Its no secret. I’m firmly of the opinion that Lenny Schafer is a borderline bigot. He recently wrote an open letter to his Evidence of Harm list mates which I repeat below:
I should like to provide a summary to this encirculing (sic) discussion. The autistics condemnation of those who seek a cure for autism rely on two rhetorical devices to do so. First, is their special, cultural and vague definition of autism. The other is a cynical definition of “cure”. The autistic movement indeed condemns parents who do not agree with their creed. They have joined legal efforts to restrict the funding of ABA programs in Canada and often engage the media to attack parents who seek cures for their children.
Let there be no mistaking it, the “don’t cure autism” rhetoric is little more than a vehicle for parent bashing. This is both irrational and unjust. It may not be Stephen Shore’s intent to condemn anyone, but the movement for which he attempts to apologizes for does; it is not so easy to weasel away one’s personal support of such efforts with platitudes about helping people. This is not just about honest differences of opinion; this is about a creed who intends to interfere with the quest of parents to relieve their children from the misery of clinical autism.
Its the same old stuff from Schafer. Clinical autism. Yeah. Parent bashing. Right. He acts out of fear and a closed mind. By contrast, here’s a recent post from Wade Rankin. Its a long post which needs to be read in full but the last two paragraphs spoke to me:
In the biomedical community, we often throw around the word “cure.†When I use that word, I know what I mean and most other people who practice biomedical know what I mean. We are seeking to alleviate the dysfunctional aspects of ASD in our children. We will never alter the genetic makeup of our children, and to the extent genes make them autistic, they will remain autistic. I can live with that. But I believe that one or more environmental insults has acted in concert with my son’s genetic makeup to create stumbling blocks that keep him from using all of this gifts. I cannot believe I am wrong in trying to reduce the effects of those environmental insults.
On the other hand, when I am confronted with the eloquence of Kathleen Seidel or the extraordinary testimony of an adult with autism who wants no “cure,†I have to realize that the issues surrounding ASD are not easily addressed by one-size-fits-all answers. Could the “cure†we seek help other people who reject biomedical interventions? Perhaps, but that’s not a necessary given. More importantly, that’s not my choice to make.
How refreshing. Someone at least prepared to question and look. I know I’ve thought differently of some of the people involved in the Biomedical camp since encountering Wade online. I don’t agree with his use of the word ‘cure’ and I wonder if he were autistic himself whether or not he would see enough of his behaviour as dysfunctional enough to _require_ a cure but I also believe he acts out of a genuine desire to help his children. I genuinely do not know what desires move a man like Lenny Schafer. All I know that reading what he writes is like feeling a cold wind on one’s spine. He’s become the poster boy for intolerance.
The best thing about Wade is that he is obviously a man who understands the power that words carry. Unlike Schafer who uses his words as a blunt weapon, Wade is often reflective to the point of hesitancy when trying to explain his thoughts. Its so refreshing to hear someone from the Biomed camp describe gettingthetruthout.org as ‘extraordinary’. I shudder to think what Schafer would describe that site as and I genuinely have no desire to hear his thoughts on the matter.
The Evidence of Harm maillist recently ‘outed’ Orac. They published his real name, contact info including tel number on EoH. Various hangers on repeated the information on their own sites. Schafer did nothing to prevent this although he recently become apoplectic when Jerry Newport of AutAdvo apparently did the same to him. maybe he thought it was just revenge.
However, a lot of EoH members protested this stupidity and questioned the motives of the EoH attack dogs like Ashleigh Anderson, who did the ‘outing’. A few people left expressing disgust with what the list had become.
EoH maillist is crumbling. I hope when it does crumble that out of the rubble steps a man like Wade to create a group that is capable of thinking instead of blindly lashing out. He is an honourable man with honourable intent. A lot of people on EoH would benefit from a leader less prone to bigotry and more prone to reflection. I sincerely hope they get it.
Recent Comments