Autism and Scientology again

9 Mar

Awhile ago, I wrote a post the detailed the disturbing links between the DAN! movement and scientology. It transpired that scientology – being a movement that is big on non psychiatric modes of treatments is a good fit for DAN! adherents. Both value detoxification for a range of things and it seems Scientologists have not been slow to ingratiate themselves into the DAN! movement. So far, I’ve identified three Scientologists who are also DAN! Doctors. One of them was involved in the death of a parent of a schizophrenic man in 2002.

One of the darlings of the autism/vaccine movement is Julia Berle who’s son, Baxter, was used in a Generation Rescue advert. Ms Berle is a frequent poster to various autism/vaccine groups. Her signature reads;

Julia, mom to Baxter, recovered in 2005, Founding Parent of Generation Rescue

As mum to a recovered child, Ms Berle’s opinion is sought in many places and she never stints from dispensing the advice she got far and wide.

Baxter Berle was diagnosed (at least partly it seems) by Scientologists. If I may quote myself:

Baxter Berle attended a school called ‘The Learning Castle’ which is an alleged elementary ‘feeder’ school for the Renaissance Academy with which it shares a campus (there seem to be about seven separate units on campus all feeding the Renaissance Academy). Here’s a little bit of information about the Director of the Renaissance Academy, Ann Hazen;

Renaissance Academy is truly bringing education back to life through the use of a full academic program, athletics, the Arts, a warm and caring staff coupled with the brilliant study and educational philosophies of humanitarian L. Ron Hubbard.

Yup, they’re Scientologists too.

So Scientologists had a big say in the diagnosis of Baxter Berle. What about his recovery? I was recently forwarded this email by a member of a autism/vaccine group Ms Berle is also a member of:

— begins —

Re: Opinion of Dr. Nancy Mullan ?
Sun Jan 28, 2007 6:25 pm
— In autisminterventionsocal@yahoogroups.com,
“djberle” wrote:

Hey there,

We used Dr. Mullan to recover Baxter. I like that she stays cutting edge on top of all new topics as it relates to autism. She attends numerous conferences to stay current. I also highly respect her availability to parents and compassion to “work with you” on
all aspects (to include financial to some degree). She cares deeply for our children and wants to help them….Our experience with her was very positive. I refer her often to other local. parents. I also refer Dr. Hirani as she helped us as well.

— ends —

So Dr Mullan recovered Baxter. Dr Mullan is also a Scientologist. She is the Medical Director of the Scientology owned Safe Harbor organisation. She also used Dr Hinari who studied under Julian Whittaker – another doctor with Scientology connections.

Here we have a situation where Scientologists have (maybe) diagnosed, treated and recovered a boy. This boy was subsequently turned into one of the poster children for successful recovery by Generation Rescue (of whom Ms Berle describes herself as a founding member).

Maybe I’m just a cynic but this reeks of ‘set up’ to me.

Advertisements

97 Responses to “Autism and Scientology again”

  1. jackparsonsghost March 14, 2007 at 06:41 #

    I’m having a bit of a hard time understanding how Ms Berle fails to see Renaissance Academy when she turns off Foothill onto Cornishon. I’ll be sure not to be driving near there when school lets out. Don’t want the Bentley to get banged you know.

  2. Kev March 14, 2007 at 07:42 #

    Goodness me.

    First, many thanks to my relief admin. I went off last night to hear Sir Tim Berners-Lee give an excellent lecture and hence missed all this. Sorry that xe had such a hard initiation ;o)

    re: comments not appearing. All false modesty aside this is a popular site and as such attracts a lot of comment spam, therefore I have to put spam catchers at a much higher level of alertness than I normally would, or would like to (for example 2 or more links in a comment will trigger the script, as will repeat posting of the same comment).

    Best thing is to post your comment. If it doesn’t appear, don’t try and keep posting it as that is typical spam behaviour and will trigger the script. Just mail me instead and I’ll try and find and free the comment manually.

    Its either this way or have to look at some fairly hardcore porn spam (amongst other things) of which I get about 200 plus a day. Bear with me.

    As to your points. I’m sorry I find it impossible to believe that you don’t know about the Renaissance Academy as it shares the exact same address as the Learning Castle and is, as I’ve ascertained from other parents in the area, a feeder school for the RA. The RA is a Scientology operated affair. A simple glance through their website is enough to ascertain this easily.

    None of this is to suggest that you knew it was a sci school, or that you are a Sci yourself. However it does place your son in a position wherein his scholastic environment (which the news report you bandy around say ‘diagnosed’ – or at least contributed to the diagnosis of – Baxter) at least contributed to that diagnosis. Its also a fact that your son was (in your words) treated by and recovered by scientologists.

    Again, no reason to suppose you knew of their background – you may well have been duped. I understand they’re very good at that. I’m also not claiming your son wasn’t autistic. I’m simply pointing out the level of involvement scientologists have had in your sons life as it pertains to autism.

    edit: seems my GMail acct is playing up….sigh….

  3. jackparsonsghost March 14, 2007 at 07:50 #

    _”Welcome to L. Ron Hubbard High School”_

    http://x17online.com/celebrities/tom_cruise/call_it_cruiseshaw.php

  4. julia berle March 14, 2007 at 13:05 #

    Ugh. Sigh.
    The stuff you all perseverate on.

    There are many schools on that block. The Learning Castle is one of them. So is (apparently…I never really paid attention) The Renaissance Academy, Frog’s Leap Hollow (or Frog’s Hollow leap? I assume but don’t know ….that’s its some kind of preschool). Also some ballet school. Also La Canada Preperatory. THIS IS THE SCHOOL that TLC feeds into. TLC is NOT (I repeat NOT ) associated with either the Renaissance Academy, not the Frog’s leap one nor the ballet school….or any other school that may be there that I have not known nor cared about. Learning Castle and La Canada Prep are under one executive umbrella. My kids are on the playground with other TLC kids. The other schools do not interact. Check out TLC website and show me where it says they are affiliated with TRA. Theyre not.

    Kev-Its your blog you can do with it as you chose. Spam yes. That totally explains why I posted three times and only two reappeared and why it was up for hours THEN apparently caught by your spam machine.

    Ok. Sure.

    So the bottom line is I don’t care what religious affliations people have. i am not involved in Scientology but don’t care if others are. In every meeting with the doctors that treated Baxter…religion was not once mentioned. Never. I don’t care if youre black or Hispanic or whatever. I don’t need to judge others. Anger and hatred are kind of a drag if you ask me. I reiterate my child was seriously ill. He was not happily blissfully passing away the hours in some wonderful autistic world. He was sick. The offer still stands to come meet him. He’s an awesome little guy.

    So today when I turn down Cornishon in my beat up mini van (sorry..no Bently, BMW, nope..no Mercedes…) I will cast my eyes upon ALL the signs. I will pay attention and count the number of schools. All in honor of all of you. Before I was concerned about my kids, their lunchboxes and homework and kisses goodbye. Now…I will read all the signs of the schools that have nothing to do with my kids. And I still won’t care if some school next door if Scientolgist based or christian based or Muslim or whatever. They have nothing to do with me and they live in a country where they are free to believe what they wish.

    Again,
    I wish you all the best for yourselves and your children. Whatever it is you desire. Truly.

    Julia
    Baxter’s mom
    recovered in 2005

  5. Kev March 14, 2007 at 14:02 #

    _”Also La Canada Preperatory. THIS IS THE SCHOOL that TLC feeds into. TLC is NOT (I repeat NOT ) associated with either the Renaissance Academy”_

    Once more Julia, no one is saying its a direct feed. The information I’ve been sent by other parents in the area – parents who aren’t antivaccinistas nor scientologists – is that _all_ the schools on that campus share a loose affiliation with RA as the place most of the kids will eventually end up. Whilst there may not be any official affiliation all the parents in that area I’ve had dealings with – other than you strangely – know all about the links between the schools and that RA is scientology owned and ran.

    TLC address:
    4490 Cornishon Avenue
    La Cañada, CA 91011

    RA address:
    4490 Cornishon Avenue
    La Cañada, CA 91011

    _”That totally explains why I posted three times and only two reappeared and why it was up for hours THEN apparently caught by your spam machine.”_

    The first one appeared immediately as it was never caught. The nest two were trapped as you posted text likely to identify it as spam and then posted the same thing in quick succession. These are spam like behaviours. I was out late last night and asked a friend to watch the comments which is why they reappeared. Someone was trying to do you a favour. Sorry, but I’m really not afraid of or unsettled by anything you have to say.

