President Obama signs Autism CARES Act into law

12 Aug

The Autism Collaboration, Accountability, Research, Education, and Support Act of 2014 has been signed by President Obama, making it law. This will extend and expand on the framework for authorizing appropriations for autism research and for coordinating research efforts in the U.S..

Here is the summary for the bill:

Autism Collaboration, Accountability, Research, Education, and Support Act of 2014 or the Autism CARES Act of 2014 – (Sec. 2) Requires the Secretary of Health and Human Services (HHS) to designate an official to oversee national autism spectrum disorder (ASD) research, services, and support activities. Directs the official to implement such activities taking into account the strategic plan developed by the Interagency Autism Coordinating Committee (the Interagency Committee) and ensure that duplication of activities by federal agencies is minimized.

Extends through FY2019: (1) the developmental disabilities surveillance and research program; (2) the autism education, early detection, and intervention program; and (3) the Interagency Committee.

(Sec. 3) Includes support for regional centers of excellence in ASD and other developmental disabilities epidemiology as a purpose of grants or cooperative agreements.

(Sec. 4) Requires information and education activities to be culturally competent. Allows a lead agency coordinating activities at the state level to include respite care for caregivers. Allows the use of research centers or networks for the provision of training in respite care and for research to determine practices for interventions to improve the health of individuals with ASD.

(Sec. 5) Revises responsibilities of the Interagency Committee concerning:
• inclusion of school- and community-based interventions in the Committee summary of advances,
•monitoring of ASD research and federal services and support activities,
• recommendations to the Director of the National Institutes of Health regarding the strategic plan,
• recommendations regarding the process by which public feedback can be better integrated into ASD decisions,
•strategic plan updates and recommendations to minimize duplication, and
•reports to the President and Congress.

Revises Interagency Committee membership requirements to specify additional federal agencies that might be represented and to modify the non-federal membership.

(Sec. 6) Modifies requirements for reports by the Secretary on ASD activities. Adds a requirement for a report to Congress concerning young adults with ASD and the challenges related to the transition from existing school-based services to those available during adulthood.

(Sec. 7) Authorizes appropriations to carry out the developmental disabilities surveillance and research program, the education, early detection, and intervention program, and the Interagency Committee for FY2015-FY2019.


By Matt Carey
note: I serve as a public member to the IACC but all comments here and elsewhere are my own.

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3 Responses to “President Obama signs Autism CARES Act into law”

  1. Lauren Yaffe August 15, 2014 at 02:58 #

    I am conducting research on learning tools for children with Autism Spectrum Disorder with my student group at Northwestern University. If you are a parent of a child with Autism Spectrum Disorder, please help the research by taking the survey in the link below. If you complete the survey, you will be entered into a raffle for a chance to win a $30 Target gift card! The survey will only take 5-7 minutes!

    http://kellogg.qualtrics.com/SE/?SID=SV_3gi3ErY4KfSG65T&mbr=ly&blog2=1

Trackbacks/Pingbacks

  1. President Obama signs Autism CARES Act into law | Left Brain Right … | My Autism Site | All About Autism — My Autism Site | All About Autism - August 12, 2014

    […] See the original post: President Obama signs Autism CARES Act into law | Left Brain Right … […]

  2. Autism CARES Act Signed Into Law | Autism Advocacy & Law Center, LLC. - August 18, 2014

    […] of children and young adults with autism who are aging out of the school system and will face the challenges related to the transition from existing school-based services to those available during […]

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