Tag Archives: Donald Trump

Trump wants Robert Kennedy, who is already phoning it in at HHS, to take over a big piece of Special Education.

22 Jun

Let’s start with an uncomfortable fact. States have a financial incentive to underserve disabled students. Special education is expensive, and every support costs money. The Department of Education exists, in part, as a federal watchdog to ensure that states live up to their obligations under the law.

And these are kids who will never pay taxes, they’ll never hold a job, they’ll never play baseball, they’ll never write a poem, they’ll never go out on a date. Many of them will never use a toilet unassisted.
–Robert Kennedy

The person who wrote that doesn’t understand what it means to treat other human beings as full human beings, entitled to define success for themselves. The person who wrote that should not be in charge of any part of Special Education. And, yet, Mr. Kennedy is being handed a huge part of the responsibility for managing Special Education.

He doesn’t understand that success is individual. There is no single yardstick that every person is obligated to meet.

That isn’t just part of treating people with dignity. It’s also one of the foundational ideas behind special education. Anyone who has been through the special education system as a parent or student is well aware of the term Individualized Education Program or IEP. This is the plan that students, parents and teachers craft to determine the goals (measures of success) that the team will strive for in a student’s education.

But, for the moment, let’s take Mr. Kennedy’s viewpoint. Let’s use his yardstick of success. The person who said those words has already given up on autistic children. He has effectively said, “You, young child, will never meet my definition of a successful life.” That is an extraordinary thing to say about any child, let alone from someone who may soon oversee part of the nation’s special education system.

And now he’s being handed a significant role in managing the federal office responsible for overseeing special education. In specific, the president has decided to effectively move managing the Office of Special Education and Rehabilitative Services (OSERS) out of the Department of Education and into Health and Human Services (HHS). Mr. Kennedy is the Secretary of Health and Human Services.

Consider this paragraph from the statement from AESA, the Association of Educational Service Agencies:

The first agreement would shift day-to-day management of the Office of Special Education and Rehabilitative Services to the U.S. Department of Health and Human Services. ED would retain statutory responsibility and enforcement authority, and IDEA funding would continue to flow through ED for now. A transfer of IDEA funding to HHS is not expected before FY27 at the earliest.

Try to reconcile that with the rhetoric of “small government” and “government efficiency.” One agency will manage special education’s day-to-day operations while another will retain legal responsibility and enforcement authority. Meanwhile, IDEA funding will continue to flow through the Department of Education. If your goal is efficiency, splitting authority across agencies is a strange way to pursue it.

It’s as if someone really wants this to fail.

On that thought, add this to the overall SNAFU that is the move of Special Education to HHS. The New York Times recently published a scathing article entitled Kennedy Shows Minimal Engagement With Vast Health Portfolio. It’s paywalled, but you get the gist from the title. Mr. Kennedy already appears unable, or unwilling, to fully engage with the enormous portfolio he already has. And we are handing him special education on top of it?

Mr. Trump has not been shy about his contempt for the Department of Education. He campaigned on closing the department. He can’t really close it, that takes an act of congress, but he can kill it with neglect. Similarly, he has gutted HHS, firing tens of thousands of people. And Mr. Kennedy has been more than happy to help.

When congress enacted what is now the Individuals with Disabilities Education Act (IDEA), they included a commitment to reimburse schools about 40% of the excess costs to educate special ed students. They never have, but the federal government does contribute a significant amount (about 20%). They are also the final federal authority responsible for ensuring that states uphold students’ rights. They monitor states to ensure that they are upholding FAPE (Free Appropriate Public Education). They monitor metrics such as graduation rates to make sure that states are serving their disabled students appropriately. They investigate discrimination complaints.

It’s not perfect, by any means. I don’t know a single parent who thinks that the American special education system is fulfilling the promises we have made as a people.

But it could be worse. If the Federal government paid even less, it would be worse. If the federal government didn’t monitor and enforce special education laws and standards, things could be a lot worse.

Which is why I, for one, am shocked to hear that responsibility for managing the federal special education office is being transferred to the Department of Health and Human Services. We should be strengthening the oversight of Special Education, not weakening it.

Once again, it’s time to make your voices heard. Call, email, fax or, if you can, meet with your legislators. Tell them to reverse this bad decision.

