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Chelation: Fatal

24 Aug

Awful, awful news.

I hate to report sad news, but this story needs to be told. Today, a story will come out in the news about a family whose five year old child with autism died while undergoing chelation therapy. The family, from the Pittsburgh area, was seeing a “doctor” who claimed to follow the DAN! protocol. (Details are sketchy at this time — we are unsure of the doctor’s qualifications. We will keep you posted.)

The child died in the doctor’s office, while undergoing therapy.

Cindy Waeltermann
AutismLink Director

This isn’t the time for anger or condemnation but I would urge everyone who uses Chelation to please think long and hard about it. Unproven science is frequently deadly science. I’m sure I’ll have something more passionate to say on the issue at some point but right now all I can feel is pity for a dead little autistic child.

Letter To Dr Rashid Buttar, Chelationist

24 Jun

Dear Doctor Rashid Buttar,

I understand that you sell an autism cure called TD-DPMS (Trans Dermal DPMS). As the parent of an autistic child I’m very curious about this product and how it helps autistics.

I’m led to believe that TD-DPMS is not FDA approved and that David Kirby (author: Evidence of Harm) reports that:

one manufacturer of it told compounding pharmacists not to make up transdermal patches of the stuff because some kids had had bad reactions with rashes and even bleeding and scarring.

AutismDiva

Is this true? Is this bad reaction the reason you decided to turn to making TD-DPMS a cream instead of a patch? How does this affect the effectiveness of the product? As I’m sure you know being a Toxicologist, Chelation agents need to absorb a certain amount of the product in order to even begin to be effective. Where are the studies I can get hold of to see the rates of absorption for myself?

In fact, this brings me neatly onto a related matter. Such an important scientist as yourself must surely have peers flocking to review your work. As such an august scientist you are no doubt aware of the most basic scientific precept of subjecting your scientific work for review so that others may critically appraise your work and replicate it. I was surprised therefore to discover that a search of http://www.pubmed.gov – the site that lists all scientific articles in peer-reviewed scientific literature – and found nothing when searching for ‘Rashid Buttar’. Did you submit your thesis under a pseudonym perhaps? I’m positive this must be an oversight and that the safety and efficacy of a product that you regularly use on children has been regularly tested and re-tested by both yourself and your peers as to do otherwise is tantamount to admitting one is afraid to submit one’s work for peer review – I’m certain that can’t be the case for you! The commenter below must surely be mistaken?

To be listed in PubMed, you have to have published scientific articles in the peer-reviewed scientific literature. It’s just that simple. Apparently Dr. Buttar couldn’t be bothered to submit his work to real scientific journals. It’s hard to be taken seriously as a researcher or scientist if you aren’t published in peer-reviewed scientific journals. Certainly, I don’t take him seriously. In Buttar’s own words, he doesn’t know how much of the stuff is going in to the kid or how long it stays there.

Orac Knows (comments)

Moving on, I was heartened to read in a PDF of yours that:

In a study due to be released by the winter of 2004, conclusive data was accumulated regarding the efficacy of a specifically formulated transdermally applied combination of DMPS conjugated with a number of peptides, called TD-DMPS

drhirani.com

Although I was unable to find a copy of any report containing any data – conclusive or otherwise – and I was concerned to note that its now fully 6 months after your stated deadline (trouble with Secretary’s?), I feel sure that once this report is subjected to the rigours of scientific peer review in a scientific journal will fully vindicate the use of your TD-DPMS. I look forward particularly to seeing data on the long term effects of chelation on children and the incontrovertible proof that Chelation cures autism in all cases. Could you provide a definitive date of publication and details of which Medical Journal it will be appearing in please.

By the way, I know your cream is specifically geared towards kids as your remarks here make that clear:

Our success has been all under the age of nine, nine or under. Now since then, when I presented to Congress I told them that I didn’t think this would be effective for older children because the older children would use it, I didn’t see — they got better, they started talking, but they’re not in my book considered normal. They can read, but they’ll never do much more than flip hamburgers for a living, that type of thing.

Dr Rashid Buttar.

In fact, it was after reading this that I decided to contact you. Anyone with such an obvious empathy and deep understanding of autism and autistics is just the sort of person I’d like involved in my daughters treatment. Its also good to see how concerned you are with treating non-verbal autistics as a matter of choice. Such selfless dedication can only be lauded in this day and age and lets face it – those autistics who can talk aren’t probably such an inconvenience to their parents and possibly don’t look quite as heart-wrenching in your parents videos. Its OK – I’m fully aware of the need to be marketable and nothing pulls at the heart strings as much as a child trapped in the ‘abyss of autism’ as one person recently called it.

