Archive | Jenny McCarthy RSS feed for this section

Has Generation Rescue disbanded?

3 Aug

It looks like Genertion Rescue has shut it’s doors. If so, make no mistake, this is a very good thing for autistic people and the autism communities.

Their website down. GenerationRescue.org. Follow the link. Or, take this screenshot:

Websites go down. But the GR website has been down for at least a week. And they haven’t posted to Facebook since May 2nd.

We’ve written extensively about Generation Rescue over the years here at Left Brain/Right Brain. GR was founded by JB Handley, now known as one of the main sources of vaccine misinformation.

GR is commonly known for their anti-vaccine stance. Within the autism communities they are known for their focus on denigrating autistic people in order to support the “parent first” narrative of autism as a source of despair. Also, they were known for promoting fake therapies such as chelation. They started out with the message that autism was a “misdiagnosis” for mercury poisoning. They were wrong. Very, very wrong.

But JB believed. He fell for the mercury poisoning lie hook, line and sinker. Generation Rescue’s first website included this quote:

“It is the elimination of this “spark”, i.e. mercury, for which we now have an easy and effective solution. Along with some supportive therapies, autism and certain other neurodegenerative diseases can be fully and permanently reversed. This is NOT a theory but rather, a protocol that has already been clinically validated and the evidence is irrefutable.”

That was 2005. Autism is clearly gone now, right? Mercury was removed from vaccines. The “clinically validated” protocol with “irrefutable” evidence has cured all autistics, right?

Autism as mercury poisoning was a lie. Chelation as a cure was a lie. And that lie was behind how Generation Rescue was born.

It’s surprising they lasted this long.

Good riddance, Generation Rescue. Autistics are better off without you. The autism communities are better off without you. The world is better off without you.


By Matt Carey

Jim Carrey, you are part of the problem for us in the Autism Community

15 Jul

Years back Jim Carrey was and autism were mentioned together regularly in the news.  This was at the height of the vaccine misinformation campaign of his then partner, Jenny McCarthy.  Mr. Carrey went so far as to be a speaker at the “Green Our Vaccines” rally in Washington.  That was 2008. Since then the Green Our Vaccines as a movement has died, Jenny McCarthy has tried to distance herself from her very vocal stance on vaccines, and given that Mr. Carrey and Ms. McCarthy split, it seemed like we had seen the last of Mr. Carrey.

Until recently.

You see Mr. Carrey took offense to new legislation in California.  A bill that will roll back vaccine exemptions to where personal belief exemptions will no longer be accepted in the schools here.  In other words, for the most part one will now need an actual medical reason to avoid vaccination in order to register for public school.

Mr. Carrey took to twitter with his complaints about the new law.  All well and good, free speech and all.  But Mr. Carrey went too far. He decided to take pictures of kids in distress and the implication that this is what happens when you vaccinate your kids. One tweet read ““A trillion dollars buys a lot of expert opinions. Will it buy you? TOXIN FREE VACCINES, A REASONABLE REQUEST!”” and included a picture of an autistic kid (the other pictures he used appear to have been stock images). The story is discussed by Emily Willingham as Jim Carrey Unwittingly Brings Attention To Something Actually Linked To Autism

And Time Magazine in Jim Carrey Apologizes for Using Photo of Autistic Boy in Anti-Vaccination Tweet.

Because, to give him credit, Mr. Carrey did apologize to that family. (Ironically, it turns out that the kid was unvaccinated when he was first diagnosed autistic).

I harken back to Mr. Carrey’s time with the autism community (remember when Generation Rescue was tagged as “Jenny McCarthy and Jim Carrey’s Autism Organization”?). At one speech, probably the Green Our Vaccines Rally, Mr. Carrey made the pseduo-profound statement, “We are not the problem. The problem is the problem.”

So while I do appreciate Mr. Carrey stepping up and apologizing to one family, I do want to point out: Mr. Carrey, you were one of the problems for the autism community. And you apparently still are.

Ms. McCarthy introduced you to a closed group of people, a small sampling of the autism community. You likely came away thinking that they *are* the autism community, because that’s how they think of themselves.

They aren’t.

Most of us autism parents don’t subscribe to the vaccine causation idea. I can provide the links to multiple studies if you like, but it’s just the way things are.

And autism parents are not the autism community. One thing that Generation Rescue and like organizations have done is act like autistics are some sort of second class citizens in the community. Who do you think the community primarily is, autistics or parents?