Disability is not a disease to be managed. Special education is an educational commitment we have made to our children. It belongs under educational oversight. Special education needs oversight from leaders who believe every child is capable of growth and worthy of investment. Mr. Kennedy has repeatedly shown that he is not that person.

By Matt Carey

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Trump administration seeks to weaken disabled Americans’ access to community-based services

19 Jun

When I was young, people like my kid were institutionalized. Access to community, either in their residence or their daily activities, was limited. Which is a nice way of saying, a lot of people never saw the outside of an institution.

I don’t want to go back. I don’t want to think that after I am gone, the state will warehouse my kid. My kid is a human with rights and dignity.

It looks like the Trump administration would like to take us a step closer to the bad old days. The Trump Department of Justice (DOJ) has issued a memo that states we’ve been interpreting the ADA wrong this whole time. It would weaken the legal protections that have helped people with disabilities live in their communities rather than in institutions.

While this memo isn’t binding, it does tell us (a) that the Trump administration may move forward on more binding actions and (b) they aren’t going to defend the rights of people with disabilities strongly.

Let’s look at this a bit deeper. Starting with a bit of history.

One example of the old approach is a story from 1972 in the New York Times: Forurn School at Waldwick Offers ‘Attic Children’ Hope. While the story focuses on school-aged children, the term “attic children” makes the point clear.

The “attic children”—called so because they often have been kept hidden, damaged to life without hope—are finding new hope.

They are children with severe emotional disturbances, childhood schizophrenia, or autism.

Two reasons why we no longer have big institutions and “attic” people is the Americans with Disabilities Act (the ADA) and a Supreme Court decision based on it. The term “landmark decision” may be over used sometimes, but not in the case of the Supreme Court’s landmark decision Olmsted v. L.C.. The Olmstead decision established that unjustified institutional isolation can be disability discrimination and strongly favored providing services in community settings when certain conditions are met.

The Olmsted decision requires states to provide services in community settings. The requirement isn’t absolute. Community based services are are the default when:

(1) treatment professionals determine community placement is appropriate,

(2) the individual does not oppose the move,

and (3) the placement can be reasonably accommodated given the state’s available resources and responsibilities to others. 

The Trump administration would like to change that. The Trump Department of Justice has published a memo: Application of the Rehabilitation Act and Americans with Disabilities Act to State Institutionalization of Patients with Severe Mental Illness or Disabilities. In it, they argue:

Neither §504 of the Rehabilitation Act nor Title II of the ADA imposes a federal “integration mandate” requiring states to provide treatment in the most integrated setting possible, and federal agencies (DOJ/HHS) lack authority to impose such a mandate through regulation.

Basically, the memo says the Supreme Court only held that “unjustified institutional isolation” can be discrimination, not that states are required to place people in the most integrated setting possible.

Looking only to those aspects of the opinion that represent the law, we conclude that Olmstead did not hold that Title II requires maximal integration for patients with mental disabilities receiving state treatment. Rather, it held only that a state cannot institutionalize such patients without justification. See 527 U.S. at 600 (majority opinion). What counts as adequate justification remains an open question.

Let’s repeat that last line for emphasis, shall we? What counts as adequate justification remains an open question. Access to community can be taken away “with justification”, but that justification is “an open question”.

When I am on my deathbed, I don’t want to be thinking my kid’s freedom can be taken away based on criteria that are “an open question”. More to the point, I don’t want to think the Department of Justice will sit on their hands if my state makes that move. I want my kid’s rights defended.

I hesitated to write this next section.

Years ago, I grew tired of hearing warnings about what could happen if anti-vaccine activists and grievance-parent groups gained political influence. We were told not to exaggerate the danger.

But we’re no longer talking about hypothetical futures.

Those movements have gained influence, and one of the long-standing concerns was that their dehumanizing rhetoric about people with disabilities would eventually lead to a rollback of disability rights.

That possibility no longer feels theoretical. We are here now. And yes, I believe those groups bear some responsibility.

But this post is not about assigning blame. It’s about being prepared to act.

Some states may decide to adopt the approach outlined in this memo. When that happens, people will need to push back. Most, maybe all, readers of this blog will never be the named plaintiff in a court case. But we can still support the people who are.

When those cases arise, make your voice heard.

If organizations are fighting to defend community integration, support them. If your state proposes changes that would weaken disability rights, speak up. If you can donate, donate.

