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	<title>Left Brain/Right Brain &#187; EoH Group</title>
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	<link>http://leftbrainrightbrain.co.uk</link>
	<description>Autism news and opinion</description>
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		<title>Environment of Harmful Ideas</title>
		<link>http://leftbrainrightbrain.co.uk/2009/10/environment-of-harmful-ideas/</link>
		<comments>http://leftbrainrightbrain.co.uk/2009/10/environment-of-harmful-ideas/#comments</comments>
		<pubDate>Tue, 27 Oct 2009 16:34:00 +0000</pubDate>
		<dc:creator>Mike Stanton</dc:creator>
				<category><![CDATA[Action Groups]]></category>
		<category><![CDATA[EoH Group]]></category>
		<category><![CDATA[Autism]]></category>
		<category><![CDATA[Environment of Harm]]></category>
		<category><![CDATA[murder]]></category>

		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=3402</guid>
		<description><![CDATA[There used to be an email group on Yahoo devoted to the ideas in David Kirby&#8217;s book, Evidence of Harm? It was called Evidence of Harm or EOH for short. The book was ostensibly an exercise in investigative journalism. Had there been a dramatic increase in autism amongst children born in the 1990s? Was this [...]]]></description>
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			<a href="http://api.tweetmeme.com/share?url=http%3A%2F%2Fleftbrainrightbrain.co.uk%2F2009%2F10%2Fenvironment-of-harmful-ideas%2F">
				<img src="http://api.tweetmeme.com/imagebutton.gif?url=http%3A%2F%2Fleftbrainrightbrain.co.uk%2F2009%2F10%2Fenvironment-of-harmful-ideas%2F&amp;source=kevleitch&amp;style=normal&amp;b=2" height="61" width="50" />
			</a>
		</div>	<p>There used to be an email group on Yahoo devoted to the ideas in David Kirby&#8217;s book, <em>Evidence of Harm?</em> It was called Evidence of Harm or <span class="caps">EOH</span> for short. The book was ostensibly an exercise in investigative journalism.</p>

	<p><ul></p>
	<p><li>Had there been a dramatic increase in autism amongst children born in the 1990s?</li><br />
<li>Was this increase caused by the increasing burden of mercury resulting from more thimerosal containing vaccines being added to the vaccine schedule at the beginning of the decade?</li><br />
<li>Was the government involved in a cover up?</li><br />
</ul></p>

	<p>Supporters of the vaccine-autism hypothesis saw the book as vindicating their beliefs. Hence the <span class="caps">EOH</span> group. But Kirby had always been clear about one thing. If mercury was a significant cause of autism then its removal from childhood vaccines should cause the numbers of new cases to fall.  When the mercury was removed and numbers continued to rise Kirby wriggled a bit and then invoked environmental toxins as the reason. As a result the yahoo group Evidence of Harm changed its name to Environment of Harm. So now it was environmental mercury and not the mercury in vaccines. Well not any more. All versions of the Vaccine OS are a bit like&#160;Microsoft&#160;Windows . They have to be backward compatible with previous versions and are consequently laden with bloatware and very unstable. If you read the group today there are very few autism specific posts and lots of general anti-vaccine comments. <span style="text-decoration: line-through;">This has slowed down the usual messages of sympathy for the perpetrator. But one member of <span class="caps">EOH</span> still managed this comment</span></p>

	<p>But yesterday someone posted a link to yet another story of an <a href="http://www.thestar.com/news/gta/crime/article/716127--woman-charged-in-slaying-of-autistic-son-15?bn=1">autistic teen allegedly murdered by his mother</a>. It is too early to speculate on the outcome and at least one newspaper has closed its online comment section on legal grounds until the trial is over.&#160;<em>This has slowed down the usual messages of sympathy for the perpetrator. But one member of <span class="caps">EOH</span> still managed this comment. [edit]</em></p>

	<p><blockquote>To the group   sadly I beleive we will see a rash of cases where , where they put there child to sleep.  The same phenomena occured in england over a two year period , that force the UK gouv to increase funding   Before they wake up , I suspect we will see many cases</p>

	<p>Pierre</blockquote></p>

	<p>So murder is now &#8220;putting to sleep.&#8221; And heck it works! When parents went on a killing spree in the UK the government increased its spending on autism.   I live in the <span class="caps">UK I</span> remember a few isolated cases of murder of autistics, no more, but sadly no less than what is happening in the rest of the world. I do not remember it leading to a growth in funding. What we have in the UK is a National Autistic Society that is committed to improving the lives of autistic people and their families. It operates across the lifespan. It does not demonize autism or cry wolf over vaccines and epidemics. Its campaigns section has enabled autistic people to talk directly to lawmakers and the law is changing. More services are on the way. But at no point were the deaths of autistic children exploited for campaign purposes.  <span class="caps">EOH</span> is well named. If it can foster the sort of twisted thinking and disregard for the facts displayed by Pierre it truly is an environment of harm.</p>
 
				<div>
					<h4>13 comment(s) for this post:</h4><ol>
						  <li><img alt='' src='http://0.gravatar.com/avatar/67f07ae8401447a28b47bd8e6b90ced9?s=32&amp;d=http%3A%2F%2F0.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>David N. Brown:</i>
							<br />
							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2009/10/environment-of-harmful-ideas/#comment-68158">2009-Oct-27</a></small>
							"Addition of thimerosal-containing vaccines" is nonsense.  Vaccines with thimerosal were in use since 1942.
						  </li>
						  <li><img alt='' src='http://0.gravatar.com/avatar/a7a0148e97d81e3b4d46a858c78e5b87?s=32&amp;d=http%3A%2F%2F0.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>Mike Stanton:</i>
							<br />
							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2009/10/environment-of-harmful-ideas/#comment-68164">2009-Oct-27</a></small>
							Thanks David,

I have edited that bit to remove the ambiguity. There always were thimerosal containing vaccines. The changes to the schedule meant that exposure to ethyl mercury amongst fully vaccinated children was greater than the very cautious limits for exposure to methyl mercury laid down by the EPA. Thimerosal was removed completely from the schedule as a precautionary principle. 

I tend to agree with those experts who thought this was unnecessary and only helped to feed people's suspicions about a non-existent health risk.
						  </li>
						  <li><img alt='' src='http://1.gravatar.com/avatar/f424c550698db43fdb206f32d5910c63?s=32&amp;d=http%3A%2F%2F1.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>Joseph:</i>
							<br />
							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2009/10/environment-of-harmful-ideas/#comment-68165">2009-Oct-27</a></small>
							When an autistic person commits murder, that's the fault of the autistic person of course. But when an autistic person is murdered, that still seems to be the fault of the autistic person according to some people.

<i>EOH is well named.</i>

Indeed.
						  </li>
						  <li><img alt='' src='http://1.gravatar.com/avatar/766b3557377fd8e5260dd2b34f863421?s=32&amp;d=http%3A%2F%2F1.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>David N. Andrews M. Ed., C. P. S. E.:</i>
							<br />
							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2009/10/environment-of-harmful-ideas/#comment-68169">2009-Oct-27</a></small>
							Kinda apropos, given that Zack's given up on life (because his environment, or at least a good number of people in it, have proven to be very bloody harmful):
---------------

im gonna

by Zach on October 26, 2009

in Uncategorized

kill myself in the hospital.  stole laptop to write this.

fuck kates parents, they ruined my life.  I didnt rape or beat Kate.  I’m sorry shes pregnant!  I loved her!





1 David N. Andrews M. Ed., C. P. S. E. October 27, 2009 at 2:30 pm

    Your comment is awaiting moderation.

    This is not a happy or satisfactory outcome to Zack’s case. There’s a good few people who should be bounced out of their fucking roles for this.

    So much for America as being the land of the free!

    You’re free if you’ve got the power and to get that you have to have the fucking money.

    I’d rather you didn’t leave this way, Zack. I’d rather that you came back and kicked against the pricks. But I can understand entirely why you want to. And I refuse to blame you for this decision.
-----------------------

If he goes through with his plan, the comment will remain on moderation. Sorry to place it here but this is pretty relevant: harmful ideas about who and what he is have driven the poor lad to the end of his tether.

And who involved in his and Kate's cases has done their jobs correctly for it to end up this way?
						  </li>
						  <li><img alt='' src='http://1.gravatar.com/avatar/539aefeba7aa7eaafc2b4cdeaf0847f0?s=32&amp;d=http%3A%2F%2F1.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>RAJ:</i>
							<br />
							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2009/10/environment-of-harmful-ideas/#comment-68173">2009-Oct-27</a></small>
							Mike, you stated:
"Thimerosal was removed completely from the schedule as a precautionary principle".

Not true.

http://www.fda.gov/BiologicsBloodVaccines/SafetyAvailability/VaccineSafety/UCM096228#t1

"Thimerosal has been removed from or reduced to trace amounts in all vaccines routinely recommended for children 6 years of age and younger, with the exception of inactivated influenza vaccine" 

This was as of 2005.
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		<item>
		<title>Sharyl Attkisson interviews David Kirby&#8230;and oh is it bad</title>
		<link>http://leftbrainrightbrain.co.uk/2009/10/sharyl-attkisson-interviews-david-kirbyand-oh-is-it-bad/</link>
		<comments>http://leftbrainrightbrain.co.uk/2009/10/sharyl-attkisson-interviews-david-kirbyand-oh-is-it-bad/#comments</comments>
		<pubDate>Thu, 08 Oct 2009 02:36:50 +0000</pubDate>
		<dc:creator>Sullivan</dc:creator>
				<category><![CDATA[Autism]]></category>
		<category><![CDATA[Autism Epidemic]]></category>
		<category><![CDATA[David Kirby]]></category>
		<category><![CDATA[Epidemiology]]></category>
		<category><![CDATA[Mercury]]></category>
		<category><![CDATA[News]]></category>
		<category><![CDATA[Schafer]]></category>
		<category><![CDATA[Science]]></category>
		<category><![CDATA[Sharyl Attkisson]]></category>
		<category><![CDATA[Thimerosal]]></category>
		<category><![CDATA[Vaccines]]></category>

		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=3293</guid>
		<description><![CDATA[Have a look for yourself: Watch CBS News Videos Online David Kirby, interviewed by Sharyl Attkisson. Talk about faux-news. For those luckily unfamiliar with Ms. Attkisson, here are some of the pieces done on this blog about her. Ms. Attkisson has a history of interviewing other members of the press and not being critical at [...]]]></description>
			<content:encoded><![CDATA[<div class="tweetmeme_button" style="float: right; margin-left: 10px;">
			<a href="http://api.tweetmeme.com/share?url=http%3A%2F%2Fleftbrainrightbrain.co.uk%2F2009%2F10%2Fsharyl-attkisson-interviews-david-kirbyand-oh-is-it-bad%2F">
				<img src="http://api.tweetmeme.com/imagebutton.gif?url=http%3A%2F%2Fleftbrainrightbrain.co.uk%2F2009%2F10%2Fsharyl-attkisson-interviews-david-kirbyand-oh-is-it-bad%2F&amp;source=kevleitch&amp;style=normal&amp;b=2" height="61" width="50" />
			</a>
		</div>	<p>Have a look for yourself:</p>

	<p><embed src='http://cnettv.cnet.com/av/video/cbsnews/atlantis2/player-dest.swf' FlashVars='linkUrl=http://www.cbsnews.com/video/watch/?id=5369763n&#38;releaseURL=http://cnettv.cnet.com/av/video/cbsnews/atlantis2/player-dest.swf&#38;videoId=50077933&#38;partner=news&#38;vert=News&#38;si=254&#38;autoPlayVid=false&#38;name=cbsPlayer&#38;allowScriptAccess=always&#38;wmode=transparent&#38;embedded=y&#38;scale=noscale&#38;rv=n&#38;salign=tl' allowFullScreen='true' width='425' height='324' type='application/x-shockwave-flash' pluginspage='http://www.macromedia.com/go/getflashplayer'></embed><br/><a href='http://www.cbsnews.com'>Watch <span class="caps">CBS </span>News Videos Online</a></p>

	<p>David Kirby, interviewed by Sharyl Attkisson.  Talk about faux-news.  For those luckily unfamiliar with Ms. Attkisson, <a href="http://leftbrainrightbrain.co.uk/?cat=136">here are some of the pieces done on this blog about her</a>. Ms. Attkisson has a history of interviewing other members of the press and not being critical at all of their unsupported claims.  She did this with Bernadine Healy, <a href="http://leftbrainrightbrain.co.uk/?p=1255">who made some unfounded claims about the <span class="caps">IOM</span></a>.  When a study came out disproving a study by Maddy Hornig on mice and thimerosal that is, <a href="http://leftbrainrightbrain.co.uk/?p=1316">Ms. Attkisson blogged the Thoughtful House (Andrew Wakefield) press release on the subject</a>.  There&#8217;s more, but that gives you a taste of her history.</p>

	<p>Today she interviewed David Kirby, author of &#8220;Evidence of Harm&#8221; and Huffington Post blogger.</p>

	<p>To start, David Kirby apparantly has rewritten his book (yes, that is sarcasm).  It is titled, &#8220;Evidence of Harm, Mercury in Vaccines and the Autism Epidemic: A Medical Controversy&#8221;.</p>

	<p>But according to the interview, his book isn&#8217;t primarily about mercury in vaccines.  Instead it is all about &#8220;increasing environmental exposures, toxins in children throughout the 1990&#8217;s and into the early 2000&#8217;s from both mercury background mercury environmental mercury which is on the increase and also mercury and other heavy metals and toxic metals that are included in vaccines that we give our children.&#8221;</p>

	<p>Notice how thimersosal (mercury in vaccines) is downplayed compared to environmental mercury.  That&#8217;s called revisionist history.  Take a look at the back cover from the book (<a href="http://leftbrainrightbrain.co.uk/wp-content/uploads/2009/10/eoharm_backcover.jpg">click to enlarge</a>):</p>

	<a href="http://leftbrainrightbrain.co.uk/wp-content/uploads/2009/10/eoharm_backcover.jpg"><img src="http://leftbrainrightbrain.co.uk/wp-content/uploads/2009/10/eoharm_backcover-300x171.jpg" alt="Back Cover from David Kirby&#039;s Evidence of Harm" title="eoharm_backcover" width="300" height="171" class="size-medium wp-image-3294" /></a>

	<p>A commenter on this blog called the recent National Children&#8217;s Health Survey to be the worst sort of prevalence study.  It can get much worse. For example&#8212;according to David Kirby, when he went through the subway he didn&#8217;t see anyone obviously autistic.   Yes, David Kirby, epidemiologist and diagnostician has found a dramatically low prevalence amongst the New York subway riders.</p>

	<p>David Kirby reminds us all that Asperger&#8217;s syndrome is a disability.  Mr. Kirby, go back and tell that to Lenny Schafer, <a href="http://tinyurl.com/y8pusaa">the &#8220;commenter of the week&#8221; on your blog, the Age of Autism</a>.</p>

	<p>If someone made a comment on this blog like Mr. Shafer did he would be booed off the stage.  Here&#8217;s an excerpt:</p>

	<p><blockquote>And let us hope that the upcoming <span class="caps">DSM</span>-V gets clearer about defining autism only as a disability&#8212;and kicks the high functioning ND autism squatters onto the personality disorder spectrum where they belong. </blockquote></p>

	<p>Your blog gave him a free T-shirt.   Don&#8217;t lecture us about disability.</p>

	<p>Dr. Thomas Insel, director of the National Institutes of Mental Health and chair of the Interagency Autism Coordinating Committee declined to be interviewed by Ms. Attkisson.</p>

	<p>A sincere &#8220;good job&#8221; goes out to Dr. Insel.  <a href="http://leftbrainrightbrain.co.uk/?p=1063">After the way Ms. Attkisson showed a clear bias in doing her story on Dr. Offit</a>, I can completely understand Dr. Insel declining the interview.</p>

	<p>The second half of the interview discusses Mr. Kirby&#8217;s new book, the use of antibiotics on large farms.</p>

	<p>No, seriously, they moved from Autism to animal farms.</p>

	<p>Way to plug David Kirby&#8217;s new book, Sharyl!</p>
 
				<div>
					<h4>111 comment(s) for this post:</h4><ol>
						  <li><i>Tweets that mention Autism Blog - Sharyl Attkisson interviews David Kirby…and oh is it bad « Left Brain/Right Brain -- Topsy.com:</i>
							<br />
							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2009/10/sharyl-attkisson-interviews-david-kirbyand-oh-is-it-bad/#comment-66119">2009-Oct-08</a></small>
							[...] This post was mentioned on Twitter by Autism Hub and Dr Rachael Dunlop. Dr Rachael Dunlop said: RT @badscienceblogs: Sharyl Attkisson interviews David Kirby…and oh is it bad: http://bit.ly/1u4GCD [...]
						  </li>
						  <li><img alt='' src='http://1.gravatar.com/avatar/fb979a790a7be3f44c2e36ff2ab81723?s=32&amp;d=http%3A%2F%2F1.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>bensmyson:</i>
							<br />
							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2009/10/sharyl-attkisson-interviews-david-kirbyand-oh-is-it-bad/#comment-66165">2009-Oct-08</a></small>
							I recall reading once that not all people labeled with a disability are unable to write, or post on blog sites. In fact if I'm not mistaken there have been a few people with autism that have even written books, gotten college degrees, have their own house or apartment. 

"David Kirby reminds us all that Asperger’s syndrome is a disability. Mr. Kirby, go back and tell that to Lenny Schafer, the “commenter of the week” on your blog, the Age of Autism.

If someone made a comment on this blog like Mr. Shafer did he would be booed off the stage. Here’s an excerpt:

    'And let us hope that the upcoming DSM-V gets clearer about defining autism only as a disability—and kicks the high functioning ND autism squatters onto the personality disorder spectrum where they belong.' "

Apparently as it stands now, Asperger’s is currently a disability. I'm sure some sufferers of Asperger’s receive some sort of government assistance due to the "disability" of having Asperger’s. 

BTW did you see the recent interview by CBS with Wakefield?
						  </li>
						  <li><img alt='' src='http://1.gravatar.com/avatar/f424c550698db43fdb206f32d5910c63?s=32&amp;d=http%3A%2F%2F1.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>Joseph:</i>
							<br />
							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2009/10/sharyl-attkisson-interviews-david-kirbyand-oh-is-it-bad/#comment-66181">2009-Oct-08</a></small>
							<blockquote>Yes, David Kirby, epidemiologist and diagnostician has found a dramatically low prevalence amongst the New York subway riders</blockquote>

What a douchebag. He and Dan Olmsted.
						  </li>
						  <li><img alt='' src='http://1.gravatar.com/avatar/fe1d1e5a5eeaae777e81917c0d3eb893?s=32&amp;d=http%3A%2F%2F1.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>AutismNewsBeat:</i>
							<br />
							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2009/10/sharyl-attkisson-interviews-david-kirbyand-oh-is-it-bad/#comment-66234">2009-Oct-09</a></small>
							Mr. Kirby must have missed the Subway for Special Children.
						  </li>
						  <li><img alt='' src='http://0.gravatar.com/avatar/2a6726c0d795bb75d6341c621a15b18e?s=32&amp;d=http%3A%2F%2F0.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>Mildred:</i>
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							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2009/10/sharyl-attkisson-interviews-david-kirbyand-oh-is-it-bad/#comment-66239">2009-Oct-09</a></small>
							"BTW did you see the recent interview by CBS with Wakefield"? (bensmyson)

 Wakefield said in the CBS interview .......

" the Goverment then decided for some reason , in the August of that year, the paper having been published in the February, to withdraw the importation licence for the single vaccines, in other words to make it virtually impossible for parents to chose the option of a single vaccine..........so if parents had genuine concerns about the safety of MMR it was either our way, ....MMR.... or no way, and so attrition for the fall in the uptake in the vaccine can be laid at the door of the British Government for withdrawing the option of a single vaccine" 

The ban on the importation of older single vaccines (on safety grounds) took place in August 1999, some 18 months after the publication of the Lancet study on the 28th February 1998. Using the Wakefield logic, if attrition for the fall in the uptake in the vaccine can be laid at the door of the British Government following this ban, denying parents the choice of single vaccines, at whose door should we place attrition for the fall in vaccine uptake in the 18 month period following the the February 1998 paper, when single vaccines were still available?
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		<item>
		<title>Truth and Consequences – The Anti-Vaccination Movement Exacts a Price</title>
		<link>http://leftbrainrightbrain.co.uk/2009/09/truth-and-consequences-%e2%80%93-the-anti-vaccination-movement-exacts-a-price/</link>
		<comments>http://leftbrainrightbrain.co.uk/2009/09/truth-and-consequences-%e2%80%93-the-anti-vaccination-movement-exacts-a-price/#comments</comments>
		<pubDate>Wed, 23 Sep 2009 05:00:23 +0000</pubDate>
		<dc:creator>Guest Blogger</dc:creator>
				<category><![CDATA[Autism]]></category>
		<category><![CDATA[EoH Group]]></category>
		<category><![CDATA[Extreme biomed]]></category>

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		<description><![CDATA[&#8220;I feel like getting in my car, driving away and never coming back. I can&#8217;t stand it anymore. If the screaming, howling, humming, and screeching doesn&#8217;t stop I will lose my mind. 14 hours a day. From the second he open his eyes until the second he closes them there is noise. Even if you [...]]]></description>
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		</div>	<p><blockquote>&#8220;I feel like getting in my car, driving away and never coming back. I can&#8217;t stand it anymore. If the screaming, howling, humming, and screeching doesn&#8217;t stop I will lose my mind. 14 hours a day. From the second he open his eyes until the second he closes them there is noise. Even if you tell him to be quiet he sits there and says &#8220;be quiet&#8230;be quiet&#8221; over and over. Not more than 10 seconds goes by where some ridiculous sound isn&#8217;t coming out of my son. He talks in a high pitched screechy voice that makes every nerve ending stand on end. He screeches and screams for no reason. The humming, the high pitched humming all day long. I can&#8217;t take it. My head hurts so bad and there are only so many things I can take for a headache. I wake up at 7 am, or rather I am awakened by screeching at 7am and get no peace until about 9pm. By then my head hurts so much it doesn&#8217;t matter. I can&#8217;t get anything done because I can&#8217;t focus with the noise in the background. I can&#8217;t have a phone call. I can&#8217;t have a conversation in person. I know this is going to upset some people but I swear, I miss the days when he didn&#8217;t make a peep. not a single peep. I remember when I used to cry and ask him to talk to me, to say anything. I should have been more specific and wished he&#8217;d speak and make meaningful sentances rather than walk around all day and say meaningless phrases over and over, and scream and screech when he didn&#8217;t. know what meaningless phrase to use at the moment. I have about 40 minutes before he goes to bed then I get to listen to him hum himself to sleep for an hour. By then I should be ready to jump off a roof.</p>

	<p>Thanks for letting me vent. Not sure if it made me feel better but at least if I jump off the roof someone knows why&#8221;</p>

	<p>Posted by &#8220;Mary&#8221;, mother of &#8220;Saul&#8221;, age 7.9 (7 years, 9 months), to an autism &#8220;biomedical treatment&#8221; yahoo group in August 2009.</blockquote></p>

	<p>The idea that vaccines might be a cause of autism has received a great deal of attention from the media. Scientifically, <a href="http://www.nytimes.com/2009/01/13/health/13auti.html">the question has been thoroughly investigated and thoroughly discredited</a>.</p>

	<p>Legally, the idea has also been rejected. The Autism Omnibus case bundled the claims of almost 5000 children against the Vaccine Injury Compensation program.  In the hearings for the first of three theories of causation, the lawyers for the parents and their children chose the strongest three cases to illustrate their claim that <span class="caps">MMR</span> vaccines and thimerosal-containing vaccines can combine to cause autism. On February 12, 2009, <a href="http://neurodiversity.com/weblog/article/183/">all three cases were dismissed</a>.  The decisions were scathing, stating that &#8220;the overall weight of the evidence is overwhelmingly contrary to the petitioners&#8217; causation theories.&#8221; Moreover, parents were characterized as a &#8220;loving, caring, and courageous&#8221; family &#8220;misled by physicians who are guilty of gross medical misjudgment.  In June and July of 2009, all test cases were appealed, and all three were dismissed.</p>

	<p>The yahoo group &#8220;<a href="http://groups.yahoo.com/group/EOHarm/">Environment of Harm</a>&#8221; formerly &#8220;Evidence of Harm&#8221;, was established to discuss the book of the latter title, written by journalist David Kirby.  The focus of the group is to discuss</p>

	<p><blockquote>&#8220;issues of government public health negligence and corruption and the various political efforts by parents to end the spectrum of epidemics that is being revealed as mercury poisoning, especially autism.&#8221;</blockquote></p>

	<p>From March 2005, the date of the book&#8217;s publication, until February 2009, when the Omnibus legal decisions were rendered, the group received an average of over 2000 posts per month. Since the rulings, the posting rate has dropped to only 800 per month, perhaps indicating that the issue is also losing momentum from a political point of view.</p>

	<p>The <a href="http://www.washingtonpost.com/wp-dyn/content/article/2008/02/04/AR2008020402489.html">mainstream media</a>, the groups such as the <a href="http://www.medicalhomeinfo.org/health/Autism%20downloads/AAP%20ASD%20FAQs.pdf"><span class="caps">AAP</span></a>, and <a href="http://www.dangeroustalk.net/a-team/Vaccines">the blog sphere</a> have also pushed back in an effort to educate the public on the <a href="http://www.jennymccarthybodycount.com/Jenny_McCarthy_Body_Count/Home.html">harm done by the vaccines cause autism groups</a>.</p>

	<p>But behind the scientific and legal consensus that vaccines do not cause autism lies a hidden world, the autism &#8220;biomedical&#8221; yahoo- and chat-group world.  There is no decline in the number of posts in this world.  It&#8217;s a thriving, and growing community, one that has fueled the popularity of the anti-vaxers, and the certainty of those parents who consider their child &#8220;vaccine-injured&#8221;.  It has spurred the spending of millions of dollars on supplements, hyperbaric treatments, off-label prescription medications, and myriad other autism &#8220;biomedical treatments&#8221;.  These &#8220;treatments&#8221; are almost all of no proven benefit, some are ridiculous, some relatively benign, and many potentially dangerous.  This article will explore the journey of one mother, &#8220;Mary&#8221; in her efforts to cure her son &#8220;Saul&#8221;.  While the case of Mary and Saul, documented in her own words is shocking and appalling, Mary is not alone nor is she an extreme case.  She is one of thousands of parents seeking autism &#8220;biomedical treatments&#8221; on the internet.</p>

	<p>We first meet Mary in October 2003, when her son Saul (born November 2001) was only 22 months of age.  She began posting on the group <span class="caps">NLT </span>(for a description of the yahoo groups discussed in this article see the section at the end).  She stated that her son</p>

	<p><blockquote>&#8220;is basically non verbal. He said his first word, duck, at 7 months old. About a month later he said light, off , and on, but dropped duck. This set a pattern for him. Anytime he learned a new word he dropped any old words he had used at that point. Now, his only real words are Mama and Dada. He will on a rare occassion say car. He has had and lost about 20 words since 7 months of age.&#8221;</blockquote></p>

	<p>Shortly thereafter, he was evaluated by early intervention, and psychologist wrote <span class="caps">PDD</span> on his evaluations, along with the term Autistic-like. Mary was told that he was not autistic, but he&#8217;s autistic like. 10-20 hours a week of intensive in home therapy (ABA) was recommended.</p>

	<p>So, Saul is a very young child, showing speech delay and signs of autism, evaluated very quickly, and almost immediately started on early intervention. Of course, Mary is understandably upset:<br />
<blockquote>&#8220;I don&#8217;t know why I&#8217;m so upset. He (the psychologist) didn&#8217;t say anything I didn&#8217;t already know or suspect. I guess its just because my fears were realized. Rather than come in and say &#8220;oh no, he&#8217;s fine, he&#8217;s just a late talker&#8221; I heard what I was hoping not too. I&#8217;m sure that somehow to some degree this is my fault. Saul was such a quiet content infant, and he was content to play by himself as he got older I sort of went with it. I figured he was happy let me go do dishes, or laundry or whatever and let him entertain himself. Yeah that was great but now he is only happy by himself and turns in to himself and its my fault I know it is.&#8221;</blockquote></p>

	<p>Recent research (two links:<a href=" http://www.ncbi.nlm.nih.gov/pubmed/19644747?dopt=Abstract ">here</a> and <a href="http://leftbrainrightbrain.co.uk/?p=2730">here</a>) has looked at the impact of parental acceptance of their child&#8217;s autism diagnosis.  It was found that parents who do not come to a resolution (i.e. come to terms with and accept the diagnosis and its implications) find raising their child more difficult.  In the case of Mary, we will see a real-life example of a mother failing to come to terms with her child&#8217;s <span class="caps">PDD</span>.</p>

	<p>Here&#8217;s Mary again:</p>

	<p><blockquote>Thank you everyone for your support. I&#8217;m sorry I forgot to mention Saul&#8217;s age. He will be 2 at the end of the month.</p>

	<p>I&#8217;m feeling a lot better but still overwhelmed. I want to read as much as possible so I can do the best to help him but I think I need a little time to come to terms.</p>

	<p>A few questions though if anyone knows&#8230;Do kids diagnosed with <span class="caps">PDD</span> always end up as special ed or is their hope with therapy he main go mainstream. The reason I ask is that my cousin teaches 5th grade special d and the majority of her kids are <span class="caps">PDD</span> kids, and have been in special ed since kindergarten. What are the odds that my child will grow up, go to college and lead what is considered a normal life?</p>

	<p>Also, I was reading about a special diet that gluten free that is supposedly helpful. Has anyone tried this?</p>

	<p>Should I just go with the system for say 6 mos or so and see how he responds and progresses before trying anything different like diet changes or supplements.</p>

	<p>Sorry if I&#8217;m asking a million questions. My brain is spinning and all the websites I go to just overwhelm me more. Everyone here seems to have such a wealth of knowledge, and more importantly personal experience and understanding.&#8221;</blockquote></p>

	<p>This message signals the start of a frightening journey into the realms of woo. The &#8220;treatments&#8221; inflicted on Saul are very painful to read.  Mary joined numerous autism &#8220;biomedical treatment&#8221; yahoo groups. She is presently a member of all the groups in the box, see below (except EoH), and more besides.  She has posted more than 3500 messages to these groups.  Mary reveals her willingness to accept medical advice from strangers on the internet, and her trust in doctors employing &#8220;gross medical misjudgment&#8221;.  Between the ages of 3.6 and 7.9, Saul has been &#8220;treated&#8221; with the following (in alphabetical order):</p>

