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Jim Carrey, you are part of the problem for us in the Autism Community

15 Jul

Years back Jim Carrey was and autism were mentioned together regularly in the news.  This was at the height of the vaccine misinformation campaign of his then partner, Jenny McCarthy.  Mr. Carrey went so far as to be a speaker at the “Green Our Vaccines” rally in Washington.  That was 2008. Since then the Green Our Vaccines as a movement has died, Jenny McCarthy has tried to distance herself from her very vocal stance on vaccines, and given that Mr. Carrey and Ms. McCarthy split, it seemed like we had seen the last of Mr. Carrey.

Until recently.

You see Mr. Carrey took offense to new legislation in California.  A bill that will roll back vaccine exemptions to where personal belief exemptions will no longer be accepted in the schools here.  In other words, for the most part one will now need an actual medical reason to avoid vaccination in order to register for public school.

Mr. Carrey took to twitter with his complaints about the new law.  All well and good, free speech and all.  But Mr. Carrey went too far. He decided to take pictures of kids in distress and the implication that this is what happens when you vaccinate your kids. One tweet read ““A trillion dollars buys a lot of expert opinions. Will it buy you? TOXIN FREE VACCINES, A REASONABLE REQUEST!”” and included a picture of an autistic kid (the other pictures he used appear to have been stock images). The story is discussed by Emily Willingham as Jim Carrey Unwittingly Brings Attention To Something Actually Linked To Autism

And Time Magazine in Jim Carrey Apologizes for Using Photo of Autistic Boy in Anti-Vaccination Tweet.

Because, to give him credit, Mr. Carrey did apologize to that family. (Ironically, it turns out that the kid was unvaccinated when he was first diagnosed autistic).

I harken back to Mr. Carrey’s time with the autism community (remember when Generation Rescue was tagged as “Jenny McCarthy and Jim Carrey’s Autism Organization”?). At one speech, probably the Green Our Vaccines Rally, Mr. Carrey made the pseduo-profound statement, “We are not the problem. The problem is the problem.”

So while I do appreciate Mr. Carrey stepping up and apologizing to one family, I do want to point out: Mr. Carrey, you were one of the problems for the autism community. And you apparently still are.

Ms. McCarthy introduced you to a closed group of people, a small sampling of the autism community. You likely came away thinking that they *are* the autism community, because that’s how they think of themselves.

They aren’t.

Most of us autism parents don’t subscribe to the vaccine causation idea. I can provide the links to multiple studies if you like, but it’s just the way things are.

And autism parents are not the autism community. One thing that Generation Rescue and like organizations have done is act like autistics are some sort of second class citizens in the community. Who do you think the community primarily is, autistics or parents?

Here’s the thing: the vaccine-causation idea is probably the most damaging notion to have hit the autism community. Did you hear about the “refrigerator mother” theory during your time at Generation Rescue? It’s second to the vaccine causation theory. Telling generations of disabled kids that they are less than they are, that they should be someone else, is damaging. Mr. Carrey, did you attend any of those parent conventions, like AutismOne? Perhaps you look at alternative medicine favorably. Well, the vaccine causation idea is used to sell “therapies” that aren’t close to being “alternative”. They are just wrong. And, frankly, abusive. Chemical castration of disabled children? This was promoted multiple times at conventions where your former partner was a keynote speaker. Fake diagnoses of mercury poisoning, followed by chelation? Same. And even a major promoter of chelation has a new study showing it doesn’t work. Did anyone tell you why the NIH autism/chelation trial was stopped? Because if you chelate test animals who do not have mercury intoxication, they go down cognitively. If the same happens in humans, tens of thousands of autistic children lost some IQ due to chelation. Think that one over, since GR started out as primarily an org promoting chelation. Daily bleach drinks and bleach enemas? That one is probably new since you dropped out. But, yep, that gets sold as a cure for “vaccine injury”. Shall I go on? Because I can. The autism=vaccine injury idea sells junk medicine which is subjected upon disabled children.

And you added your voice to the vaccine-causation idea.