Most importantly, do not accept this reinterpretation as inevitable.

We have spent decades moving away from the idea that people with disabilities should be hidden from society.

We cannot go back. We will not go back.

By Matt Carey

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Dramatic Cuts in New NIH Research Funding Across the Board

12 Jun

NIH autism research funding has collapsed since Mr. Kennedy became HHS Secretary. I wrote about this in my open letter to the IACC. Then I got curious: are the cuts limited to autism, or is this happening across NIH? The answer: it’s everywhere, and it’s worse than I expected.

Below is a graph I made after using NIH RePORTER. I checked the number and funding amount of new grants from NIH. Note that I pro-rated the 2026 information since the fiscal year goes until Sept 30. Funding for ongoing grants is one thing, new grants tells us what the future will look like and what the priorities of this Secretary are.

Let’s put this simply: this Secretary does not value research. NIH is funding new projects at 25% of the level under the previous administration. Sixty percent fewer grants. Seventy-five percent less funding.

Take NIMH (the National Institute for Mental Health), which is a primary source for autism research. Grants are down over 50% in number and more than 75% in funding.

Several CDC centers that previously appeared in NIH Reporter as grant-funding entities show zero new NIH grants in FY2026. Whether these centers have been formally eliminated, absorbed into HHS’s new structure, or simply lost their grant-making authority isn’t entirely clear — but the result is the same: no new research from these centers through NIH.

These sites had projects listed in 2025, but not in 2026.

CLC — Clinical Center (NIH’s research hospital in Bethesda)
NIOSH — National Institute for Occupational Safety and Health (part of CDC)
NCCDPHP — National Center for Chronic Disease Prevention and Health Promotion (CDC)
ATSDR — Agency for Toxic Substances and Disease Registry (HHS, administered alongside CDC)
NCEZID — National Center for Emerging and Zoonotic Infectious Diseases (CDC)
GHC — Global Health Center (CDC)
NCIRD — National Center for Immunization and Respiratory Diseases (CDC)
AHRQ — Agency for Healthcare Research and Quality (HHS)

Other non-NIH centers had their NIH funding cut dramatically NCIPC (the National Center for Injury Prevention and Control at CDC) is down to nearly zero.

If you follow Mr. Kennedy’s social media feed, you will see that he wants to be seen as a champion of Native Americans. Rationalize that against the fact that he cut about 90% of new grants for the NIMHD: The National Institute for Minority Health and Health Disparities. Look at NIMHD’s homepage today:

My guess? Research into health disparities among minorities, even Native Americans whom Mr. Kennedy purports to champion, is woke. Am I surprised that Mr. Kennedy is willing to sacrifice his supposed core beliefs to please President Trump? Not at all. Mr. Kennedy is a politician. Always has been.

Research benefits Americans. Plain and simple. We can talk about blockbuster GLP-1’s or other in-the-news medical advances. I’ll just say simply: someone I love would be dead now if it weren’t for epilepsy drugs. I don’t want progress to stop.

Many of you read this blog because autism affects your life. The medical comorbidities our community faces — epilepsy, sleep disorders, mental health — are exactly the kinds of conditions that need research to improve. When NIH stops funding new research, those of us who depend on better medicine pay the price. Contact your senators and representatives. Tell them: find a way to make Mr. Kennedy fund the research.

-By Matt Carey

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The new White House ballroom won’t cost taxpayers anything. That is, as long as you don’t value the east wing. Or, Surprise! Trump lied.

23 Oct

Yes, this is a different topic than typical for this blog. But, let’s consider a simple and obvious lie by our president: the

As is typical for this president, this project involves multiple lies. Here are but two. First, the White House would not be changed itself. Just added to. As noted in a recent PBS (yay, PBS. You guys rock) article:

The president and his chief spokesperson, Karoline Leavitt, said over the summer that the White House itself would remain intact as the ballroom was going up.

“It’ll be near it but not touching it,” Trump said. “Nothing will be torn down,” Leavitt added.

Near but not touching. Yeah. From the same PBS article, here’s a photograph showing demolition of the East Wing of the White House

Also from the PBS article is a statement that the project wasn’t supposed to cost any money.

Trump says the project will be paid for with private donations and that no public money will be spent on the ballroom. 