    _”So the bottom line is I don’t care what religious affliations people have. i am not involved in Scientology but don’t care if others are.”_

    Uh-huh. If we were talking about a religion then I’d agree. Scientology is not a religion. Its been involved in some very murky activities. I think if you’re going to recommend doctors to strangers over the internet then you at least should be responsible enough to tell them that they’re members of a cult many people all over the world believe to be dangerous and has been associated with instances of brainwashing and unexplained deaths. Why would you want to withhold this sort of information?

    That their ‘medical’ opinions and beliefs so closely match yours is, I guess, just another coincidence.

  6. julia berle March 14, 2007 at 14:30 #

    LOL!!

  7. anonimouse March 14, 2007 at 15:02 #

    Julia,

    The reason it’s relevant is that the diagnosis, treatment, and outcome as relayed by physicians associated with Scientology would raise red flags with the mainstream scientific and medical community. If you are going to promote your child as “recovered from autism” you need to accept the premise the the story will come under additional scrutiny. You don’t get to have it both ways.

    As to your other assertion, I do concede that there is no conclusive proof that TLC is associated with Scientology despite the fact its founder is a Scientologist and it is located at the same physical address as two other schools associated with Scientology.

  8. julia berle March 14, 2007 at 16:00 #

    Ok. Let’s end this once and for all.

    You are all right. I am wrong.

    Kevin…you’re like Santa Claus with a big fat snow globe that sees into my life. Better than myself apparently. You know whether I’ve been bad or good (I had like 4 diet cokes (chemicals…gasp!!!) yesterday but excercised for an hour and half…did you see that too?) Call up TLC and ask if they associated with TRA. They are not. I have no idea why they have the same address…I’m not into Southern CA zoning practices. It only takes a phone call.

    You all apparently know more about my son, his health, his medical records, his school his evaluations, his therapies his history….all from thousands of miles AWAY NEVER HAVING MET HIM!!! WOW! I want that globe. That omniscient power…. amazing.

    I get that his story can come under scrutiny. I am merely pointing out that you have no basis at all for your criticisms. COME HERE. Come meet him. Come see how the school is set up. Come see my cracked up mini van. Its supposed to be 93 F today…Disneyland is only a few miles away….you can make a vacation out of it. He can elucidate how it felt for him before and how he feels now. Come hang out. I’m a fun gal. Then…let’s talk.

    Ok. So you can be right and I’ll be wrong. I hope that makes you all feel better. phew.
    Now we can all go to sleep.

  9. Kev March 14, 2007 at 16:28 #

    And if thats what we were debating Julia you’d have an excellent point. However, despite your best efforts to build that particular series of strawmen, we’re not.

  10. anonimouse March 14, 2007 at 19:33 #

    Julia,

    The basis for the scrutiny is far less about whether Baxter goes to school and far more about the doctors he’s been involved with and their professional credibility. Considering you’ve mentioned doctors by name and are making the rather extraordinary claim that Baxter was autistic and is now cured of autism, you shouldn’t be surprised that people want to objectively check out your story.

    And no, meeting Baxter in person or being given the guided tour of his life won’t necessarily cut it. Although that seems to be an astonishingly common refrain for folks who believe in this theory…

  11. julia berle March 14, 2007 at 23:10 #

    What will cut it? What will it take? Is there anything? Or is your stance that there is no cure for autism.

    ?
    Again for those of you enjoying the school discussion.

    Hogs Hollow
    The Renaissance Academy
    LA center for the performing Arts
    Ballet somethign or other
    The learning Castle
    La Canada Preperatory
    AND
    La Canada Unified School District

    are all at that address. So under the theory you propose ALL of these schools are Scientologist based AND the entire school district of a city.

    As to my child’s supposed dysmorphy. Wow. Talk about hitting a gal when she’s down. Sorry you don’t think he’s cute. I do.

    Ok. you’re a fun bunch to hang out with (she said facetiously). But I’m gonna go celebrate my birthday with friends and try to shrug off all this negativity.

