Let the IACC know what you think is important

29 Oct

If you haven’t taken the chance to email the IACC with feedback on where you think autism research and policy should be going, take the time now. You can do so by emailing IACCPublicInquiries@mail.nih.gov

Today and tomorrow were supposed to include the IACC 2012 Strategic Planning Workshop. The IACC being the U.S. Interagency Autism Coordinating Committee. One of the main products of the IACC is the Strategic Plan. Per public law 109-416 (which re-instituted the IACC back in 2006):

(b) RESPONSIBILITIES.—In carrying out its duties under this section, the Committee shall—
(1) develop and annually update a summary of advances in autism spectrum disorder research related to causes, prevention, treatment, early screening, diagnosis or rule out, intervention, and access to services and supports for individuals with autism spectrum disorder;
(2) monitor Federal activities with respect to autism spectrum disorder;
(3) make recommendations to the Secretary regarding anyappropriate changes to such activities, including recommendations to the Director of NIH with respect to the strategic plan developed under paragraph (5);
(4) make recommendations to the Secretary regarding public participation in decisions relating to autism spectrum disorder;
(5) develop and annually update a strategic plan for the conduct of, and support for, autism spectrum disorder research, including proposed budgetary requirements; and
(6) submit to the Congress such strategic plan and any updates to such plan.

You can read more about the Strategic Plan, at least how it looked in 2011, to help formulate ideas on what you think is working and what isn’t. But I would suggest don’t feel constrained to work into the Strategic Plan format. If there are areas you feel need more attention, let people know.


By Matt Carey

Note: I serve as a public member to the IACC but comments here and elsewhere are my own.

Advertisements

3 Responses to “Let the IACC know what you think is important”

  1. Lara Lohne October 30, 2012 at 00:59 #

    I just sent in my suggestions. Assistance with transportation to therapy sessions for those who are transportation challenged, and more resources and/or coverage for adolescent and adult evaluations for ASD. More support for their care givers also would be good, but that isn’t the main priority so I didn’t include that.

  2. Rosalind Jimenez November 2, 2012 at 03:42 #

    Since the official “request for public comment” period has passed, what is the purpose and use of these further input? There’s a difference between a request for comment and an agency simply saying it’s open to suggestions; i.e. “we’ll stack them up and review how they look in 5, 10, 15 years.”

    • Sullivan (Matt Carey) November 2, 2012 at 04:01 #

      There was a specific “request for public comment” in 2010 as I recall. That was a specific event for an update of the Strategic Plan as I recall.

      Emailed comments or oral comments at meetings are keot as part of the public record and are made available to IACC members.

      For the July meeting we were emailed something like 120 pages of comments that had been submitted since the previous meeting. We also got these comments printed out at the meeting.

      I read all the comments as soon as I got them and it was cleat that other members had read them as well.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

w

Connecting to %s

%d bloggers like this: