Lupron Rears Its Head

22 Feb

The issue of Lupron finally raises its head above the parapet of autism. I’m going to attempt to ‘bring together’ the various discussions that have sprung up and then have my say on the subject. But before I do, lets just clarify what we’re talking about.

There is an unsubstantiated theory put about by Boyd Haley and the Geiers that testosterone levels are raised in autistic people. There is a further unsubstantiated theory that high testosterone counteracts the bodies ability to be chelated of its mercury efficiently. That the excess mercury got there is also due to an unsubstantiated theory that thiomersal in vaccines is responsible.

The use of chelating agents (which alter the body’s chemistry) have never been tested for safety or efficacy for autistic people (who have chemically different brains than non-autistic people).

So, in my opinion, we have a potentially dangerous and thus far non demonstrably necessary treatment being administered to autistic people. It was put about awhile ago that a typical course of chelation should last 18 months to two years. Now we seem to be approaching that time scale for a lot of children and there seems to be little to no response (unless you believe the unverified claims of Generation Rescue), there’s now a casting about for a reason why the chelation isn’t working as was first thought.

Yes, I have my own opinion as to why it isn’t working. I’m sure you can guess what that opinion is.

But whats _their_ opinion? The chelationistas? Why, that all that pesky testosterone is impeding the chelating of all that pesky mercury. And what reasons are given for that idea? Why, that there are four times as many male autistics as female autistics.

Now that the testosterone theory is out in the wild, suddenly the chelationistas are ‘remembering’ that their kids seem to be developing quickly, that they have a lot of body hair, that they become violent during chelation.

Yes, I have my own theory why they become violent during chelation. I’m sure you can guess that opinion is.

And thats it. Thats why there’s a sudden mad dash for Lupron. So lets now look at how its used.

Quite simply, its being used because the Geier’s are ‘excited’ about using it.

Try going to the NAA website and ordering the DVD or CD from the Geier’s lecture this past weekend. You’ll learn about their work with testosterone and Autism. This research is in its’ infancy, but the Geiers are SO excited about this topic.

Onibasu.

Dr. Geier now has a testosterone study going on, I think it’s Lupron injections every 45 days? until age 12, while chelating with DMPS-TD. there’s some other stuff, too, he’s got I think 8 kids in the study, we’re working on getting all the stuff out of the way for allie Kat to participate, last I knew he had no girls.

EoH.

My daughter will be seeing the Geiers this winter/spring and we’re about to have her tested to see if their protocol is appropriate for her. I’ll report the results when we have them…but in the MEANTIME, you can watch the Reverend Lisa Sykes discuss her son Wesley’s progress after receiving Lupron treatments!

EoH.

Kathleen at Neurodiversity has a very thorough round up of this side of things which I strongly suggest you read. But lets not pretend – children are already being treated with Lupron.

So, just to recap – an unsubstantiated treatment is now being used to treat an unsubstantiated condition which allegedly aids an unsubstantiated process.

But what _is_ Lupron? Whats it used for?

Its used to chemically castrate sex offenders in the US and also to treat Prostrate cancer. Basically it inhibits testosterone. In females it can cause a drug induced menopause. Its only legitimate sue for children is to treat precocious puberty.

There’s been at least one lawsuit associated with Lupron.

Many women with endometriosis who have been given Lupron injections have had severe side-effects, including cardiac arrhythmias, dizziness, swelling, chest pain, depression and confusion, bone pain, extreme fatigue, vision loss, high blood pressure, and nausea. Some of the women claim their side- effects last long after treatment is completed. The plaintiffs in the lawsuit against Tap claim, for example, to have experienced serious injury after Lupron injections, “resulting in pain and suffering, disability, disfigurement, mental anguish, loss of the capacity for enjoyment of life, expense of medical care and treatment, loss of earnings, loss of the ability to earn money.”

This is a serious drug. Nothing to make assumptions about – nothing to treat _children_ with unless they have a diagnosis of Precocioous Puberty which can be tested for without needing to inject Lupron.

The science that underpins the Geiers is practically non-existent and based pretty much on either their assumptions regarding mercury or their assumptions regarding testosterone – neither of which are authenticated. You can view an overview of the bad science behind the Geiers suppositions at Bartholomew Cubbins site and at an ongoing discussion at the Not Mercury site.

What happens when Lupron is deemed ‘inefficient’? What will be the next inhibitor? What will be the next unnecessary chemical pumped into autistic kids to ‘uninhibit’ the chelation process? And lets not even start on the bizarre cognitive dissonance necessary to refuse to trust Big Pharma regarding thiomersal and yet rush to embrace it regarding Lupron.

52 Responses to “Lupron Rears Its Head”

  1. kelli March 1, 2006 at 04:48 #

    I will see what I can find out. Since you’ve participated in studies you know what is involved having sat through the entire consent. I worked at a research hospital for almost 9 years. There is so much preparation required to explain how you plan to prove your validity, why the participant is eligible, what measures have been taken to prevent the study from being invalid, how the results will be measured and why, etc. The list goes on and on. Every patient I took care of was part of a study or they wouldn’t have been there. The only way you can truly know that chelation alone is what “worked” is if your entire population did not take part in any other form of treatment during the chelation process. Not that I am saying that is smart at all… but how would you know if you are doing other treatments as well? I could be completely wrong (I often am) but I don’t believe these studies were double-blind or had very good controls since I have not run across any “research” that discusses the participants that got a placebo and what their results were. This is why I find this website so interesting. It addresses a lot of my curiosities that I never get the time to follow up with.

    Thanks for responding.

  2. Jenny Taylor March 8, 2006 at 21:42 #

    This Lupron thing sounds like just the job. It will take the NIH at least three years to prove it doesn’t work, and that’s an awful lot of moms getting robbed blind in the meantime.

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