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21 Aug 2008
  • Author: Kev
  • Comments: 4
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IACC Wants to Hear From You

The IACC was formed after the Combating Autism Act was passed last year. Their role is to help formulate the direction of future scientific research.

As I have blogged about previously,autism/antivax groups are attempting to short circuit this process. These groups include SafeMinds and Generation Rescue. They claim to want to represent autistic people and the parents of autistic people.

The only way actions and groups like this can be stopped is for as many people as possible to contact the IACC with their own thoughts on the draft plan the IACC have. The plan is as follows:

Children with or at risk for ASD will be identified by 24 months and receive appropriate interventions.

Discover how ASD affects development, which will lead to targeted and personalized interventions.

Causes of ASD will be discovered that inform prognosis and treatments and lead to prevention/preemption of the challenges and disabilities of ASD.

Interventions will be developed that are effective for reducing both core and associated symptoms, for building adaptive skills, and for preventing the disabilities associated with ASD.

Communities will implement high quality, evidence-based and cost-effective services and supports across the lifespan for people with ASD.

Advances in intervention, education and services will support and enable individuals on the autism spectrum to lead fulfilling and productive lives in the community.

I personally like the bare bones of this plan a lot.

You need to respond. It is imperative that autistic people and parents of autistic people that do not believe in the unscientific agendas of certain groups allow their voices to be heard.

Full details of how to make your points and who to send them to (please note – the deadline is 30th September) is on the NIH website.

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Comments

4 Responses to “IACC Wants to Hear From You”


  1. Sullivan
    August 21st, 2008
    22:17:17

    For what it’s worth—the IACC was “re” formed after the CAA. There was an IACC going back to, I believe, 2001.

    That totally trivial detail out of the way—people need to provide input. Now is the time!


  2. blog-thing : Talk back to IACC
    August 21st, 2008
    23:02:08

    [...] LeftBrainRightBrain  [...]


  3. IACC Strategic Plan RFI | Autism Library
    August 22nd, 2008
    05:21:11

    [...] has already been discussed at Neurdiversity, LeftBrainRightBrain, and Action for [...]


  4. Autism Blog - No, really, email the IACC | Left Brain/Right Brain
    September 4th, 2008
    19:14:59

    [...] Kev has already noted that the IACC has opened the Strategic Plan for comments and suggestion—a “Request for Information” or RFI. [...]

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