Dear Dr. Kartzinel

3 Oct


47 Responses to “Dear Dr. Kartzinel”

  1. mandyque October 3, 2007 at 11:59 #

    Dear Dr Kartzinel, and anyone else who subscribes to this doctors opinions,
    My daughter is on this presentation, second from last. That day we were enjoying a trip on a ‘pirate’ ship, she loved the sensations as we bounced over waves and swells in the sea water and to see the town from way out at sea. Far from being soul-less she really lives her life to the full, enjoys so much and has lots of fun. She has a bright, happy-go-lucky personality and loves singing, dancing, music and all kinds of things which children enjoy.

    She is also severely autistic, non-verbal and has a functioning age of around 12-18 months, although she has ‘pockets’ of age-appropriate skills such as jigsaws and playing nintendo games. I certainly don’t want to put her through anything which will change her personality and spirit, take away her autism and you take a part of her away, the same as if someone snatched away a part of my own personality.

  2. Kev October 3, 2007 at 12:06 #

    There were lots of photos I couldn’t get – wrong resolutions or I simply missed them. They will be included in the next version.

  3. Ian MacGregor October 3, 2007 at 12:07 #

    What a beautiful and moving video. I am speechless. I wish it could ge the play it deserves.

  4. bullet October 3, 2007 at 12:07 #

    That was excellent :). I forgot to send Tom in so will get a photo off for the next version now.

  5. Tito Rajarshi Mukhopadhyay October 3, 2007 at 12:20 #

    Yes, I understand that part completely. I can’t dream of changing. Why must a dollar be changed into a dime without inflation?
    I can not ‘handle’ money, but I can compute. Thanks to credit cards. They have solved my problem.
    I would not be able to talk like others do using speech but I can write and type. Thanks to paper and pencil and computers.
    I can do certain things and cannot do certain things. Why should I need to do everything which everyone can or cannot do?
    Even a doctor cannot stitch his own shirt or bake his own bread.
    Even the Creator will not make a mountain which He Himself cannot break.
    Even the -and more even the– examples are being ready to come out of my head, even if I have to stop now before people get tempted to throw ripe tomatoes at me.

    Tito Rajarshi Mukhopadhyay

  6. Elissa October 3, 2007 at 12:36 #

    Our children have beautiful souls….. just as they are.

  7. Erica October 3, 2007 at 13:21 #

    I had tears of hurt and anger when I read Dr. Kartinel’s words. now I have tears of joy and pride watching your videos. those chlidren are so precious and full of life, not a one is soulless. Thank you to whomever made this video!! i never want anyone to think of my kid as a souless being. Nobody should ever say such a thing about another human being who has done them no wrong, adult or child!!!! doesn’t dr. Kartinel also have an autistic child? why would he say such demeaning things???

  8. suzanne October 3, 2007 at 13:58 #

    This is brilliant! Needed saying, but even more than that, it needs to be heard and understood!

  9. Regan October 3, 2007 at 14:48 #

    Beautiful children all.
    Thanks for sharing them and making the video.

  10. Casdok October 3, 2007 at 14:59 #

    Will if you will get a reply!!

  11. Casdok October 3, 2007 at 15:00 #

    Sorry…wonder if..

  12. Phoebe October 3, 2007 at 16:52 #

    My son is the second one. He’s outside on a fresh spring day, a bit grimy, and very delighted that winter is passing and he can play in the backyard again. He has minimal speech (many nouns) but he manages to express himself quite well nonetheless!

    I disagree completely with Dr. Kartzinel.

    My son, far from being soulless, is seemingly blessed with an abundance of soul. His joy in the small things of life is unmatched by anyone else I know, and, yes, his despair is also a force to be reckoned with. He is growing and changing every day, learning to communicate more clearly and learning how to navigate the world, as all children do.

    He is a perfect human being, made in the image of his Creator. His autism is part of his soul, not some evil ‘other’ taking him away from us. He has not sucked the marrow from us.

    Our lives are better with him in it.

  13. Estee October 3, 2007 at 19:44 #

    Wonderful job. Another one for The Autism Acceptance Project Video Vaut.

  14. Club166 October 3, 2007 at 20:30 #

    Thanks, Kev.

    Well done, as always.


  15. Ms. Clark October 3, 2007 at 21:56 #

    Thanks, Kev. I am going to blog it.

  16. Schwartz October 3, 2007 at 23:06 #

    Those are lovely.

  17. Bink October 3, 2007 at 23:43 #

    I finally got to a computer where I could hear the sound and see it. Thank you for making this. The pictures of these beautiful children lifted my spirit. I will send a picture of my autistic child if you wish for the next one; I am not sure how this was made. I have many pictures you could use — ones in which she is joyfully sucking the marrow from various family members purely by the force of her smile, for instance. Or ones where I would have to specifically identify her as “the soulless one” in the middle of a group of happy, smiling children. It’s kind of hard, sometimes, to tell which one is the child without a soul in the middle of a bunch of NT kids! I’ll let you know, though!

  18. chaoticidealism October 4, 2007 at 00:05 #

    Autistic children seem often to be such beautiful children… They are happy, smiling in these pictures; and the smiles reach the eyes, not like smiles that are just posed for the camera. How could anyone think they don’t have souls? Communication difficulties do not make anybody less of a person.

  19. Anne October 4, 2007 at 00:51 #

    Wonderful vid, Kev. My guy has plenty of soul. He’s a soul man!

    “Got what I got the hard way
    And I make it better, each and every day
    So honey, said don’t you fret
    ‘Cause you ain’t seen nothing yet”

    Soul Man, Hayes & Porter

  20. Another Voice October 4, 2007 at 01:09 #

    Kev, wonderful work on this. Truly, a picture is worth a thousand words. The people expressing themselves on this clip were also wonderful. They were far more charitable to this Kartzinel creature than it’s comments were about autistic children.

  21. Jackie October 4, 2007 at 02:18 #

    If Dr. Kartzinel wants to talk about “soul-less children”, maybe he should be working on those who bully the Autistic, or bullies in general. They behave as if they have no soul.

  22. Steve D October 4, 2007 at 04:09 #

    I love the pictures. Even more, I love the transcript. Nice work, Kev.

  23. Steve D October 4, 2007 at 04:10 #

    Oh, and the picture of iRunman is just … excellent.

  24. Erica October 4, 2007 at 04:57 #

    thank you Autism Diva for your blog post. you said to make comments here. today what I feared happened a good friend had to tell me about Jenny M and her recovered son. she said that is sounded pretty easy, diet and antifungals. i felt like there was an accusation in there that I wasn’t curing my kid with this simple cure. it was kind of offensive and I hope it doesn’t happen again. if gfcf and antifungals was recovering kids right and left then people wold be shouting it all over the place but it isn’t happening for most who try.

  25. Ms. Clark October 4, 2007 at 06:12 #

    Erica, You’re welcome. Thanks to Kev for this video. 🙂

    I’m afraid Jenny’s facile comments about how easy it is to cure autistic kids has already done a lot of harm, and I think it’s going to spread out like an infection all over the world… at least in places that have Internet access…”have you heard, Jenny says don’t vaccinate and if you did, just get the kid on a restrictive diet and a prescription for Diflucan… no tests needed, really, you can tell when a kid is yeasty by looking at them!”

    Can you see how all the 12 month olds who are short on eye contact could end up getting treated like this? It’s really scary.

  26. Kev October 4, 2007 at 07:09 #

    That’s terrible Erica. I’m so sorry you had to listen to such rubbish.

    If it helps, you can tell your friend you know several people on a blog who tried the diet years ago and it made absolutely no difference whatsoever.

  27. Sharon October 4, 2007 at 09:29 #

    I like the video.

    The quote from Kartzinel is shocking and cruel. I have an son. He’s healthy, happy and autistic. He and his siblings love each other and are great friends. I couldn’t imagine life without the extra joy and pleasure he brings to our family. We know he doesn’t need any sham ‘therapy’ to leach us of our income, which is the way autism quacks work on ‘sucking life’s marrow out of the family’.

  28. Erica October 4, 2007 at 13:55 #

    i’ve been around the block in the autism community a few times. I know plenty of people who did all the diet stuff and treated for yeast and lots of other things on top of it. most are not claiming recovery. i am worried that Jenny M has made her message seem so simple that there will be an attitude of discrimination towards families that have autistic children, especially older kids or adults. that our kids autism is our fault. when you are the mom people automatically think everything is your fault anyway whether they say it or not. there is an attitude in the USA that if you throw enough money and determination at something it will eventually be solved and everything will be great like a movie ending. we are saturated with against all odds stories and we love those. Everyone is admiring Jenny M but most people in the alternative treatment community will say she got off easy, that is what I would have said. she did two of the cheapeast and non invasive biomedical interventions: gfcf and antifungals. She also had big money for the best therapies. but what people see on tv is clips of her sitting on the floor doing therapy with her kid and don’t see the 8 hours of therapy with a paid therapist. so they think the rest of us without those resources should be able to do the same.

