Jenny McCarthy's Mother Warriors

24 Sep

Jenny McCarthy’s bullshit-fest starts up again today. Look forward to her and Jim Carrey on various US talk shows.

Her new book is called ‘Mother Warriors: A Nation of Parents Healing Autism Against All Odds’ which is equally amusing (mother warriors?) and, well, bollocks. A nation of parents healing autism? Really? Where? I’ve been having this conversation with the autism/antivax loons for over five years now: show me the kids who were once autistic who are now cured by biomed? And I don’t mean your sisters best friends cousins kid, I mean case studies. I keep hearing that there are _thousands_ of these kids – surely some doctor treating them somewhere thought – hey, a case study would be a good idea.

And this definitely includes Chief Mother Warrior McCarthy herself and her somewhat loose definition of what ‘healing autism’ is. I posted awhile ago about how Chief Mother Warrior McCarthy had described her son as recovered (as oppose to recover_ing_) in April this year and then go on to describe how she was planning to chelate Evan in June 2008. Why? If he’s recovered, why is the poor lad being subjected to chelation?

Meh, cup and ball trick much?

So, I thought – given that Chief Mother Warrior McCarthy is doing it – that we might take a closer look at chelation in the form of quotes from Mother Warrior’s on the CK2 (Chelating Kids 2) Yahoo group. I’ll say up front, it makes pretty grim reading but I think people need to know what exactly being a Mother Warrior entails. These are all from different people.

It just takes time. My twins (almost 8 now) have been doing IV CaEDTA roughly every 2 weeks for over 3 years (71 and 78 IVs). The first half-dozen or so were really traumatic, then the kids started realizing it really wasn’t so bad after all and got to the point where they didn’t need to be held anymore, then they didn’t cry anymore, etc.

My son is 6 and I have to hold him down for the IVs – we’ve done 10. Today he got poked 3 times and has purple hands from blowing veins. As I’m lying on him, both of us sweating with 2 nurses trying to do the IV, I’m thinking is is worth it?

I used to give my son a valium before the IV’s when we first started. We had to give him 15 mgs when he was about 90 pounds.

We give my son 300 mg of L-Theanine 90 minutes prior to the IV…

We are considering IV chelation with our almost 7yr old. We started with nutritional IV’s just to see how he would do. THe first one was rough the second was a piece of cake. My Mom instinct tell me they made him feel better…

We do IV chelation on experienced regression during the first 3 or 4 months. I would consider them “healing” regressions, though because he didn’t stay in a regressed state and always came out of the regression….

Now these are bad. Blown veins, chelation over periods of years, kids being medicated to calm them down from their obvious terror. But these next are worse.

Any thoughts or experiences with chelation on children under 16 months? The child in question was tested moderately mercury toxic….

My 15 month old son had a porphyns test by Phillipe Auguste labs that showed very high lead and mercury that spiked off the page, so our DAN is starting him on DMSA suppositories once his OAT test comes back demonstrating that he’s medically stable enough to chelate…

We actually began chelating our son at age 2

And the absolute crowning horror. There aren’t words for this last one so I’m just going to quote it. Remember – this is an example of McCarthy’s Mother Warriors in action describing a process she was going to try on her own son.

I started chelating my son at 13 months of age w/ IVs. Dr Bradstreet’s office chelates little kids. It was actually easier to give him the IVs before he turned 2. My DAN, Scott Smith, says that kids under 3 chelate much faster and it is a good idea to start early.

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46 Responses to “Jenny McCarthy's Mother Warriors”

  1. Ms. Clark September 24, 2008 at 10:33 #

    How old was Hannah Poling when they started chelating her? Based on what her mom posted to a Yahoo! group, It looks like Hannah was just two years old. Mom didn’t explain which form of chelation it was, and apparently they did this before she was diangosed with a mitochondrial disease, though they might have chelated her even after her mito problem was discovered.

    These poor kids. Their parents buy into quack lab tests that say they are “heavy metal toxic” and it’s a nightmare for some of those kids from there on out. One of the parents in the mercury portion of the autism omnibus described trying to get his son to hold still to get an IV at Dr. John Green’s office. He said it was like trying to “cannulate a salmon”. A cannula, for those who might not know, is a medical instrument, a tube, like a catheter.

    In his testimony, I got the impression that this traumatic incident in particular may have led to his divorce from the boy’s mother. The dad apparently became interested in another more avid biomed mom and he married her.