	<p>Acetyl L Carnitine &#8211; <span style="padding-left: 30px;">acetylated form of L-carnitine </span><br />
<span style="padding-left: 30px;">(quaternary ammonium compound biosynthesized from the amino acids lysine and methionine)</span><br />
Actos (pioglitazone)<br />
<span style="padding-left: 30px;">-prescription drug which carries a black box warning</span><br />
Cal/Mag Butyrate &#8211; mineral supplement<br />
Candex<br />
<span style="padding-left: 30px;">- marketed as an enzymatic remedy to treat the yeast infection candida</span><br />
Carnosine -amino acid<br />
Chelation &#8211; process of removing heavy metals<br />
<span style="padding-left: 30px;">Andrew Cutler protocol (at least 50 rounds)</span><br />
<span style="padding-left: 30px;"><span class="caps">DAN</span> protocol for 2 1/2 years.</span><br />
<span style="padding-left: 30px;">15 IVs of <span class="caps">EDTA </span>&#038; Glutathione</span><br />
<span style="padding-left: 30px;">5 IVs of <span class="caps">DMPS</span> and glutathione</span><br />
<span style="padding-left: 30px;">5 combined IVs <span class="caps">DMPS</span>/EDTA/Glutathione</span><br />
Chiropractic<br />
Diflucan &#8211; prescription anti-fungal<br />
Dimethyl glycine &#8211; modified amino acid<br />
Enhansa &#8211; Enhanced absorption curcumin supplement<br />
Epsom salt baths<br />
Essential fatty acids<br />
Flagyl (Metronidazole) &#8211; prescription anti-fungal<br />
Folinic acid &#8211; modified folic acid<br />
Folapro &#8211; highly absorbable folate<br />
Galantamine<br />
<span style="padding-left: 30px;">prescription drug used for the treatment of mild to moderate </span><br />
<span style="padding-left: 30px;">Alzheimer&#8217;s disease and various memory impairments</span><br />
GFCF diet &#8211; gluten-free-casein-free diet (3 years)<br />
<span class="caps">GFCF</span> diet with digestive enzymes for infractions<br />
<span class="caps">HBOT</span><br />
<span style="padding-left: 30px;">hyperbaric oxygen treatment</span><br />
<span style="padding-left: 30px;">(Mary owns her own Mary owns a Vitaeris 320)</span><br />
HLC MindLinx Powder by Pharmax &#8211; probiotic<br />
<span class="caps">IM </span>Bicillin &#8211; prescription intramuscularly injected form of penicillin<br />
Inositol &#8211; a nutrient<br />
<span class="caps">IVIG </span>- Intravenous Immunoglobulin<br />
<span style="padding-left: 30px;">prescription</span><br />
<span style="padding-left: 30px;">used to treat immune dysfunction</span><br />
<span style="padding-left: 30px;">contains the pooled immunoglobulin G (IgG) </span><br />
<span style="padding-left: 30px;">immunoglobulins from the plasma of approximately a </span><br />
<span style="padding-left: 30px;">thousand or more blood donors</span><br />
Klaire Labs Detoxification Support and Factor 4 &#8211; probiotic<br />
Liquid Bodybio <span class="caps">PC </span>- phosphatidylcholine with essential fatty acids<br />
Liquid grapefruit seed extract<br />
Low dose Naltrexone &#8211; an anti-opiod<br />
L-theanine &#8211; amino acid<br />
Magnesium supplements<br />
<span class="caps">MB12 </span>- Methylcobalamin, vitamin <span class="caps">B12 </span>- shots<br />
<span class="caps">MB12 </span>- Methylcobalamin, vitamin <span class="caps">B12 </span>- spray<br />
Nicotine patch<br />
Nizoral &#8211; antifungal<br />
Nystatin &#8211; antifungal<br />
<span class="caps">OLE </span>- olive leaf extract<br />
<a href="http://lizditz.typepad.com/i_speak_of_dreams/2008/08/a-new-treatment.html"><span class="caps">OSR </span></a><br />
<span style="padding-left: 30px;">(N,N&#8217;-bis (2-mercaptoethyl)isophthalamide, </span><br />
<span style="padding-left: 30px;">also know as 1,3-benzenediamidoethanethiol)</span><br />
<span style="padding-left: 30px;">an untested synthetic chemical</span><br />
Oxytocin nasal spray<br />
<span class="caps">PCA</span>-Rx &#8211; purports to remove toxins from the body<br />
Phosphatidylcholine<br />
Pro Bio &#8211; probiotic<br />
Quercetin &#8211; antioxidant flavinoid<br />
Reduced glutathione cream<br />
Threelac -probiotic<br />
Transdermal <span class="caps">NAC </span>(N-Acetyl Cysteine)<br />
Valtrex (valacyclovir)<br />
<span style="padding-left: 30px;">used to treat infections caused by herpes viruses</span><br />
Vitamin C<br />
Vitamin E<br />
Zithromax &#8211; antibiotic</p>

	<p>Mary has been tireless in &#8220;treating&#8221; Saul.  But what about Saul?  One would think that he must be very impacted by autism in order for her to go to these extraordinary lengths to cure him.  Actually, no.  He&#8217;s an extraordinary kid, and a wonderful one.  Saul could identify all of the letters in any order and count to 40 at age 2.2. He started sight reading words at about 2.3 and at age 2.8 could sight read about 30 words.  He started kindergarten in a segregated setting at age 4.9, , talked to the teacher, &#8220;he sat nicely through circle time, sat at his desk during class, and even raised his hand and answered questions. He was pointing to shapes on the wall and quizzing the teachers!&#8221;  Here is Mary&#8217;s description of Saul at age 4.7:</p>

	<p><blockquote>&#8220;I woke up this morning and he was in bed with me. I&#8217;m not sure what time he came in because I never heard or felt him get into bed which is unusual. I woke up and felt him there. I rolled over and his little face was right there. He looked so peaceful and really has the face of an angel. I just laid there and stared at him for about 20 minutes. He yawned and opened his eyes. He saw me and his face lit up with a <span class="caps">HUGE</span> ear to ear grin. &#8220;Good morning Mom. Love you. Gimme a hug.&#8221; He gave me such a big strong hug. &#8220;Gimme a kiss.&#8221; I gave him a kiss. A second later his gears kicked in and he was off and running on full speed. After a few minutes he came back in the room and said &#8220;GIMME <span class="caps">BREAKFAST</span>! ! !&#8221;&#8221;</blockquote></p>

	<p>But the &#8220;biomedical treatments&#8221; have not always been kind to Saul.  Here&#8217;s Mary describing him at age 5.11</p>

	<p><blockquote>My son is on a ton of supplements. We haven&#8217;t really changed anything. Starting August 30, for three weeks we had to stop all enzymes, antifungals and probiotics in preparation for a endoscopy/colonoscopy. He is back on everything since he was scoped on Sept 20. Also at the beginning of August he had a high fever and a nasty rash that was diagnosed as Fifth&#8217;s Disease. I&#8217;m not convinced it was Fifths. He didn&#8217;t have the bright red cheeks and the rash was gone in 3 days.</p>

	<p>After being sick he became clingy and a little whiny. In the past month its become horrible. I can&#8217;t even stand up without his whining &#8220;mommy..moooommmmmy, mommy will come.&#8221; I hear this the entire time I&#8217;m out of the room. Even if I tell him what I&#8217;m going to do and that I&#8217;ll be right back he continues saying it over and over. He whines over every little thing. Usually just lets out a big &#8220;WWWAAAAHHH&#8221; and it goes on and on. He cries over everything. He&#8217;s driving me insane. We are also seeing a decrease in spontaneous expressive language, asking repetitive questions, and repeating back questions instead of answering them.&#8221;</blockquote></p>

	<p>Nor have the &#8220;biomedical treatments&#8221; been kind to the family budget.  In one message, Mary admitted that each month she spent $2800 &#8211; $3500 for <span class="caps">IVIG</span>, plus about $500 in supplements including the cost of chelation.</p>

	<p>In a rare moment of insight, in May 2008, Mary posted:</p>

	<p><blockquote>&#8220;Sometimes I feel like a mad scientist and my poor kid is my guinea pig.&#8221;</blockquote></p>

	<p>Finally, a year later, she posted the preamble to this article (see box at top). How&#8217;s that &#8220;biomedical treatment&#8221; working out for you, Mary?</p>

	<p>Such are the real costs of the anti-vaccination movement, the &#8220;biomedical treatment&#8221; internet groups.  And the real costs of a parent unable to accept their child&#8217;s diagnosis. In her last message to the <span class="caps">NLT</span> group, Mary is still in denial about her son&#8217;s diagnosis:</p>

	<p><blockquote>RE:  Sowell Traits<br />
My son is 5 and is diagnosed <span class="caps">PDD</span>-NOS fits 7 of these to a T! ! ! The only one that doesn&#8217;t fit is # 7</p>

	<p>Makes me wonder what we are really dealing with.&#8221;</blockquote></p>

	<p>Thousands of parents are members of these yahoo groups.  Once inside the cozy echo chamber of the group, there is general acceptance that vaccines cause autism.  Members expressing opposing views are drummed out of the group.  It is taken as an article of faith that there are children recovering from autism by the use of these biomedical interventions.  The parents get poorer, the quacks get richer, and the innocent children are the victims of often dangerous and painful experimentation at the hands of the people who are supposed to care for them the most.</p>

	<p><strong>Some Yahoogroups</strong></p>

	<p><a href="http://health.groups.yahoo.com/group/Autism-Mercury/"><strong>A-M &#8211; Autism-Mercury</a>.  Membership 8400, 2000 messages/month (archives public)</strong></p>

	<p><blockquote>&#8220;To discuss current issues related to the increasing incidence of autism the potential link between excessive mercury exposure via thimerosal in infant vaccines. Topics include: mercury detoxification (&#8220;chelation&#8221;), mercury-related issues/news, and vaccination-related issues/news. Most members are parents of children with autism, aspergers, <span class="caps">ADD</span>, ADHD, <span class="caps">PDD</span>, PDD-NOS, <span class="caps">SID</span>, oppositional defiance disorder, apraxia, speech disorders, and/or other related symptoms. There are many labels: you are welcome regardless of particular label(s). In addition to mercury, we also discuss other heavy metals (for example: arsenic, antimony, lead). Many parents here are in the process of chelation, with a child. This process is discussed in detail. Also welcome: mercury poisoned adults; other disorders/issues related to mercury poisoning; other biomedical treatments for <span class="caps">ASD</span>.&#8221;</blockquote></p>

	<p>Comment:  Primarily discusses Andrew Cutler heavy metal chelation protocol.  This protocol relies on faux &#8220;counting rules&#8221; applied to hair testing to purportedly prove that people are &#8220;mercury toxic&#8221;.  Andrew Cutler has a PhD in Chemical Engineering.</p>

	<p><a href="http://health.groups.yahoo.com/group/chelatingkids2/"><strong><span class="caps">CK2 </span>&#8211; Chelatingkids2. </a> Membership 6600, 3000 messages/month</strong></p>

	<p><blockquote>&#8220;This list is for parents and/or family members of children with autism who are seeking biomedical intervention, The main focus of treatment here follows the <span class="caps">DAN</span>! or Defeat Autism Now.&#8221; </blockquote></p>

	<p>Comment:  Mercury chelation according to the <span class="caps">DAN</span>! protocol. This protocol relies on <a href="http://www.quackwatch.com/01QuackeryRelatedTopics/Tests/urine_toxic.html">provoked urine tests</a> to purportedly prove &#8220;mecury toxcicity&#8221;.  This very active group has been recently closed to new postings for an unspecified period of time.</p>

	<p><a href="http://groups.yahoo.com/group/EOHarm/"><strong>EoH &#8211; Environment of Harm</a>formerly Evidence of Harm.  Membership 2300, 600 messages/month (archives public)</strong></p>

	<p><blockquote>&#8220;This is the Environment of Harm discussion list focusing on vaccine damage and mercury poisoning as it relates to autism. Of keen interest to participants are the issues of government public health negligence and corruption and the various political efforts by parents to end the spectrum of epidemics that is being revealed as mercury poisoning, especially autism.&#8221;</blockquote></p>

	<p>Comment:  Politically active group originally supporting the autism is caused by mercury poisoning hypothesis, but now openly anti-vaccine.</p>

	<p><a href="http://health.groups.yahoo.com/group/GFCFKids/"><strong><span class="caps">GFCF</span>Kids</a>&#8211; Membership 14000, 3500 posts/month</strong></p>

	<p><blockquote>&#8220;The principle aim of this list is to provide a discussion forum for parents of children on the autism spectrum who are avoiding gluten and casein and other substances in their children&#8217;s diets. We hope that the discussions will include practical information and tips on following a <acronym title="etc">GFCF</acronym> diet; scientific research and opinion; the latest developments in understanding <acronym title="etc">GFCF</acronym> diet-related health problems; your personal stories and experiences with relation to <acronym title="etc">GFCF</acronym> problems; information on what food is <acronym title="etc">GFCF</acronym>and what is not; tips on how to eat out of the house; recipes and tips on how to cook and prepare <acronym title="etc">GFCF</acronym> food; what vitamins, minerals, herbs and other supplements may be appropriate for a child with autism, how to cope with difficult diet demands, plus support for parents.&#8221;<br />
</blockquote></p>

	<p>Comment:  One of the largest &#8220;biomedical treatment&#8221; yahoo groups.  While the <span class="caps">GFCF</span> diet has substantial anecdotal support, clinical trials have not shown any benefit.  The <span class="caps">GFCF</span> diet appears relatively harmless, however, it can result in weakening of bones due to nutritional deficiencies.  Moreover, it often acts as a first step on the path to more dangerous &#8220;biomedical treatments&#8221;.</p>

	<p><a href="http://health.groups.yahoo.com/group/NaturalLateTalkers/"><strong><span class="caps">NLT </span>&#8211; NaturalLateTalkers.</a> Membership 2900, 500 messages/month</strong></p>

	<p><blockquote>&#8220;This list is a support for parents of latetalkers or speech delay with some or all traits of latetalker listed in the book Late Talking Children by Thomas Sowell. . . Here parents <span class="caps">ARE</span> and will be able to discuss their problems, concerns, and dissatisfaction with the over diagnosing done by various systems, such as speech therapists, doctors, schools, etc. Parent&#8217;s choice helping with speech through parent or another source is to be respected.&#8221; (sic)</blockquote></p>

	<p>Comment:  This list supports those in deep denial about their child&#8217;s autism.  While such support groups appear to be relatively benign, offering mutual support to parents of children with disabilities, they are often an entry point for parents to learn about the autism &#8220;biomedical treatment&#8221; and anti-vaccination movements.  These groups are replete with examples of parents taking medical advice from strangers over the internet, many of whom are accorded more credibility than the medical professionals who have actually seen their children.</p>
 
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					<h4>504 comment(s) for this post:</h4><ol>
						  <li><img alt='' src='http://0.gravatar.com/avatar/67f07ae8401447a28b47bd8e6b90ced9?s=32&amp;d=http%3A%2F%2F0.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>David N. Brown:</i>
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							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2009/09/truth-and-consequences-%e2%80%93-the-anti-vaccination-movement-exacts-a-price/#comment-64069">2009-Sep-23</a></small>
							My "Evil Possum" site has two articles, "Frankenpharma" and "Pointless, Useless and Dangerous", dealing with the ApotheCure and Lee Silsby compounding pharmacies.  Direct federal regulation of compounding pharmacies deserves to be a high priority in health care reform.  Meanwhile, I would frankly suggest attacking the "cure" industry by reporting the actions of physicians AND parents as child abuse.  In the case of the Geiers' Lupron protocol ("Even Worse") there is actually a clear precedent for criminal prosecution.
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						  <li><img alt='' src='http://0.gravatar.com/avatar/c67d23c94cabf7af71359581dd631f2b?s=32&amp;d=http%3A%2F%2F0.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>Jennifer L.:</i>
							<br />
							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2009/09/truth-and-consequences-%e2%80%93-the-anti-vaccination-movement-exacts-a-price/#comment-64144">2009-Sep-23</a></small>
							This article is ridiculous.  I am shocked that you've even posted something like this.
						  </li>
						  <li><img alt='' src='http://0.gravatar.com/avatar/c67d23c94cabf7af71359581dd631f2b?s=32&amp;d=http%3A%2F%2F0.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>Jennifer L.:</i>
							<br />
							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2009/09/truth-and-consequences-%e2%80%93-the-anti-vaccination-movement-exacts-a-price/#comment-64145">2009-Sep-23</a></small>
							what a coward you are!!!  you post under "guest blogger"!  show yourself!!!!
						  </li>
						  <li><img alt='' src='http://0.gravatar.com/avatar/4b20fa4d619ac6d93976ccfc384a01c7?s=32&amp;d=http%3A%2F%2F0.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>KWombles:</i>
							<br />
							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2009/09/truth-and-consequences-%e2%80%93-the-anti-vaccination-movement-exacts-a-price/#comment-64149">2009-Sep-23</a></small>
							Jennifer, if you aren't horrified by the majority of the words that the mother quoted in the piece wrote, then it is you who are ridiculous. This is a woman in dire need of intervention and a child who cannot be even remotely considered to be in a healthy, safe environment.