Here’s the thing: the vaccine-causation idea is probably the most damaging notion to have hit the autism community. Did you hear about the “refrigerator mother” theory during your time at Generation Rescue? It’s second to the vaccine causation theory. Telling generations of disabled kids that they are less than they are, that they should be someone else, is damaging. Mr. Carrey, did you attend any of those parent conventions, like AutismOne? Perhaps you look at alternative medicine favorably. Well, the vaccine causation idea is used to sell “therapies” that aren’t close to being “alternative”. They are just wrong. And, frankly, abusive. Chemical castration of disabled children? This was promoted multiple times at conventions where your former partner was a keynote speaker. Fake diagnoses of mercury poisoning, followed by chelation? Same. And even a major promoter of chelation has a new study showing it doesn’t work. Did anyone tell you why the NIH autism/chelation trial was stopped? Because if you chelate test animals who do not have mercury intoxication, they go down cognitively. If the same happens in humans, tens of thousands of autistic children lost some IQ due to chelation. Think that one over, since GR started out as primarily an org promoting chelation. Daily bleach drinks and bleach enemas? That one is probably new since you dropped out. But, yep, that gets sold as a cure for “vaccine injury”. Shall I go on? Because I can. The autism=vaccine injury idea sells junk medicine which is subjected upon disabled children.

And you added your voice to the vaccine-causation idea.

You’ve apologized to one family. That took guts. Now step up and start making amends to the rest of us. Parents and, especially, autistics.


By Matt Carey

National Geographic, “The War on Science”, includes discussion of vaccines and autism

19 Feb

I just got my copy of the March 2015 issue of National Geographic a couple of days ago. Imagine my reaction when I saw this cover (click to enlarge):

natgeo

In case you are having trouble imagining my reaction–it includes a big THANK YOU to National Geographic.

Yes, they put “vaccinations can lead to autism” up there with “evolution never happened” and “the moon landing was fake”.

This paragraph includes references to Jenny McCarthy (anti-vaccine activist and actress Jenny McCarthy) and Andrew Wakefield’s Lancet article.

Doubting science also has consequences. The people who believe vaccines cause autism—often well educated and affluent, by the way—are undermining “herd immunity” to such diseases as whooping cough and measles. The anti-vaccine movement has been going strong since the prestigious British medical journal the Lancet published a study in 1998 linking a common vaccine to autism. The journal later retracted the study, which was thoroughly discredited. But the notion of a vaccine-autism connection has been endorsed by celebrities and reinforced through the usual Internet filters. (Anti-vaccine activist and actress Jenny McCarthy famously said on the Oprah Winfrey Show, “The University of Google is where I got my degree from.”)


By Matt Carey

CNN: The money behind the vaccine skeptics

6 Feb

CNN Money has a short video up that makes a point that a few of us have been making for the past few years: much of the vaccine antagonistic message is funded by a few wealthy people. A good discussion can be found at A Snapshot of the Deep Pockets of the Anti-Vaccine Movement on Haprocrates Speaks. The CNN piece is called “The money behind the vaccine skeptics“. I can’t get the video to embed here, but one can find it here.

Here’s a screenshot from CNN showing the organizations, people and money that CNN discusses (click to enlarge)

cnn money

CNN points out that the self-styled National Vaccine Information Center and others (such as Chris Shaw’s group at the University of British Columbia) get a lot of money from the Dwoskin family. The Dwoskin Family Foundation told CNN that they are not antivaccine but are, instead, advocates for safer vaccines. It’s a story we hear a lot.

Claire Dwoskin is or was a board member of the NVIC and made this statement about vaccines. John Stossel had aired a piece about how his daughter had fought off a whooping cough infection and in her response to one of his producers she stated:

What his daughter went through is NOTHING compared to what the families of autistic children go through every day of their lives. No disease can match this record of human devastation. Vaccines are a holocaust of poison on our children’s brains and immune systems. Shame on you all.

I’m not sure how that sentiment fits in with being “advocates for safer vaccines”. One has to accept that vaccines are safe before advocating for safer vaccines.

Also mentioned is Barry Segal who funds Focus Autism (now Focus for Health) and A Shot of Truth. And Generation Rescue’s JB Handley and Jenny McCarthy. Both Focus Autism and Generation Rescue are noted for funding Andrew Wakefield’s “Strategic Autism Initiative”. All these groups are discussed in previous articles here at Left Brain/Right Brain.

The piece is short and perhaps that’s why they don’t mention Generation Rescue’s hundreds of thousands of dollars spent on full page ads claiming vaccines cause autism, or their poorly performed phone survey on vaccines. Lots of money spent on promoting fear and distrust of vaccines.

I’ve never seen evidence of these groups actually funding work into safer vaccines. I’ve never seen, say, funding for research into a new vaccine or even something simple like improved storage and transportation for vaccines into the developing world to reduce the use of thimerosal, a preservative these groups claim (without good evidence) cause autism and other disabilities.


Matt Carey

Jenny McCarthy tells the story two different ways…again

29 Jan

Yep, this doesn’t have anything to do with autism. Well, aside from the fact that we will discuss how one public face for autism is once again showing that her stories don’t match over time. You see, Jenny McCarthy has a reality TV show now and the story of her divorce presented in that show doesn’t match what she wrote in her book 8 years ago. I found the new story in a recent article in the Washington Post: Jenny McCarthy tries to mend her anti-vaccine reputation with reality TV. It’s too little, too late in which Emily Yahr writes:

The show is filled with such heart-to-hearts, with McCarthy recounting her ordeals as a single mom, starting with her ex filing for divorce in 2005 the same week that Evan was diagnosed with autism.