    As always,
    wishing you the best
    Julia
    baxter’s mom

  12. J March 14, 2007 at 23:36 #

    Julie, if there is a cure, why is it not mainstream yet? It would be EVERYWHERE if it was true. (or do you believe there is a conspiracy to suppress it, I am genuinely curious and no one else has answered this yet)

  13. Kev March 15, 2007 at 00:03 #

    _”So under the theory you propose ALL of these schools are Scientologist based AND the entire school district of a city.”_

    Er, no. Where did you get that from?

  14. Ms. Clark March 15, 2007 at 05:22 #

    My child has significant facial dysmorphology, different from your son’s but pretty obvious. One of the things is that the eyes are tipped up at the outside edge which is actually a dysmorphology that is recognized as such, but also makes the person have really pretty eyes, kind of like a Disney cartoon princess’s eyes. But dysmorphology is written as plain as day on your son’s face, sorry, it’s a fact. It’s the kind that indicates something different occuring very early in development (like when he was a few weeks into development). It doesn’t mean he’s not cute, it just indicates that there’s something there from very early on. I’m not the only one that can see it, it’s just most people are afraid to sound offensive. I’m into dysmorphology and I don’t think it’s offensive to mention it.

  15. Do'C March 15, 2007 at 06:45 #

    “It doesn’t mean he’s not cute, it just indicates that there’s something there from very early on.”

    I just watched a ‘recovery’ video of Baxter for the first time. He’s a great looking little boy.

  16. Kev March 15, 2007 at 06:55 #

    I find it fascinating that any suggestion of anything other than 100% normality in every respect (neurology, body shape, facial characteristics) is seen as an attack. Baxter _is_ a great looking kid. So is Jamie H. So is Megan L.

    However, what they look like doesn’t change a thing about how they were ‘treated’ or who they were treated by.

  17. century March 15, 2007 at 08:07 #

    “Whilst there may not be any official affiliation ***all the parents in that area I’ve had dealings with*** – other than you strangely – know all about the links between the schools and that RA is scientology owned and ran.”

    Who are you trying to kid?

    You’re a techie in Staffordshire – albeit with an agenda – so to try and make out that you have a large group of parents in discussion with yourself from this area in CA is laughable

  18. join groups 'n take over March 15, 2007 at 08:28 #

    Much like win friends and influence people.
    http://studytech.org/asi.php

    bq. A Clear Expansion Committee is an umbrella which coordinates all individual scientologists and groups involved in these activities so as to dramatically expand scientology in your area. Under the control of the Clear Expansion Committee all of these groups become an unstoppable force to clear the community.

    bq. This is very much along the lines of Hubbard’s “Special Zone Plan,” a policy that some have likened to “infiltration”. The touchstone of the CECs is a 1960 bulletin by Hubbard which has been reprinted in CEC publications such as the Flag Clear Expansion Committee Newsletter. Hubbard advises Scientologists to “just enter” wider society and introduce the principles of Scientology without necessarily telling any non-Scientologists what they are doing:

    bq. A housewife, already successfully employing Scientology in her own home, trained to professional level, takes over a woman’s club as secretary or some key position.

    bq. She straightens up the club affairs by applying comm [sic] practice and making peace, and then, incidental to the club’s main function, pushes Scientology into a zone of special interest in the club – children, straightening up marriages, whatever comes to hand, and even taking fees for it – meanwhile, of course, going on being a successful and contributing wife.

    bq. The cue in all this is don’t seek the cooperation of groups. Don’t ask for permission. Just enter them and start functioning to make the group win through effectiveness and sanity.
    (“Special Zone Plan”, HCO Bulletin of 23 June 1960)

    If a person thinks that Julia is playing the part of the wonder housewife and infiltrating GR, is that being paranoid? Does that person need to be cleared of thetans? How much will this cost?

  19. Kev March 15, 2007 at 08:42 #

    _”You’re a techie in Staffordshire – albeit with an agenda – so to try and make out that you have a large group of parents in discussion with yourself from this area in CA is laughable”_

    Yeah, how could anyone in one place talk with people all over the world…? Oh if only someone would invent something that would allow – I dunno – the electronic communication of messages….or maybe some kind of interface to have text-based discussions – or hey, here’s an idea, some form of transferring voice data over a network connection!

