The proposed House Bill 4631: Combating Autism Reauthorization Act of 2014

21 Jun

The U.S. House of Representatives has a bill proposed to extend autism research funding and coordination for another five years. The bill, HR4631, the Combating Autism Reauthorization Act of 2014, was introduced by Member of Congress Christopher Smith and has 80 cosponsors.

The bill has already gone through one round of modification which is not, I believe, reflected below. The bill retains much of the current structure, including the IACC.

Some points from the bill

1) Like the newer Senate bill, the House bill requires the Secretary of HHS to designate a person to oversee the “National Autism Spectrum Disorder Initiative”. This person implement a strategic plan and “take into account” the IACC Strategic Plan is enacted and that research is not unnecessarily duplicative.

2) Adults are specifically mentioned more often in the new bill than the previous re-authorization.

3) Four public members of the IACC will be appointed by the legislature:

“(E) one member appointed by the Speaker of the House of Representatives;
“(F) one member appointed by the majority leader of the Senate;
“(G) one member appointed by the minority leader of the House of Representatives;
“(H) one member appointed by the minority leader of the Senate;

4) A report will be prepared by the Comptroller General on the demographics and needs of autistics in the US. This will include the needs of autistic adults.

5) the bill does not specifically authorize appropriations for autism research.

This bill will need to be reconciled with the Senate bill, and both need to pass their houses and the resulting bill needs to be signed by the president before it can become law.

Here is the text of the House bill:

[Congressional Bills 113th Congress]
[From the U.S. Government Printing Office]
[H.R. 4631 Introduced in House (IH)]

113th CONGRESS
2d Session
H. R. 4631

To reauthorize certain provisions of the Public Health Service Act
relating to autism, and for other purposes.

_______________________________________________________________________

IN THE HOUSE OF REPRESENTATIVES

May 9, 2014

Mr. Smith of New Jersey (for himself, Mr. Doyle, Mrs. McMorris Rodgers,
Mr. Van Hollen, Mr. Sessions, Mr. Wolf, Mr. Stivers, Mr. Meehan, Mr.
Moran, Mrs. Blackburn, Mr. Miller of Florida, Mrs. Walorski, Mr. Larson
of Connecticut, Ms. Jackson Lee, Mr. Harper, Mr. Lance, Mr. Meadows,
Mr. Marino, Mr. Deutch, Mr. Rooney, Mr. Pompeo, Mr. Aderholt, Mr.
Bachus, Mr. Gibson, Mrs. Miller of Michigan, Mr. Young of Alaska, Mr.
King of New York, Ms. Shea-Porter, Ms. DeLauro, Mr. Murphy of
Pennsylvania, Mr. Fitzpatrick, Mr. Terry, Mr. Kelly of Pennsylvania,
Mr. Yoder, and Mr. Matheson) introduced the following bill; which was
referred to the Committee on Energy and Commerce

_______________________________________________________________________

A BILL

To reauthorize certain provisions of the Public Health Service Act
relating to autism, and for other purposes.

Be it enacted by the Senate and House of Representatives of the
United States of America in Congress assembled,

SECTION 1. SHORT TITLE.

This Act may be cited as the “Combating Autism Reauthorization Act
of 2014”.

SEC. 2. REAUTHORIZATION OF PROGRAMS RELATING TO AUTISM.

(a) National Autism Spectrum Disorder Initiative.–Part R of title
III of the Public Health Service Act (42 U.S.C. 280i et seq.) is
amended–
(1) by redesignating sections 399AA through 399EE as
sections 399BB through 399FF, respectively; and
(2) by inserting before section 399BB, as redesignated, the
following:

“SEC. 399AA. NATIONAL AUTISM SPECTRUM DISORDER INITIATIVE.

“(a) Establishment.–For the purposes described in subsection (b),
the Secretary shall designate an official within the Department of
Health and Human Services to establish and oversee a National Autism
Spectrum Disorder Initiative (in this section referred to as the
`Initiative’).
“(b) Purposes.–The purposes of the Initiative shall be–
“(1) to implement a strategic plan for the conduct of, and
support for, autism spectrum disorder research, taking into
account the strategic plan developed by the Interagency Autism
Coordinating Committee under section 399DD(b); and
“(2) to ensure that autism spectrum disorder research
programs and activities of the Department of Health and Human
Services are not unnecessarily duplicative of other Federal
research programs and activities.”.
(b) Developmental Disabilities Surveillance and Research Program.–
Section 399BB of the Public Health Service Act (42 U.S.C. 280i), as
redesignated, is amended–
(1) in subsection (a), by inserting “for children and
adults” after “reporting of State epidemiological data”;
(2) in subsection (b)(1), by striking “establishment of
regional centers of excellence” and inserting “establishment
or support of regional centers of excellence”;
(3) in subsection (b)(2), by striking “center to be
established” and inserting “center to be established or
supported”; and
(4) in subsection (e), by striking “2014” and inserting
“2019”.
(c) Autism Education, Early Detection, and Intervention.–Section
399CC(g) of the Public Health Service Act (42 U.S.C. 280i-1), as
redesignated, is amended by striking “2014” and inserting “2019”.
(d) Interagency Autism Coordinating Committee.–
(1) Appointment of members by congressional leaders.–
Section 399DD(c)(1) of the Public Health Service Act (42 U.S.C.
280i-2(c)(1)), as redesignated, is amended–
(A) in subparagraph (D), by striking “and” at the
end;
(B) by redesignating subparagraph (E) as
subparagraph (I); and
(C) by inserting after subparagraph (D) the
following:
“(E) one member appointed by the Speaker of the
House of Representatives;
“(F) one member appointed by the majority leader
of the Senate;
“(G) one member appointed by the minority leader
of the House of Representatives;
“(H) one member appointed by the minority leader
of the Senate; and”.
(2) Preventing duplication.–Section 399DD(b) of the Public
Health Service Act (42 U.S.C. 280i-2(b)), as redesignated, is
amended–
(A) in paragraph (5), by striking “and” at the
end;
(B) by redesignating paragraph (6) as paragraph
(7); and
(C) by inserting after paragraph (5) the following:
“(6) include in such strategic plan recommendations to
ensure that autism spectrum disorder research programs and
activities of the Department of Health and Human Services are
not unnecessarily duplicative of other Federal research
programs and activities; and”.
(3) Extension of sunset provision.–Section 399DD(f) of the
Public Health Service Act (42 U.S.C. 280i-2), as redesignated,
is amended by striking “2014” and inserting “2019”.
(e) Report to Congress.–Section 399EE of the Public Health Service
Act (42 U.S.C. 280i-3), as redesignated, is amended–
(1) in subsection (a), by striking “Combating Autism
Reauthorization Act of 2011” and inserting “Combating Autism
Reauthorization Act of 2014”; and
(2) in subsection (b)–
(A) in paragraph (1), by striking “provisions of
the Combating Autism Act of 2006” and inserting
“provisions of this part, section 404H, and section
409C”;
(B) in paragraph (2), by striking “provisions of
Combating Autism Act of 2006” and inserting
“provisions of this part, section 404H, and section
409C”;
(C) in paragraph (3), by striking “Combating
Autism Act of 2006” and inserting “Combating Autism
Reauthorization Act of 2011”;
(D) in paragraphs (4) and (5), by striking “over
the 6-year period beginning on” each place it appears
and inserting “since”;
(E) in paragraph (8), by striking “and” at the
end;
(F) in paragraph (9), by striking the period at the
end and inserting “; and”; and
(G) by adding at the end the following:
“(10) a description of the actions taken to implement, and
the progress made on implementation, of the strategic plan
developed by the Interagency Autism Coordinating Committee.”.
(f) Authorization of Appropriations.–Section 399FF of the Public
Health Service Act (42 U.S.C. 280i-4), as redesignated, is amended–
(1) in subsection (a)–
(A) by striking “399AA” and inserting “399BB”;
and
(B) by striking “fiscal years 2012 through 2014”
and inserting “fiscal years 2015 through 2019”;
(2) in subsection (b)–
(A) by striking “399BB” and inserting “399CC”;
and
(B) by striking “fiscal years 2011 through 2014”
and inserting “fiscal years 2015 through 2019”; and
(3) in subsection (c)–
(A) by striking “399CC” and inserting “399DD”;
and
(B) by striking “$161,000,000 for each of fiscal
years 2011 through 2014” and inserting “$190,000,000
for each of fiscal years 2015 through 2019”.

SEC. 3. REPORT TO CONGRESS ON DEMOGRAPHICS AND NEEDS OF ADULTS WITH
AUTISM SPECTRUM DISORDER.

(a) In General.–Not later than 24 months after the date of
enactment of this Act, the Comptroller General of the United States
shall complete a study and submit to the Congress a report on the
demographics and needs, if any, of individuals in the United States
with an autism spectrum disorder (in this section referred to as
“ASD”).
(b) Issues To Be Addressed.–The study and report under subsection
(a) shall–
(1) address the demographics of individuals with ASD making
the transition from a school-based support system to adulthood;
(2) address the needs, if any, of adults with ASD with
respect to–
(A) community integration;
(B) housing and residential supports;
(C) employment;
(D) transportation;
(E) vocational training and rehabilitation;
(F) continued education;
(G) health care and social services;
(H) speech therapy;
(I) public safety; and
(J) day habilitation activities, including those to
provide a safe, respectful, and stimulating environment
that allows participants to become active members of
their community;
(3) provide an overview of Federal, State, and local
government policies and programs, and any available private
(including private nonprofit) sector assistance, for addressing
the needs identified in paragraph (2); and
(4) provide policy recommendations to–
(A) improve outcomes for adults with ASD making the
transition from a school-based support system to
adulthood;
(B) enhance the effectiveness of the policies,
programs, and assistance described in paragraph (3);
(C) ensure integration of and collaboration among
services for addressing the needs of adults with ASD;
and
(D) encourage independent living, equal
opportunity, full participation, and economic self-
sufficiency.
(c) Survey.–
(1) In general.–In carrying out this section, the
Comptroller General shall conduct a survey of public and
private sector stakeholders on–
(A) the needs, if any, of adults with ASD;
(B) the services and resources available for
addressing such needs; and
(C) the effectiveness of such services and
resources.
(2) Stakeholders.–The stakeholders to be surveyed under
paragraph (1) include the following:
(A) Individuals from the business community
representing both large and small businesses.
(B) Institutions of higher education, community
colleges, vocational schools, and university centers
for excellence in developmental disabilities.
(C) Social service providers, including case
management experts and health care providers.
(D) Vocational rehabilitation experts.
(E) State and local housing departments and
nonprofit organizations that provide housing services
for individuals with disabilities.
(F) Individuals with ASD, parents of individuals
with ASD, and representatives from advocacy groups that
focus on individuals with ASD.
(G) Officials or employees of the Federal
Government responsible for overseeing disability
services at each of the following departments and
agencies:
(i) The Department of Health and Human
Services, including the Administration for
Children and Families, the Centers for Disease
Control and Prevention, the Centers for
Medicare & Medicaid Services, the Health
Resources and Services Administration, and the
Administration for Community Living.
(ii) The Department of Education.
(iii) The Department of Housing and Urban
Development.
(iv) The Department of Labor.
(v) The Department of Justice.
(vi) The Department of Transportation.
(vii) Any other Federal departments and
agencies determined appropriate by the
Comptroller General.

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5 Responses to “The proposed House Bill 4631: Combating Autism Reauthorization Act of 2014”

  1. Jon Mitchell June 21, 2014 at 17:32 #

    thanks for letting me know. If that version of the bill passes, I’ll be sure to let those congressmen and senators know they should not reappoint you or any other member of the neurodiversity movement.

    • Sullivan (Matt Carey) June 21, 2014 at 18:19 #

      So, you would like to exclude a segment of the autism communities based on your misunderstanding of their stance.

      I defined neurodiversity above. If you wish that no one on the committee holds those views, that is your right. It is not, in my view, a wise choice.

    • Sullivan (Matt Carey) June 21, 2014 at 18:38 #

      I will add,

      my understanding is that you disagree with neurodiversity proponents at least partially on the ground that they are, in your view, anti-treatment. I pointed out clear examples of how self-advocates on the IACC are not anti-treatment. You have ignored the suggestion that you apologize, and have even ignored altogether the fact that you were wrong.

      I will add: I have discussed on this site in the past the fact that my family has participated in a clinical trial. My guess is that will not deter you from considering me anti-treatment.

      Ironically, the trial was slowed by local cure-advocates.

      • Lawrence June 22, 2014 at 14:42 #

        @Sullivan – of course they’d slow the trial, as any legitimate treatments / therapies take money out of their own pockets.

    • lilady June 21, 2014 at 19:08 #

      You certainly have the right to speak to our elected officials about your choice of appointees to the IACC.

      I appreciate all the advocacy of the ASAN for expanded medical insurance coverage for ABA and other science-based interventions:

      http://autisticadvocacy.org/2012/11/asan-comments-on-ca-autism-insurance-regulation/

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