    Some of these parents are still allowing IV EDTA infusions to be done on their kids, they claim it’s calcium EDTA (not disodium EDTA like what killed Abukakar). Ca EDTA is still bad news and isn’t going to do thing one for an autistic child except give his parents something to do (plan for, supervise and pay for the treatments, and then carefully watch for signs of change).

  2. Socrates September 24, 2008 at 10:37 #

    Speechless, veering apoplectic.

  3. bullet September 24, 2008 at 10:50 #

    I just don’t know what to say :(.

  4. Kev September 24, 2008 at 11:02 #

    Canula.

  5. Regan September 24, 2008 at 11:02 #

    I have a very strong reaction but words…just…fail.

  6. Jen September 24, 2008 at 11:10 #

    I guess that I’ve been out of the loop, because I had no idea that they were starting kids that young. Two of my kids have had a good amount of IVs in their lives due to various health problems, and they are traumatic enough for them that I make very sure that we have access to a play or art therapist or psychologist when we’re in the hospital.

    Aside from the substance that’s actually going into these poor kids, I wonder how many of them are going to end up with psychological problems just due to the sheer number of medical interventions that they are undergoing? I think that it’s pretty commonly accepted in pediatric circles now that children who have long-term exposure to hospitals and medical procedures can very much benefit from the support systems that are available in most hospitals…which I’m guessing that none of these children have access to.

    I know that my girls are upset enough whenever I tell them that we need to get an IV- I can’t imagine having to explain to them down the road that I’d had it done for a non-medical reason.

    At some point wouldn’t this type of abuse come under the purview of Children’s Aid or Child Protective services or some other similar organization? There is protection for children whose parents refuse them medical care on religious grounds or whatever, so why wouldn’t there be protection for children against something like this?

  7. maddox22 September 24, 2008 at 11:26 #

    I’m not completely up to speed on the ridiculosity of these people. Can someone explain to me why they think they would need to chelate their children for years on end? My friend’s mother needed chelation for mercury poisoning, and she only got something like 3 or 4 treatments–and that was for a significant mercury load in her body. If these “parents” (I reserve un-quoted parents for those who don’t harm their children) really think it is the mercury in vaccines that causes autism, their kids’ mercury loads must be significantly lower than my friend’s mom’s (since the amount of Hg in vaccines is so low). Why on earth would it require 70+ therapies to get rid of it, if it only took 3 or 4 to get rid of a much higher load in a much older woman?

    Oh, right. Because logic doesn’t play into this.

    Truly, if these people were not endangering children, they would make me laugh. As it is, they make me want to cry.

  8. farmwifetwo September 24, 2008 at 12:37 #

    Let’s see, here they banned the sale of “over the counter” cold products to children under the age of 6 last year.

    Aspirin under the age of 12 is not recommended.

    Now they think Tylenol may be linked to Asthma http://www.theglobeandmail.com/servlet/story/RTGAM.20080919.wlasthma19/BNStory/specialScienceandHealth/home?cid=al_gam_mostemail

    And these people put these weird untested chemicals into their kids without any concern of the long term damage to their organs b/c they need to be “normal”. Considering how many times they’ve done it, it should be obvious it’s not working.

    Frightening.

    S.

  9. BTDT September 24, 2008 at 14:26 #

    Jenny McCarthy, via the Oprah show, wants to hear from you.

    Jenny McCarthyJenny McCarthy wants to hear from you!

    Jenny McCarthy will be LIVE on Oprah.com Wednesday, September 24 at 7 p.m. CT and she wants hear from YOU! What questions do you have for Jenny? What stories would you like to share? If you want to speak to Jenny McCarthy LIVE, we want to hear from you!

  10. Catherina September 24, 2008 at 16:01 #

    Well, the parents believe they are healing their child. Parents of a child with cancer would hold their child down for an IV of chemotherapeuticals, too. And I know that chelation is woo and chemotherapy saves lives, however, you need to address the peddlers and not (only) the parents.

  11. Casdok September 24, 2008 at 16:21 #

    I love your opening sentence.
    As for the rest, it is shocking and horrifying what some parents will do.

  12. norwegian mom September 24, 2008 at 16:44 #

    !!!!! This was shocking! I have observed in my son’s school that parents who will not accept their child’s autism and are hysterically trying to find the miracle-cure, in stead of focusing on doing what actually works, often have unhappy children with bad behavior problems. And I am more and more sure I am doing the right thing, allowing my son to be himself and give him alternative communication. He may never be able to speak or live a perfectly ‘normal’ life, but he is happy, harmonic, he can communicate with PECS and he loves to learn. The kindest, lovliest boy ever! What is happening in your country!!!!