You’ve apologized to one family. That took guts. Now step up and start making amends to the rest of us. Parents and, especially, autistics.

By Matt Carey

National Geographic, “The War on Science”, includes discussion of vaccines and autism

19 Feb natgeo

I just got my copy of the March 2015 issue of National Geographic a couple of days ago. Imagine my reaction when I saw this cover (click to enlarge):


In case you are having trouble imagining my reaction–it includes a big THANK YOU to National Geographic.

Yes, they put “vaccinations can lead to autism” up there with “evolution never happened” and “the moon landing was fake”.

This paragraph includes references to Jenny McCarthy (anti-vaccine activist and actress Jenny McCarthy) and Andrew Wakefield’s Lancet article.

Doubting science also has consequences. The people who believe vaccines cause autism—often well educated and affluent, by the way—are undermining “herd immunity” to such diseases as whooping cough and measles. The anti-vaccine movement has been going strong since the prestigious British medical journal the Lancet published a study in 1998 linking a common vaccine to autism. The journal later retracted the study, which was thoroughly discredited. But the notion of a vaccine-autism connection has been endorsed by celebrities and reinforced through the usual Internet filters. (Anti-vaccine activist and actress Jenny McCarthy famously said on the Oprah Winfrey Show, “The University of Google is where I got my degree from.”)

By Matt Carey

CNN: The money behind the vaccine skeptics

6 Feb

CNN Money has a short video up that makes a point that a few of us have been making for the past few years: much of the vaccine antagonistic message is funded by a few wealthy people. A good discussion can be found at A Snapshot of the Deep Pockets of the Anti-Vaccine Movement on Haprocrates Speaks. The CNN piece is called “The money behind the vaccine skeptics“. I can’t get the video to embed here, but one can find it here.

Here’s a screenshot from CNN showing the organizations, people and money that CNN discusses (click to enlarge)

cnn money

CNN points out that the self-styled National Vaccine Information Center and others (such as Chris Shaw’s group at the University of British Columbia) get a lot of money from the Dwoskin family. The Dwoskin Family Foundation told CNN that they are not antivaccine but are, instead, advocates for safer vaccines. It’s a story we hear a lot.

Claire Dwoskin is or was a board member of the NVIC and made this statement about vaccines. John Stossel had aired a piece about how his daughter had fought off a whooping cough infection and in her response to one of his producers she stated:

What his daughter went through is NOTHING compared to what the families of autistic children go through every day of their lives. No disease can match this record of human devastation. Vaccines are a holocaust of poison on our children’s brains and immune systems. Shame on you all.

I’m not sure how that sentiment fits in with being “advocates for safer vaccines”. One has to accept that vaccines are safe before advocating for safer vaccines.

Also mentioned is Barry Segal who funds Focus Autism (now Focus for Health) and A Shot of Truth. And Generation Rescue’s JB Handley and Jenny McCarthy. Both Focus Autism and Generation Rescue are noted for funding Andrew Wakefield’s “Strategic Autism Initiative”. All these groups are discussed in previous articles here at Left Brain/Right Brain.

The piece is short and perhaps that’s why they don’t mention Generation Rescue’s hundreds of thousands of dollars spent on full page ads claiming vaccines cause autism, or their poorly performed phone survey on vaccines. Lots of money spent on promoting fear and distrust of vaccines.

I’ve never seen evidence of these groups actually funding work into safer vaccines. I’ve never seen, say, funding for research into a new vaccine or even something simple like improved storage and transportation for vaccines into the developing world to reduce the use of thimerosal, a preservative these groups claim (without good evidence) cause autism and other disabilities.

Matt Carey

Jenny McCarthy tells the story two different ways…again

29 Jan

Yep, this doesn’t have anything to do with autism. Well, aside from the fact that we will discuss how one public face for autism is once again showing that her stories don’t match over time. You see, Jenny McCarthy has a reality TV show now and the story of her divorce presented in that show doesn’t match what she wrote in her book 8 years ago. I found the new story in a recent article in the Washington Post: Jenny McCarthy tries to mend her anti-vaccine reputation with reality TV. It’s too little, too late in which Emily Yahr writes:

The show is filled with such heart-to-hearts, with McCarthy recounting her ordeals as a single mom, starting with her ex filing for divorce in 2005 the same week that Evan was diagnosed with autism.