If you can't fully support your contention that this blog post is ridiculous and why as well as why you are shocked it was published, if you can't see that what is shocking is this mother's words, this mother's actions, then there is something seriously wrong with how you see this world.
						  </li>
						  <li><img alt='' src='http://1.gravatar.com/avatar/3d236908c5f5213041a0f532cb866a89?s=32&amp;d=http%3A%2F%2F1.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>Guest Blogger:</i>
							<br />
							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2009/09/truth-and-consequences-%e2%80%93-the-anti-vaccination-movement-exacts-a-price/#comment-64151">2009-Sep-23</a></small>
							Ridiculous?  In what way?

I can assure you that I have documentation and links for every statement that "Mary" has made.  Out of consideration for her privacy I have not included these links.  I've changed her name and her son's name. I don't want to personally embarrass her.  She's clearly a well-meaning person. She's just fallen into the clutches of the autism biomedical treatment yahoo groups.  And into the clutches of the greedy quacks.

"Mary" herself posts under a pseudonym.
						  </li>
					  </ol>
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		<title>Asperger Syndrome is not a disability, just ask Lenny Schafer</title>
		<link>http://leftbrainrightbrain.co.uk/2009/08/asperger-syndrome-is-not-a-disability-just-ask-lenny-schafer/</link>
		<comments>http://leftbrainrightbrain.co.uk/2009/08/asperger-syndrome-is-not-a-disability-just-ask-lenny-schafer/#comments</comments>
		<pubDate>Thu, 06 Aug 2009 20:15:31 +0000</pubDate>
		<dc:creator>Sullivan</dc:creator>
				<category><![CDATA[Age of Autism]]></category>
		<category><![CDATA[Autism]]></category>
		<category><![CDATA[Jake Crosby]]></category>
		<category><![CDATA[Orgs]]></category>
		<category><![CDATA[Schafer]]></category>

		<guid isPermaLink="false">http://leftbrainrightbrain.co.uk/?p=2710</guid>
		<description><![CDATA[Lenny Schafer wrote one of the most insulting comments I have seen on the Age of Autism blog in a long time. This is actually old news&#8212;the comment was made on Luly 13th. I missed the comment, but how did I miss that it was, no kidding, picked as an award winning &#8220;comment of the [...]]]></description>
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		</div>	<p>Lenny Schafer wrote one of the most insulting comments I have seen on the Age of Autism blog in a long time.  This is actually old news&#8212;the comment was made on Luly 13th.  I missed the comment, but how did I miss that it was, no kidding,  picked as an award winning &#8220;comment of the week&#8221; by the &#8220;editors&#8221; of the Age of Autism blog.</p>

	<p>If you didn&#8217;t see it, here is Mr. Shafers, <a href="http://tinyurl.com/LennysClownComment">award winning comment </a>from the Age of Autism blog:</p>

	<p><blockquote>&#8220;Disability&#8221; is not a literary term open to subjective interpretation. It is a forensic, legal term defined in documents like the <span class="caps">DSM</span>-IV for the parsing of government entitlements and insurance compensations. Asperger Syndrome is not defined as a disability. Those with Aspergers do not get Social Security Disability benefits. They are not entitled to most state entitlement disability programs and are not qualified to park in disabled parking zones. Those with Aspergers <span class="caps">ARE</span> disadvantaged and deserve support and our advocacy for them, but not at the same levels for the disabled. Let us stop interchanging the term &#8220;disability&#8221; with &#8220;disadvantage&#8221;.</p>

	<p>Also, the term &#8220;high functioning autism&#8221; is a street jargon misnomer and has no clinical definition, despite it widening use. It is a term that also trivializes autism. It is oxymoronic. Autism is defined by disability, lack of function. Is there such a thing as high-sighted blindness? Or high-hearing deafness? Perhaps &#8220;HighER Function Autism&#8221; might make more sense because it is not self-contradictory. (We then wouldn&#8217;t need the redundant &#8220;Low Functioning Autism&#8221; label either.)</p>

	<p>The whole autism spectrum labeling is a mistake, in any event, for a number of reasons I won&#8217;t go into here. However, we are stuck with it. Let&#8217;s get clear on related word meanings. Lack of good communication skills is a definite disadvantage, but not necessarily a disability.</p>

	<p>And let us hope that the upcoming <span class="caps">DSM</span>-V gets clearer about defining autism only as a disability&#8212;and kicks the high functioning ND autism squatters onto the personality disorder spectrum where they belong.</blockquote></p>

	<p>There is so much that can be said, point by point, in response to Mr. Schafer&#8217;s comment.  But my guess is that most readers of this blog need no commentary to realize what a grossly insulting statement Mr. Schafer made.</p>

	<p>What boggles the mind even further is that this was a comment to Mr. Jake Crosby&#8217;s piece, &#8220;<a href="http://tinyurl.com/jakeAoA">Autism, Asperger&#8217;s: Who is Truly Disabled?</a>&#8220;, a piece all about how Asperger syndrome truly is a disability.  Mr. Crosby&#8217;s concluding statement in that piece was:</p>

	<p><blockquote>Unfortunately, that is what&#8217;s happening, but as a person with Asperger&#8217;s I can tell you that I am truly disabled, albeit much more mildly than others with autism.</blockquote></p>

	<p>While we have disagreed on some points, Mr. Crosby and I have been having a good discussion in the comments of this blog.  I believe we both agree that Asperger Syndrome is a genuine disability.  I couldn&#8217;t see him agreeing with Mr. Shafer&#8217;s comments, so I went digging to see what comments Mr. Crosby made.</p>

	<p>Here are two comments by Mr. Crosby in response as posted to AoA:</p>

	<p><blockquote>I&#8217;m a contributing editor to this site, but played no role in Lenny Schafer winning the &#8220;comment of the week.&#8221; His comment isn&#8217;t just grossly offensive to parents of those on the higher end of the spectrum, but also to those of us ON the higher end of the spectrum.</blockquote></p>

	<p>and</p>

	<p><blockquote> Schafer&#8217;s post is wrong on so many levels. It is the comment of the week alright, the worst comment of the week.</blockquote></p>

	<p>I almost didn&#8217;t post Mr. Crosby&#8217;s comments.  I didn&#8217;t want to go for the easy, &#8220;look there&#8217;s dissension in the ranks at AoA&#8221; message.  As I said above, Mr. Crosby and I don&#8217;t see eye-to-eye on all subjects.  But I can still recognize and respect the courage it took to speak out like that.  Mostly, it is worth noting that Mr. Crosby doesn&#8217;t share Mr. Shafer&#8217;s opinion.</p>

	<p>The Age of Autism has officially closed comments to Mr. Crosby&#8217;s piece and to the &#8220;commenter of the week&#8221; post.</p>

	<p>I&#8217;d love to see the comments they deleted.</p>
 
				<div>
					<h4>97 comment(s) for this post:</h4><ol>
						  <li><img alt='' src='http://1.gravatar.com/avatar/f424c550698db43fdb206f32d5910c63?s=32&amp;d=http%3A%2F%2F1.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>Joseph:</i>
							<br />
							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2009/08/asperger-syndrome-is-not-a-disability-just-ask-lenny-schafer/#comment-60967">2009-Aug-06</a></small>
							There are many errors in the comment, but let me just take one. The terms "high functioning" and "low functioning" autism are not "street jargon."  

You can disagree with their usage, their existence and their definitions, but they are routinely used in the scientific literature, and their formal meaning is well known. 

I didn't realize Mr. Schafer was this ignorant, on top of everything else.
						  </li>
						  <li><img alt='' src='http://0.gravatar.com/avatar/0281adf2ef5dc7a3556ccd2e494ebdb7?s=32&amp;d=http%3A%2F%2F0.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>Sullivan:</i>
							<br />
							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2009/08/asperger-syndrome-is-not-a-disability-just-ask-lenny-schafer/#comment-60969">2009-Aug-06</a></small>
							I don't like the terms, but they are much more than "street jargon".  As Joseph notes, they are widely used (and accepted) in the literature.
						  </li>
						  <li><img alt='' src='http://0.gravatar.com/avatar/4c74424361f5733d65ce2a90acd85e06?s=32&amp;d=http%3A%2F%2F0.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>Michelle Dawson:</i>
							<br />
							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2009/08/asperger-syndrome-is-not-a-disability-just-ask-lenny-schafer/#comment-60971">2009-Aug-06</a></small>
							Yes, the terms "high functioning" and "low functioning" are widely (though not universally) used in the autism literature. But these terms are defined in very inconsistent ways. There is no agreement on what exactly these terms mean.  

Similarly there is no agreement in the autism literature about whether or how to distinguish Asperger syndrome from autism.
						  </li>
						  <li><img alt='' src='http://1.gravatar.com/avatar/3db603f4395395c98e4755718b1e334c?s=32&amp;d=http%3A%2F%2F1.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>Roger Kulp:</i>
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							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2009/08/asperger-syndrome-is-not-a-disability-just-ask-lenny-schafer/#comment-60986">2009-Aug-07</a></small>
							I have a nice fever today,so I am able to be more lucid than I have been in weeks.Last week,I was all nonverbal and head banging.

It was my post over at Age of Autism,that inspired Jake Crosby's original piece.It was taken from some emails I had written to Kim Stigliano.I wish Kim had shown me the final piece before she ran it. There was stuff in there I would not have published.Especially the "not disabled" statement that set Mr.Crosby off.That said,it is fairly obvious Jake has both led somewhat of a sheltered life,and was unaware of both the conditions that can exist with autism,and the outright hatred the neurodiversity  movement has created amoung families of more impaired autistics towards everybody with Asperger's.That many in neurodiversity cannot understand why this is is part of the problem.There are a lot of assholes on all sides of this issue,but neurodiversity has a serious image and public relations problem.

The "can't we all just get along" viewpoint promoted by John Elder Robinson


http://www.psychologytoday.com/blog/my-life-aspergers/200907/why-cant-we-all-get-along

 http://autismgadfly.blogspot.com/2009/07/john-elder-robison-gives-his-take-on.html 

has little in common with the way those who are on the other side see neurodiversity.See my comments at both the AoA and Gadfly blog posts.

While he may not say thing in the most polite, and tactful way,a lot of us are in 100% agreement with Harold Doherty,especially his belief that neurodiversity,and Ari Ne'eman as a particular example, claims to speak for everybody on the spectrum.While this may not be Mr.Ne'eman's intention,this is the impression he,and a lot of those in neurodiversity,give.They imply all autism is Asperger's.

While he probably isn't in person,a lot of people see people like Ne'eman,as arrogant snobs.As I have said over at Age of Autism,to parents who defend their Aspergerian children,neurodiversity has engendered a great deal of animosity towards those with Asperger's from families of more disabled autistics,and lbrb is among the big reasons why.While you don't quite stoop to the level of hate that the likes of Prometheus,ans Autistic Bitch From Hell do,it can get pretty mean spirited around here.Moderating comments would help.

Those of us who have both autism,and what ND types like to cutely call "comorbid conditions" see all of the neurodiverse Aspergerians ,or their sympathetic fellow travelers,doing much of the research on autism,on the one hand.And on the other we see all these questionable studies like the ones on autism and bowel disease,and some of us can't help but wonder if there isn't some grand conspiracy to redefine autism,by eliminating symptoms,so that only the highest functioning aspies remain on the spectrum.


As much as many of us would like it to go away,if there is to be a neurodiversity movement,Robinson's blog post presents the ideal model of how you should conduct yourself.
						  </li>
						  <li><img alt='' src='http://0.gravatar.com/avatar/0281adf2ef5dc7a3556ccd2e494ebdb7?s=32&amp;d=http%3A%2F%2F0.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>Sullivan:</i>
							<br />
							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2009/08/asperger-syndrome-is-not-a-disability-just-ask-lenny-schafer/#comment-60988">2009-Aug-07</a></small>
							Mr Kulp,

I appreciate you taking the time to comment.  

I would encourage you to read a bit more of this and other blogs.  First, the idea that AoA is a place for those with "more disabled" autistics is not accurate.  Also, the idea that moderating comments can lead to a nicer tone for the blog...well...I would suggest that AoA is a prime example of a heavily moderated blog with a very harsh tone.
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		<title>On media, neurodiversity and science</title>
		<link>http://leftbrainrightbrain.co.uk/2007/05/on-media-neurodiversity-and-science/</link>
		<comments>http://leftbrainrightbrain.co.uk/2007/05/on-media-neurodiversity-and-science/#comments</comments>
		<pubDate>Tue, 29 May 2007 09:14:05 +0000</pubDate>
		<dc:creator>Kev</dc:creator>
				<category><![CDATA[Autism]]></category>
		<category><![CDATA[DAN!]]></category>
		<category><![CDATA[David Kirby]]></category>
		<category><![CDATA[Katie Wright]]></category>
		<category><![CDATA[Neurodiversity]]></category>
		<category><![CDATA[Quackery]]></category>
		<category><![CDATA[Schafer]]></category>

		<guid isPermaLink="false">http://www.kevinleitch.co.uk/wp/?p=550</guid>
		<description><![CDATA[Opinions vary as to why I, and many of my online friends believe what we do. The answers cannot be easily encapsulated but an indication is given by the source of the two links I&#8217;ve just linked to. The first group believe autism is not just a disability, that it is both more and less [...]]]></description>
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			<a href="http://api.tweetmeme.com/share?url=http%3A%2F%2Fleftbrainrightbrain.co.uk%2F2007%2F05%2Fon-media-neurodiversity-and-science%2F">
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		</div>	<p>Opinions vary as to why I, and many of my <a href="http://www.autism-hub.co.uk">online</a> <a href="http://www.scienceblogs.com">friends</a> believe what we do. The answers cannot be easily encapsulated but an indication is given by the source of the two links I&#8217;ve just linked to.</p>

	<p>The first group believe autism is not just a disability, that it is both more and less than that and that whatever the aetiology of &#8216;it&#8217; is,  it is likely to not have a single cause and further, if it does or if it doesn&#8217;t, the fact that people are autistic is a state of being (a property of their personhood) that is deserving of respect and tolerance. After all, if we can tolerate difference between sexes enough to think of a toilet seat that raises or lowers as a natural aspect of functional life then we really should be able to make the minor adjustments necessary to accommodate the needs and requirements of autistic people.</p>

	<p>The second group believe in the scientific method. They believe that in matters of science, that the rules of science should be applied.</p>

	<p>There is some major overlap between the position of these two groups. There are a number of bloggers on the Autism Hub and an even larger number of readers of blogs on the Autism Hub who are bloggers on Science Blogs and/or readers of Science Blogs&#8217;. A number of bloggers who have autistic children are scientists of various disciplines.</p>

	<p>It is worth noting however that these two groups are not synonymous. I know of a few people who believe in the basic essence of neurodiversity who also think vaccines damaged them or their children. This is because they know that even if vaccines did do damage, they or their kids are still deserving of respect. Conversely, I expect there are a few science bloggers who would not agree with the standpoint of neurodiversity and would ferociously chase a cure.</p>

	<p>But these people are the exception. By and large these are two groups who share a mutual opinion that the only way to progress our knowledge of the science of autism is to use the scientific method. Science is now, thankfully, beginning to catch on to the idea that the best way to get knowledge that may help autistic people is to listen to autistic people.</p>

	<p><a href="http://courses.media.mit.edu/2007spring/mas962/">At <span class="caps">MIT</span></a> Amanda Baggs has been <a href="http://ballastexistenz.autistics.org/?p=379">working with</a> the science team there in ways that will result in positive and scientifically valid ways of helping autistic (and other) people.</p>

	<p>Est&eacute;e also gave <a href="http://www.taaproject.com/media/video-vault/taap-at-mit-whole-thing/">a presentation</a> at <span class="caps">MIT </span>(the second talk was fuller than this one) and she also noted <a href="http://autismcrisis.blogspot.com/">Michelle Dawson&#8217;s</a> ongoing role at the University of Montreal.</p>

	<p>This is all good progress. It&#8217;s exciting to watch these things develop and to see the possibilities that might spring forth from these alliances and how they might benefit my daughter and autistic people generally.</p>

	<p>I believe in the scientific method. I believe science has done more than anything else to take us closer to understanding the universe within us and around us. I believe that the  naturally occurring alliance that is being forged between autistic people, their allies and science is absolutely the correct way to go. Neither side is seeking to change or alter the other but to understand each other and <a href="http://h20.media.mit.edu/">benefit from the union</a>.</p>

	<p>If I want to see an example of how <em>not</em> to do things, I need look no further than (you guessed it) the mercury militia/malicia. These are people who have taken the polar opposite view. They eye science with distrust. They refuse to accept that the results of studies that disagree with their stance can be correct to the extent that they <a href="http://www.kevinleitch.co.uk/wp/?p=540">threaten those scientists with violence</a>, or they ignore science and instead <a href="http://www.kevinleitch.co.uk/wp/?p=548">disagree with the wording</a> of press releases about science. In fact, this is Lenny Schafer&#8217;s view (from a past <span class="caps">SAR</span>):</p>

	<p><q>Myself and other autism activists believe there is enough evidence to support a causative relationship between mercury and autism in a court of law, in front of a jury, where standards of evidence are different than that of the narrow focus of scientific findings. And if you can convince a jury, you can convince the public.</q></p>

	<p>Make no mistake, by &#8216;different&#8217; Schafer (correctly) means looser, way, way looser. He does not want scientific standards to come to play in determining the vaccine/autism connection. The reason why is <a href="http://www.slate.com/id/2166939">absurdly obvious</a>.</p>

	<p>The scientist and author Michael Crichton once <a href="http://www.michaelcrichton.net/speeches/index.html">gave a speech</a> about environmental issues that may as well have applied to the autism/vaccine issue:</p>

	<p><q>...Proponents are pressing their views with more PR than scientific data. Indeed, we have allowed the whole issue to be politicized&#226;&#8364;&#8221;red vs blue, Republican vs Democrat. This is in my view absurd.  Data aren&#226;&#8364;&#8482;t political. Data are data. Politics leads you in the direction of a belief.  Data, if you follow them, lead you to truth.</q></p>

	<p>On the EoH group where Lenny Schafer is kingpin, there is currently something of a growing schism between Lenny, John Best (e.g. the more hardcore loony element) who believe that Aspergers Syndrome is not a disability and is not part of the spectrum and hence is not autism and a lot of other people who quite obviously have AS kids and are disagreeing very strongly with Lenny&#8217;s extremeism. As part of that debate, Lenny made the following statement:</p>

	<p><q>I would like to think of what we do here is public debate, not &#8220;fighting&#8221;.</q></p>

	<p>This illustrates perfectly the kind of denialism that exists amongst Lenny and his members. The Yahoo EoH group is a closed access list. You can only access the group if you join up and are accepted as a member, which is what I did back in 2005. Yet Lenny really believes that this closed access list is public debate. He <em>has</em> to believe this as he is a firm believer (as we have seen) of political and legal definitions of autism and autism aetiology. In his world view, you need to <em>manage</em> the PR. You need to nudge it in the right direction, much as Lenny&#8217;s colleagues from the <span class="caps">NAA</span> did <a href="http://www.kevinleitch.co.uk/wp/?p=355">when they lied about Paul Shattuck</a> as they disagreed with his results.</p>

	<p>By contrast, the Autism Hub bloggers operate openly. Their opinions are challengeable directly on their blogs. Good science is challengeable. It can be challenged by using the scientific method. There is no &#8216;management&#8217; of information going on here. No one flip-flops between crucial elements of their beliefs and hopes no one notices (such as <a href="http://www.kevinleitch.co.uk/wp/?p=542">Brad Handley has done</a>).</p>

	<p>The <a href="http://www.kevinleitch.co.uk/wp/?page_id=444">interviews</a> I have done (and am doing now) have been to periodicals that concern science or touch on the science of autism from a parents perspective. I noted with no small amusement this morning that &#8216;the other side&#8217; are resorting to interviewing each other &#8211; Erik Nansteils Autism Media site carries an interview of <a href="http://www.autismmedia.org/media15.html" rel="nofollow">David Kirby interviewing Katie Wright</a>. I bet that&#8217;s an in-depth and truth revealing interview.</p>

	<p>I believe that promoting connections between autistic people and science is the absolute best way to get good science regarding autism. I hope to do my bit in making the web work <em>for</em> the promotion of these connections. I hope that our growing community never gets sucked into the tarpit of closed access lists that crow about the achievement of &#8216;converting&#8217; celebrities and media persons. This is why I set up the Autism Hub and the <a href="http://www.autism-forum.co.uk">Autism Parents Forum</a>. So that we can grow as a community and come closer together. I hope to do more of this in the future. I want my email contact list to be full of the names of autistic people, scientists, responsible authors such as Arthur Allen and Brian Deer and parents that, like me, want to benefit from this growing relationship. I couldn&#8217;t care less if I never get Lou Diamond Phillips or Don Imus&#8217; email address.</p>

	<p>Media and politics or science? When it comes to understanding the science of autism, which will yield better results? Bear this in mind as you consider your choice &#8211; science is amoral. You cannot hide, distort or disfigure scientific achievement forever. If something is scientifically accurate, its truth is self evident. No matter how many politicians you have in your pocket, no matter how many media contacts you have, gravity will always be a force of attraction. The power of repulsion belongs to those who would deny that.</p>
 
				<div>
					<h4>17 comment(s) for this post:</h4><ol>
						  <li><img alt='' src='http://0.gravatar.com/avatar/a66c610ce7793d621abdc921588c67e7?s=32&amp;d=http%3A%2F%2F0.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>Another Voice:</i>
							<br />
							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2007/05/on-media-neurodiversity-and-science/#comment-38305">2007-May-29</a></small>
							Very well put!  Straight forward and from the heart.

A few will object to this but that same few will object to anything that does not paint them as victims.
						  </li>
						  <li><img alt='' src='http://1.gravatar.com/avatar/9bacbed29ee31ceb7afb15dad901b5ac?s=32&amp;d=http%3A%2F%2F1.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>Sharon:</i>
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							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2007/05/on-media-neurodiversity-and-science/#comment-38306">2007-May-29</a></small>
							How cool, we're a <i>movement</i>! 
So what if they have Lou Diamond Philips, we've got Sigourney, and she is far, far cooler.

Well said Kevin.
						  </li>
						  <li><img alt='' src='http://0.gravatar.com/avatar/a77d91dbf73d0fe04276bc3c0bb52531?s=32&amp;d=http%3A%2F%2F0.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>bones.0504:</i>
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							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2007/05/on-media-neurodiversity-and-science/#comment-38308">2007-May-29</a></small>
							Very well put, Kev.
						  </li>
						  <li><img alt='' src='http://1.gravatar.com/avatar/52a4f59a5bfeb54a70e05982e1ab85f1?s=32&amp;d=http%3A%2F%2F1.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>kristina:</i>
							<br />
							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2007/05/on-media-neurodiversity-and-science/#comment-38313">2007-May-29</a></small>
							Just so long as we don't have to be called "the ND"-----this was invigorating to read. Thanks always.
						  </li>
						  <li><img alt='' src='http://0.gravatar.com/avatar/07a6f33584757c3ac2515302d24f2804?s=32&amp;d=http%3A%2F%2F0.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>Melissa:</i>
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							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2007/05/on-media-neurodiversity-and-science/#comment-38314">2007-May-29</a></small>
							Bravo Kevin!  Excellent post; I'm forwarding the link on to family members as this is a must-read.
						  </li>
					  </ol>
				  </div>
			  <p><b><a target="_blank" href="http://leftbrainrightbrain.co.uk/wp-content/plugins/comments-on-feed/comments-template.php?id=550">Write a quick comment</a></b> | View <a href='http://leftbrainrightbrain.co.uk/2007/05/on-media-neurodiversity-and-science/#comments'>12 more comment(s).</a></p>]]></content:encoded>
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		<slash:comments>17</slash:comments>
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		<title>Lenny Schafer&#8217;s Delicious Cheap Shot</title>
		<link>http://leftbrainrightbrain.co.uk/2007/05/lenny-schafers-delicious-cheap-shot/</link>
		<comments>http://leftbrainrightbrain.co.uk/2007/05/lenny-schafers-delicious-cheap-shot/#comments</comments>
		<pubDate>Thu, 24 May 2007 15:30:29 +0000</pubDate>
		<dc:creator>Kev</dc:creator>
				<category><![CDATA[Autism]]></category>
		<category><![CDATA[Neurodiversity]]></category>
		<category><![CDATA[Personal]]></category>
		<category><![CDATA[Schafer]]></category>

		<guid isPermaLink="false">http://www.kevinleitch.co.uk/wp/?p=549</guid>
		<description><![CDATA[It&#8217;s no secret that I don&#8217;t think much of either the reasoning powers, nor general behaviour, of the collection of individuals that populate David Kirby&#8217;s &#8216;Evidence of Harm&#8217; Yahoo Group. Every time I think they can&#8217;t surprise and disgust me more, they manage it. This is the group of people from which sprung an anonymous [...]]]></description>
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			<a href="http://api.tweetmeme.com/share?url=http%3A%2F%2Fleftbrainrightbrain.co.uk%2F2007%2F05%2Flenny-schafers-delicious-cheap-shot%2F">
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		</div>	<p>It&#8217;s no secret that I don&#8217;t think much of either the reasoning powers, nor general behaviour, of the collection of individuals that populate David Kirby&#8217;s &#8216;Evidence of Harm&#8217; Yahoo Group. Every time I think they can&#8217;t surprise and disgust me more, they manage it.</p>

	<p>This is the group of people from which sprung an anonymous email referring to Megan as a &#8216;little bitch&#8217;. This is the group of email who have attacked autistic people viciously and repeatedly. It beggars belief that a group of people who are parents to autistic people could be so disrespectful to autistic people when they claim to be &#8216;the autism community&#8217;. But then, how could anyone expect anything better from parents who refer to their <a href="http://groups.yahoo.com/group/EOHarm/message/996">own children</a> as &#8216;dull witted&#8217;.</p>

	<p>A member of the EoH group has compared my daughter to a monkey when i described how well she was progressing. This same member later <a href="http://hatingautism.blogspot.com/2006/03/train-wrecks-of-neurodiversity.html#c114289411968658871">said</a> on his own blog:<br />
<q>....My wife bought too many bananas so I&#8217;ll send some for your daughter &#8230;.. </q></p>

	<p><a href="http://hatingautism.blogspot.com/2006/03/train-wrecks-of-neurodiversity.html#c114303733670886054">and followed that up with</a></p>

	<p><q>...Perhaps you can teach your daughter to swing from tree to tree&#8230;</q></p>

	<p>This is ample evidence of the sort of people who infest this particular corner of Yahoo.</p>

	<p>However, if more proof were needed, today Lenny Schafer, creator of the EoH Yahoo Group established once and for all the level of disregard for children that the EoH group has.</p>

	<p>Schafer posted <a href="http://www.stltoday.com/stltoday/news/stories.nsf/stlouiscitycounty/story/161CCDA72045BFC3862572E500136DE4?OpenDocument">this story</a> to the EoH list today. It concerns a scumbag who has over 100,000 images of child porn in their posession. As part of this scumbags defence, he is claiming he is autistic. Take a place in line behind Cho, scumbag.</p>

	<p>Schafer, however, altered the headline so it read:</p>

	<p><q>Prison Ordered for NeuroDiverse Man With More Than 100,000 Child Porn Pictures</q></p>

	<p>and offered this commentary, accompined with a link to this site:</p>

	<p><q>OK, so I added &#8220;ND&#8221; to the headline to make it more politically correct for all those mercury apologist ghosts lurking on our list. The ND sword cuts both ways. Sometimes you just can&#8217;t pass up a delicious cheap shot. Lenny</q></p>

	<p>A delicious cheap shot.</p>

	<p>I&#8217;m so very happy that Lenny Schafer finds the idea of utilising the torture, rape and suffering of children as an opportunity for a delicious cheap shot as in any way an acceptable thing to do. Schafer doesn&#8217;t like neurodiversity. Thats his right. He should campaign against it as hard as he likes. However to utilise the suffering of children in his demonisation is beyond sick.</p>

	<p>Lenny Schafer might want to look to the top right hand corner of this website. In it he will find a picture of four year old Madeline McCann, a baby girl who <a href="http://news.sky.com/skynews/madeleine">was abducted from her holiday home</a> three weeks ago. That picture has been on my site for almost a fortnight now. Its on the website of many UK residents.</p>

	<p>No doubt Lenny Schafer and the antivaccinationist ignorati who surrounds himself with will pat themselves mightily on the back for getting under my skin so much. Because they have. I don&#8217;t think you should ever make light of the abduction, rape and torture of children.</p>

	<p>I put up that picture of Maddy in the hopes that maybe &#8211; a slim hope &#8211; someone who knows something might see it and do something which would mean she was returned to the arms of her parents.</p>

	<p>I have also colluded with people Lenny Schafer considers friends in the relatively recent past after it was made known to me that an author of an autism book who was friends with a <span class="caps">DAN</span>! doctor was a paedophile. I did this to ensure no children would fall into these people&#8217;s clutches.</p>

	<p>You made your cheap shot Mr Schafer. I hope you found it &#8216;delicious&#8217;.</p>
 
				<div>
					<h4>30 comment(s) for this post:</h4><ol>
						  <li><img alt='' src='http://1.gravatar.com/avatar/b1cd267ab0428a673240443d5b446625?s=32&amp;d=http%3A%2F%2F1.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>Friend in California:</i>
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							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2007/05/lenny-schafers-delicious-cheap-shot/#comment-38184">2007-May-24</a></small>
							A co-worker of mine has a saying that applies in this case:
"Consider the Source."
Your outrage is well-placed.  What a jerk.
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						  <li><img alt='' src='http://0.gravatar.com/avatar/a1e1a93b5d66b3a2a4b73515ad35d6c3?s=32&amp;d=http%3A%2F%2F0.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>livsparents:</i>
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							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2007/05/lenny-schafers-delicious-cheap-shot/#comment-38185">2007-May-24</a></small>
							Hey, do you have "Amber Alerts" on the island?  This is a way of informing law enforcement and media outlets of a child's abduction where they sometimes give make and model of car, childs picture, they plaster it on electronic road signs, excetera.  They've gotten quite a few kids back that way.