Now, it’s been a while since I read Jenny McCarthy’s “Louder than words” book. A long while, but that statement didn’t strike me as consistent with what she wrote in her book. The sentiment is the same: harsh on her kid’s father while putting herself in a good light, but the details didn’t match.

What did she say in her 2007 book? She says that she asked for the divorce. She was the mommy warrior, taking charge in that book. Now in her reality show she’s the object of sympathy, dumped by her husband just when she needed him most.

LTW-divorce

In fact, if you read the book, she talks about thinking about divorce for some time before she finally asked for it. Because that whole “same week as the diagnosis” thing in the TV show isn’t what she wrote in 2007 either. Between the autism diagnosis and her asking for a divorce, there are weeks, if not months of stories in her book. Stories that include Ms. McCarthy asking her husband to leave, and him refusing.

Who knows what the actual story was. All we hear is the story that fits the image she wants to portray at the moment. Her ex husband is taking the high road and not returning fire.

Oh, and if you are worried about how her son took the divorce, don’t. According to Ms. McCarthy, autism renders one incapable “emotionally connecting” with such events.

LTW-downplay-evan-reaction

Sorry to be sarcastic there. But, really, Ms. McCarthy? Autism renders one incapable of emotionally connecting with what was going on? Couldn’t be that the kid was unable to understand why his mother was making his father leave, just as any kid would?

No real surprises here. Ms. McCarthy has been inconsistent over the years. She had multiple stories of her first encounter with Barbara Walters when Ms. McCarthy was a guest on The View. She has informed us that her son is no longer autistic. Then, a few years later, she tells us that he is. (Jenny McCarthy Slams Rumor That Her 11-Year-Old Son Evan Doesn’t Have Autism). She hammers away at vaccines, but tells us she’s pro-vaccine. And to cap it all, she heads an autism charity that focuses on treatment, but won’t speak out against the faux treatments (like bleach enemas) that are promoted at her orgs conventions.


by Matt Carey

Measles are back but where is Jenny McCarthy?

28 Jan

It takes a lot of courage to stand up and make yourself heard on unpopular topics. But it’s only really courageous if you are willing to accept responsibility for being wrong. Jenny McCarthy stood up. She made herself heard. In the process she got a lot of media attention, led a march on Washington (the Green Our Vaccines rally), and sold a lot of books. That was years ago. Now we are seeing the outbreaks of disease that so many, even Ms. McCarthy, predicted based on the path she set. Back then she at least had the guts to say, “it’s not my fault” (I disagree). Now she’s just absent from the public’s eye on this topic. Instead we get her new reality show.

Today, a measles outbreak originating in Jenny McCarthy’s old backyard (southern California) has reached about 100 people infected (50 in the state, 23 more whose connection to the epicenter of the outbreak is unknown and more out of state). And, no comment from Ms. McCarthy. But she wasn’t always so quiet. Consider this statement from an interview in Time Magazine:

I do believe sadly it’s going to take some diseases coming back to realize that we need to change and develop vaccines that are safe. If the vaccine companies are not listening to us, it’s their f___ing fault that the diseases are coming back. They’re making a product that’s s___. If you give us a safe vaccine, we’ll use it. It shouldn’t be polio versus autism.

The idea that somehow a resurgence of disease would lead to a change in vaccines didn’t make sense to me back then. It seemed like some nasty game of “chicken” where Ms. McCarthy was going to frighten enough people about vaccines that outbreaks would be possible. Frighten with statements like “they’re making a product that’s shit” and that the vaccines are not safe. Somehow, once this fear was instilled and the drop in vaccination rates happened, outbreaks would happen and these would prove her point that the vaccines are “shit” and the vaccines would be reinvented.

Apparently Ms. McCarthy realized that this logic wasn’t sound as she started distancing herself from the vaccine message years ago. Instead of being at the forefront of her movement today, ready to force the changes she predicted, she brings handlers to interviews to deflect questions on vaccines. She points people to her nonpology and nosplenation of her views in an op-ed published by the Chicago Sun Times, Jenny McCarthy: The gray area on vaccines

Here’s a defensive paragraph (and a straw man argument) in that op-ed:

“People have the misconception that we want to eliminate vaccines,” I told Time Magazine science editor Jeffrey Kluger in 2009. “Please understand that we are not an anti-vaccine group. We are demanding safe vaccines. We want to reduce the schedule and reduce the toxins.”

Here’s the thing. Many people have called out Jenny McCarthy over the years for her irresponsible statements about vaccines. She spread a lot of fear. One doesn’t read “They’re making a product that’s shit” or a correction of that view at the Sun Times. One doesn’t hear blanket statements that vaccines are all unsafe (“If you give us a safe vaccine, we’ll use it.”) One doesn’t read her statements that vaccines are behind the rise in diagnosed autism rates. One doesn’t hear her state that if she had another child, she wouldn’t vaccinate (a statement she made back when she was more vocal). No, all we get is her “grey area” on vaccines.

