Archive | August, 2004

Campaign to Increase Dedicated Autism Units Launch

27 Aug

I launched my campaign website the other day.

Basically, after the long drawn out drama with the LEA over Megans Statement I was amazed at the fact that there were so little dedicated autism units in the UK.

Turns out (if my calculations are right) that less than half of pupils with a diagnosed ASD could get access to one of these units. This just didn’t seem right to me. Some areas of the country have no such units at all!

To me this seemed liked a lottery based on money rather than need. What happens to the kids who need a specialist place when all the others are taken?

Parents of non-disabled kids have choices about their childrens education. they can pick and choose the schools their children attend to a certain degree. Parents of disabled kids (particularly autistic kids) have no options- we have to fight tooth and nail just to get an education, and 90% of the time thats a compromise.

If you feel, as I do, that kids should be educated first and foremost on need then please head on over and sign the petition, send your MP and local council a letter and link to my campaign website if you have a website too.

The Joys of Wee

19 Aug

For the last 4 days or so, Megs has started to use a potty to go for a wee. This, for us, is momentous news as we were begining to think she’d never be out of nappies. At last her trousers and skirts look like they’re supposed to instead of her having an arse like J-Lo’s!!

Nappies aren’t cheap for a 4 year old (especially one who takes clothes for a 9 year old!) so thats another plus point.

Obviously the biggest plus point is that it marks a real piece of development for Meggy. She’s not yet ready to trust her throne-like potty (thank you Occupational Therapy!) for no.2’s just yet but we’re working on it. It would be a real plus if she could be out of nappies by the time she starts school in September.

She’s also very much more chatty then ever before at the moment. You get used to not getting your hopes up with your ASD kids sometimes but what the hell, she’s developing a lot and thats something to be pleased about, so I will be!

Vaccine scrapped over autism link

11 Aug

The BBC are reporting that the UK Gvmt are scrapping a mercury based vaccine due to a US study finding links to autism in its use.

The new jab (minus the mercury) will form part of a new 5-in-1 jab to begin next year.

I’m sure that I’m not the only parent of an autistic child that just doesn’t know what to think anymore. We believe that the 3 in 1 jab Megan had triggered her autism and we also believe that there was mercury used as a suspension fluid in her DTP jab.

So why exactly is the Thimerasol (the mercury preservative used in the jabs) so bad in the whooping cough vaccine that it warrants removal of the vaccine and yet the Thimerasol in the DTP (and plenty of other) vaccines is not considered an autism causative?

Maybe I’m missing something here but the evidence for me is mounting that the Gvmt in this country need to urgently investigate mercury based vaccines of all kinds.