  13. Dawn September 24, 2008 at 17:52 #

    Kev – you have rendered me speechless here. OH. MY. GOD. I can’t think of anything to say that wouldn’t entail a telephone call to Child Protective Services.

  14. Kev September 24, 2008 at 18:52 #

    Maddox22 – the basic idea is that autistic kids are ‘bad excretors’ of metals. You can read about the paucity of data regarding that idea on Autism Street.

  15. misha_k September 24, 2008 at 18:55 #

    Dear god I feel sick after reading those quotes. I will never understand how parents can put their children through that and think it’s okay.

  16. Joseph September 24, 2008 at 19:48 #

    Can someone explain to me why they think they would need to chelate their children for years on end?

    As far as I can tell, there are no precedents in the medical literature. The parents were simply told by quacks that they needed to do it for years on end in order to see results. The quacks made it all up, with no concern for long term side-effects such as renal damage.

  17. isles September 25, 2008 at 04:35 #

    Do these parents not listen to themselves?

    Truly, they are down the rabbit hole, where the Mother of the Year is the one who fights the hardest to exorcise (sometimes literally) the autism from her child.

  18. Nicky M September 25, 2008 at 18:17 #

    What annoys me is that most of them are trying so hard to “cure” their kids, like they have some kind of curse, that they miss out on some of the joy that having a child with autism can give.

    Granted sometimes it is extremely difficult, but my son is a happy like tyke who loves his life most of the time. Yes he has a couple of therapies, but doing all that iv chelation nonsense would be far too traumatic for him, therefore his standard of living would deteriorate!!

    I cannot understand parents who can’t accept their children for who they are. My son’s autism is part of him, and they need to wake up and realise that it is they that need healing, rather than their kids.

  19. Marcella Piper-Terry September 25, 2008 at 21:37 #

    Nicky M. (and others):
    As a parent of a child on the spectrum and a DAN provider (who has as of yet never recommended chelation), I can say that you are painting with a broad brush when you accuse parents who employ biomedical interventions for their children of not accepting our children for who they are.

    I absolutely adore my daughter and treasure her unique abilities, including her talents with music and art, as well as her strong cognitive skills. I would not trade her for any “NT” child on the planet.

    However, I can say that since instituting biomedical interventions to improve her overall wellness, including reducing her viral load, knocking out the chronic strep infection in her gut and central nervous system, successfully treating and removing yeast overgrowth from her GI tract, and cleaning up her diet by getting rid of preservatives, artificial dye and most of the sources of gluten and casein, my daughter has gone from taking five different pharmaceutical medications daily to taking NONE – ZERO.

    She no longer has to be home-schooled to prevent her from getting sick. She is mainstreamed in school, plays drums in the band, and has a boyfriend. Her eye-contact has improved and she actually SMILES because she is no longer in constant pain.

    Mercury (or thimerosal) is not the only issue in autism, and there are many more interventions that can and should be employed for sick children in order to improve their overall health. That does not mean that parents who are trying to help their children do not accept them for who they are. It simply means that we love them enough to do what we can to help them escape a life of constant pain.

    I am thankful to God that my daughter responded so positively to the dietary changes, immune strengthening interventions, and nutritional supplementation. I am also thankful that we did not have to pursue chelation for heavy metal toxicity. As a clinician, I can tell you that I have never, and will never advise a parent to pursue chelation until all other avenues of intervention have been tried, and only then in the presence of confirmation that heavy metal toxicity is an issue that should be addressed.

    I will NEVER, however, condemn a parent for wanting to improve the quality of life for his or her child.

    It is my hope that you will somehow be able to acquire the compassion for others that allows you to understand why some parents go to the lengths they do to heal their children. It is also my hope that your child will live a life free of pain and that underlying issues related to GI dysfunction and chronic viral, bacterial, parasitic and/or IgG food allergies are not contributing to his or her symptoms, which resulted in a diagnosis of autism. If they are, and you have not pursued possible remedies for these issues due to your own biases and refusal to accept that there are medical and physical factors that need to be investigated, I would argue that you are guilty of parental neglect by failing to address your child’s medical issues.