Now, it’s been a while since I read Jenny McCarthy’s “Louder than words” book. A long while, but that statement didn’t strike me as consistent with what she wrote in her book. The sentiment is the same: harsh on her kid’s father while putting herself in a good light, but the details didn’t match.

What did she say in her 2007 book? She says that she asked for the divorce. She was the mommy warrior, taking charge in that book. Now in her reality show she’s the object of sympathy, dumped by her husband just when she needed him most.


In fact, if you read the book, she talks about thinking about divorce for some time before she finally asked for it. Because that whole “same week as the diagnosis” thing in the TV show isn’t what she wrote in 2007 either. Between the autism diagnosis and her asking for a divorce, there are weeks, if not months of stories in her book. Stories that include Ms. McCarthy asking her husband to leave, and him refusing.

Who knows what the actual story was. All we hear is the story that fits the image she wants to portray at the moment. Her ex husband is taking the high road and not returning fire.

Oh, and if you are worried about how her son took the divorce, don’t. According to Ms. McCarthy, autism renders one incapable “emotionally connecting” with such events.


Sorry to be sarcastic there. But, really, Ms. McCarthy? Autism renders one incapable of emotionally connecting with what was going on? Couldn’t be that the kid was unable to understand why his mother was making his father leave, just as any kid would?

No real surprises here. Ms. McCarthy has been inconsistent over the years. She had multiple stories of her first encounter with Barbara Walters when Ms. McCarthy was a guest on The View. She has informed us that her son is no longer autistic. Then, a few years later, she tells us that he is. (Jenny McCarthy Slams Rumor That Her 11-Year-Old Son Evan Doesn’t Have Autism). She hammers away at vaccines, but tells us she’s pro-vaccine. And to cap it all, she heads an autism charity that focuses on treatment, but won’t speak out against the faux treatments (like bleach enemas) that are promoted at her orgs conventions.

by Matt Carey

Measles are back but where is Jenny McCarthy?

28 Jan

It takes a lot of courage to stand up and make yourself heard on unpopular topics. But it’s only really courageous if you are willing to accept responsibility for being wrong. Jenny McCarthy stood up. She made herself heard. In the process she got a lot of media attention, led a march on Washington (the Green Our Vaccines rally), and sold a lot of books. That was years ago. Now we are seeing the outbreaks of disease that so many, even Ms. McCarthy, predicted based on the path she set. Back then she at least had the guts to say, “it’s not my fault” (I disagree). Now she’s just absent from the public’s eye on this topic. Instead we get her new reality show.

Today, a measles outbreak originating in Jenny McCarthy’s old backyard (southern California) has reached about 100 people infected (50 in the state, 23 more whose connection to the epicenter of the outbreak is unknown and more out of state). And, no comment from Ms. McCarthy. But she wasn’t always so quiet. Consider this statement from an interview in Time Magazine:

I do believe sadly it’s going to take some diseases coming back to realize that we need to change and develop vaccines that are safe. If the vaccine companies are not listening to us, it’s their f___ing fault that the diseases are coming back. They’re making a product that’s s___. If you give us a safe vaccine, we’ll use it. It shouldn’t be polio versus autism.

The idea that somehow a resurgence of disease would lead to a change in vaccines didn’t make sense to me back then. It seemed like some nasty game of “chicken” where Ms. McCarthy was going to frighten enough people about vaccines that outbreaks would be possible. Frighten with statements like “they’re making a product that’s shit” and that the vaccines are not safe. Somehow, once this fear was instilled and the drop in vaccination rates happened, outbreaks would happen and these would prove her point that the vaccines are “shit” and the vaccines would be reinvented.