    But nah, you’re right – how could _these_ things ever happen?

  20. century March 15, 2007 at 08:50 #

    **“You’re a techie in Staffordshire – albeit with an agenda – so to try and make out that you have a large group of parents in discussion with yourself from this area in CA is laughable”

    Yeah, how could anyone in one place talk with people all over the world…? Oh if only someone would invent something that would allow – I dunno – the electronic communication of messages….or maybe some kind of interface to have text-based discussions – or hey, here’s an idea, some form of transferring voice data over a network connection!**

    Typical obfuscation

  21. J March 15, 2007 at 08:59 #

    Still no Scientologists/DAN members want to answer my question to the reason why the cure is not wide spread yet?

  22. Kev March 15, 2007 at 09:12 #

    _”Typical obfuscation”_

    Typical meaningless nothing….if you have a point, make it. Are you suggesting its technically not possible for people all over the world to get in touch with each other? If so then please see the answer above.

    Are you suggesting parents from that area haven’t contacted me? How do you think I got that email? Its from a closed access Yahoo group and contrary to popular rumour I don’t haunt these places unendingly and nor do I have access to a lot of them.

    Bottom line son: a lot of people don’t like the fact that scientology is mixed up with autism treatments. Some of them also don’t like the antivaccinistas such as Julia and Brad. I get *lots* of mail from these people.

    As an interesting aside, I also get email from people who don’t like the fact that I’m not pro the more rabid biomed as they are, but they hate the fact scientologists are mixed up in their movement even more and know I don’t take sides in things like this. I wouldn’t care if neurodiversity or (as in this case) dan! adherents were using scientologists and promoting their use to unsuspecting others. Its wrong and it would be wrong whomever was doing it.

    Look past your dislike of _me_ and look at what these people are actually doing. If a few mercury mums in CA can do it, how come you can’t?

  23. century March 15, 2007 at 10:58 #

    “Are you suggesting parents from that area haven’t contacted me?”

    Yes

    “How do you think I got that email? Its from a closed access Yahoo group and contrary to popular rumour I don’t haunt these places unendingly and nor do I have access to a lot of them.”

    You don’t haunt then as Kevin Leitch, that’s for sure

    “Look past your dislike of me”

    It depends who “me” is – you (KL) or your ghost writer(s) as there’s definitely more than one writer

  24. David N. Andrews M. Ed. (Distinction) March 15, 2007 at 11:54 #

    What?!

    Century, whatever it is you put in your coffee… you need to stop. Now.

    It’s making shite out of what should be between your ears.

    Get a life.

  25. anonimouse March 15, 2007 at 13:51 #

    Julia,

    I like how you’re perservating on the school question and ignoring the doctor question.

    I already conceded that where your son went to school is less relevant than the medical professionals that diagnosed, treated and proclaimed him “recovered”. (as well as what treatments were used)

  26. Kev March 15, 2007 at 14:08 #

    _”It depends who “me” is – you (KL) or your ghost writer(s) as there’s definitely more than one writer”_

    Are you joking?

    Surely you can’t be serious? And you’re accusing _me_ of a whacked out conspiracy theory?

    _”You don’t haunt then as Kevin Leitch, that’s for sure”_

    I have never posted on any autism related forum of any kind under anything other than my own name. Kev, KevLeitch, Kev_L, kevin – whatever.

  27. century March 15, 2007 at 14:22 #

    “Are you suggesting parents from that area haven’t contacted me?”

    Yes

  28. century March 15, 2007 at 14:29 #

    “It depends who “me” is – you (KL) or your ghost writer(s) as there’s definitely more than one writer”

    Are you joking? – no
    Surely you can’t be serious? – yes

    “I have never posted on any autism related forum of any kind under anything other than my own name.” – you visit them under an alias

  29. Kev March 15, 2007 at 14:30 #

    Century – you are one weird guy. Why are you repeating yourself?

    Now, should I answer? Or maybe me? Hey – how about me? Tough choice. I’ll do it.

    They did my friend. There’s simply no other way I could’ve gotten that email without speaking with at least one person from Julia’s yahoo group. There’s also no way I could’ve gotten the name of the Renaissance Academy without speaking to someone from that area. Think about it. Apply some of those neurons.