The bulk of your story speaks for itself...
						  </li>
						  <li><img alt='' src='http://1.gravatar.com/avatar/9b9c55536013dbe2d8f4eca91674e4b3?s=32&amp;d=http%3A%2F%2F1.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>Joel Smith:</i>
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							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2007/05/lenny-schafers-delicious-cheap-shot/#comment-38187">2007-May-24</a></small>
							I kind of laughed when I saw Lenny's comment.  I already knew him to be an ass, have no problem admitting that people with autism can commit crimes and do awful things (but, unlike the neo-Nazi viewpoint he is too ignorant to know he is supporting, I don't support the idea that crime is linked to neurology), and think that things like this in the end do far more to discredit him than he might think.

I'm all for Lenny discrediting himself.  So I hope he makes some more statements like that sometime soon.

The mercury militia doesn't really have anyone in power who is someone I'd like as a role model.  I'm hoping that at least some (hopefully even most) parents can see what kind of person becomes a leader in this cult.
						  </li>
						  <li><img alt='' src='http://1.gravatar.com/avatar/374af6d4a909771ae3e13fbee364f325?s=32&amp;d=http%3A%2F%2F1.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>David N. Andrews M. Ed.  (Distinction):</i>
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							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2007/05/lenny-schafers-delicious-cheap-shot/#comment-38189">2007-May-24</a></small>
							Thing is, with Lenny and his type, that ... well, when all they can come out with is shite, the appropriate diagnosis is 'arsehole'.

Am I right, or am I correct?
						  </li>
						  <li><img alt='' src='http://0.gravatar.com/avatar/28c1f718238fc729069a373e8fd60f32?s=32&amp;d=http%3A%2F%2F0.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>culvercitycynic:</i>
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							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2007/05/lenny-schafers-delicious-cheap-shot/#comment-38190">2007-May-24</a></small>
							Yeah, that Lenny, he has such respect for kids. One hears that he spent his adopted kid's gov't issued monthly stipend supporting the production and promotion of "THE SAR!" (read: himself) all those years.  Then when the kid aged-out, Lenny went begging, hat-in-hand. What a guy.
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		<title>Education data is the new black</title>
		<link>http://leftbrainrightbrain.co.uk/2007/03/education-data-is-the-new-black/</link>
		<comments>http://leftbrainrightbrain.co.uk/2007/03/education-data-is-the-new-black/#comments</comments>
		<pubDate>Mon, 26 Mar 2007 22:04:13 +0000</pubDate>
		<dc:creator>Kev</dc:creator>
				<category><![CDATA[Autism]]></category>
		<category><![CDATA[Autism Epidemic]]></category>
		<category><![CDATA[Mercury]]></category>
		<category><![CDATA[Schafer]]></category>
		<category><![CDATA[Skeptic]]></category>
		<category><![CDATA[Thimerosal]]></category>

		<guid isPermaLink="false">http://www.kevinleitch.co.uk/wp/?p=521</guid>
		<description><![CDATA[Or, more accurately, Education data is the new CDDS. Up until this year, David Kirby, Lenny Schafer, Rick Rollens et al said that CDDS data was the gold standard of autism data and because rates were rising during the 90&#8217;s according to CDDS data this proved that vaccines caused autism. Then they said this would [...]]]></description>
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			<a href="http://api.tweetmeme.com/share?url=http%3A%2F%2Fleftbrainrightbrain.co.uk%2F2007%2F03%2Feducation-data-is-the-new-black%2F">
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		</div>	<p>Or, more accurately, Education data is the new <span class="caps">CDDS</span>.</p>

	<p>Up until this year, David Kirby, Lenny Schafer, Rick Rollens et al said that <span class="caps">CDDS</span> data was the gold standard of autism data and because rates were rising during the 90&#8217;s according to <span class="caps">CDDS</span> data this proved that vaccines caused autism. Then they said this would be proved in 2005 &#8211; sorry, 2007 &#8211; when it was firmly established thiomersal was pretty much out of all vaccines in the US schedule excepting the voluntary flu jab. Kirby went so far as to say that if the <span class="caps">CDDS</span> rates didn&#8217;t fall by 2007 then this would be a significant blow to the thiomersal theory.</p>

	<p>Guess what? No fall. In fact, there was a continued climb.</p>

	<p>Next they all said &#8211; <span class="caps">CDDS</span>? That stuff is rubbish &#8211; California is &#8216;special&#8217;. No, no, no, what <em>really</em> counts is educational data. In fact, just this morning, the latest Schafer Autism Report carried new data that showed how autism rates were still climbing.</p>

	<p>But hang on&#8230;.seeing as we <em>know</em> that the amount of thiomersal in vaccines is essentially nil, and tests show that as early as 2002, over 80% of doctors surgeries reported they carried no thiomersal containing vaccines, how can we possibly carry on with the stupendously idiotic hypothesis that thiomersal in vaccines causes autism?</p>

	<p>Feh. Never mind. Thiomersal is out of favour these days. These days its all about Aluminium or whatever other vaccine ingredient people want to wring their hands about.</p>

	<p>Anyway, here&#8217;s a post I came across on EoH today:</p>

	<p><q>I just found this newsletter from last fall- vaccine rates dropping funding short- sounds good to me. Too bad we are not counting AUtism rates like CA. </q></p>

	<p>and it linked to <a href="http://www.maineaap.org/documents/MaineiacFall2006.pdf">this <span class="caps">PDF</span></a> which says:.</p>

	<p><q>Alarmingly, our childhood vaccine rates have dropped from the highest in the nation to just below the national average. From  90% of two year olds fully immunized to less than 80%.</q></p>

	<p>The inference is clear, right? If only we could count the number of autistic people in Maine up to and including 2006 I bet we&#8217;d see them dropping as the vaccine uptake in Maine dwindled. And hey &#8211; this should be an easy drop to find in the state that had the highest vaccine uptake in the nation, right? Oh, if <em>only</em> someone had tracked the autism numbers in Maine<img src="!" alt="" border="0" /></p>

	<p>Well, worry no more &#8211; the great guys at the <a href="http://www.vaproject.org/statistics/autism-statistics.html" rel="nofollow">Vaccine Autoimmune project have</a>. (IE link only, poor web development ahoy!). Lets take a look shall we?</p>

	<p><table><tr><th>State</th><th>2000-2001</th><th>2005-2006</th><th>Percentage Increase</th></tr><tr><td>Maine</td><td>150</td><td>311</td><td>107</td></tr></table></p>

	<p>Huh??</p>

	<p>Wait now&#8230;you mean to tell me that vaccine uptake <em>fell</em> over 10% and yet autism <em>increased</em>????</p>

	<p>Miraculous &#8211; whatever can it mean???</p>
 
				<div>
					<h4>26 comment(s) for this post:</h4><ol>
						  <li><img alt='' src='http://0.gravatar.com/avatar/a70439b0214a7c2a2b040fe0444fa5dc?s=32&amp;d=http%3A%2F%2F0.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>mike stanton:</i>
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							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2007/03/education-data-is-the-new-black/#comment-34582">2007-Mar-26</a></small>
							They keep grabbing the short straw, don't they! I worry about the psychological fallout when parents finally reject the mercury hypothesis and have to face up to the wasted years and unnecessary medical interventions foisted on their children.
						  </li>
						  <li><img alt='' src='http://0.gravatar.com/avatar/23c26908f599efb26b1d7f12ae9c1f7a?s=32&amp;d=http%3A%2F%2F0.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>anonimouse:</i>
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							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2007/03/education-data-is-the-new-black/#comment-34595">2007-Mar-27</a></small>
							What's happened (rather predictably) is that the mercury folks have moved away from trying to argue any epidemiological point at all.  They're just saying that mercury causes autism without proof and hoping that if they say it loud and long enough that people will believe it.  Now they're adding nebulous environmental sources to the mix, knowing that it will be almost impossible to disprove such a link between environmental mercury and autism exists.

The bottom line is they have nothing.
						  </li>
						  <li><img alt='' src='http://1.gravatar.com/avatar/779098e0e27a36412d499a503e6336ea?s=32&amp;d=http%3A%2F%2F1.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>Catherina:</i>
							<br />
							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2007/03/education-data-is-the-new-black/#comment-34628">2007-Mar-27</a></small>
							Quick: send that in to "Private Eye" - LOL, had to laugh at the headline. Have lost my humour about the evasion tactics of the anti-vaccine folk though.
						  </li>
						  <li><img alt='' src='http://0.gravatar.com/avatar/c189b7eee13c58be94f3e1e43a5887c8?s=32&amp;d=http%3A%2F%2F0.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>guessthegal:</i>
							<br />
							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2007/03/education-data-is-the-new-black/#comment-34629">2007-Mar-27</a></small>
							Hi, sorry to barge in this way. I thought you'd like to see this amazing publishing deal.  I think it will make you happy. I, however do NOT make you happy. Enjoy this news.  

John Elder Robison's memoir of growing up with Asperger's Syndrome and emerging as a fully-realized adult, with a foreword by Robison's brother, Augusten Burroughs, to Rachel Klayman at Crown, in a pre-empt, in a major deal, reportedly for $1.1 million (NY Post dollars; confirmed by the author as at least a million), by Christopher Schelling at Ralph M. Vicinanza (world).
						  </li>
						  <li><img alt='' src='http://1.gravatar.com/avatar/9919a3702db2efe34f086af4e92ad4f3?s=32&amp;d=http%3A%2F%2F1.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>eohlurker:</i>
							<br />
							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2007/03/education-data-is-the-new-black/#comment-34636">2007-Mar-27</a></small>
							Did you see Katie Wright's post on eoh on how much biomedical work she is doing with her kid?????  WTF!!!!
						  </li>
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		<title>Reversal of Rett Symptoms</title>
		<link>http://leftbrainrightbrain.co.uk/2007/02/reversal-of-rett-symptoms/</link>
		<comments>http://leftbrainrightbrain.co.uk/2007/02/reversal-of-rett-symptoms/#comments</comments>
		<pubDate>Fri, 09 Feb 2007 10:08:56 +0000</pubDate>
		<dc:creator>Kev</dc:creator>
				<category><![CDATA[Action Groups]]></category>
		<category><![CDATA[Advocacy]]></category>
		<category><![CDATA[Autism]]></category>
		<category><![CDATA[Schafer]]></category>

		<guid isPermaLink="false">http://www.kevinleitch.co.uk/wp/?p=505</guid>
		<description><![CDATA[Reversal of Neurological Defects in a Mouse Model of Rett Syndrome. Rett Syndrome is an ASD. My friend Kassiane has Rett Syndrome. I would bookmark her blog as I&#8217;m sure she will want to talk about this. Yesterday, the news was published that claimed that symptoms of Rett Syndrome had been reversed in a mouse [...]]]></description>
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		</div>	<p><a class="pdf" href="http://www.kevinleitch.co.uk/grabit/rett2007.pdf" title="Reversal of Neurological Defects in a Mouse Model of Rett Syndrome">Reversal of Neurological Defects in a Mouse Model of Rett Syndrome</a>.</p>

	<p>Rett Syndrome is an <span class="caps">ASD</span>. My friend Kassiane <a href="http://rettdevil.blogspot.com/">has Rett Syndrome</a>. I would bookmark her blog as I&#8217;m sure she will want to talk about this.</p>

	<p>Yesterday, the <a href="http://www.prnewswire.com/mnr/spectrumscience/26710/">news was published</a> that claimed that symptoms of Rett Syndrome had been reversed in a mouse model of Rett. It seems like decent enough science and yet all the news reports I&#8217;ve seen are encouraging very worrying responses in some people.</p>

	<p>First, lets go through the science at a level people like me can understand it.</p>

	<p>Rett is &#8216;caused&#8217; due to mutations in the <span class="caps">MECP2</span> gene. In simple terms what this paper described was the science team attempting to emulate Rett in mice and then turn on the <span class="caps">MECP2</span> gene to see what happened. One of the things that happened was that in roughly half of the mice they did indeed reverse the symptoms of Rett.</p>

	<p>This paper has made it into the Schafer Autism Report already. It is also being discussed on the Autism Yahoo Groups with a view to possibly extending these findings:</p>

	<p><q>Is any one going to contact them in regard to our children&#8217;s symptoms?</q></p>

	<p>Posted yesterday to the Autism-Mercury group.</p>

	<p>What is worrying to me is two things. First is the applicability of this work to humans. One of my science guys whom I rely on to translate this kind of stuff said:</p>

	<p><q>Simply put, this paper is good work, but it&#8217;s a headline job because it has no applicability to humans; this paper simply validated Zoghbi&#8217;s work.</q></p>

	<p>That&#8217;s worrying enough but in a world inhabited by the likes of Rashid Buttar, the Geier&#8217;s and various others who leap from madness to madness in their frightening treatment regimes is the second and much more truly scary aspect of this paper that no one seems to be discussing.</p>

	<p>I said above that in half of the mice Rett symptoms were indeed reversed. What about the other half?</p>

	<p><q>....prior to symptom onset, revealed toxicity associated with abrupt Mecp2 reactivation as 9 out of 17 mice developed neurological symptoms and died&#8230;.The data indicate that sudden widespread activation of the Mecp2 gene leads to either rapid death or complete phenotypic rescue.</q></p>

	<p>This is quite literally, kill or cure.</p>

	<p>I have a really horrible feeling that certain &#8216;doctors&#8217; are going to be chasing this like a dog with a bone &#8211; already the Yahoo Groups are asking for details. No one is discussing this &#8216;detail&#8217;. A little bit of restraint is very much what&#8217;s required here.</p>

	<p><h3><span class="caps">UPDATE</span></h3></p>

	<p>Its begun already. Sallie Bernard posted a comment from Richard Deth on the Autism-Mercury group:</p>

	<p><blockquote>The just-published study shows &#8220;Rett syndrome&#8221; can be reversed in mice, lacking MeCP2, which binds to methylated <span class="caps">DNA</span>. Reversal was accomplished by turning on MeCP2 after symptoms (neurological and obesity) were fully developed. The important point is that an abnormal pattern of gene expression, due to interuption of the methylation-dependent epigenetic mechanism, can be reversed if the methylation-dependent epigenetic mechanism is  brought back to normal.</p>

	<p>The parallels for autism are clear. If impairments of methylation-dependent epigenetic regulation, caused by oxidative stress<br />
rather than <span class="caps">MECP2</span> deletion, can be reversed, then recovery can occur.</blockquote></p>

	<p>No mention of the rather important details that the reversal killed half the mice, instead just a comparison of this decent science with his own brand of poor science in order to lend it weight and credibility it doesn&#8217;t have,</p>
 
				<div>
					<h4>30 comment(s) for this post:</h4><ol>
						  <li><img alt='' src='http://1.gravatar.com/avatar/779098e0e27a36412d499a503e6336ea?s=32&amp;d=http%3A%2F%2F1.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>Catherina:</i>
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							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2007/02/reversal-of-rett-symptoms/#comment-30436">2007-Feb-09</a></small>
							Thank you for posting the paper, I was going to chase it up after I heard the news this morning on BBC (interestingly, they mentioned Edinburgh, but not the names of the researchers). In any case, the main point is (taken from the discussion):

<b>The experiments do not suggest an immediate therapeutic approach to RTT</b>

I am sure that sentence will be widely ignored.