Also, not comment about the impending outbreaks.

Which brings me back to: where’s the courage in hiding and dodging the consequences of your actions, Ms. McCarthy? Are you going to point me back to your claim that “it’s not my fault” made on Larry King Live?

KING: Isn’t the problem here, Jenny, that people sometimes listen with one ear are going to panic. And not vaccine at all?

MCCARTHY: Probably. But guess what? It’s not my fault. The reason why they’re not vaccinating is because the vaccines are not safe. Make a better product and then parents will vaccinate.

I didn’t buy it then, I don’t buy it now.

And a similar sentiment

KING: Probably due to you, jenny, and programs like this, the percentage of children getting vaccinations is dropping.
Do you think that’s good?

MCCARTHY: I think it’s only good because it’s the only thing that’s going to shake up the CDC to do something about it.

Yes, they and others have been doing something about “it”. It being the drop in vaccination rates, not the alleged problems with vaccines you were intending. Many people have spent a lot of time trying to prevent or reduce the outbreaks we are seeing now. The question is why weren’t you working on avoiding this?

As I stated at the outset, it’s only courageous to stand up against prevailing opinion if you are willing to take responsibility and fix problems if/when you are proved wrong.

Ms. McCarthy, you were wrong. You were wrong to spread fear. And you can’t get out of it with a simple “it’s not my fault”. It is partly your fault that outbreaks are happening.

And are these outbreaks causing people to accept your position and make the changes you asked for?

No.

And all this doesn’t even touch on the problems of your promotion of unsafe “therapies” for autism, an issue much closer to my heart.


By Matt Carey

A bit of irony from Generation Rescue: still citing Jenny McCarthy as the face of autism recovery

5 Aug

Somehow I’ve found myself on Facebook and, even more, navigating to the Generation Rescue page. And today I found this:

GR_FB

In case you didn’t click to enlarge and read, here’s their statement:

The New York Times recently posted an article on autism recovery – and yes, it’s real! There really is hope!

Thank you Jenny McCarthy for being the celebrity to bring attention to the truth and thank you for all you have done for this cause.

Here’s a hint–there really is hope even without losing a diagnosis. One can have be autistic or the parent of an autistic kid and have hope. Trust me, I know. And I think if you ask Jenny McCarthy, she will tell you the same.

Back to the story. Generation Rescue are referring to this article (The Kids Who Beat Autism) in the NY Times magazine.

You may ask, where’s the irony in that? Jenny McCarthy is the public face of autism “recovery” after all, right? She told us all about how her kid was no longer autistic, typical, all that after using alternative medicine. She went so far as to berate the government for not calling her to study her no-longer-autistic son (more on that later).

I find it ironic because she’s been in the news just in the past few weeks, discussing how her autistic son is being bullied because of his autism.
http://www.people.com/article/jenny-mccarthy-the-view-autistic-son-bullied

AutisticEvan

I wish her kid well. I really do. I also wish Jenny McCarrthy compassion and forgiveness. I wish she would be more honest.

Let me return to the “Jenny McCarthy Berates the US Government for Not Studying her Autistic Kid” thing. You seethe NY Times Magazine article is discussing an NIH study of kids who were diagnosed as autistic but later were diagnosed to be not autistic. Not just a coincidence, but years back my friend Kev Leitch not only discussed that study while it was in progress, but pointed out that if Jenny McCarthy were serious about wanting the government to study her kid she might want to participate in the NIH study. Here’s what Jenny McCarthy had to say back then:

Evan is now 5 years old and what might surprise a lot of you is that we’ve never been contacted by a single member of the CDC, the American Academy of Pediatrics, or any other health authority to evaluate and understand how Evan recovered from autism. When Evan meets doctors and neurologists, to this day they tell us he was misdiagnosed — that he never had autism to begin with. It’s as if they are wired to believe that children can’t recover from autism.

So where’s the cavalry? Where are all the doctors beating down our door to take a closer look at Evan? We think we know why they haven’t arrived. Most of the parents we’ve met who have recovered their child from autism as we did (and we have met many) blame vaccines for their child’s autism.

So, where was the cavalry, Jenny? Where was your desire to see that the NIH, CDC, AAP and “any other health authority…understand how Evan recovered from autism”?

Ms. McCarthy, back then the autism community knew you’d never volunteer your kid for such a study. Controlling the message was just too important to you. The only surprises are that these “new” revelations so soon and are so clear.


By Matt Carey

Same old Jenny

27 Jun

Jenny McCarthy is back in the news. It appears that The View is not renewing her contract. In fact, there seems to be quite a shakeup at The View with many people leaving.

Jenny McCarthy is responding to this news, discussing fellow View host Sherri Shephard as picked up by Fox News.

“If Sherri goes … I go too,” McCarthy tweeted Thursday from her verified account, adding “#sisters,” followed by another tweet: “My View will be changing too. As will with many hard working folks. Thanks to everyone at the show for your dedication and an amazing year.”