It was a bit puzzling though. I know of several autistic adults who were diagnosed as low functioning in childhood who later grew up and became reclassified as high functioning. How could that happen do you think? Possibly a naturally occurring ‘hot spring’ of TD-DPMS they fell into? A kind of ‘Old faithful’ of Chelation? I mean, they claim they just ‘developed’ as they grew up but that can’t be right can it? People don’t just develop with age do they? Especially kids?

I was also interested to see that you test for high levels of Mercury by using hair analysis. The reason I was interested in this is that the AMA say that:

The AMA opposes chemical analysis of the hair as a determinant of the need for medical therapy and supports informing the American public and appropriate governmental agencies of this unproven practice and its potential for health care fraud.

and that

A recent 2-year study of students exposed to fumes from metal welding found that hair analysis did not consistently reflect blood levels of 11 heavy metals.

Quackwatch.

So now I was confused. On one hand I had the AMA and their 2 year peer reviewed study and on the other I had you. Now don’t get me wrong – I’m *sure* you’re really really late close to releasing your data for scientific review but you’ll forgive me if I entertained a moment of doubt. I mean, these guys seem to really know their stuff:

Hair mercury levels are not an accurate indicator of mercury exposure. Hair testing has never been standardized to provide meaningful information.

They then go on to list a whole load of reasons why not and then say:

Thus it should be obvious that analyzing hair for mercury is a waste of time and money and cannot be used to diagnose mercury poisoning. A competent practitioner would easily know this. It is fraudulent to use hair analysis to diagnose “toxic levels” of mercury (or any other heavy metal) or to assess nutritional status (and claim someone is “deficient” and prescribe or sell them supplements).

OK, so I was getting a little annoyed now. These guys were calling you a fraud! I mean here they were with their reams and reams of scientifically validated evidence and there you were with your cream and they had the temerity to call you a fraudulant quack! The cheek of some people!

And talking of cheek, I read that:

Dr. Buttar is the Vice-Chairman of the American Board of Clinical Metal Toxicology and holds a position of Visiting Scientist at North Carolina State University

And yet when I visited the NCSU website I couldn’t find any mention of you – don’t worry though, I emailed the site and asked them to confirm your status so no doubt they’ll be rectifying this error soon. Actually, now that I think about it it was a few days ago I mailed them and I haven’t had a response yet. Hmmm. Odd.

And the American Board of Medical Specialties – whats wrong with those guys? They say:

The American Board of Medical Specialties does not recognize the American Board of Chelation Therapists, the American Board of Clinical Metal Toxicology, the American Board of Chelation Therapy, and the Board Of Medical Toxicology

Casewatch.

The way they word it – you know, making Chelationists put this paragraph on consent forms and everything – makes it look like they don’t trust you and think you’re all a bunch of quacks. Man, you must long for the days when the medical community just closed ranks against all outsiders. People had proper respect for alternative medical practitioners then I bet.

On that note, I was fascinated to read some of your other patients testimonials. The guy who says that:

He (Dr Buttar) told me that most of his patients were much worse off than I and that God had Blessed me by giving me a wake up call and that he could enable my body to heal itself! Now that is the first time I have ever heard a Doctor say he could enable my body to heal cancer.

CajunCowboy.

Impressive stuff! Is the cancer cure done with cream too? I actually telephoned NHSDirect to see if they’d heard of this treatment but I didn’t get a straight answer. Actually they sounded a bit weird. There was a lot of what sounded like giggling on the other end of the line. Not very professional is it?

I was also interested in your Anti-Aging stuff:

As an anti-aging specialist, I have read many of the popular health and longevity books. Very few have impressed me. For this reason, I probably never would have read Natural Hormonal Enhancement had my associate not insisted, after reading it himself. Admittedly, I picked-up the book with a negative predisposition, assuming it would be more of the same. I couldn’t
have been more wrong in that assumption. Natural Hormonal Enhancement is very well-written and well-researched and it contains information that even many of my peers don’t understand or don’t recognize. I highly recommend this book.

Dr Rashid Buttar

The book in question being described on that site as:

Finally a Rational Approach to Health and Fitness! The Revolutionary Breakthrough that Renders Conventional Exercise and Diet Programs Obsolete! Harness the Most Powerful Biological Force in the Universe – Your Own Hormones – to Reshape Your Body and Turn Back the Hands of Time on Aging!