  30. Kev March 15, 2007 at 14:34 #

    _”Are you joking? – no”_
    _”Surely you can’t be serious? – yes”_

    Then I’m going to go ahead and add you to the list of crackpots. All posts on this site are conceived and written by me, Kevin Leitch. I feel silly even writing that down for you.

    _”you visit them under an alias”_

    I see. Which ‘me’ is that? The one who writes here or the one who ghost writes here? Or both? Neither?

    Sorry, mate, you’re a kook. Back to the land of fairies for you.

  31. Kev March 15, 2007 at 14:42 #

    Oh wait:

    _”you visit them”_

    As oppose to post? I see.

    You are one odd guy. If that’s supposed to be a secret then I don’t know what isn’t. I have access to approx four Yahoo groups – EoH, ABMD, Autism-Merc and chelating2kids. And when I say ‘access’ don’t assume that means an alias. The only antivax Yahoo group I have an acct with is EoH on which group I used to post.

    Now, I’m fascinated – who do you think is the shadowy ‘other’ who co-authors on here with me?

  32. J March 15, 2007 at 15:04 #

    Next they are going to accuse you of being in league with Psychiatrists or “big pharma” right? hehe….

  33. century March 16, 2007 at 22:21 #

    I’ve taken 24 hours to cogitate.

    To paraphrase earlier comments, “I’m an odd guy”, “a crackpot”, “a weirdo”, “a kook”, “I’m from the land of fairies”, “I take NiQuil (??)”, “I’m weird”, “I’m Kevin’s friend (?)”, “I’m a shite for brains who needs a life”

    All might or might not be true…

    but..

    at least I write my own words.

  34. anonimouse March 16, 2007 at 23:11 #

    century,

    Explain to me the benefit of Kevin Leitch using multiple writers, please? And even if it was true (which I doubt) why it would be even the least big meaningful?

  35. Kev March 17, 2007 at 01:06 #

    _”at least I write my own words.”_

    LOL! I invite you once more to speculate about which shadowy forces inhabit my blog…?

    I really don’t get why you think this. I mean its not the first time I’ve been accused of this (or variations such as being a paid shill, being a guy in London with some remote Pharma connection and the same name) but I never get _why_ people think these things?

    I’m _not_ a shill for anyone. I don’t even (and never will) accept any form of advertising on this site. I’m a web developer from the Midlands – thats it. Everything you see written on this site in the form of pages and posts is written by me and only me – why would I want someone else to write my blog for me? It makes no sense to me at all. What bothers you so much about the idea of one guy writing a blog that – because you don’t agree with the content – you have to invent silliness like this?

  36. clone3g March 17, 2007 at 02:08 #

    Maybe Century is thinking of Dr. Nick?

  37. Kev March 17, 2007 at 07:13 #

    _”Maybe Century is thinking of Dr. Nick?”_

    Aha! Of course ;o)

  38. J March 17, 2007 at 07:14 #

    Nuh uh, you have to be a mouthpiece the the “Evil Psychiatrists”(tm) or an agent of “Big Pharma”(tm)

    I’m suprised noone has accused you of being a “reptile” or part of the “illuminati” yet

  39. Lucas McCarty March 24, 2007 at 18:55 #

    Back from a long trip and read Greg’s reply, not only did he actually miss the point, but someone came along and demolished his counter-point to that point I wasn’t making. My brain hurts.

    My intention was to point out the ethics of ‘curing’ Autism, drawing comparisons with homosexuality, of which there are many appropriate comparisons to make with Autism. Greg missed this, thinking that I was accusing Scientology of being anti-gay(even bringing up the cliche “some of my friends are gay” which in no way changes anything because there are plenty of tolerant Christians that have gay friends even if they can’t accept the homosexual act), which I wasn’t. But then it turned out there was such an instance where the Church of Scientology demonstrated very anti-homosexual tendencies.

    That is beside the point, which is that there are ethics being ignored and Scientologists are complicit in this.

  40. julia berle March 24, 2007 at 20:09 #

    Hey guys,
    Animouse…if I appeared to be perseverating on the school question its because everyone kept asking. Mostly you. (see above). but as to the doctors…already answered those questions. Dr’s Mullan and Hirani while did treat Baxter…neither diagnosed him. The regional center (Don’t know whether they are Scientologists…don’t care) the School District..an entire team (Don’t know whether they are Scientologists…don’t care), and three Developmental Pediatricians (Don’t know whether they are Scientologists…don’t care), and even one Speech Path that didnt give me a formal diagnosis but was the first one to use the label of autism to me (Don’t know whether she is Scientologists…don’t care).

    If my kid fell out of a tree and broke her skull and was raced to the hospital…would you expect me to ask the Scientology association of the ambulance driver, the nursing and doctor staff that would treat her? Baxter’s situation was of emergency status…and if someone wanted to help him. I was all for it.

    I get that you think Hirani and Mullan are tied to Scientology. I don’t know…. again….nor do I care. They also did not remove his label. 3 of the above mentioned sources did. So they were involved in his biomed treatment. That is all. They did not diagnose him nor remove his label. They treated him. I get that you guys care and care alot. I don’t.

    Do you guys know that Mullan’s MD is in Pyschiatry? Isn’t that a bit incongrous to your theory?

    I was told that my child would most likely never talk, be potty trained and may even have some mental retardation. He rolled car wheels and watched water pour for hours on end all the while crying incessantly. He had yellow diarrhea running down his legs at all times, he never slept, he had fungus eating away at his skin. He is now a happy joyous fun little boy with tons of friends and activities. I am fascinated you find the concept of his recovery so ridiculous.

    So…I’m certain I’m wrong again. That crystal ball of yours knowing my life better than I know myself. Time to stop this and go play with my kids.

    My usual…
    wishing you the best for yourselves and your families,
    Julia

  41. Lucas McCarty March 25, 2007 at 03:27 #

    “I was told that my child would most likely never talk, be potty trained and may even have some mental retardation.”

    You were told a lot of bunkum about Autism proven wrong decades ago but still linger in some places where they are still using the same textbooks and the practitioners don’t bother actually bothering to learn anything before forming a professional opinion on it. You should have been referred to an Autism specialist affiliated with a university(they do a lot of diagnoses for Autism so are reliable).

    I don’t know more about your child than you, but I do know more about Autism than you and I can say that to quite a lot of people(including generally well-qualified psychiatrists and psychologists). Do those who frequently(and you are not the first) make claims of recovery actually realise what is factually known about Autism? It is extreme malpractice and absence of ethics to remove a diagnosis, but as you say you don’t care, you’re fine with it, regardless of the long-term consequences it might have for your son.

    By the way, psychiatrists generally do not know squat about Autism. There is no particular area of psychiatry that deals with it and little information about Autism which can be considered psychiatric in nature. It is however field in which psycholoy has abundant information; psychologists are scientists, a quite many steps up from doctors in terms of informative research, scrutiny and understanding of Autism that psychiatry alone simply doesn’t cover.

  42. z. autist March 25, 2007 at 03:58 #

    But. Julia, he *was talking* in that video of him in your kitchen. Wasn’t that supposed to be before his diagnosis? They told that he’d never talk? After he was already talking? I see you used Doctor’s Data Inc. lab for your son’s heavy metal testing. You know that the results are meaningless, don’t you? If I had a child that looked like your son I’d want to know if he had a genetic disorder.

    The scientologist MDs would be uninteresting if it weren’t that you so strongly denied knowing what a scientologist was and that you’d never heard of a school whose sign is shown in the background of a video you are in and which school operates out of the very same address as your son’s school. You strain credulity. The school property is owned by the public school system and leased to the scientologists that run the schools on that property so it would seem. Neither would any of this be interesting if scientology was a legitimate religion. It is a dangrous cult. Most people seem to be able to see that. You defend them and try to change the subject in a way that makes you seem like you are one yourself. You are welcome to be one, but you ought to tell people if you are one, otherwise there’s more reason to doubt what you say.

    Best wishes to you and your family, too. Good luck getting out of scientology if they have their hooks into you.

    z.a.

  43. julia berle March 26, 2007 at 18:42 #

    Sigh.

    the very first thing we did was have him genetic tested due to my being adopted. The Specialist ran countless tests for numerous genetic disorders. I remember doing way more than the average “panel” because I have so little medical background. the tests revealed nothing. Nothing. His head is large. So are both his parents. His eyes slant down so did his great grandfathers. I have since found my biological family on both sides and there is no history of any genetic disorder nor autism. Sorry. But there is no genetic problem. Period.

    He DID see an autism specialist MD affiliated with a large University who proclaimed him moderately autistic…with not much optimism for his future.

    You call that talking? For a three year old? “aaaah? bababa d-d-d-d-” and “pruh” for plow? Puhleeze. Thats not talking. Thats vocalizing. My 18 month old could talk in two and three word sentences.

    My asking about the school across the street would be like going into McDonald’s and asking to meet the manager at the Taco Bell next door. I didn’t know about that school because Its not my kids school. i defy you to prove that they are in anyway related. I only found out they all have the same address from you all. So the School District for the city is there too. Are they all Scientologists? They apparently have the same address too.

    Sigh.

  44. anonimouse March 26, 2007 at 19:22 #

    His head is large. So are both his parents. His eyes slant down so did his great grandfathers. I have since found my biological family on both sides and there is no history of any genetic disorder nor autism. Sorry. But there is no genetic problem. Period.

    Some of the new research that is coming out illustrates the fact that you don’t need a history of autism in the family for their to a spontaneous “blip” in one’s DNA that could manifest itself as autism. So even if it is true that there is no history of autism in your family that doesn’t mean that genes didn’t play a role.

  45. avoiding the emeter guys March 26, 2007 at 20:21 #

    The “school district for the city” is NOT there Julia. The city rents the space out to the schools that now occupy the space that was formerly occupied by public schools, so I understand.

    The school district is paid rent by the Scientology run schools on that site. Perhaps a phone call to the school district would explain if there is only one organization paying for the rent for all the schools on that site, your son’s school and the other scientology teaching schools.
    Do you have plans to put your kids into Renaissance Academy eventually? If you do, then maybe it’s because The Learning Castle is a feeder school for RA?

    I know you feel picked on, Julia, but really, your stories are so out-there. And it doesn’t help that you put the lab results from DDI in your presentation slides. It’s really quite sad that you think your child is mercury poisoned from misleading results from DDI.

  46. Lucas McCarty March 27, 2007 at 09:24 #

    Erm, there is no single gene implicated in Autism. You can’t detect Autism with genetic testing and it is impossible to say it didn’t exist in any family tree because the criteria used changed fifteen years ago precisely because it was inaccurate.

    Now here is where I have a problem ‘Autism Specialist MD’ is an oxymoron. In precise medical terms, Autism has no medical definition(there seems to be a bizzarre widespread assumption that symptoms+diagnostic criteria = medical condition), ergo it can not possibly be something an MD can specialise in, which is why there are no psychiatric experts in Autism. This is further compounded by the fact that the MD you saw talked utter trash about Autism.

    Autistics often do talk and have it completely dismissed with nonsense like “It’s not speech, it’s *insert something else here*” or some other form of communication that is also dismissed. Despite there being plenty of evidence for this, it is still assumed that the Autistic is at fault when mutual communication attempts fail.

  47. Kassiane March 28, 2007 at 00:06 #

    I’d want a genetic profile too…and not just “oh we’ll draw some blood”, a REAL good geneticist who knows WHAT he or she is looking for from measurements and looking at the face (Baxter is cute, he just has dysmorphic features. So what? I’ve got the facial dysmorphism that Ms Clark talked about 2 weeks ago, and arachnodactility and whacked-out proportions in my limbs and microcephaly *shrug*. At least they knew where to start looking). Some things they CAN”T find a gene for even if it’s a defined syndrome.

    And not even necessarily to see if it was the source of the autism, or the yellow diarreah (though I’d get that checked out if it started up again, because…um…that sucks). More because genetic stuff that starts WAY back in utero can come with other organ problems, many of which are silent till they go way bad. Or which are written off as a mild thing and are a moderate to severe thing. Or just can’t be described because if you have it every day it feels normal.

    Most docs won’t do a full genome scan anyway, it’s too expensive, insurance won’t cover it, and the chance of finding something positive instead of just “unknown anomaly” is so low.

    This all has nothing to do with scientology, biomed, etc…more to do with concern for Baxter, especially as genetics has BOUNDED along since his diagnosis.

Comments are closed.

%d bloggers like this: