If I were local, I’d take the day off and go to this: ASAN Symposium on Ethical, Legal and Social Implications of Autism Research. The event is December 10th, and there is more seating available now. But you have to register (it is free):
The Autistic Self Advocacy Network, in conjunction with the Petrie-Flom Center for Health Law Policy, Biotechnology and Bioethics, the Harvard Law Project on Disability and the UNESCO Bioethics Chair American Unit, is proud to invite you, to join us on December 10th for a Symposium on Ethical, Legal and Social Implications of Autism Research at Harvard Law School. The free event will run from 9 AM to 3 PM at the Harvard Law School campus, Hauser Hall, Room 105.
Additional seating has become available. Please keep in mind that seating is still limited. Once these seats are taken, there will be no more available. If you are unable to get a seat or cannot make it to Massachusetts, the symposium will also be webcast live. Details to follow next week.
Topics covered will include prenatal testing, community participation in research methodologies, appropriate and inappropriate intervention goals and much more.
This symposium will serve a unique role in shedding light on ethics and values issues within the autism research community. By bringing together self-advocate and researcher participants, we hope this will serve as a starting point for meaningful dialogue between those conducting research on autism and the community of Autistic adults and youth. Confirmed participants include Administration on Developmental Disabilities Commissioner Sharon Lewis, ASAN President and IACC Public Member Ari Ne’eman, National Institute on Child Health and Human Developmental Director Alan Guttmacher, Harvard Law Professor Michael Stein, Paula Durbin-Westby, Emily Titon, Liz Pellicano, David Rose and many more.
This event is open to the general public without charge and is made possible by a grant from the Administration on Developmental Disabilities.
Get more information
Register Now!
I can’t make it
Please join us as we begin this exciting conversation. Space is limited, so please RSVP soon.Sincerely,
The Autistic Self Advocacy Network
Argh, I am local, and would go, but registration is closed. 😦
Dang that was fast.
I sent an email saying if they got a cancelation to put me in and I just got notice that they did have a cancelation so I will be there. 🙂
Since I will be going, and this is my first foray into IRL autism advocacy, does anyone have any points they would like me to bring up?
I am thinking about asking how many people have been bullied. My guess is that most of the ASD people have been but few of the NT people have. Reducing bulling of people with autism would be an intervention that would have a big impact and should be trivially easy to do in that it doesn’t require any new science.
Live tweeting this morning and afternoon, from the webcast not in real life. For you twitter users, hashtag is #ASANELSI (#asanelsi)
OK live tweet stream storified, up at
http://thautcast.com/drupal5/content/asan-symposium-ethical-legal-and-social-implications-autism-research-live-tweets
and
http://lizditz.typepad.com/i_speak_of_dreams/2011/12/livetweeting-asan-symposium-ethical-legal-social-implications-of-autism-research.html