    If you have had the necessary tests done to determine that your child does not have food allergies, viral and bacterial overload, parasitic infections, nutritional deficiencies, and heavy metal toxicity contributing to his or her autistic symptoms, then you have my congratulations and my admiration. If you have not bothered to investigate underlying factors that may very likely be contributing to your child’s diagnosis of autism, then your child has my sympathy and you have earned my disdain; not only for your failure to do what is necessary for your child, but for your willingness to condemn others who go the extra mile to do so for theirs.

    Marcella Piper-Terry
    http://4allofyou.blogspot.com/

  20. Bink September 26, 2008 at 01:39 #

    Nice ad

  21. Joseph September 26, 2008 at 01:56 #

    Spam you mean? I have a notoriously lenient comment policy over at my blog, and I’m pretty sure I’d consider this the sort of comment that crosses the threshold into spam. I bet Kev just hasn’t seen it yet.

    She no longer has to be home-schooled to prevent her from getting sick. She is mainstreamed in school, plays drums in the band, and has a boyfriend.

    My step-daughter has an autistic boyfriend. I’m autistic and I’m married. What’s the big freaking deal about this sort of thing nowadays? Sorry if that sounds harsh, but I just don’t appreciate testimonial-based medicine, especially not when it comes from a DAN practitioner.

  22. Anne September 26, 2008 at 02:54 #

    Marcella, you describe yourself as “a DAN provider (who has as of yet never recommended chelation).” I followed the link you provided to your blog, and I see that you are a Biomedical Consultant at a wellness institute. I’m curious … what is a Biomedical Consultant, and what qualifications are needed to be one? Does the State of Indiana require Biomedical Consultants to be licensed health practitioners?

    One last question … as a Biomedical Consultant, do you think it’s possible for a person – child or adult – to be healthy, happy and autistic?

  23. alyric September 26, 2008 at 03:03 #

    Marcella wrote:

    ” However, I can say that since instituting biomedical interventions to improve her overall wellness, including reducing her viral load, knocking out the chronic strep infection in her gut and central nervous system, successfully treating and removing yeast overgrowth from her GI tract, and cleaning up her diet by getting rid of preservatives, artificial dye and most of the sources of gluten and casein, my daughter has gone from taking five different pharmaceutical medications daily to taking NONE – ZERO.”

    Marcella, I’m truly happy that your daughter is doing so well. Long may it continue:)

    However, you claim to be a physician, but there are things you write that are, to be frank, inconsistent with the depth of knowledge required of anybody with a medical education. So, I assume that your credentials lie out of the mainstream and probably in the homeopathy realm, quackery, that is.

    After all, reducing the ‘viral load’ means what exactly – interferon, because there’s nothing else that’s going to reduce the number of viruses externally? No physician believes there is any sane way to ‘boost the immune system’. As for the strep throughout the body – care to tell us how it was that your daughjter avoided scarlet fever? Surely that is the most common sequelae of untreated or longstanding strep infection.

    These are pretty glaring booboos you know, especially if you want to appear as a professional.

  24. Sophist September 26, 2008 at 03:09 #

    >>As a clinician, I can tell you that I have never, and will never advise a parent to pursue chelation until all other avenues of intervention have been tried, and only then in the presence of confirmation that heavy metal toxicity is an issue that should be addressed.<<

    As a licensed clinician (I am assuming you are licensed), how do you then resolve the dilemma that you as a licensed practitioner are bound by certain ethical guidelines inherent to your profession and yet, as you state yourself, you would recommend the treatment if it came down to it? You, as a DAN practitioner, must you know full well that chelation has not been approved by the FDA for the treatment of any form of autism. For instance, DMSA has only been approved for the treatment of acute lead poisoning. Therefore, I ask how you resolve this discrepancy, since recommending a treatment which has not been shown to be either safe or beneficial through rigorous scientific study (e.g., not single case studies and not patient or parent testimony) seems– at least to me– to be HIGHLY unethical. And even more, this on the heels of the NIMH calling off its study on chelation & autism due to ethics and participant safety.

    How exactly do you resolve this, Marcella, and, what’s more, how do you keep your license??

  25. Kev September 26, 2008 at 09:49 #

    Its tempting to remove the whole comment completely but I think Marcella has a few questions to answer so I’ll leave it.