I will try to find the exact wording, but, yes, we taxpayers are paying for the project. The East Wing is an asset of the people. Our property. Demolishing it is a cost. Plain and simple.

Also plain and simple: Trump lied. Not surprising. But he lied. Imagine if any other president, especially a Democrat, had torn down part of the White House without plans or discussion. Let’s make the usual comparison: Obama wore a tan suit and conservatives and conservative media couldn’t stop criticizing it. The demolition of the East Wing isn’t even on the front page of Fox News as I type this. Which is to point out–they aren’t journalists. They are cheerleaders.

But the failings of Fox News isn’t the point here. Just an observation. Our president lies. Lies repeatedly. To the detriment of Americans. If you think this is OK…well, you are wrong. Let’s just say it bluntly.

By Matt Carey

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Want the Nobel Prize for Warp Speed, Mr. Trump? Fire Kennedy.

6 Sep

The same people who might value your efforts with Operation Warp Speed will also be able to do the simple math in their heads that says Mr. Kennedy’s approach is going to kill people.

Mr. Trump, there is a lot of chatter about you wanting the Nobel Peace Prize. OK, I know you’ve publicly stated you don’t want it, but just in case that’s just you being modest, let’s assume you actually do.

Even Robert Kennedy, a man with few to no good words to offer on vaccines, stated publicly that he believes you should get the Prize. Which may make you think, “good guy, Bobby. He’s going to help me get that Prize!”

Well…not so much. You may be thinking that I’ll point out the fact that Mr. Kennedy, as Senator Cassidy pointed out, says things like, “the vaccine killed more people than COVID”. You may be thinking that I’ll point out that he is likely getting people to generate “gold-standard science” that will claim the vaccine doesn’t work and kills people. Which he probably is doing.

Nope. Here’s an even bigger point I want to make: Mr. Kennedy’s policies are taking America back to a time when children die of vaccine preventable diseases. For example, we just had a large outbreak of measles, and Mr. Kennedy’s response was so lackluster that it certainly was a factor in how long it lasted. Two American children died. Needlessly. I called that outbreak “large”. It is nothing compared to what is in store for America under Mr. Kennedy’s leadership. Florida is moving to removing vaccine mandates for schoolchildren. That will lead to larger outbreaks. And not just among children. Florida is a state with a large retiree population.

The same people who might value your efforts with Operation Warp Speed will also be able to do the simple math in their heads that says Mr. Kennedy’s approach is going to kill people.

My guess is that if Mr. Kennedy is already telling you in private: “Solving the ‘autism epidemic’ will be even bigger than Operation Warp Speed. They will have to give you the Nobel then.” He even has ‘studies’ by some really bad and unethical people he can use to support his idea that vaccines are the cause. And, no doubt, more are on the way from David Geier and others. This is one of those times you need advisors who are both competent and free to speak their mind. People who actually understand science which, frankly, Mr. Kennedy does not. Because he is playing with people’s lives. Children’s lives. And that’s a lot more important than the Nobel Prize.

I am the parent of a young autistic adult. My kid grew up during the time Mr. Kennedy has been running his campaign against vaccines. I am a scientist. A researcher. Not in medicine, but I understand the studies. Focus on that last–not in medicine. I have no conflicts of interest other than this topic is very important to me. I don’t want children to die because Mr. Kennedy used my kid as a weapon against vaccines. I just don’t want children to die needlessly. I have been speaking out to counter Mr. Kennedy for 20 years because I saw the danger he posed.

Mr. Trump, I think you don’t want children to die and that is probably a bigger motivation than the Prize. But, do the simple math. Anyone on the Peace Prize Committee who values public health to the point of considering you for your efforts with the COVID vaccine program will see the dangers your administration–with Robert Kennedy running HHS–poses.

Do it for the children. Do it for yourself. Fire Robert Kennedy.

By Matt Carey

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Report: The MAHA Report Cites Studies That Don’t Exist

29 May

If you haven’t read this yet, surf over to this article on NOTUS: The MAHA Report Cites Studies That Don’t Exist. The subtitle is very clear, but it’s worth the full read.

The Trump administration’s “Make America Healthy Again” report misinterprets some studies and cites others that don’t exist, according to the listed authors.

I have to agree with Tara Smith over on Facebook that this looks like they used some LLM AI which created fake citations:

So looks like Kennedy used chatGPT or similar AI to write his MAHA report, as multiple citations are hallucinated. Others are cherry- picked or don’t support his claims (exactly as he did in “The Real Anthony Fauci”). One example:

“Epidemiologist Katherine Keyes is listed in the MAHA report as the first author of a study on anxiety in adolescents. When NOTUS reached out to her this week, she was surprised to hear of the citation. She does study mental health and substance use, she said. But she didn’t write the paper listed.

“The paper cited is not a real paper that I or my colleagues were involved with,” Keyes told NOTUS via email. “We’ve certainly done research on this topic, but did not publish a paper in JAMA Pediatrics on this topic with that co-author group, or with that title.””

Mr. Kennedy has been trying to brand his work as “Gold-Standard Science”, which is basically a way to slam research he doesn’t agree with. The above report would be laughable if this weren’t so serious. The Secretary of Health and Human Services released a report with fictitious citations and misinterpretations. This sort of behavior could get a professor fired. This sort of behavior can lead to people dying. Think about it–a person we all rely upon to make important health decisions for the entire country believes that he can create what amounts to scientific propaganda, label it “Gold Standard”, and use that to defend his decisions.

By Matt Carey

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“if you’ve been involved in good science, you have got nothing to worry about” Why did you lie, Mr. Kennedy?

7 Apr

We have recently seen a huge layoff at HHS. It’s amazing to think that just 2 months ago, Robert Kennedy was saying this wouldn’t happen.

On February 14, Robert Kennedy promised that people involved in good science would have nothing to worry about in terms of losing their jobs. He had a “generic list” of people who should be let go, but people working on good science were safe.

“I have a list in my head … we have a generic list of the kind of people that — if you’ve been involved in good science, you have got nothing to worry about,” Kennedy said during an appearance on Fox News’s “The Ingraham Angle” Thursday night.

“If you care about public health, you’ve got nothing to worry about. If you’re in there working for the pharmaceutical industry, then I’d say you should move out and work for the pharmaceutical industry,” he added.

Shortly after that, he started indiscriminately firing people. It’s so bad he’s admitting he made a mistake and has to bring people back. That’s not “you’ve got nothing to worry about”.

One area that affects the autism community directly is the Administration for Community Living.

The Administration for Community Living, which coordinates federal policy on aging and disability, was gutted – 40% of staff there lost their jobs, according to Alison Barkoff, the former head of the agency who says she learned this by talking to multiple members of her former staff. The ACL funds programs that run senior centers and distributes 216 million meals a year to older and disabled people.

These are not people doing science, but they are definitely people who care about public health who are not working for the pharmaceutical industry. It’s hard to see gutting this organization as being within Mr. Kennedy’s comments on FoxNews. At all.

Which is why I ask: did you know you were lying at the time, Mr. Kennedy? Or did you just not have the guts to stand up and defend good people doing good work when you were told to cut them?

Having watched Mr. Kennedy for decades, I never expected him to have a backbone when he got into power. Sacrificing the jobs of people who directly help disabled people in order to keep his job, yes, that’s in line with what I expected. Mr. Kennedy hired a staunch anti-vaccine pseudo-scientist, so we know where his priorities lay.

By Matt Carey

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James Terence Fisher: RFK Jr., autism and long-debunked theories

7 Apr

The Pittsburgh Post-Gazette has an article by James Terence Fisher: RFK Jr., autism and long-debunked theories. If I start quoting, I’ll copy the whole article. So, I’ll just recommend you follow the link and read the article in place.

Prof. Fisher mentions “Autism families of a certain vintage”. I am of that vintage. I’ve watched his son grow up through blog posts over the years. I too saw Robert Kennedy over decades and David Geier promote bad science and bad medicine. The harm they have caused is real and it can only get worse with them in positions of power. Prof. Fisher gives another perspective on the history, from an autism father’s point of view.

By Matt Carey

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RFK Jr’s Pee Wee Herman moment

4 Apr

This would be funny if Mr. Kennedy weren’t playing games with one of America’s greatest assets: our public health system. What specifically this time, you may ask?

The Wall Street Journal is reporting that Mr. Kennedy plans to reinstate many fired employees (RFK Jr. Plans to Reinstate Some Federal Workers, Programs). Which is a very good thing. Except they (and the rest) should never have been let go in the first place. Per the WSJ:

“Some programs that were cut, they’re being reinstated,” Kennedy said Thursday. “Personnel that should not have been cut were cut. We’re reinstating them.”

But here’s where it becomes a Pee Wee Herman moment: he meant to do that. No, seriously, he’s saying he always meant to make mistakes and bring people back:

“That was always the plan,” he said, referring to fixing mistakes and the Department of Government Efficiency’s approach to making federal cuts. “Part of the DOGE—we talked about this from the beginning—is we’re going to do 80% cuts, but 20% of those are going to have to be reinstalled, because we’ll make mistakes.”

Because that’s what a good manager does. Fire a whole lot of people and then ask the good ones to come back and not be pissed off and spend their time looking for a new job. Right?

Seriously, these are people’s lives you are dealing with, Mr. Kennedy. You don’t just tell someone, “pack your desk. We didn’t even give you the respect you deserve” and then, “please come back. We meant to do that to you. But don’t be disgruntled or anything.”

I didn’t go to management school, or business school, but even I can tell this is a bad management and bad business move. We don’t need amateurs running billions of dollars of America’s assets. Especially ones who can’t even admit mistakes.

This is a Pee Wee Herman “I meant to do that moment”. Don’t do it again.

By Matt Carey

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Robert Kennedy and Radical Transparency? My ass.

2 Apr

I wonder what the Kennedy clan think now. I wonder what people in his father’s generation would think of a Kennedy actively working to hide information from American citizens. I can’t say. I can say this is not the type of act I think of when I admire the Kennedy family. Not even close.

Robert Kennedy promised to be a good guy. An outsider who wasn’t tainted by Washington. Someone who fought for the little guy and wouldn’t let big government get away with things like making decisions in secret without any transparency.

Big surprise: it was a lie.

His catchphrase was “radical transparency” Sounds really cool, don’t it? This will be a new era when Government works for the people! Like this press release:

The U.S. Department of Health and Human Services and the U.S. Food and Drug Administration are committed to promoting radical transparency to make sure all Americans know what is in their food.

One could be forgiven for thinking that Mr. Kennedy planned to be radically transparent. That the government would be radically transparent. Let’s be clear Radical transparency is for other people. Not Mr. Kennedy. Who is now consolidating his position as a DC power broker.

One of the backbones of transparency in the U.S. government is the Freedom of Information Act. FOIA. This allows people outside the government, people like Mr. Kennedy only a few months ago, to ask the government to provide information on what it is doing. It’s based on the idea that we the people are the government and the information they generate belongs to us.

That was when FOIA served Mr. Kennedy’s purpose. Those days are now gone. FOIA will stand in the way of Mr. Kennedy, so it’s being gutted. Per Rolling Stone (Health Secretary RFK Jr. Promised Radical Transparency. Now He’s Closing FOIA Offices)

Or they did until Tuesday, anyway. Officials at the FDA and NIH have confirmed that many civil servants who work on FOIA in those offices have been let go, while the CDC’s FOIA desk has been completely eradicated, according to the agency’s chief operating officer. An email from Rolling Stone to foiarequests@cdc.gov returned an auto-reply that read, “Hello, the FOIA office has been placed on admin leave and is unable to respond to any emails.” Emails to several other addresses for FOIA requests at HHS agencies – to check whether they are still active – did not receive immediate replies.

For those of us who have followed Mr. Kennedy and his anti-vaccine community for decades, his dishonesty comes as no surprise. I didn’t expect his hypocrisy to be so blatant so early.

We’ve already seen the Kennedy family distance themselves from Robert Kennedy on numerous occasions. Here’s a recent quote on that:

No prominent Kennedy has publicly endorsed RFK Jr., and the list of those who have shunned him politically is a Who’s Who of the Kennedy family: Caroline Kennedy, Joe Kennedy III, Victoria Ann Kennedy, Patrick J. Kennedy, Rory Kennedy and Jack Schlossberg, the son of Caroline Kennedy.

I wonder what the Kennedy clan think now. I wonder what people in his father’s generation would think of a Kennedy actively working to hide information from American citizens. I can’t say. I can say this is not the type of act I think of when I admire the Kennedy family. Not even close.

I wonder about the hypocrisy of his supporters. People who decried the lack of transparency in the government. Will they stand against this move by their hero? Smart money says no.

By Matt Carey

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