Blimey! You’re one busy guy! Cures for autism, cancer and even old age! Now, I know many people would find this suspicious but not me. Anything that says they can ‘reshape my body’ without exercise or diet gets my vote! Can I still drink beer?

In closing then Dr Buttar, I’d really appreciate answers to the questions I’ve posed you here, particularly on the effectiveness of TD-DPMS. I have a fairly large website that gets around 1300 unique visitors a day (that’s a few hundred thousand hits) and I’ve posted a copy of this email up so all my visitors can read it – I’ll be happy to post any response you can give me up there too. I know lots and lots of people who are asking questions about you.

In closing, my apologies for leaving the HTML in place in this email – I couldn’t be bothered to do my job properly. I’m sure you know what I mean. Look forward to hearing from you very very soon.

Chelation: Dangerous & Experimental

27 May

DMPSBackfire.com is a site set up and maintained by Jana Nestlerode after her life was ‘derailed by a single injection of DMPS’.

What I have learned is that DMPS is not approved by the FDA. It is considered an experimental drug. I have found no evidence of the existence of appropriate clinical trials by which practitioners can be guided in its safe use.

Which is worrying enough. But…

The discovery that was most disturbing to me was that some physicians and others were misleading (either through ignorance or contrivance) patients about the safety and efficacy of this drug. I am alarmed at the proliferation of health care providers who are enrolling patients in what amounts to experimental medicine without obtaining their informed consent.

The Dr Buttars of this world are using it on people most unable to give informed consent: autistic children. The parents of these children often claim that autistics are bad excretors of mercury. If this is true (and I don’t know if it is or it isn’t) then it seems that using Chelators can actually make the problem worse:

It takes properly functioning excretory systems to then move the chelator-bound metal out of the body. So in order to get the heavy metals out of your body, you have to dislodge them from their present locations, and MOVE them so that your liver and kidneys can excrete them. Whenever you move a heavy metal, you risk increasing the damage it does to your body. Anywhere along the way, the chelator can lose its grip and drop the metal. If the excretory systems are not functioning well, you’ll be unable to excrete all the metal the chelator has mobilized. In either case, you’ll just do more damage.

This is serious stuff. Deadly serious. There are over 30 reports on DMPSBackfire.com – this is one of them:

I had had EDTA chelation to bring down high levels of lead when my doctor noticed that my mercury levels were going up. He gave me an infusion of 250mg of DMPS, and I immediately got sick. It felt like it was ripping open my insides, including my bones. I was really sick, had bloody stools, my hair color darkened and looked awful. I could hardly move for three months.

At that point I decided to get my amalgams out. I had a lot – 15 or 16. They did it in two weeks and I had another infusion of 250mg of DMPS right after that. I got much worse. My whole endocrine system went haywire. All of my extremities went numb. I felt awful, had stomach ulcers, liver damage, insomnia… the list goes on. I felt and looked 40 years older.

I went to another doctor and he said to keep doing the DMPS, that I had to push through to feel better. I had six more infusions with him, and he did neural therapy on my stomach and spine. I kept getting worse. I felt about ready to die, so I guess it didn’t matter. In addition to all of the headaches, gastrointestinal and endocrine problems and pain, I’m now hypothroid, have lesions in my colon, and a tumor on my liver. DMPS really devastated my life. Before DMPS I used to run 4-5 miles a day. Now walking short distances wears me out. DMPS has made my life hell. Today I am a vegetable trying to get my body working again.

I ask you – knowing this is a possible outcome and knowing that if your child is autistic and less able to tell you they are in discomfort or pain, is this really something you want to risk (the ‘P’ in DMPS stands for ‘Propane’ by the way)? The FDA in America certainly don’t – they won’t approve DMPS. Even if we assume the worst – that mercury is causing autism (and you should know by now I don’t believe this) – is being autistic worse than being in extreme pain or worse, being dead?

Chelation may cause many severe side effects, including severe kidney damage, reduction of the body’s ability to make new blood cells in the bone marrow, dangerously low blood pressure, fast heart rate, dangerously low calcium levels in the blood, increased risk of bleeding or blood clots (including interference with the effects of the blood-thinning drug warfarin [Coumadin]), immune reactions, abnormal heart rhythms, allergic reactions, blood sugar imbalances and convulsions. There have been reports of headache, fatigue, fever, nausea, vomiting, gastrointestinal upset, excessive thirst, sweating (diaphoresis), low white blood cell counts and low levels of blood platelets. People using chelation have had severe reactions in which they have stopped breathing. Death has been reported, although it is not clear if chelation therapy was the direct cause.

Harvard Medical Schools