  26. Patrick September 26, 2008 at 16:27 #

    Yeast overgrowth, chronic infections, viral load. Does rather sound like the usual laundry list of things to claim that need fixing, when maybe the only real problem was the food allergies. But if you’re happy the money was well spent (I hope it’s not ongoing) and your daughter continues to feel well, then good luck.

    Since one of the goals apparently was to remove all the pharma meds, is another goal to remove the alternative treatments to see which are no longer needed?

  27. Calli Arcale September 29, 2008 at 15:41 #

    “I keep hearing that there are thousands of these kids – surely some doctor treating them somewhere thought – hey, a case study would be a good idea.”

    What, and be held accountable? *rolls eyes*

    That’s the biggest irony of all, that it is claimed that the closed-minded ones are the mainstream medical practitioners, when it is in fact the alt med practitioners who have closed their minds. At some level, they must know this, since they shy away from accountability. Either that, or they are so arrogant that they believe themselves to be so skilled that they do not need to be held accountable.

    70-80 IV treatments on a child with a neurological disorder which usually makes them hypersensitive…. Torture. There’s no other word for it. Even if it was homeopathic, and the drug itself had no risks, the very method of administration is an adverse reaction. “The evil doctors made us give little Timmy some shots with a fine-bore needle. So we’re going to follow that up with dozens of IVs into his arm over the next few years, because we’re not evil.”

    Of course, the parents are not evil. Even the majority of the practitioners are doing it out of good intent. They’ve been deceived, sometimes intentionally, sometimes not. Like Marcella above, they really believe they are doing good. The fact that they are actually doing harm is what makes this like a Greek tragedy.

  28. Calli Arcale September 29, 2008 at 15:44 #

    Oh, one other thing — Marcella says that her child was on 5 pharmaceuticals. It’s hard to say not knowing the child’s situation, but that seems excessive, especially if they’re all psychoactive drugs. I don’t understand why someone concerned about excessive pharmaceuticals would so readily replace them with excessive non-pharmaceuticals. I mean, the list of interventions being done for her child is pretty extreme, even ignoring the fact that there’s no biological basis for them.

  29. Tammie September 30, 2008 at 01:10 #

    Spend one day with a family affected by autism and you will understand what lengths parents will go to. This disease is heartbreaking. Why are there no case studies done under ‘scientific’ conditions? Who is going to do them? The pharmaceutical companies? How would they benefit if they proved these kids recover with Biomed. I have worked with Autistic kids for year in regards to diet and I can tell you from my own experience, recovery is possible with biomed. It is not easy in fact it is probably the hardest thing you can do. It is a daily struggle and sometimes to just get through the day you need to take one minute at a time. Why are so many people against even considering recovery without the intervention of drugs? If just one child is help isn’t it worth taking a second look? In the last few years we have discovered how beneficial fish oil is and probiotics are those of us quacks in the holistic nutrition field have been recommending these for the last 20 years and made fun of because no one understood why they were benefical, now every new product contains them. Can’t we just open our minds and just maybe consider the posibility of just maybe this would work?

  30. Dedj September 30, 2008 at 01:56 #

    Tammie, here’s a few tips:

    Don’t say things like

    Spend one day with a family affected by autism and you will understand what lengths parents will go to.

    on a website where several of the main contributers have children with autism, several of the prominent posters are adults with autism often with children with autism, and many of the rest are professionals working in the field of autism therapy and research.

    It just makes you look foolish and uninformed.

    Also don’t say

    Why are so many people against even considering recovery without the intervention of drugs?

    without clarifying just who it is you’re talking about (hint: that statement describes no-one here) unless you want to be accused of making strawmen.

    Especially don’t say it around the neurodiversity community. We’re full to the gills of people who develop, deliver or otherwise support non-medical interventions.

  31. grenouille September 30, 2008 at 15:42 #

    Did anyone see the Mother Warrior herself on Access Hollywood last night, talking about how she “forgave” Barbara Walters?

    It’s horrifying how condescending an airhead can be to a respected journalist.

    http://www.accesshollywood.com/jenny-mccarthy-vs-barbara-walters_video_709481

    I am starting to get really worried that her views are gaining traction among average mothers.

  32. A Proud Father September 30, 2008 at 17:28 #

    Chelating children in the absence of demonstrable, true heavy metal poisoning is child abuse, pure and simple.

