Archive | April, 2008

Autism Omnibus: Special Masters Speak

4 Apr

A new document has been uploaded to the Autism Omnibus hearing section by the Special Masters. It regards the Poling case. I want to pick out a couple of sections (thanks to M and MS for this tip):

We do note, however, that under the statutory provision in question,information from a Vaccine-Act proceeding may be disclosed if the person who supplied such information provides “express written consent” for such disclosure. 42 U.S.C. 5 300aa-12(d)(4)(A). Thus, for example, in the six autism “test cases” discussed above, we are able to disclose the names of the cases in this pdate, because the families in question have provided such “express written consent.” Therefore, in the case that is the subject of the media reports, if the parties who supplied documents and information in the case provide their written consent, we may then be able to appropriately disclose documents in the case. Until such consent is provided, however, we cannot disclose any information. We reiterate that this court has issued no decision on the issue of vaccine causation of autism

And:

In recent weeks, there have been a number of reports in the media concerning a certain Vaccine Act case, currently pending before the court. Some of those reports have erroneously stated that the Office of the Special Masters has recently issued a “decision,” “opinion,” or “ruling” concerning the issue of whether a Vaccine Act claimant’s autism symptoms were caused by one or more vaccinations. The OSM has not issued any such decision, ruling or opinion. (All Vaccine Act decisions and opinions are posted on the Court’s web site at www.uscourts.gov/vaccine-opinions-decisions) Pursuant to 42 U.S.C. § 300aa=12(d)(4)(A), officials of this court are generally prohibited from revealing any information concerning vaccine Act case, until a written decision concerning the case has been issued. Accordingly we cannot provide any details concerning this matter at this time

Jenny McCarthy on Larry King Live

3 Apr

Well, she’s just an actress…and unfortunately, we place too much value on the opinions of actors in this country.

~ Erik Nanstiel, Feb 2006

Now Erik was discussing Sigourney Weaver (the future Mrs Leitch if she ever stops stalking me) and her role in Snowcake but I thought it might serve as an interesting comparison for how another actress, Jenny McCarthy, is currently viewed.

In point of fact, I entirely agree with Erik, we _do_ place far too much importance on what acctresses and actors say. For example, on Larry King Live last night jenny McCarthy spoke quite a lot but didn’t actually _say_ much at all.

For example:

It’s a global epidemic…

Really? Where is the science that supports that position? Because there is an _awful_ lot of evidence that entirely refutes it.

I went online and I found a community called Defeat Autism Now……I believed enough — even though my pediatrician at the time said it’s all bull — and followed this treatment and my son got better

Yeah, that and all the ABA, and the Indigo/Crystal beliefs:

The day I found out I was an adult Indigo will stay with me forever. I was walking hand in hand with my son down a Los Angeles street when this women approached me and said, “You’re an Indigo and your son is a Crystal.” I immediately replied, “Yes!” and the woman smiled at me and walked away. I stood there for a moment, because I had no idea what the heck an Indigo and Crystal was, but I seemed so sure of it when I had blurted out “Yes!” After doing some of my own research on the word Indigo, I realized not only was I an early Indigo but my son was in fact a Crystal child.

A what?

The Indigo child concept was first publicized in 1999 by the book The Indigo Children: The New Kids Have Arrived, written by the husband-and-wife team of Lee Carroll and Jan Tober. Carroll insists that the concept was obtained via conversations with a spiritual entity known as Kryon.

Wikipedia

Except, the website that carries all her beliefs has been quietly vanished. If you want to find this info now, you have to look in Google Cache.

Onwards,

I’m not, nor is the autism community, anti-vaccine. We’re anti-toxin and we’re anti-schedule.

The autism community? Who _is_ this woman with the ego to think she speaks for the entire autism community? Good grief. And as for the section of the community she speaks for not being anti-vaccine? Try these on Jenny:

!http://www.kevinleitch.co.uk/images/eoh/PowerOfTruthRallySign.jpg!
!http://www.autismrally.com/IMG_5365.jpg!
!http://www.autismrally.com/IMG_5426.jpg!

All taken from the sort of rally you’re promoting later on in the show.


JM:

And isn’t it ironic, in 1983 there was 10 shots and now there’s 36 and the rise of autism happened at the same time?

Ironic like this?

No, its not ironic. Its another example of correlation not implying causation – you can see another graphic example on the ‘canards’ page of this very website.

JM:

I believe that parents’ anecdotal information is science-based information

Yeah. Its not.

JM:

environmental toxins play a role. Viruses play a role. Those are all triggers. But vaccines play the largest role right now

No evidence of any kind was presented to back this up. Later on McCarthy sneered at the AAP for talking about studies that weren’t ‘independent’ (what she meant by that is anyone’s guess) but in short succession she said that parental anecdote was good science and that vaccines play ‘the largest’ role in causing autism.

David Kirby was sitting right next to McCarthy and yet neither of them mentioned his HuffPo entry in which said:

And, if 20% of autism cases are mito related, and 6% of those cases regressed because of vaccines, that would mean that at least 1% of all autism cases were vaccine related.

1%.

Lets compare that to the approximately 40% already genetically accounted for. I don’t think its difficult to process which is the larger number.

And after that Dear Reader I simply can’t carry on ploughing through the rest of McCarthy’s contributions. They range from the offensive to the inane.

But here’s an offer for Ms McCarthy – and David, I know you’re a reader so feel free to pass this on:

Come and pay my family and me a visit Ms McCarthy. Just you and maybe your son – no media, no journos, no cameras, no Hollywood bullshit. You and I can have a proper well mannered debate whilst our kids play and see if we still feel the same afterwards. What about it? Got the balls?

Ginger Taylor – The Smearing Continues….

3 Apr

Thanks to anonymous person who alerted me to the fact something was wrong here.

Short recap: Janny McCarthy and David Kirby were guests on a US shows called Larry King Live where they had some kind of debate (although it really sounds a bit like it was a shouting match) with some AAP guys.

Ginger reported it thusly and laid into an AAP guy called Dave Tayloe, Jr.. Here’s Taylor’s opinion on the man:

Tayloe is just dangerous.

This man has GOT to be removed from the position that he has been elected to before he takes office. I would take Karp in a second over this guy. Karp was wrong, but he wasn’t crazy person saying insane things with a smile wrong.

But then the real fun starts:

UPDATE: OMG! Turns out the Vaccine Injury Compensation Court exists in part due to the 3.5 million dollar malpractice suit that Dr. David Tayloe lost in 1985 when a child he gave the DPT shot to magically got permanent brain injury!! That Asshole just got on TV and implied that he had never SEEN a vaccine injury in his practice!!!

Dangerous….crazy…asshole…..

And having a court force him for giving a shot to a kid who could not handle it was still not enough to teach him the lesson that not all vaccines are safe for every child, because he went on the Today show and said that ALL VACCINES ARE SAFE FOR EVERY CHILD!!!!

The information Ginger Taylor posts regarding this lawsuit is here. But here’s a key section:

$3,500,000 Jury Verdict, May 1, 1985

The Defendant Pediatrician, David Tayloe, who at that time was the President of the National Pediatric Association, strenuously fought this case all the way to a jury verdict….

Now if you visit the AAP site you will find out that in 1985, the man who appeared on Larry King Live (named David Tayloe Jr) had only qualified in 1977. And yet a bare 8 years later we’re supposed to think he was the President of the National Pediatric Association? I suspect it might have been this mans father. David Tayloe Snr.

You might also note that:

Dave [Tayloe Jr] has served in the leadership of the NC Chapter since 1985.

Straight from a failed multi-million dollar lawsuit into a leadership position huh? I really don’t think so.

If I was a blogger like Ginger Taylor I might call her names for (yet again, in the space of one week) irresponsibly publishing information about a man that will serve to inflame the sensibilities of people who really need to calm down. Taylor is developing something of a reputation for this of late.

She might be right, it might conceivably be the same David Tayloe but I have to say it sounds very, very unlikely. Did Ginger Taylor do any background reading on this or was she simply too fired up from Jenny McCarthy saying a rude word to bother?

Oh and AAP? I bet you’re really really pleased with your decision to meet the DAN! brigade now, right? Thanks once again for deciding to sacrifice credibility and evidence based medicine to try and ‘meet halfway’ a bunch of people bending over backwards to shit on you the first chance they get.

36 Years

1 Apr

It can’t ever be enough.

Nothing will bring Katie back and nothing will make it not have happened but tonight my hope is that for the first time in a long, long time the McCarrons can mourn for their daughter/granddaughter/sister/niece without the shadow of yet another court date where they will have to look at or deal with her murderer.

Paul Offit causes a stir

1 Apr

On 31st March, Dr Paul Offit wrote an op-ed piece for the New York Times entitled Inoculated Against Facts in which he discussed the recent Poling situation.

In response to this, David Kirby wrote a blistering response entitled Lies My New York Times Told Me (Or, Why Trust a Doctor Who Says 10,000 Shots Are Safe?).

Offit says:

An expert who testified in court on the Polings’ behalf claimed that the five vaccines had stressed Hannah’s already weakened cells, worsening her disorder. Without holding a hearing on the matter, the court conceded that the claim was biologically plausible.

To which Kirby responded:

no one “testified in court” in this case, as confusingly stated by Dr. Offit, who also writes that, “Without holding a hearing… the court conceded.”

My take on what Offit said was that any document submitted as part of a legal process must, by definition, form part of a courts records and thus be considered testimony. I think there’s a difference between ‘heard in court’ (heard as part of a legal proceeding) and ‘a hearing’ (discussed in open court)

Kirby also says:

It was a medical concession, not a legal decision. Dr. Offit and the New York Times know this.

Its also (as I understand it) part of the process that the Special Master could’ve refused to accept the so-called concession. This makes the fact they did a legal decision. The Poling’s could’ve elected to have their daughters case heard in a civil court (I think) in which case they really would’ve been held to a medical/scientific standard of proof. They chose not to do so.

Kirby goes on:

This statement, too, is misleading: “Even five vaccines at once would not place an unusually high burden on a child’s immune system.”……Hannah received five shots, but nine vaccines.

Which, to be fair to Dr Offit is exactly what he said:

In 2000, when Hannah was 19 months old, she received five shots against nine infectious diseases.

I think this is merely a semantic misunderstanding as to what constitutes ‘one’ vaccine.

Kirby goes on:

More importantly, Dr. Offit’s statement contradicts the second HHS concession (for epilepsy) in the Poling case, to wit:

The cause for autistic encephalopathy in Hannah “was underlying mitochondrial dysfunction, exacerbated by vaccine-induced fever and immune stimulation that exceeded metabolic reserves.”

Now, lets be honest – nobody aside from David Kirby has actually _seen_ this second HHS ‘concession’. I can’t help but note that the part that Mr Kirby quotes from this second report does not contain the phrase ‘autistic encephalopathy’ (and what exactly _is_ ‘autistic encephalopathy’?). I also think its a little unfair to expect Dr Offit to be a mind reader and know what an unreleased report says.

I further think that in a piece that asks why we should just trust, Mr Kirby (with all due respect to him) asking us to do the exact same thing is a little incongruous.

We really need this issue sorted out by either releasing this document that directly ties a diagnosis of autism _directly_ to vaccines, or by applying the same rules to everyone.

Mr Kirby then goes on to challenge Dr Offits most (in)famous statement:

“Our analysis shows that infants have the theoretical capacity to respond to about 10,000 vaccines at once”

This is slightly disingenuous as this really has no bearing whatsoever on the Poling case. Its also – as stated by Dr Offit – a _theoretical_ scenario. No one is seriously suggesting any infant has 10,000 shots. The paper from Dr Offit used this calculation to respond to the idea that vaccines can overwhelm the immune system.

And lets be clear. This is science. Good science. To the best of my knowledge no-one has refuted it in any reputable journal. If anyone has an issue with the overall idea (vaccines not overwhelming the immune system) or the maths involved, then they should submit it to a reputable journal for peer review.

However, one of the most disturbing aspects of this turn of events is the response to Dr Offit’s piece on the EoH Yahoo Group. I should note that David Kirby has _no control or ownership of this group_ before I continue.

Within a few hours of Dr Offit’s piece being published, Ginger Taylor took it upon herself to send Dr Offit’s phone number to the EoH group at large, as part of an email conversation she had had with Dr Offit. Thus drew a number of responses from her list mates such as:

Oh no….. His phone number on EOH? Lord help him!

Quite. Although the group moderator was quick to ask people not to harass Dr Offit, he stopped short of deleting this very ill-considered post.

Lets not forget that Dr Offit (and his children) have been the subject of severe harassment from those who believe in an autism/vaccine hypothesis:

….as Paul Offit, a vaccine expert who served on the committee, tried to make his way through the crowd, one of the protestors screamed at him through a megaphone: “The devil—it’s the devil!” One protester held a sign that read “TERRORIST” with a photo of Offit’s face. Just before Offit reached the door, a man dressed in a prison uniform grabbed Offit’s jacket. “It was harrowing,” Offit recalls.

….

He has since received hundreds of malicious and threatening emails, letters and phone calls accusing him of poisoning children and “selling out” to pharmaceutical companies. One phone caller listed the names of Offit’s two young children and the name of their school. One email contained a death threat—”I will hang you by your neck until you’re dead”—that Offit reported to federal investigators.

Knowing this, why Taylor saw fit to do this at all is puzzling. However, when she was asked how she felt about communicating with Dr Offit, she also saw fit to comment:

The whole thing actually creeped me out and I just dropped it.

My personal opinion is that a considered reply from Dr Offit to Taylor which included a friendly invitation to contact him again is not creepy at all. What _is_ creepy (to me) is publishing the phone number of a man who has been subject to vicious abuse – as have his children. To me, it is irresponsible in the extreme.