Apparently Ms. McCarthy realized that this logic wasn’t sound as she started distancing herself from the vaccine message years ago. Instead of being at the forefront of her movement today, ready to force the changes she predicted, she brings handlers to interviews to deflect questions on vaccines. She points people to her nonpology and nosplenation of her views in an op-ed published by the Chicago Sun Times, Jenny McCarthy: The gray area on vaccines

Here’s a defensive paragraph (and a straw man argument) in that op-ed:

“People have the misconception that we want to eliminate vaccines,” I told Time Magazine science editor Jeffrey Kluger in 2009. “Please understand that we are not an anti-vaccine group. We are demanding safe vaccines. We want to reduce the schedule and reduce the toxins.”

Here’s the thing. Many people have called out Jenny McCarthy over the years for her irresponsible statements about vaccines. She spread a lot of fear. One doesn’t read “They’re making a product that’s shit” or a correction of that view at the Sun Times. One doesn’t hear blanket statements that vaccines are all unsafe (“If you give us a safe vaccine, we’ll use it.”) One doesn’t read her statements that vaccines are behind the rise in diagnosed autism rates. One doesn’t hear her state that if she had another child, she wouldn’t vaccinate (a statement she made back when she was more vocal). No, all we get is her “grey area” on vaccines.

Also, not comment about the impending outbreaks.

Which brings me back to: where’s the courage in hiding and dodging the consequences of your actions, Ms. McCarthy? Are you going to point me back to your claim that “it’s not my fault” made on Larry King Live?

KING: Isn’t the problem here, Jenny, that people sometimes listen with one ear are going to panic. And not vaccine at all?

MCCARTHY: Probably. But guess what? It’s not my fault. The reason why they’re not vaccinating is because the vaccines are not safe. Make a better product and then parents will vaccinate.

I didn’t buy it then, I don’t buy it now.

And a similar sentiment

KING: Probably due to you, jenny, and programs like this, the percentage of children getting vaccinations is dropping.
Do you think that’s good?

MCCARTHY: I think it’s only good because it’s the only thing that’s going to shake up the CDC to do something about it.

Yes, they and others have been doing something about “it”. It being the drop in vaccination rates, not the alleged problems with vaccines you were intending. Many people have spent a lot of time trying to prevent or reduce the outbreaks we are seeing now. The question is why weren’t you working on avoiding this?

As I stated at the outset, it’s only courageous to stand up against prevailing opinion if you are willing to take responsibility and fix problems if/when you are proved wrong.

Ms. McCarthy, you were wrong. You were wrong to spread fear. And you can’t get out of it with a simple “it’s not my fault”. It is partly your fault that outbreaks are happening.

And are these outbreaks causing people to accept your position and make the changes you asked for?


And all this doesn’t even touch on the problems of your promotion of unsafe “therapies” for autism, an issue much closer to my heart.

By Matt Carey

Is Autism Speaks supporting vaccine-autism causation proponent Congressman Bill Posey?

19 Aug

Someone forwarded an email from the “Autism Action Network” recently. The email asked people to support Congressman Bill Posey’s election campaign by attending a fundraiser. Looks like a few big donors to Mr. Posey were going to attend, including Sallie Bernard of SafeMinds and Autism Speaks. Ms. Bernard certainly is with both organizations, but I wonder if she was attending as an Autism Speaks officer or if Autism Speaks was even aware that their name was being used to promote the fundraiser.

Perhaps Ms. Bernard wasn’t aware that her Autism Speaks affiliation was being used this way. I’ve seen some of my affiliations used where I didn’t expect nor want them. Perhaps Ms. Bernard was aware that the AS affiliation was being used in this advertisement, but Autism Speaks wasn’t. Perhaps Autism Speaks was aware and supported this effort. I’m not betting heavily on that last option though.