    We went to one doctor who was listed as a family practice doctor at a well-known hospital and clinic in town. They had put out front a simple sign, though, that said “Autism Clinic”. It turns out the doctor and nurse were practitioners of (drum roll), the Yasko protocol as well as “functional medicine”. We spoke with the nurse who came into the exam room before the doctor. She said she had a child on the spectrum and had been chelating him for 2 YEARS! I just stared at her. I then asked her if she had ever seen an autistic child improve or progress without the “help” of biomedical interventions. She looked straight at me and said, “No, I haven’t, not in my experience.” I just stared at her. I wished now I would have said the things I was thinking.

  33. Joseph September 30, 2008 at 17:42 #

    Thanks Dedj. Tammie uses the “you’re closed minded” canard. But she’s clearly not open minded about the distinct possibility that she’s wrong, that in fact there are many quacks that take advantage of the placebo effect, and so on. Why be so closed minded, Tammie? Tell us.

  34. Amanda October 2, 2008 at 16:09 #

    Unfortunately Indiana (my home state) has not looked into the “practices” of these DAN quacks. As a citizen of the city where people “practice” this kind of quackery, I am appalled by the fact that we don’t have laws to prevent the spread of the nonsense described.

  35. J October 3, 2008 at 15:04 #

    Well..I happen to be searching for something else and this little blog popped up. What is sad and shocking is that you pathetic ill informed people actually sit around and judge something you obviously know nothing about. Well maybe you should get off your asses and do a little more research. My son has completley progressed from non verbal to speaking easily. And that is just one little part of all the positive things that have begun for him thanks to the diet and bio medical treatment. You are judging these parents but im sure you will march your own children right down to the doctors office and happily hold them down so their doctor can stick them with the vaccine needles. But of course that and the after effects arent traumatic at all for them. Shows how little you people know. Get a freaking clue and wake up!

  36. Ettina October 3, 2008 at 18:00 #

    “Spend one day with a family affected by autism and you will understand what lengths parents will go to. This disease is heartbreaking.”

    To quote Amanda Baggs:

    “It is wrong to condescendingly assume … that all you needed to do was say we exist and everyone would understand what you want to do to us.”

    I’ve lived 19 years as an autistic person, 17-18 of them (depending on your definition of child) as an autistic child. I’ve met, on the Internet and in person, many autistic children and their families. I’ve even been bitten hard enough to bruise by an autistic teen. And I still don’t understand the lengths some parents will go to for a cure. They’re as desperate as parents of kids with cancer, and for much less reason.

  37. Kev October 4, 2008 at 07:04 #

    J – whats sad and shocking, as well as irresponsible is that you are condoning what is tantamount to child experimentation and abuse and passing off your own personal anecdote is if it matters in any way at all.

    Whats also sad and shocking is that you and the rest of the antivax loons are brining about a return to an era when diseases such as measles and Polio will soon be rampant again. Well done you.

  38. Dedj October 4, 2008 at 13:03 #

    Another thing about people like J is that they treat progression in people with autism as if it’s somehow unprecedented and unachievable under mainstream therapies, when it’s actually not that uncommon.

    Of course, what people like J do when this is pointed out to them, is to point to people with severe comorbids, or to people who have been institutionalised or abandoned, and say “See! They haven’t progressed!1one!” and not even realise that they’re cherry-picking the worst cases.

    They never tell us how long or how much £$ it’s taken them to get there, or even if the aquired behaviour is functional or merely presents well. Even the majority of the original cohorts had speech, but that doesn’t mean they were considered successful speakers.

    Dedj – an autistic person, with autistic family members, who works in a autism service, who has friends with autism, who has clinical and academic experience of autism (fairly average lb/rb reader then) – out.

  39. Amy October 23, 2008 at 23:38 #

    If you are leaving a comment and do not have a child under the autism spectrum….you have no idea.

    The sad part is that drug companies has America brain washed. Doctors make loads off immunizations.

    Jenny is a genius. The book is perfect!

  40. amy October 23, 2008 at 23:52 #

    on my previous comment I am referring to immunizations. I am not talking about chelating.

  41. Dedj October 24, 2008 at 00:03 #

    Remember Amy, many of us have experience of autism through other means then merely having a child with autism. Often through multiple pathways.

    I’ve met educated, motivated and intelligent parents with ‘children with autism’ who are getting into young adulthood. Yet, despite having nearly two decades of daily experience with a child with autism, they can easily lack conditional knowledge that is expected of your average autism professional. Parents can actually be a detriment, as I’ve witnessed multiple times.