    Besides that I think her message was in a way offensive. she didn’t tell her boyfriend for 2 months that her son had autism and didnt even let him meet Evan. like he was a dirty secret. we let people know right away that our kid is autistic, if they don’t like it or it puts them off then we got it out early and we don’t invest emotional energy in building that relationship. we don’t hide our kid and would never do a family outing where our autistic kid can’t go. life is the #1 therapy. when R was young it was hard to go out with the running away and tantrums but we did it and now R can go anywhere no problem. I don’t want my kid to be mommy’s fault or problem or secret. hiding kids is wrong. they need to be out so people can see them and when people see differences they learn not to fear or avoid.

  29. Joseph October 4, 2007 at 14:00 #

    It doesn’t appear Jenny thinks it’s that easy to cure an autistic child. Why would she be spending, what, $100K, $200K a year in ABA? Why not just cure the kid with biomed if she actually believes it’s simply a biomedical issue?

    I have my doubts about the whole thing. I don’t think her kid was “low functioning” to begin with. She didn’t even notice the autism, until there was a seizure, or so I’ve read. The kid was diagnosed at 2. There’s no way you can tell low functioning from high functioning at that age. In fact, it’s not that uncommon for kids diagnosed at 2 to lose their label a few years later. Now, who told her the child is no longer autistic? Could that have been Kartzinel himself? A guy so delusional that he thinks he’s cured his father-in-law’s Alzheimers?

    I’m calling bullshit. Are there before and after videos? Perhaps we can add a video to the collection of “recovery” videos that include the Berle kid and the Redwood kid.

  30. Jen October 4, 2007 at 14:50 #

    Does the parent of a child with Down’s Syndrome bring them home from the hospital and spend the rest of their life trying to “cure” them? Like children with Autism, Down’s children are not without their challenges. However, we seem to have accepted them for who they are. When I finally accepted my autistic sons for who they are (amazing and talented young men full of potential), I stopped looking for “the cure”. The only thing worse than thinking that children with autism are “sick” and need to be fixed, are professionals who willingly dupe and fleece the parents of these children. Thank you for shedding some light on the other side of the story.

  31. Another Autism Mom October 4, 2007 at 15:38 #

    I’m proud to see my son on this video. If he ever sucked out my bone marrow is because I love him so much, I’m so crazy about him that nothing else in my life matters more to me. I can’t wait to be with him again whenever I spend a few hours away. He’s so happy, affectionate, funny and amazing. We have a normal family life and take him everywhere.

  32. Joseph October 4, 2007 at 16:26 #

    Does the parent of a child with Down’s Syndrome bring them home from the hospital and spend the rest of their life trying to “cure” them?

    The reason for the cultural difference is obvious I think. It’s not that biologically there’s a whole lot of difference, considering that in Down’s you’ll find there’s advanced maternal age, and in autism there’s advanced paternal age.

    The cultural difference is because the autistic kids look normal. The Jenny followers assume that means they are normal, with a few biomed tweaks here and there. Others think that you just train the [expletive] out of the kids so they act normal, and since they look normal, they become normal altogether. It’s magical thinking, nothing more.

    And of course there are environmental factors that are important in both Down’s and autism. It’s things like institutionalization and integration. I understand that life expectancy has doubled in Down’s compared to the 1980s. Is that an achievement of the medical model? Maybe in part (there are medical conditions that are fairly common in Down’s) but it has been attributed to reduced rates of institutionalization.

    I don’t think most people realize how things like institutionalization, and probably integration, are much more of a factor in outcome than any biomed or behavioral thing that is done to disabled people.

  33. Richard October 4, 2007 at 17:06 #

    Thank you for writing that letter!

  34. Sullivan October 4, 2007 at 21:49 #

    “Does the parent of a child with Down’s Syndrome bring them home from the hospital and spend the rest of their life trying to “cure” them?”

    Knowing why the rates of Down Syndrome has dropped, I smile whenever I see a family with their Down kid. Sometimes those kids are adults, but knowing that often a parent made a choice, I admire the courage.

  35. suzanne October 5, 2007 at 02:35 #

    Having our firstborn (me=33, he=42, Joseph;) ) with Downs is the best possible thing that could happen for his little brother. We learned a good deal of patience, and never thought either needed curing. Certainly neither are soul-less!

  36. suzanne October 5, 2007 at 02:38 #

    OH, but what I came here to say was, I was glad to see the YouTube stats
    Honors for This Video:
    #19 – Most Viewed (Today) – People & Blogs – United Kingdom
    #21 – Top Rated (Today) – People & Blogs – United Kingdom
    #54 – Most Discussed (Today) – People & Blogs – United Kingdom
    #8 – Top Favorites (Today) – People & Blogs – United Kingdom
    At least the UK is listening

  37. Maddy October 5, 2007 at 15:57 #

    Thanks Kevin, well done.

  38. Jill October 6, 2007 at 06:49 #

    “steals the soul from a child” —

    Thank you, other parents, for spreading awareness and not tabloid-quality statements about autism.

    My son has a soul, and his is one of the most beautiful souls I’ve ever met.


  39. Angela October 6, 2007 at 21:10 #

    Well I my self have a son that is serverely autistic,He is a happy beautiful boy that’s smile could light up a whole city. I just finished Jenny’s book, I think everyone is taking what Dr. Kartzinel said to be cruel when that was not the intent. I had a child that was “normal” and then regressed and if I look at some pictures before bio-medical intervention he looks so stone cold in some pictures like the life had been sucked right out of him and I think that is what he meant that it is stealing our children from us. He has a son with autism that he is trying to make better and has dedicated his practice now to trying to change the lives in as many families as possible. Him and his practice partner Dr.Julie Buckley don’t claim to cure your child but they try everything they can to help make them better. My son has been seeing Dr.Buckley and DR.Kartzinel for about 7 months now and in doing so much better although we still like many others have a long road ahead of us. They tell you some children respond amazingly to some treatments and some just a little, the gfcf diet was a pretty big change in my son and the way I look at it if it might help and it wont hurt him we are going to try it.Just to let everyone know Dr.Kartzinel and Dr.Buckley at pppv are beautiful people with their hearts in the right place. It’s the only place when I walk in the door they give hope…….hope that we can make these kids so much better than where they are now.Instead of someone telling you your doing all your therapies and thats all you can do. Prepare your self for a child that will never take care of thier selves. I will never and I thank God everyday I have such wonder caring doctors for my son behind me to help me fight to bring him back.

  40. Big White Hat October 7, 2007 at 03:14 #

    Have you been getting hateful comments yet?

    I’m filling up my moderation queue pretty fast.

    All I did was make a joke.

  41. Kev October 7, 2007 at 06:28 #

    Not too much actually. The odd one or two but nowhere near as bad as the stuff I wrote about Rashid Buttar.

  42. mommy~dearest October 12, 2007 at 21:45 #

    Awesome. Awesome. Awesome. Beautifully put.

  43. Another Mom October 14, 2007 at 20:42 #

    I think you guys are missing the point.
    Dr. Kartzinel is speaking of the kids who are on target with normal development one day and then due to outside factors are changed by autism the next-some simply regressing, others seemingly slipping into their own world.
    But, yes, maybe his choice of words was a bit harsh.
    But, he, too, is a parent of an autistic child. Maybe it’s just his anger and deep feelings towards the Autism that surfaced. Don’t knock him for it.
    I have to ask: If your child broke a bone, would you not have that fixed? If they showed signs of not seeing well, would you not get them glasses?
    I know I would. And, I would not in anyway be denying who my child is, but simply helping them to be in less pain or have less difficulties to deal with.
    I know most parents of autistic children help them by obtaining traditional treatments and therapies for them, so why the anger towards someone who is claiming to have helped their own child/ren in alternative ways?
    So, I’m not saying that you can as I understand each autistic child is different, but if you could take away some of the struggles that your child endures on a daily basis, wouldn’t you?
    It’s not about the Autism.
    It’s not about accepting/denying who our children are; it’s about helping them to achieve their potential, helping them evolve, learn, and grow.
    Please think about that. Have an open mind.
    Learn about the options for helping our children to not simply be who they currently are, but to become the best/most they can be one day.
    It’s what all parents of all children should strive for.


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