Catherina
						  </li>
						  <li><img alt='' src='http://0.gravatar.com/avatar/80af05ed83702115374b5e2783d274a7?s=32&amp;d=http%3A%2F%2F0.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>kristina:</i>
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							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2007/02/reversal-of-rett-symptoms/#comment-30452">2007-Feb-09</a></small>
							My first thought was "WWKS" (what will Kassiane say) and then, but this is about mice........
						  </li>
						  <li><img alt='' src='http://1.gravatar.com/avatar/f424c550698db43fdb206f32d5910c63?s=32&amp;d=http%3A%2F%2F1.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>Joseph:</i>
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							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2007/02/reversal-of-rett-symptoms/#comment-30454">2007-Feb-09</a></small>
							I'm no expert in genetics, but the way they activated and deactivated the MECP2 gene in mice didn't sound like something that could be easily applicable to natural mutations. Anyone know if that would be doable?
						  </li>
						  <li><img alt='' src='http://0.gravatar.com/avatar/4216864501a59214789e6fbf9d12a434?s=32&amp;d=http%3A%2F%2F0.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>Club 166:</i>
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							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2007/02/reversal-of-rett-symptoms/#comment-30456">2007-Feb-09</a></small>
							I couldn't imagine any IRB (Institutional Review Board) approving a human study when the animal study showed a 50% mortality rate.

But then I've overestimated people before.
						  </li>
						  <li><img alt='' src='http://0.gravatar.com/avatar/23c26908f599efb26b1d7f12ae9c1f7a?s=32&amp;d=http%3A%2F%2F0.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>anonimouse:</i>
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							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2007/02/reversal-of-rett-symptoms/#comment-30457">2007-Feb-09</a></small>
							Unfortunately, I think some people will say that they'd rather see their kid completely cured and if the treatment can kill them, then...
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		<title>David kirby plays the segregation game</title>
		<link>http://leftbrainrightbrain.co.uk/2007/01/david-kirby-plays-the-segregation-game/</link>
		<comments>http://leftbrainrightbrain.co.uk/2007/01/david-kirby-plays-the-segregation-game/#comments</comments>
		<pubDate>Wed, 03 Jan 2007 10:55:31 +0000</pubDate>
		<dc:creator>Kev</dc:creator>
				<category><![CDATA[Action Groups]]></category>
		<category><![CDATA[Advocacy]]></category>
		<category><![CDATA[Autism]]></category>
		<category><![CDATA[David Kirby]]></category>
		<category><![CDATA[Schafer]]></category>
		<category><![CDATA[Thimerosal]]></category>

		<guid isPermaLink="false">http://www.kevinleitch.co.uk/wp/?p=489</guid>
		<description><![CDATA[A truly fascinating start to 2007. David Kirby writes a blog entry entitled &#8216;There is no autism epidemic&#8217;. Why is it fascinating? Two reasons. Firstly, it reveals the lengths David Kirby is willing to go to shift goalposts even further. The entire entry is replete with strawmen arguments. An example &#8211; in his opening paragraph, [...]]]></description>
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		</div>	<p>A truly fascinating start to 2007. David Kirby writes a <a href="http://www.huffingtonpost.com/david-kirby/there-is-no-autism-epidem_b_37647.html">blog entry</a> entitled &#8216;There is no autism epidemic&#8217;. Why is it fascinating? Two reasons. Firstly, it reveals the lengths David Kirby is willing to go to shift goalposts even further. The entire entry is replete with strawmen arguments. An example &#8211; in his opening paragraph, Kirby talks about being vilified by people who who believe that autism is a stable genetic condition and then names the neurodiversity community as amongst his most spirited detractors.</p>

	<p>Nobody I know who shares the opinion of neurodiversity believes autism is <strong>only</strong> a stable genetic condition. However, unless we want to throw out what we know about Rett Syndrome then we do have to accept that some of the spectrum of autism is indeed a genetically based condition.</p>

	<p>He further describes neurodiversity as a &#8216;group of adults with autism&#8217;. Again, nowhere near accurate. As I wrote about <a href="http://www.kevinleitch.co.uk/wp/?p=488">only yesterday</a>, neurodiversity is not specifically associated with autism, neither is it anything other than a fairly nebulous opinion shared by people who think respect and equality matters. Neither is it an opinion not shared by people who are parents of autistic children.</p>

	<p>Here&#8217;s how Kirby sums up &#8216;the neurodiverse&#8217;:</p>

	<p><q>Most of them, I believe, have what science calls &#8220;Asperger&#8217;s Syndrome,&#8221; or very high functioning autism. From their eloquent and well reasoned point of view, autism has no &#8220;cause,&#8221; and it certainly requires no &#8220;cure.&#8221; To suggest otherwise is to brand these adults with the stigma of disease and disability, which is patently absurd given their educational and intellectual achievements.</q></p>

	<p>No.</p>

	<p>Time and time again, the people I speak to who are autistic and who are sharers of the opinion neurodiversity expounds tell me that as children they either were not diagnosed at all and left to rot or diagnosed with low functioning autism. How do I know this? I asked, Mr Kirby, and then I listened to the answer. I didn&#8217;t make up any old opinion that suits my argument better. Some, like <a href="http://www.gettingthetruthout.org">Amanda Baggs</a>, still <em>are</em> considered low functioning. My Great Uncle was &#8216;low functioning&#8217; and my Great Aunt was &#8216;high functioning&#8217; &#8211; both were born way before thiomersal was ever around by the way. My Grandma said that her brother-in-law was &#8216;much worse&#8217; as a child than as an adult. As adults they were able to converse.</p>

	<p>The first part of Kirby&#8217;s post sets up the second. He is attempting to dismantle the idea of the autistic spectrum and at the same time, corral all &#8216;the neurodiverse&#8217; into a place where they cannot speak about autism. Here&#8217;s the filibuster part of his post in full:</p>

	<p><q>But if that&#8217;s autism, then the kids that I have met suffer from some other condition entirely. When I talk about &#8220;curing&#8221; autism, I am not talking about curing the &#8220;neurodiverse.&#8221;</q></p>

	<p><q>I am talking about kids who begin talking and then, suddenly, never say another word.</q></p>

	<p><q>I&#8217;m talking about kids who may never learn to read, write, tie their shoes or fall in love.</q></p>

	<p><q>I&#8217;m talking about kids who sometimes wail in torture at three in the morning because something inside them hurts like a burning coal, but they can&#8217;t say what or where it is.</q></p>

	<p><q>I&#8217;m talking about kids who can barely keep food in their inflamed, distressed guts, and when they do, it winds up in rivers of diarrhea or swirls of feces spread on a favorite carpet or pet (no one said this kind of &#8220;autism&#8221; was pretty).</q></p>

	<p><q>I&#8217;m talking about kids who escape from their home in a blaze of alarms, only to be found hours later, freezing, alone and wandering the Interstate.</q></p>

	<p><q>I&#8217;m talking about kids who have bitten their mother so hard and so often, they are on a first name basis at the emergency room.</q></p>

	<p><q>I&#8217;m talking about kids who spin like fireworks until they fall and crack their heads, kids who will play with a pencil but not with their sister, kids who stare at nothing and scream at everything and don&#8217;t even realize it when their dad comes home from work.</q></p>

	<p><q>These are the kids I want to see cured. And I don&#8217;t believe they have &#8220;autism.&#8221;</q></p>

	<p>Woah! My daughter very rarely speaks, she&#8217;s just on the cusp of learning to write, she can&#8217;t tie her shoes, she wakes up regularly in the night (on New Years Eve she got up at half past midnight &#8211; not 3am) but she is distinctly burning coal free, she tolerates certain foods very well and refuses to touch other foods, she used to smear faeces regularly on both the carpet, the walls, her bed, us, the cat and she&#8217;s had the odd bout of diarrhoea (no one said autism was pretty, right?) &#8211; she&#8217;s pulled out of my hand on occasion and ran and I&#8217;ve followed, heart in mouth, she sometimes has the odd pinch or smack at me if I&#8217;ve told her she can&#8217;t have something, or I&#8217;m not getting what it is she wants, she loves to spin &#8211; and bounce (have you see my video Mr Kirby?) and she used to be non-social completely.</p>

	<p>So yeah, I know what you&#8217;re talking about. Guess what? Its still autism. I still love her just the way she is. I still don&#8217;t want to change anything about who she is. I&#8217;m happy for her to be autistic.</p>

	<p>Here&#8217;s what <strong>I</strong> think.</p>

	<p>I think you&#8217;re goalpost shifting again Mr Kirby. You don&#8217;t believe they have autism? So what was the last two years about? Why the constant harping on about the <span class="caps">CDDS</span> until it stopped showing you what you wanted it to? Why the sudden panicky need to dismantle the idea of a spectrum of autism? Why redefine? Is redefining easier than explaining why your hypothesis isn&#8217;t panning out?</p>

	<p>And what&#8217;s this about?</p>

	<p><q>Asthma, diabetes, allergies and arthritis are ravaging their bodies in growing numbers</q></p>

	<p>Sounds suitably scary but a) has nothing to do with autism and b) <a href="http://www.medicalnewstoday.com/medicalnews.php?newsid=58952">would appear to be partly wrong</a>. And what about this:</p>

	<p><q>There is something, or more likely some things in our modern air, water, food and drugs that are making genetically susceptible children sick, and we need to find out what they are.</q></p>

	<p>Wow, is this an admission of error? From stating a belief that thiomersal caused autism you are now suggesting that &#8216;some things&#8217; are making &#8216;children sick&#8217; &#8211; that&#8217;s quite a change of heart. Why? Is it so hard for you to say &#8211; &#8216;guys, I was wrong. Back to the drawing board and I&#8217;m sorry you wasted your hard earned dosh on my book&#8217;.</p>

	<p>Here&#8217;s <a href="http://www.mouthmag.com/issues/78/30_souza.html">something for you to read</a> on the subject of neurodiversity Mr Kirby, I hope the point doesn&#8217;t escape you.</p>

	<p><q>On May 19, a small group of people with Down Syndrome and their supporters disrupted the International Down Syndrome Screening Conference at Regents College in London. This is the first time that people with disabilities have spoken out publicly about prenatal screening. Their protest opens up the debate about genetics, eugenics, and the rights of disabled people.</q></p>

	<p><q>As a result of the protest, the conference organizers allowed Anya Souza to speak from the podium, a platform her group had previously been denied. Ms. Souza, a trustee of the Down Syndrome Association who is labeled as &#8220;suffering&#8221; from the condition herself, told the doctors why she opposes the screenings.</q></p>

	<p><q>The protesters found it unacceptable that doctors would discuss better ways of preventing the birth of people with Down Syndrome while excluding the voices of people with that label from the debate. That runs, they said, directly counter to one of the main demands of the disability rights movement: Nothing about us without us.</q></p>

	<p><q>&#8220;We are what we are,&#8221; Gilbert [another protester] concluded. &#8220;Ask our opinion.&#8221;</q></p>

	<p>Do you get the point(s) Mr Kirby? What you are doing by pretending that AS and autism are two different things is taking away the opinion of autistic people. You are doing it without evidence that you are right, without anything other than a &#8216;hunch&#8217;. An MO that is becoming more than a little familiar. You are following the proud tradition of Lenny Schafer and Rick Rollens, who also want to stop autistic adults talking about autistic children being OK just as they are.</p>

	<p>Be brighter than them Mr Kirby. Try and understand that no one advocates letting kids suffer painful medical issues but that these things do not, and never did, equate to autism. What you&#8217;ve taken away over the last two years from both these adults and the kids of those you call friends and those you don&#8217;t is dignity. Nothing about us without us.</p>

	<p>Update: <a href="http://www.autismvox.com/david-kirby-on-there-is-no-autism-epidemic-and-autism-vox-on-his-rhetoric/">Kristina weighs in too</a> and Joel writes a <a href="http://thiswayoflife.org/blog/?p=101">first class piece</a> on proving one is broken. <a href="http://autismdiva.blogspot.com/2007/01/how-to-spot-autistic-adults.html">Diva gives us good instructions</a> and spotting autistic people and <a href="http://www.autismstreet.org/weblog/?p=98">Do&#8217;C</a> and <a href="http://autismnaturalvariation.blogspot.com/2007/01/kirby-its-about-rivers-of-diarrhea-and.html">Jospeh</a> ferries across a river of shit</a>.</p>
 
				<div>
					<h4>21 comment(s) for this post:</h4><ol>
						  <li><img alt='' src='http://0.gravatar.com/avatar/23c26908f599efb26b1d7f12ae9c1f7a?s=32&amp;d=http%3A%2F%2F0.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>anonimouse:</i>
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							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2007/01/david-kirby-plays-the-segregation-game/#comment-27611">2007-Jan-03</a></small>
							Kirby needs to send that piece to Salon, so they can publish it as a companion to Robert F. Kennedy Jr'.s treatise on the horrors of autism.

I wonder when unbiased journalist David Kirby is going to comment on Dr. Wakefield's foibles - after all, he spoke so glowingly of Andy in his book.  You know he'd want to set the record straight....

BWAHAHAHAHAHA!

Sorry, had a fit of laughter.
						  </li>
						  <li><img alt='' src='http://1.gravatar.com/avatar/7cf6a34cf8a0d67059e90f94bd9f4d43?s=32&amp;d=http%3A%2F%2F1.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>notmercury:</i>
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							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2007/01/david-kirby-plays-the-segregation-game/#comment-27612">2007-Jan-03</a></small>
							What a blockhead. 

<i>"Asthma, diabetes, allergies and arthritis are ravaging their bodies in growing numbers</i>

So asthma, diabetes, allergies and arthritis are now part of the spectrum of autism? I guess they'll include that in DSM-V

If there is any siginificant association between asthma, arthritis and ASD it is most visible in family members, especially mothers of autistic children. Unless thimerosal is so powerful it travels back in time to cause problems in family members before the chhild is born, it's probably not the smoking gun Kirby imagines. As for diabetes and autism:

http://care.diabetesjournals.org/cgi/content/full/29/8/1985-a

<b>Type 1 Diabetes and Autism Association Seems to Be Linked to the Incidence of Diabetes </b>

We read with interest the article of Freeman et al. (1) reporting a higher prevalence of autism spectrum disorder in pediatric patients with type 1 diabetes in Toronto than in the general population (0.9% [95% CI 0.3â€“1.5 vs. 0.34â€“0.67]). 

The finding was, however, not confirmed by Harijutsalo and Tuomilehto (2), who reported a prevalence of autism spectrum disorders in type 1 diabetic patients similar to that in the population aged Our data seem to confirm the observation that the prevalence of autism in patients with type 1 diabetes is <b>inversely associated</b> to the incidence trends of diabetes in the observed areas.</i> According to Daneman (4), if the relationship between autism and diabetes is based on shared genetic influences, this finding could be explained by the fact that, in areas with higher and rising incidence of type 1 diabetes without a parallel increase of the prevalence of autism, the rise in incidence of diabetes is due to a reduced contribution of high-risk HLA haplotypes (5).
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						  <li><img alt='' src='http://0.gravatar.com/avatar/e5d3f0a0f1387dcdde82f5ee9c2a2d79?s=32&amp;d=http%3A%2F%2F0.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>Richard:</i>
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							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2007/01/david-kirby-plays-the-segregation-game/#comment-27613">2007-Jan-03</a></small>
							Thanks for this moving and accurate reply to Kirby's never-ending naivete and simplicity. One thing you allude to needs to be appreciated more broadly: just how much people change from childhood to adulthood. This is why, so often, people like Kirby say "Where are all the adults with autism?" It's because they assume that someone who is "low functioning" as a 3 year old stays that way. Thanks for always offering such clarification. Unfortunately, many readers -- like the dozens who thank Kirby after every one of his posts -- want the simplist possible answer, and autism, as your blogs continue to show, is extraordinarily complex, both as a genetic/biological and social issue.

Also, Kirby just has a set image in his mind of what autism is (what he sees as horror -- though who knows what his own experience is with the daily life of autism -- probably nil). Assuming that autism can be called a "disorder," what sort of complex "disorder" has just one manifestation? There isn't one. High blood pressure, asthma, heart disease, cancers, depression, schizophrenia, etc. They all have so many different levels of severity and symptomatology that change over time. So why not autism? 
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						  <li><img alt='' src='http://0.gravatar.com/avatar/80af05ed83702115374b5e2783d274a7?s=32&amp;d=http%3A%2F%2F0.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>kristina:</i>
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							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2007/01/david-kirby-plays-the-segregation-game/#comment-27615">2007-Jan-03</a></small>
							It seems that Kirby feels his own dignity is suffering a bit (hence his noting that he has been "vilified"). If he is going to stand by his new pronouncement ("there is no autism epidemic"), something must needs be done about the subtitle of EoH ("mercury in vaccines and the autism epidemic"), one would think........ This latest piece by him adds to the evidence of the harm his own work has done.
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						  <li><i>Autism Vox &raquo; David Kirby on &#8220;there is no autism epidemic&#8221; and Autism Vox on his rhetoric:</i>
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							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2007/01/david-kirby-plays-the-segregation-game/#comment-27618">2007-Jan-03</a></small>
							[...] Kirby defines this &#8220;movement&#8221; as composed of adults with autism and primarily with Asperger&#8217;s syndrome who &#8220;argue passionately that autism is neither a disease nor a disorder, but rather a natural and special variation of the chance genetic imprint left upon human behavior.&#8221; Further, Kirby states, the members of this &#8220;movement&#8221; of the &#8220;neurodiverse&#8221; (on which neologism neologism see Left Brain/Right Brain) have high-functioning autism; those with Asperger&#8217;s have &#8220;very high functioning autism.&#8221; [...]
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		<title>Its The Mercury, Stupid! No Wait!</title>
		<link>http://leftbrainrightbrain.co.uk/2006/08/its-the-mercury-stupid-no-wait/</link>
		<comments>http://leftbrainrightbrain.co.uk/2006/08/its-the-mercury-stupid-no-wait/#comments</comments>
		<pubDate>Wed, 09 Aug 2006 11:56:38 +0000</pubDate>
		<dc:creator>Kev</dc:creator>
				<category><![CDATA[Action Groups]]></category>
		<category><![CDATA[Advocacy]]></category>
		<category><![CDATA[Autism]]></category>
		<category><![CDATA[Autism Epidemic]]></category>
		<category><![CDATA[Chelation]]></category>
		<category><![CDATA[Genetics]]></category>
		<category><![CDATA[Mercury]]></category>
		<category><![CDATA[Schafer]]></category>
		<category><![CDATA[Thimerosal]]></category>

		<guid isPermaLink="false">http://www.kevinleitch.co.uk/wp/?p=409</guid>
		<description><![CDATA[I predicted not long ago that we&#8217;d shortly begin to witness a move away from thiomersal/mercury language from the geniuses in the mercury militia due the ongoing science refuting the hypothesis and the total rejection of the accumulated body of science so far built to support the hypothesis. Every quarter, as long term members of [...]]]></description>
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			<a href="http://api.tweetmeme.com/share?url=http%3A%2F%2Fleftbrainrightbrain.co.uk%2F2006%2F08%2Fits-the-mercury-stupid-no-wait%2F">
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		</div>	<p><a href="http://www.kevinleitch.co.uk/wp/?p=392">I predicted not long ago</a> that we&#8217;d shortly begin to witness a move away from thiomersal/mercury language from the geniuses in the mercury militia due the ongoing science refuting the hypothesis and the <a href="http://www.kevinleitch.co.uk/wp/?p=393">total rejection</a> of the accumulated body of science so far built to support the hypothesis.</p>

	<p>Every quarter, as long term members of this debacle will know, California <span class="caps">DDS</span> release a set of figures that are used to indicate how many autistic people are receiving services in that State. These numbers have been hailed at various times and by various people from the mercury militia as &#8216;the gold standard&#8217; or &#8216;incontravertible proof&#8217; that thiomersal causes autism as the numbers seemed to rise in the latter part of the nineties when thiomersal was around and then drop when it was removed. In actual fact, this belief came about due to a total misunderstanding of the numbers. The numbers have never dropped. All that happened at some points was that the <em>rate of increase</em> either dipped or rose. Especially in the core cohort of 3 &#8211; 5 year olds.</p>

	<p>For more on this see <a href="http://autismnaturalvariation.blogspot.com/2006/07/cdds-q2-2006-what-will-david-kirby-do.html">Joseph&#8217;s excellent summation</a>.</p>

	<p>In short, <span class="caps">CDDS</span> numbers continue to rise in the age group that would show a dramatic drop if thiomersal was the culprit.</p>

	<p>The last two quarters have seen &#8216;rises&#8217; in the rate of increase and where once there was excited bandying about of this &#8216;proof&#8217; we  now have the embarrased silence of <a href="http://www.kevinleitch.co.uk/wp/?p=402">no dogs barking</a>.</p>

	<p>And yet&#8230;.deep in the recesses of Anti-Vaccine Central aka The Evidence of Harm Yahoo Group&#8230;.someone had the bad taste to mention this recently. The response was swift, predictable and as stupid as a celebrity reality TV contestant.</p>

	<p><q>Yes, and I do believe that we need to look at <span class="caps">ALL</span> environmental factors, and not just mercury, including other vaccine components, the antigens themselves, the cross-reactivity of various vaccines, the timing of vaccine administration, environmental sources of mercury, the overuse of antibiotics, pesticides, pitocin, ultrasound (I have noticed some listmates stating that their NT kids had just as much ultrasound exposure as their <span class="caps">ASD</span> child and they&#8217;re fine&#8212;careful, that&#8217;s what the parents of NT kids say about vaccines!) and electromagnetic radiation.</q></p>

	<p><q>You factor in all of the new vaccine recommendations over the last four years and there are plenty of things that could muddy the waters here. Not to mention live attenuated virus vaccines,</q></p>

	<p>But&#8230;but&#8230;didn&#8217;t these people get the message from <a href="http://www.voiceoftheenvironment.org/heavymetal/article.php?id=667">Rick Rollens that</a>:</p>

	<p><q>Decline [in <span class="caps">CDDS</span> data] coincides with the phasing out of mercury from childhood vaccines.</q></p>

	<p>Yes I know there wasn&#8217;t really a decline but they believed it. They touted it as fact.</p>

	<p>How about David Kirby&#8217;s &#8216;<a href="http://www.huffingtonpost.com/david-kirby/autism-mercury-and-the-c_b_4133.html">Gold Standard</a>&#8216;></p>

	<p><q>Stay tuned. If the numbers in California and elsewhere continue to drop &#226;&#8364;&#8220; and that still is a big if&#8212;the implication of thimerosal in the autism epidemic will be practically undeniable.</q></p>

	<p>So, now that we know that <em>they never dropped</em> is the opposite &#8216;practically undeniable&#8217;?</p>

	<p>Let&#8217;s not forget what David Kirby told Citizen Cain:</p>

	<p><q>if the total number of 3-5 year olds in the California <span class="caps">DDS</span> system has not declined by 2007, that would deal a severe blow to the autism-thimerosal hypothesis</q></p>

	<p>What shape will that &#8216;severe blow&#8217; take do you think? Will it be a full and frank admission from Mr Kirby that he maybe should&#8217;ve asked around outside of the circle of geniuses headed by Rollens regarding prevalence in <span class="caps">CDDS</span> data? That maybe he&#8217;s jumped the gun quite substantially? Will we see retractions from Brad Handley and Generation Rescue who might have to redefine their incredibly simplistic, premature and wilfully misleading categorisation of autism? Will we get some injection related sense out of more than a few people? Will Moms Against Mercury rename themselves? How about SafeMinds?</p>

	<p>What does Lenny Schafer think? In recent years, the <span class="caps">SAR</span> has become little more than an anti-thiomersal polemic. What does he say about all this as the Moderator of the EoH group?</p>

	<p><q>The fact is that if the problem is mercury and mercury has been greatly reduced in vaccines, we should see numbers either dropping, or the rate of increase dropping.  Maybe the later is true, I can&#8217;t tell from this one chart alone.  These reports have always come with caveats about how they are not properly controlled for a variety of factors that could affect the actuals, like the <span class="caps">CDC</span> recommendations for mercury flu shots or their aggressive push for early (and more) diagnosis. We (not just Christine) can&#8217;t one day point to these numbers and say: &#8220;see, they support the mercury hypothesis&#8221; when it suit us, and then later say &#8220;you really can&#8217;t trust these numbers&#8221; when they don&#8217;t.</q></p>

	<p>At least a nod towards honesty. But he needs to understand why Kirby is correct to say that it is numbers dropping that&#8217;s important not changes in the rate of increase.</p>

	<p>Slowly but surely these people are moving towards a position of wholesale anti-vaccination. Of course, its been there all along, but as the veneer of credibility the thiomersal hypothesis had when we lacked data is stripped away so is the thin veneer that reveals the depths of their ignorance.</p>

	<p>When they finally abandon thiomersal, never forget their adamancy that it was thiomersal. Never forget that their &#8216;common sense&#8217; trumped their ability to see what was under their noses. Thiomersal is a neuropoison <span class="caps">QED</span>, thiomersal causes autism. That&#8217;s the sort of logic that resulted in their recent spectacular own goal of the <span class="caps">US </span>Senate refusing point blank to put vaccine specific language in the recent Combating Autism Act. Wake up geniuses: They don&#8217;t trust you because you&#8217;re zealots. Your future is plain to see for them and me. Thiomersal to aluminium, aluminium to live virus, live virus to some other vaccine related ingredient. That&#8217;s why the <span class="caps">ASA</span>, CAN, Autism Speaks etc were happy to ditch the vaccine language. They want to distance themselves from you. Is it any wonder?</p>

	<p><p class="update">Welcome to EoH visitors! I see you have an amusing long thread where you all talk about how unbothered you are about me &#8211; with <strong>lots</strong> of contributions from various familiar faces. I would like to correct one small point you seem to have picked up: There is only one side of this that believe that the Illuminati is involved or even actually exist: That is your side. As represented by John Scudamore (owner of whale.to) and Dr David Ayoub of <span class="caps">FAIR </span>Autism Media. Hope thats clear enough for you to grasp :o)</p></p>
 
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					<h4>13 comment(s) for this post:</h4><ol>
						  <li><img alt='' src='http://1.gravatar.com/avatar/197d1fd92a8175a2e619699ff3287b81?s=32&amp;d=http%3A%2F%2F1.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>Nathzn:</i>
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							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2006/08/its-the-mercury-stupid-no-wait/#comment-22889">2006-Aug-09</a></small>
							Good post Kev,

It looks like the end of an Era.

Great News, this gives a few weeks/months until orgs full take on board the next wave of Bullshit (oh I mean 'valid' science).

Though as you say they are already moving away from Thiomersal

Ah well at least we can wave this in their collective faces.
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						  <li><img alt='' src='http://1.gravatar.com/avatar/b29066a8a875330e5a5493e63d91957b?s=32&amp;d=http%3A%2F%2F1.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>Bartholomew Cubbins:</i>
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							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2006/08/its-the-mercury-stupid-no-wait/#comment-22890">2006-Aug-09</a></small>
							Heh.  Love the post.  

Since I usually daydream while I read, I was imagining you doing an <a href="http://snltranscripts.jt.org/86/86hgetalife.phtml">"Evil Kirk / SNL" skit</a>.

I also loved the knife-twisting Common Sense reference.
Maybe she can take her act to <a href="http://www.cbs.com/latenight/lateshow/show_info/index.shtml#pets">Letterman</a>.
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						  <li><img alt='' src='http://0.gravatar.com/avatar/23c26908f599efb26b1d7f12ae9c1f7a?s=32&amp;d=http%3A%2F%2F0.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>anonimouse:</i>
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							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2006/08/its-the-mercury-stupid-no-wait/#comment-22891">2006-Aug-09</a></small>
							The simple fact that these activist groups never endorsed vaccination (often playing the "informed choice" anti-vaccine card) should've told you all you needed to know.

It took me about five seconds to figure out that Generation Rescue is not an "anti-mercury" group but an "anti-vaccine" group.  Of course, J.B. will beg to differ, but I have seen nothing that makes me think Handley believes in universal vaccination.

And as an aside - if it "was the mercury", you'd think there would be some pretty good clinical research out there right now to substantiate that.  Considering that the CDC-AAP joint statement was made in 1999 (but Cave and Holmes were treating autistics for "mercury toxicity" several years before that) it seems that 7+ years is a long time to be literally nowhere in terms of proof that mercury plays a role in autism.
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						  <li><img alt='' src='http://0.gravatar.com/avatar/e970107769d6dc67390eb336b3203db5?s=32&amp;d=http%3A%2F%2F0.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>clone3g:</i>
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							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2006/08/its-the-mercury-stupid-no-wait/#comment-22894">2006-Aug-09</a></small>
							<a HREF="http://www.lighthousestudios.info/IMG_9689.jpg">Hello Lenny? Yeah, a bunch of us are getting together next week to move some goal posts. Great, see you there.</a>
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						  <li><img alt='' src='http://1.gravatar.com/avatar/f424c550698db43fdb206f32d5910c63?s=32&amp;d=http%3A%2F%2F1.gravatar.com%2Favatar%2Fad516503a11cd5ca435acc9bb6523536%3Fs%3D32&amp;r=R' class='avatar avatar-32 photo' height='32' width='32' /><i>Joseph:</i>
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							<small><a rel="nofollow" href="http://leftbrainrightbrain.co.uk/2006/08/its-the-mercury-stupid-no-wait/#comment-22895">2006-Aug-09</a></small>
							Good recap. This hype-othesis is dead and burried; as the notion of an 'epidemic' soon will be hopefully.
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