    Being a parent is no guarantee of competence, just as not being a parent does not guarantee incompetence. That is how it is, your ego might wish you were better than anyone who disagrees with you, but you have to accept that ‘Mother’ may know best about her child as ‘her’ child, it doesn’t mean ‘Mother’ knows best about that child as a person with autism.

    Knowledge of daily life with someone does not confer knowledge of biochemistry, neurology or immunology. People like you need to realise that.

    The sad thing about people like you is that you will clamour and grasp for people to listen to your claims and investigate them, yet, when people do, and find them wanting in terms of evidence or substance, you’ll be the first to decry the expertise of those people. Oh, as long as they disagree with you of course. Anyone who agrees is never money motivated, incompetant or fraudulent. Only the highly experienced, trained and respected mainstream researchers are.

    P.S. Other countries exist, including places where Drs get paid very little or nothing for immunisations. You claim does not, and never will account for the global story.

  42. hera December 16, 2008 at 01:14 #

    To the person who does not know what the big deal is aobut having autism and being married: there are many different degrees of autism.Some people are quirky, geeky, poor socail skills, maybe great at maths or music or art: able to write on blogs like this one for entertainment.Their life is no doubt fine, rich and rewarding just as it is.
    Then there is my neighbours son.He is sixteen, can’t speak, but he flaps and makes a high pitched squeal a lot. He has almost no usable communication at all, though his mother has worked hard to teach him some basic signs..When he is upset, he throws chairs around the room.At sixteen, I think he is finally potty trained.His mothers’ worst nightmare is what will happen to him when she dies.She knows he will be in an institution.Getting married??Heavens, she would be cheering if he could say “hi.”

    It is a little bit like having poor eye sight.For some people, being near sighted or far sighted may actually be helpful.But someone who has to, say,wear glasses for reading, has no idea what life is like for someone who is blind.
    Similarly high functioning autism looks very different from the life of someone with low functioning autism,trapped and unable to even communicate.No one deserves to live in that kind of prison, and any loving parent of a severely autisic child, in my opinion deserves compassion not criticism .

  43. LISA READY August 27, 2009 at 15:52 #

    I am so angered by your ignorant article. I have a 3 yr.old with autism. I have intervened with biomedical (no cheletion)food allergies,yeast overgrowth. he is a different kid with dietary intervention yeast treatment(nystatin) and quercetin ( a natural antihystamine antiiflamatory) he went from banging his head all the time, no eyecontact and toe walking to no headbanging happy interactive child ( also diagnosed with severe receptive/expressive language disorder) He has almost caught up in language just mildy ( a few months) behind now. I also did brushing therapy and joint compressions. This is all medically based and not some witch Dr. Thery like you make it out to be. Are some people over the top? and moving into dangerous ground perhaps. and I don’t advicate that. If your child was diagnosed with cancer would you just accept it? or would you do every educated method to heal them. Wake up people and stop giving up on your kids.

    • Sullivan August 27, 2009 at 17:43 #

      If your child was diagnosed with cancer would you just accept it? or would you do every educated method to heal them.

      1) yes, I would accept it. Accepting a diagnosis is not giving up. How are you supposed to try to help your child if you don’t accept the situation?

      2) emphasis is on “educated”. “educated method”. Many methods are not “educated”. Chelation–a method Jenny McCarthy claimed she was considering for her child–not educated.

      Lisa–did you do anything else? No Speech therapy? No occupational therapy? No school?

      People who support biomed often claim people are “giving up on their kids”. This is probably the least insulting of the many insults biomed parents use. Oddly, the common belief is that biomed parents are more polite and nurturing.

      I hope you can see that “giving up on your kids” is highly insulting.

      It is a difficult balancing act, and one I am not particularly good at: how do you show that you disagree (even strongly) with the path that another parent is taking and not be insulting?

  44. Dedj August 27, 2009 at 16:39 #

    Lisa, no-one here has ‘given up on thier kids’, and it’s both rude and ignorant of you to assert so. Simply because many people chose to stick to mainstream therapies and treatments from professionals who belong to registered professions with protected titles does not mean they have ‘given up on thier kids’.

    It would be to the benefit of your image here for you to refrain from making such an accusation again.

Trackbacks/Pingbacks

  1. Autism Blog - Savage Autism | Left Brain/Right Brain - October 19, 2008

    […] – some of your Mother Warrior friends are pretty close to that right now. Not that long ago I posted an entry that described parents chelating 13 month old babies. And here’s a snippet from another […]

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