a request to the contact person listed above at least five days prior to the meeting. If you experience any technical problems with the conference call, please e-mail at helpdeskiacc@gmail.com or call the IACC Technical Support Help Line at 415-652-8023.

Please visit the IACC Events page for the latest information about the meeting, including registration, remote access information, the agenda, materials and information about prior IACC events.

Contact Person for this meeting is:

Ms. Lina Perez
Office of Autism Research Coordination
National Institute of Mental Health, NIH
6001 Executive Boulevard, NSC
Room 6182A
Rockville, MD 20852
Phone: 301-443-6040
E-mail: IACCpublicinquiries@mail.nih.gov

Autism an inside job: a webinar by 9/11 truthers and some names you might recognize.

8 Mar

For some reason autism and vaccines attract a certain fringe element. And for some reason certain segments of the autism communities are willing to join forces with this fringe. For example, consider years back when Andrew Wakefield spoke in Ireland with a new world order group at a rally called “The Masterplan: The Hidden Agenda for a Global Scientific Dictatorship”. Given this history I shouldn’t have been surprised when I ran across websites discussing a webinar held last year: “Autism 9.11 – An Inside Job: Vaccines – A Vicious Social Policy”. As you will see, the webinar includes some names that are familiar to those following the failed mercury/autism hypothesis.

Here’s the trailer for the webinar. It’s only three and a half minutes long and it’s annoyingly edited, but give it a watch.

“Born to be free. Vaccinated to be controlled”. Subtle, eh? OK, maybe in comparison to “The great culling had begun”.

In case you curious as to what the “inside job” is, and the 9.11 reference: to this team autism was an “inside job” just like 9/11 was an “inside job”. Yes, we are talking 9/11 truthers. Yes, people who think that the September 11 attacks in the U.S. were orchestrated by the government. Think this is too far out to be true? Think again:

“Is there anyone conscious who does not know that 9/11 was an inside job? Not anyone that I talk to. By now you also know that autism is an inside job as well. The crony corporatists (aka, “globalist elite”) expect to profit handsomely from the genomic disruption of our children.”

From that same page:

And what about the autistic children now becoming adults in the millions, the tragic victims of the Vaccine Big Lie? The Elite have plans for them, since they follow orders if their basic needs are met with predictable routine. They have been made into the perfect worker drones. Dr. Paul G. King told us that the vaccine schedule is being “fine tuned” to produce more “high functioning” autists for the new world order.

Yep. The rise in autism is not only real, but it is a government approved program to create a “Delta” (think Brave New World) class of workers. And, no, I’m not exaggerating.

In case you think you recognize the name in that paragraph, that would be Paul King of CoMeD. CoMeD is a group run by Mark and David Geier, major proponents of the failed idea that mercury in vaccines caused an autism epidemic. And apparently now Mr. King is telling is that “the vaccine schedule is being “fine tuned” to produce more “high functioning” autists for the new world order”.

Let’s take a look at the schedule for the “Inside Job” webinar:

SCHEDULE Autism: An Inside Job The England Hypothesis: Creating Delta Workers with Vaccines Tentative Webinar Schedule
[1] Introduction: Maj. Gen. Albert N. Stubblebine III (US Army, Ret.)
[2] Welcome: Rima E. Laibow, MD – We are all Vaccine Injured
[3] Focus: Ralph Fucetola, JD – Genomicidal Tech leads to GDS
[4] Thoughts on Individuality: General Stubblebine
[5] Viera Scheibner, PhD: The Fundamental Facts about Vaccination
[6] Christina England: Born to Be Free: Vaccinated to Be Controlled [7] Clint Richardson: Outsourcing our Children’s Minds, the CORE of the Problem
[8] Boyd Haley, PhD: Vaccine “Science” – Lies, Damned Lies and Shoddy Statistics
[9] Paul J. King, PhD: Mercury Murder
[10] Brian Hooker, PhD: Vaccine Lies to Build a New World Order

[11] Panel Round Table
[12] Q and A
[13] Conclusion: Genome Optimization Therapies: Think Globally; Restore Locally – Dr. Rima

I took the liberty of bolding the talks from people who may be best known to readers here. Boyd Haley is not heard from as much anymore, but he was very vocal during in the past decade promoting the idea that mercury in vaccines was responsible for the rise in diagnoses. He coined the phrase “Mad Child Disease” for autism. Nice, huh? Then there is Paul King with “Mercury Murder”. As I’ve noted, Mr. King is a member of CoMeD, an organization run with Mark and David Geier, the father-son team known for bad research, bad medicine and unethical behavior. Brian Hooker is an autism parent and long-time member of the “mercury militia” who appears to have splintered from the “mainstream” mercury groups and is possibly best known online for claiming that documents he has obtained through FOIA requests and other routes “prove” that the CDC and other orgs are covering up the claimed harm from vaccines.

The titles of those talks are a bit extreme, to be sure. And we have the webinar “trailer above” showing this to be a very fringe event. Of the talks, I can find only one online: Mr. Hooker’s talk is on YouTube. It’s long (about 40 minutes).

The first thing you may note that the title is different than the one in the schedule. Instead of “Vaccine Lies to Build a New World Order” we get “The CDC, Ground Zero for the decline of children in the United States.” Complete with mushroom cloud icon, just in case we didn’t get the meaning of “ground zero”. He pulls no punches, telling us that in his opinion there is a level of “voluntary manslaughter and murder” within the CDC. He calls the federal government “the hub of autism creation” with President Obama and the Gates Foundation exporting autism to other countries with mercury containing vaccines. He claims that every study showing vaccines don’t cause autism is statistically flawed. Except, of course, for those points he wants to cherry pick to support his argument. For those the statistics are valid. Instead of his toned down talk he prepared for the Committee on Congressional Oversight and Reform, here we hear all about how the CDC and the HHS are committing genocide.

There is a lot of discussion towards the end about how vaccines are being intentionally used to create a cheap workforce, what the promoters of the webinar call a “delta workers” (think Brave New World). It’s a favorite theme of the group hosting the webinar.

Autism-Inside-Job-Final[1]

With the subtitle “Depopulation, Delta Worker Drones and Autism Eugenicide”

At the end of the presentation we hear this exchange between Mr. Hooker and the host of the webinar:

Host: I’m thrilled to have you as a colleague and a fellow advocate for an end to vaccination.

Brian Hooker: Thank you and god bless you both, I really appreciate it.

Perhaps Mr. Hooker felt that it would be impolite to correct the host in her assertion that he is a “fellow advocate for an end to vaccination”. Perhaps not.

The webinar was made into an eBook. Boyd Haley’s talk changed to a “special message” entitled “CDC/NIH/IOM ABANDON SCIENCE!”. The title for Paul King’s contribution is “Mercury Madness” rather than “Mercury Murder”. And the title for Brian Hooker is “CDC: Ground Zero” rather than “Vaccine Lies to Build a New World Order”.

The “Educational Value” of the eBook is given as:

At the conclusion of this webinar, the participant will be able to discern whether vaccines are used because of the neurological damage they produce or in spite of it, leading to more informed vaccine choices for themselves and those they impact.

Yes, you’ve already heard this message. They think that vaccines are not only causing autism, but that this is an intentional effort by the government.

It would be easy to mock this webinar and the participants. It is very, very fringe. But it isn’t funny. It’s irresponsible.

I’d ask why the hell are Boyd Haley, Paul King and Brian Hooker lending their names to this irresponsible effort, but Mr. Hooker’s presentation makes it very clear. He’s not duped or fooled. He’s complicit[see below]. We can’t say for certain about Mr. Haley or Mr. King, but it’s not as though the message on that website is subtle or hidden.

No, this is no where near funny. For anyone who has read the damage these messages have caused within the autism communities knows: there’s zero humor in this nonsense.

Edit to add: Mr. Hooker has contacted me and informed me that he is not a 9/11 truther.

By Matt Carey

More Canary Party financial documents

2 Mar

The Canary Party grew out of the “vaccines caused an autism epidemic” movement. It’s a small group based in Minnesota. They bill themselves as:

The Canary Party is a movement created to stand up for the victims of medical injury, environmental toxins and industrial foods by restoring balance to our free and civil society and empowering consumers to make health and nutrition decisions that promote wellness.

Last July I wrote about their financial documents in Financial documents for the Canary Party. In that article I made the incorrect statement: “The Canary Party is not a charity, so they do not file form 990′s with the IRS.”

It turns out that they do file form 990. I can’t find them on Guidestar (perhaps because they are new?), but I found this one online. It’s for 2011, when the party formed.

When I wrote last July about the Canary Party, I noted that the financial statements on the Minnesota State Websites indicated that in their founding year (2011) they were largely funded by donations from Canary Party members/officers/founders Jennifer Larson ($40,665) and Mark Blaxill ($15,000).

The form 990 linked to above was an amended form, filed in July of 2013. Coincidentally, filed 10 days after my article about their financials. Per that amended IRS tax form for 2011, those amounts were not donations but loans.

The description of the organization’s mission is given as:

The time has come for a change. The mounting crisis in the health of children and other vulnerable groups has not only been ignored by medical authorities, it has been suppressed. As parents, citizens and advocates for the health of future generations, we must rise up to call attention to this crisis and take action to end it. In nominally democratic societies, which sadly are increasingly corrupted by the power of entrenched interests and economy of influence that surrounds the medical industrial complex, we can most effectively effect change by mobilizing for political action in order to take action against these corrupt forces. It is time to come together to form the Canary Party.

There’s another description as well, but you get the point. It’s a bit much, in my view, but not really out of line with their statements since.

At the time I wrote my previous article, it looked like the revenue to the Canary Party was decreasing. I wrote, “The Canary Party pulled in $72,000 in 2011 and $49,000 in 2012.” (at the time I didn’t know that a large part of the 2011 cash might be from loans). I noted that in 2012 a large fraction of their revenue came from a single donor, one Barry Segal, who apparently has since become disaffected with the Canary Party. I noted:

Per another comment posted to Respectful Insolence, the association between the Canary Party and Mr. Barry Segal appears to be strained. As Mr. Segal accounted for $30,000 of the party’s $49,000 revenue in 2012, one does wonder what 2013 revenue will look like.

Well, from the State of Minnesota site, here is the 2013 financial report on the Canary Party.

The Canary Party took in $17,245 in 2013. Of that, $15,000 was from Mr. Segal on January 2nd. The Canary Party started the year with $15,562.14 and, after $32,300.02 in expenses, ended the year with $687.12 in the bank.

To recap revenue in the last three years:

2011: $72,000 (of which $55,665 may have been in the form of loans)
2012: $49,000
2013: $17,245

Year-end assets

2011: $9,259.07
2012: $15,694.19
2013: $687.12

In other words: revenues and assets are way down. One does wonder how long the Canary Party will last, given these trends.

I find redefining the initial donations as loans to be very interesting. I don’t see evidence that the Canary Party paid back any portion of the loans in 2013. And, given their financial status, I don’t see the possibility of paying back the loans as highly likely. I do have a speculation as to why they might redefine the donations as loans, but I’ll hold off on that for now.

edit to add: here’s the part of the form 990 where they state that they are correcting the original to classify the contributions from the board members as loans.

CP Form 990


By Matt Carey

A cause célèbre for those claiming vaccines cause autism

1 Mar

If you participate in online discussions about autism and vaccines (and I’d advise you to spend your time more productively), you will often hear about how the U.S. Court of Federal Claims (the “Vaccine Court”) has compensated numerous cases of autism, the government just doesn’t admit it. These are often referred to as “secret” compensations, even though the decisions are in the public record. And, quite frankly, the families were not compensated for autism claims.

One family whose story has become a cause célèbre thanks to David Kirby is now the topic of a new Court decision. In this new decision, the court responds to the parents request to have past court documents redacted. They would like to stop being approached by members of the media.

Before we get to the new decision, consider Mr. Kirby’s story:

The parents, who did not want to be interviewed, specifically asserted that [child] “suffered a Vaccine Table Injury, namely, an encephalopathy” as a result of his MMR vaccination on December 19, 2003.” (“Table injuries” are known, compensable adverse reactions to immunizations.)

Alternatively, they claim that “as a cumulative result of his receipt of each and every vaccination between March 25, 2003 and February 22, 2005, [child] has suffered . . . neuroimmunologically mediated dysfunctions in the form of asthma and ASD.”

(child’s name redacted by me)

The parents didn’t want to be interviewed. They also presented two claims, one encephalopathy and one autism. Mr. Kirby focused on the autism claim, even though it wasn’t compensated. Mr. Kirby states:

Whether HHS agreed with [child]‘s parents that his vaccine-induced brain disease led to ASD is unknown. The concession document is under seal.

Actually, it was known. The proffer of an award was titled “Proffer on Award of Compensation; Measles-Mumps-Rubella (MMR); Table Injury; Encephalitis.”

The child was being compensated for a table injury: encephalitis. Within that document, it is clearly stated:

On June 9, 2011, respondent filed a supplemental report pursuant to Vaccine Rule 4(c) stating it was respondent’s view that Ryan suffered a Table injury under the Vaccine Act – namely, an encephalitis within five to fifteen days following receipt of the December 19, 2003 MMR vaccine, see 42 C.F.R. § 100.3(a)(III)(B), and that this case is appropriate for compensation under the terms of the Vaccine Program

Emphasis mine.

Even with this information showing the family were not compensating autism clearly in the public domain Mr. Kirby tells us it’s “unknown”. Then, true to Mr. Kirby’s style, he leads his readers to the evidence supporting the possibility that it was ASD while never coming right out and saying it.

Perhaps the feds were loath to concede yet another vaccine case involving autism. Four cases in the Autism Omnibus Proceedings were recently compensated. Three of those cases are marked with asterisks, indicating the government did not conclude that autism can be caused by vaccines. But the fourth autism case that was paid out in 2013 ([child]‘s case? We don’t know) has no such caveat.

Mr. Kirby was referring to the HRSA statistics page that lists vaccine court petitions filed and compensated. At the time Mr. Kirby wrote his piece, the statistics report did include autism cases. They no longer do, so you have to check archived pages to see what he’s referring to.

At the time of Mr. Kirby’s article, there appear to have been two cases where someone in the Omnibus Autism Proceeding did receive compensation (I don’t have reason to believe Mr. Kirby was in error, but the archived page doesn’t show four cases). Both of those cases had asterisks.

*May include case(s) that were originally filed and processed as an OAP cases but in which the final adjudication does not include a finding of vaccine-related autism

Mr. Kirby concluded with:

Meanwhile, as HHS says it “has never concluded in any case that autism was caused by vaccination,” it is still underwriting autism treatments such as ABA for children in its vaccine-injury program.

Which basically reads as “the government is making a distinction without a difference”. I.e. the reader comes away with the impression that the government really are compensating autism.

We knew then that these parents didn’t want to talk to the media. They didn’t want to speak with Mr. Kirby, to become his latest cause célèbre. And now we know that they still do not want this attention and we read once again that the case was not compensated for autism. From a recent decision:

“Petitioners have made these requests because they have had the misfortune of being frequently contacted by members of the media who mistakenly believe they were compensated for their alternative autism allegation when Petitioners were actually compensated for a Table Injury encephalopathy.”

Given the family’s clear intent to get out of the public’s eye, I am hesitant to put this article out. But perhaps, just perhaps, some of those using this family as part of their constant fight to keep the autism/vaccine idea alive might reconsider.


By Matt Carey

Follow

Get every new post delivered to your Inbox.

Join 952 other followers