Interesting spin there–instead of being released, she’s framing it as Jenny McCarthy, ready to take a stand and quit her job for her “sister”. Right. One thing I’ve learned over the years watching Jenny McCarthy, she’s good at spinning things to make herself look good.

She’s been a bit of a chameleon when it comes to her opinions. When it comes to autism, she started out with a new-age type “indigo child” approach. Then she took on the “vaccines cause autism” thing, which really catapulted her back into the public eye. Then the vaccine thing became a liability and she got quiet, finally posting an op-ed distancing herself from her previous views*. And, now, we see that the “View” she’s had for the past year was, well, just for “The View”. New job, new View. Will that involve autism, vaccines or something new? We don’t know. We just know that leaving the show means she can change her views.

Same old Jenny.


By Matt Carey

*Jenny McCarthy in her op-ed:
“I’ve never told anyone to not vaccinate.”

I don’t know if that’s true or not. I know she fueled a movement away from vaccines. For example, she wrote on Oprah Winfrey’s website in 2007, “But if I had another child, I would not vaccinate.” Yep, she has technical truth. She didn’t say, “you don’t vaccinate”. She just put herself out there as a leader of a community and said, “I won’t vaccinate”.

You know what word you won’t find in her Op-Ed? Autism. She doesn’t even approach the question that made her famous and that put so much fear in parents. It’s a very politically crafted article, in my opinion.

Jenny McCarthy on Larry King Live:

We’re scared. I mean moms and pregnant women are coming up to me on the street going, I don’t know what to do. I don’t know what to do. And I don’t know what to tell them, because I am surely not going to tell anyone to vaccinate. But if I had another child, there’s no way in hell.

She won’t tell someone *not* to vaccinate, but she “surely” won’t tell some one to vaccinate.

And later on Larry King Live

KING: Isn’t the problem here, Jenny, that people sometimes listen with one ear are going to panic. And not vaccine at all?

MCCARTHY: Probably. But guess what? It’s not my fault. The reason why they’re not vaccinating is because the vaccines are not safe. Make a better product and then parents will vaccinate.

Right. She gives people incorrect information about the safety of vaccines, they get scared and don’t vaccinate, but it’s not her fault because she’s on record saying (but not acting) she’s pro vaccine.

Another time on Larry King Live

MCCARTHY: We get that they’re saving lives, but the increase is ridiculous, you guys. Look, it’s plain and simple. It’s bull (EXPLETIVE DELETED).

KARP: No, it’s not.

MCCARTHY: Too many shots too soon.

(CROSS TALK)

MCCARTHY: My son died in front of me due to a vaccine injury. And there are many — every week I get a picture of a dead child.

KING: You lost a son?

MCCARTHY: Evan died in front of me for two minutes, cardiac arrest. Every week, I get a picture sent to me of a child that died following a vaccination.

What are parents supposed to think when they hear her say that vaccines kill, and that there are “too many, too soon”? Seriously, if there are “too many” vaccines, are parents supposed to say, “Jenny McCarthy is pro-vaccine. I’ll vaccinate my kid!” Too many means some vaccines shouldn’t be given which means, don’t vaccinate with those vaccines.

But, Jenny McCarthy doesn’t want you to think that’s what she said.

Jenny McCarthy tries to position herself as in the “grey area” on vaccines

16 Apr

Jenny McCarthy seems a bit angry at bloggers. She’s written an op-ed for the Chicago Sun Times Jenny McCarthy: The gray area on vaccines. She’s not antivaccine, she wants us to know.

Well, Jenny, I don’t call you antivaccine. I call you irresponsible. And I stand by that. Mostly for your promotion of autism “therapies” which range from useless to abusive. Will you be speaking at the AutismOne conference this year? If so, will you speak out on forcing disabled children to drink diluted bleach solutions or undergo repeated diluted bleach solution enemas? Really, it’s time to grow a spine and stop lending your name to nonsense.

Back to vaccines, here’s what you say now:

For my child, I asked for a schedule that would allow one shot per visit instead of the multiple shots they were and still are giving infants.

But only a few short years ago you told us you wouldn’t vaccinate if you had another child. A very different statement. What are young parents supposed to listen to? “I’m pro vaccine” or “I wouldn’t vaccinate my child”.

Irresponsible.

You hide behind straw-man arguments, even now:

I believe in the importance of a vaccine program and I believe parents have the right to choose one poke per visit. I’ve never told anyone to not vaccinate. Should a child with the flu receive six vaccines in one doctor visit? Should a child with a compromised immune system be treated the same way as a robust, healthy child? Shouldn’t a child with a family history of vaccine reactions have a different plan? Or at least the right to ask questions?

Parents have the right to pick their schedule. You know that. You said that in your “Green Our Vaccines” rally (3:20). The schedule is “recommended”. Children need to be vaccinated to attend school, but no one checks when they got their vaccines. Why do children need to be vaccinated? Well, for one thing, those children with compromised immune systems you talk about. They are at high risk for infectious diseases. They are not treated the same as other children, either by their pediatricians (yes, I’m calling you out on a straw man there) nor in school, where we are expected to help protect them.

Here’s what I call irresponsible: scaring people about vaccines with your ill founded opinions. Telling people that you wouldn’t vaccinate your baby, but claiming to be “pro vaccine”.

KING: Jenny, will you agree that some cases have nothing to do with vaccines, which makes it more puzzling?

MCCARTHY: Absolutely. You know, environmental toxins play a role. Viruses play a role. Those are all triggers. But vaccines play the largest role right now and something needs to be done. You know, testing these kids for immune issues, you know, that would help so much, changing the schedule. You know, I don’t understand — as a precautionary measure, why don’t they do this?

So, vaccines play the largest role right now? Based on what data? I’ve seen your “studies” and they are junk. Do you still believe that “vaccines play the largest role”? The evidence is even more against you now. You had a chance to clarify your position on autism and vaccines in your op-ed and you avoided it.

Here are more scary statements, without evidence:

But I believe that’s — it’s an infection and/or toxins and/or funguses on top of vaccines that push children into this neurological downslide which we call autism.

Here you are with Mr. Carrey:

MCCARTHY: Go back to 1989 schedule when shots were only 10 and the MMR was on that list. I don’t know what happened in 1990, there was no plague that was killing children that we had to triple the amount of vaccines.

CARREY: What happened back in 1989 that warranted 26 more vaccines?

MCCARTHY: Greed.

CARREY: Are all of them absolutely necessary?

KING: Because they want to make money?

MCCARTHY: Of course.

Vaccines are only necessary because people want to make money. That’s “pro vaccine”? More to the point, that’s responsible? Sure, let’s go back to the time when Hib infections caused lasting harm or even death. Let’s go back to the 1980’s. The vaccine is just there to feed greed, right?

Irresponsible.

I can go on and on with various irresponsible quotes of yours. Again, your statement that you would not vaccinate if you had another child is probably the most irresponsible when it comes to vaccines. Here’s what the founder of your autism organization had to say about his team’s efforts:

With less than a half-dozen full-time activists, annual budgets of six figures or less, and umpteen thousand courageous, undaunted, and selfless volunteer parents, our community, held together with duct tape and bailing wire, is in the early to middle stages of bringing the U.S. vaccine program to its knees.

You once shouted down someone saying that vaccines were beneficial, shouting “bullshit” on Larry King live. When you have the guts to distance yourself from the above statement, perhaps I’ll agree that you have guts. That you mean what you say. For now, it’s just Jenny McCarthy, putting her name in the press, yet again. Jenny McCarthy, selectively quoting herself to make herself seem responsible.


By Matt Carey

Jenny’s McCarthy’s vaccine narrative called into question

16 Jan

Jenny McCarthy is the face of vaccine rejectionism in America. The story she tells of how her son, Evan, became autistic after his MMR shot is arguably the origin myth for the anti-vaccine movement, and the legions of  “Warrior Mothers” who follow her. Now, a competing narrative from someone else close to Evan calls the myth into question.

“I have such tremendous guilt for not speaking up when I knew something wasn’t right,” says Joyce Bulifant, Evan’s paternal grandmother. “But I was afraid of Jenny, and didn’t want to be the interfering mother-in-law. I was more concerned about me than taking care of Evan.” She agreed to speak with AutismNewsBeat.

McCarthy’s many critics have pointed to her numerous contradictions. She told Oprah Winfrey, for example, and there is “no doubt in my mind” that the MMR vaccine caused her son Evan’s autism. But she has also written that Evan showed signs of delay by six months – one year before the shot.

“I don’t think she’s very fond of me, but I love her because she is Evan’s mother. It makes me sad that we don’t have a true relationship,” says Bulifant. “That makes me very sad.”

The elf on the shelf

Bulifant is no stranger to Hollywood. The Virginia native has been acting for more than 50 years, and is well known for playing Murray Slaughter’s wife, Marie, on the Mary Tyler Moore Show. She was also a regular on The Match Game, and appeared in Airplane! (1980). She lives in Palm Springs with her fourth husband, actor and composer Roger Perry. Joyce has 15 grandchildren, and they all call her LaLa. When she speaks of Evan, who was born in May, 2002, it’s easy to imagine he is the favorite.

“Evan was here for Thanksgiving, and he left a note on my fridge that I just can’t take down. It reads ‘Dear LaLa, I hope that you love me so much. Thanks, Evan. I love you to the moon and back.

P.S., the Elf is in the freezer with turkey.”

The elf is a small, felt doll that sits on a shelf.

“He used to be afraid of the Elf on the Shelf, but last year he started moving it around the house, hiding it in different places and making it reappear. He said it had magical powers,” says Bulifant. “I love playing magic with him. He’s so very dear. It’s like he has a sixth sense that I don’t have.”

That sixth sense sparks her sense of wonder. “I am dyslexic and so is my son (Evan’s father, John),” she says. “We do compensate when we don’t have all the typical skills. The compensation part fascinates me. T

o me Evan is magical and wonderful and I love him to death.”

Bulifant’s conversation is sprinkled with sweet and simple stories about the boy she loves.  One time at L.A.’s Getty Museum, she said, Bulifant and Evan were throwing quarters into a fountain to make a wish

“I wish you would always love me,” said Evan.

“I wish you would always love me,” she said.

“LaLa, that’s my wish!”

Bulifant said she was concerned about Evan’s months before his first birthday.

“I remember Christmas, 2002 (age seven months). I was bathing him in the sink, and trying to get him to giggle and respond to me, but he seemed detached. My family was a little concerned but I didn’t say anything to Jenny because I know children develop at different times. But I was concerned.”

And then there was the incident in the park, another example of how difficult it is to see autism in a loved one.

“We took him to the park, and he started running away from us. We called, but he didn’t even turn around. We wondered if his hearing was impaired,” sh

e says. “That didn’t seem right. So I was testing him in the car seat on the way home. ‘Where is your nose? Where are your ears?’ I asked Evan. He didn’t respond, and I wondered what was going on. Then, when we pulled up in the driveway, Evan suddenly pointed

to h

is mouth and said ‘mouth’, and then he pointed to his ears and said ‘ears.’ It was like he was saying ‘Silly gramma, I know where my mouth and my ears are!’”

Joyce has been active in dyslexia education and advocacy for years, and she called on her research contacts for help. “By the time Evan was 18 months old, I was convinced he had autism,” she says.

Bulifant was wary of approaching McCarthy, who had written two books by that time that made it clear she didn’t appreciate parenting advice from others.

“She wrote ‘I don’t want anyone telling me what to do as a mother,’” says Bulifant. “I was trying to be a good mother-in-law and a good grandmother at the same time. I don’t think I even said anything to John. Everything I read pointed to autism.”

One day, while John was off directing in North Carolina, and Bulifant was staying at Jenny’s Los Angeles home, the “Good Grandmother” spoke up, and asked the nanny about Evan’s development. The nanny reacted defensively.

“I want to ask you something. Have you noticed that Evan doesn’t always connect with me?“ asked Bulifant.

“Jenny is a wonderful mother and he always connects with me.”

“He does watch a lot of television, ” said Bulifant, “and I’m wondering if that means he’s not used to interacting.”

“Evan is fine and always interacts with me. “

Bulifant retreated. “I thought maybe I was just me being a silly grandmother.”

She and her husband left the house for a few hours, and when they came back nobody was home.

“I was terrified that something had happened to Evan.” Then John called, and said that Jenny was “very upset “about the conversation with the nanny.

“You just can’t say anything about Evan,” John continued. “She gets very upset.” He said McCarthy would not come back home until Bulifant and her husband left the house.

Which they did.

Back home, Bulifant wrote a letter of apology to McCarthy. “Jenny wrote back saying ‘You shouldn’t have said anything to the nanny. You should have said it to me.’ And she was right, I should have. I was just afraid. I didn’t want to be the interfering mother-in-law.

“It was very wrong, and that is something I have to live with,” says Bulifant.

McCarthy has told a similar story:

Others had noticed something different about Evan, too. “My mother-in-law said, ‘He doesn’t really show affection,’ and I threw her out of the house,” Jenny says. “I went to a play gym, and the woman [there] said, ‘Does your son have a brain problem?’ … [I said], ‘How dare you say something about my child? I love him. He’s perfect. You can’t say that about a child.’ I just had no idea.”

Bulifant says that after being “thrown out of the house,” she and McCarthy have only spoken a few times, and for the last two years have communicated only through occasional texts.

Seizures and celebrity

Evan’s autism, and Bulifant’s collision with McCarthy’s “strong personality” created another issue. It’s what she calls her “moral problem” for not speaking up sooner about McCarthy’s well-publicized anti-vaccine views. “I know enough about Evan that if I spoke up sooner, more kids would be vaccinated, and fewer would have died or gotten very sick. We’ve seen cases of measles in Texas, and whooping cough killed ten children in California. It breaks my heart. That’s the biggest moral issue in my whole life,” she says.

Vaccines are at the center of McCarthy’s shifting narrative. In one version she says “the soul was gone from Evan’s eyes” shortly after the boy’s MMR vaccine. Here is what she told Oprah in September, 2007:

“Right before his MMR shot, I said to the doctor, ‘I have a very bad feeling about this shot. This is the autism shot, isn’t it?’ And he said, ‘No, that is ridiculous. It is a mother’s desperate attempt to blame something,’ and he swore at me, and then the nurse gave [Evan] the shot,” she says. “And I remember going, ‘Oh, God, I hope he’s right.’ And soon thereafter—boom—the soul’s gone from his eyes.”

McCarthy’s narrative also includes two seizure episodes suffered by Evan, leading to an autism diagnosis. In Belly Laughs, she wrote Evan was diagnosed with a febrile seizure at 2 ½, and three weeks later, he suffered seizures which led to a cardiac arrest, and a diagnosis of epilepsy. By this telling, stereotypical autistic behaviors followed.

Bulifant says the first seizure came in the spring of 2004. Oddly, the news triggered in her a sense of relief.

“I knew that seizures are associated with autism, and that Evan would finally get the diagnosis he needed and finally get help. I wasn’t alarmed.”

The second seizure occurred the evening before Easter Sunday, in Bulifant’s home. “I had an Easter basket for Evan,” she says.

“It was the night before Easter. Evan was so tired that he fell into my arms. I laid him on his bed and took off his shoes and when I looked at him I saw his little eyes rolled into the back of his head. I yelled for John to come quickly. We called 911. John held Evan’s hand and said ‘Don’t worry, you are in a safe place.”

Paramedics arrived. “Jenny was a mess. I now know what ‘wringing you hands mean’, because that’s what I was doing.” The EMTs “bagged” the boy because his breathing was shallow, says Bulifant, then took him to the local emergency room. Jenny rode in the ambulance. Anxious hours followed in the waiting room while doctors stabilized Evan and then allowed family to visit.

Evan’s first words were “Look at that air conditioning vent.”

Jenny and John left Palm Springs with Evan and drove straight to Cedars Sinai Hospital in LA, where he was diagnosed with epilepsy. Joyce felt like screaming – “No, it’s autism!” She had had enough.

“I said to John ‘I now insist that you go to UCLA to see a neurologist.’” By McCarthy’s telling, it took the neurologist 20 minutes to arrive at a diagnosis.

A September, 2007 People Magazine article is typical of how McCarthy tells the story:

This was another seizure, she thought, “but this one is different. He’s not convulsing.” Instead, “foam was coming out of his mouth, (and) and after a few minutes, I felt his heart stop,” she said.

When the paramedics arrived, she told them about Evan’s heart. “They looked at me like I was crazy. I don’t know why,” she said. Only, as they discovered for themselves, the child’s heart was no longer beating, so they administered CPR.

“Why, God? Why me … Why? Why? Why?” McCarthy recalled thinking in those desperate moments, but then, she said, an inner voice came over her. “Everything’s going to come out okay.”

Because there was no pediatric hospital near her parents’ home, Evan and McCarthy drove three hours back to Los Angeles, during which time Evan suffered several more seizures.

Dramatic effect

Another unfortunate dimension to McCarthy’s assault on children’s health is her endorsement of unproven, costly, and potentially harmful alternative therapies for autism. She is front and center at the annual AutismOne conference, where speakers have recommended bleach enemas and chemical castration. Her charitable foundation, Generation Rescue, actively promotes  “a wealth of biomedical therapies that treat the underlying issues of autism inside the body.” These include chelation, hyperbaric oxygen, anti-fungals, anti-virals, and cannabis.

When asked what she thinks of the autism cure industry that Jenny has captained, Bulifant demurs. “I think there is value in eating right and exercise for all children,” she says, her voice trailing off.

But what about telling autistic children they are vaccine injured, or that the soul has been sucked from their eyes? Jenny and her angry mob, as she has called her followers, regularly describe their children as train wrecks, zombies, and worse.

“Jenny says things for dramatic effect,” says Bulifant “I don’t understand that type of thinking. Evan is incredible. One of our favorite things to do is to go looking for lizards. He spots them where I can never see them. I ask him ‘How did you even begin to see that?’”

Still, Bulifant doesn’t hesitate to describe McCarthy as “a very good mother, very caring and trying to do the best for Evan,” adding “I don’t know why she says those things.” She describes her son as good father, and regrets how John has been portrayed as distant and uncaring.

“John never spoke up when Jenny said unkind things about him. I asked him why, and he said it would turn into another ‘Hollywood he said – she said’, and that he wanted to be a gentleman about it, and didn’t want to hurt Evan.”

Does she worry that Evan may one day think he lost his soul to autism?

“I hope that Evan never realizes the things have been said about him. I just don’t want him to ever be hurt. I don’t know if he will ever realize what has been said about him. I hope not.”

Bulifant tries to expose her magical grandson to the arts whenever possible. “I took him to see Billy Elliot, and he loved that. His little mind is working all the time. ”But those bonding opportunities have dwindled since McCarthy moved to the Chicago suburb of Geneva last year. Now, Bulifant watches The View to see new pictures of Evan, and to hear the latest stories.

She says Jenny is doing well on The View.

_____________________

Update from Joyce Bulifant:
I understand and have great empathy for parents of autistic children who want to know the reason for their children’s autism. They understandably latch onto anything they can find as a reason. That might be what Jenny did when Dr. Wakefield gave incorrect information about vaccines. I don’t think she did this maliciously. She just needed a reason.
If people know Evan showed signs of autism before his MMR vaccine, parents wouldn’t be afraid to vaccinate their children, thereby saving lives and much suffering.