Ethical, Legal and Social Implications of Autism Research.

20 Sep

The National Institutes of Health’s Office of Autism Research Coordination (OARC) and the Autism Coordinating Committee (ACC) are sponsoring the workshop: Ethical, Legal and Social Implications of Autism Research.

The announcement is below. This sounds like what could be a very useful workshop and a chance to be heard on an important topic.

Date:

Monday, September 26, 2011

Time:

8:30 a.m. to 5:00 p.m. Eastern time (ET)

Agenda:

The National Institutes of Health’s Office of Autism Research Coordination (OARC) and the Autism Coordinating Committee (ACC) are sponsoring the workshop: Ethical, Legal and Social Implications of Autism Research. Leading community stakeholders, bioethicists, and scientific researchers will address topics such as ethical implications of genetic and environmental risk factor research, ethical issues in genetic testing, risk communication, ethical issues in childhood and adult diagnosis, and effective partnering with families and the self advocacy community to advance treatment/intervention and services research.

The goal of the workshop will be to define possible approaches for conducting future studies of ethical, legal, and social implications of ASD research, taking into consideration how these types of issues have been approached in related medical conditions.

To view the agenda, click here.

Place:

Bethesda North Marriott Hotel & Conference Center
5701 Marinelli Road
Bethesda, Maryland 20852
Map and Directions This link exits the Interagency Autism Coordinating Committee Web site and enters a non-government Web site.

Webcast Live:

http://nih.granicus.com/MediaPlayer.php?event_id=67 This link exits the Interagency Autism Coordinating Committee Web site and enters a non-government Web site.

Conference Call Access:

Dial: 888-390-3404
Access code: 6003464

Cost:

The meeting is free and open to the public.

Pre-Registration:

http://www.acclaroresearch.com/oarc/9-26-11/ This link exits the Interagency Autism Coordinating Committee Web site and enters a non-government Web site.
Pre-registration is strongly recommended, but pre-registration does not guarantee you a seat. Seating is first come, first served, with expedited check-in for those pre-registered. Seating is limited to room capacity.

Access:

On-site parking available with validation
2 1/2 blocks from the White Flint Metro (Red Line)

Contact Person:

Ms. Lina Perez
Office of Autism Research Coordination
National Institute of Mental Health, NIH
6001 Executive Boulevard, Room 8185a
Rockville, Maryland 20852-9669
Phone: 301-443-6040
Email: IACCPublicInquiries@mail.nih.gov

Please Note:

This workshop will also be open to the public through a conference call. Members of the public who participate using the conference call phone number will be able to listen to the discussion but will not be heard. If you experience any technical problems with the conference call, please e-mail OARC’s technical support team at IACCTechSupport@acclaroresearch.com or call the OARC Technical Support Help Line at 443-680-0098.

Individuals who participate in person or by using these electronic services and who need special assistance, such as captioning of the conference call or other reasonable accommodations, should submit a request to the Contact Person listed on this notice at least 7 days prior to the meeting.

As a part of security procedures, attendees should be prepared to present a photo ID at the meeting registration desk during the check-in process. Pre-registration is recommended. Seating will be limited to the room capacity and seats will be on a first come, first served basis, with expedited check-in for those who are pre-registered. