Dear Mr Handley,
I’m writing this letter to you to ask you to make textual revisions to the ‘generationrescue.com’ website. As it stands, your website is responsible for perpetuating untruths about the nature and causes of autism that can only serve to promulgate negative stigma and reduce funding into valid interventions.
On the website you state:
Generation Rescue believes that childhood neurological disorders such as autism, Asperger’s, ADHD/ADD, speech delay, sensory integration disorder, and many other developmental delays are all misdiagnoses for mercury poisoning.
and
There is no evidence to suggest that autism is genetic. No autism gene has ever been found and the search will be endless – how can you have a gene for a mythical condition? Autism is mercury poisoning.
These two statements (one an expression of opinion and one an expression of your opinion disguised as a statement of fact) are untrue and misleading. Whilst it may be true that there is no *proof* that autism is genetic, there is plenty of very good, valid *evidence* to indicate that there is at least in part a genetic component to autism. To baldly state ‘autism is mercury poisoning’ is facile. In fact, there is no proof that could lead you to make such a claim although, like with genetics, there may be some evidence.
I don’t have an issue with you claiming that autism _may in some cases_ be resultant from an environmental insult such as Mercury. It is your unfounded and belligerent claim of fact that bothers me so much.
Your organisation advocates the use of Chelation Therapy. In fact, I’m given to understand that you use it own your own son. If your son is Mercury poisoned then from what I understand of Chelation Therapy, it may work. Equally it may not. If it works for you then more power to you. No one wants to see children suffering. However, I’m of the opinion that informing parents that *all* autism is mercury poisoning and that Chelation is the answer is grossly over simplifying the case and tantamount to a willful misleading of people trying to do their honest best. And costing them thousands of dollars as a result.
Chelation therapy also has a dark side. One that has resulted in injury and death. Your blasé support of it as a therapy is worrying in respect of parents who may find only after the fact that they preferred an autistic child to a dead or seriously injured child. Your failure to advise on the potential dangers associated with such an untested and unknown procedure is also very worrying. What are the long term effects of Chelation Therapy for autistics? Where are the long term studies?
But by far my biggest worry in regards to your simplistic stance on ‘autism is mercury and nothing else’ is this: Every time that lie is perpetuated, every time its circulated and every time its repeated a little less attention and importance is attached to finding and researching valid interventions that can greatly benefit our autistic kids. Not only that, but you debase and devalue a whole section of society by effectively labeling them as ill when they are not. This is unacceptable to me.
As the parent of an autistic I face an uphill battle getting services that my child deserves. When you move your campaign to the UK (as I’ve no doubt you will) your dogmatic claim stands a good chance of even more seriously impeding my daughters ability to access services she needs. What could possibly be your reason for insisting to the detriment of autistics everywhere that autism is mercury poisoning and only mercury poisoning? Why do you desire to make the lives of parents like me even harder? Why do you desire to increase the stigma of autism?
I ask you from the bottom of my heart Mr Handley, as one Dad of an autistic child to another on Autistic Pride Day and on the eve of Fathers Day here in the UK – please, try and see your way clear to undoing the damage you are doing. I’m not asking you to disband your organisation or discard your beliefs. Instead I’m asking you to moderate your tone and please try to be respectful of autistics and parents of autistics who know beyond doubt that autism is *not* only mercury poisoning.
My best to your family.
Kevin Leitch
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