Here’s the list of donors for the fundraiser in the email I got:

Jennifer Larson of the Canary Party and Health Freedom
Sallie Bernard of Safeminds and Autism Speaks
JB Handley of Generation Rescue
Tony Lyons of Shy[sic] Horse Publishing
Barry Segal of Focus Autism
Mark Blaxill of the Canary Party and Health Freedom
Dr. Gary Kompothecras
Teri Costigan

The Autism Speaks name adds a legitimacy to this fundraiser that the other groups just can’t. The Canary Party and Health Freedom (which I assume to be Americans for Health Choice) are basically the same people with “Canary Party” as a political party and “heath freedom” as a charity. The Canary Party/Health Freedom team is led by the same people who funded large donations to Oversight & Government Reform Committee Chair Daryl Issa ($40k plus). JB Handley is not as vocal as he once was, but he founded Generation Rescue on the notion that “autism is just a misdiagnosis for mercury poisoning“. Sky Horse publishing is boutique publisher of many of the books on vaccines and autism, including “Age of Autism” and books by Andrew Wakefield. Barry Segal (Focus Autism) has been a large supporter of groups like Generation Rescue, the Age of Autism, SafeMinds and is very vocal on his belief that vaccines cause not only autism, but many other health problems as well. Gary Kompothecras has been funding Mr. Posey for years and is an autism parent and benefactor of groups promoting the vaccine/autism idea.

Without Autism Speaks’ name added to this, this would be very clearly all about a small but wealthy group of people pushing the failed ideas of vaccines and autism. People with failed and damaging ideas have the right to lobby members of congress along with everyone else. I, for one, am glad that the vast majority of Congress has moved on from the vaccine/autism-epidemic idea. I look forward to the day when that majority reaches 100%.

By Matt Carey

A bit of irony from Generation Rescue: still citing Jenny McCarthy as the face of autism recovery

5 Aug

Somehow I’ve found myself on Facebook and, even more, navigating to the Generation Rescue page. And today I found this:


In case you didn’t click to enlarge and read, here’s their statement:

The New York Times recently posted an article on autism recovery – and yes, it’s real! There really is hope!

Thank you Jenny McCarthy for being the celebrity to bring attention to the truth and thank you for all you have done for this cause.

Here’s a hint–there really is hope even without losing a diagnosis. One can have be autistic or the parent of an autistic kid and have hope. Trust me, I know. And I think if you ask Jenny McCarthy, she will tell you the same.

Back to the story. Generation Rescue are referring to this article (The Kids Who Beat Autism) in the NY Times magazine.

You may ask, where’s the irony in that? Jenny McCarthy is the public face of autism “recovery” after all, right? She told us all about how her kid was no longer autistic, typical, all that after using alternative medicine. She went so far as to berate the government for not calling her to study her no-longer-autistic son (more on that later).

I find it ironic because she’s been in the news just in the past few weeks, discussing how her autistic son is being bullied because of his autism.


I wish her kid well. I really do. I also wish Jenny McCarrthy compassion and forgiveness. I wish she would be more honest.

Let me return to the “Jenny McCarthy Berates the US Government for Not Studying her Autistic Kid” thing. You seethe NY Times Magazine article is discussing an NIH study of kids who were diagnosed as autistic but later were diagnosed to be not autistic. Not just a coincidence, but years back my friend Kev Leitch not only discussed that study while it was in progress, but pointed out that if Jenny McCarthy were serious about wanting the government to study her kid she might want to participate in the NIH study. Here’s what Jenny McCarthy had to say back then:

Evan is now 5 years old and what might surprise a lot of you is that we’ve never been contacted by a single member of the CDC, the American Academy of Pediatrics, or any other health authority to evaluate and understand how Evan recovered from autism. When Evan meets doctors and neurologists, to this day they tell us he was misdiagnosed — that he never had autism to begin with. It’s as if they are wired to believe that children can’t recover from autism.

So where’s the cavalry? Where are all the doctors beating down our door to take a closer look at Evan? We think we know why they haven’t arrived. Most of the parents we’ve met who have recovered their child from autism as we did (and we have met many) blame vaccines for their child’s autism.

So, where was the cavalry, Jenny? Where was your desire to see that the NIH, CDC, AAP and “any other health authority…understand how Evan recovered from autism”?

Ms. McCarthy, back then the autism community knew you’d never volunteer your kid for such a study. Controlling the message was just too important to you. The only surprises are that these “new” revelations so soon and are so clear.

By Matt Carey


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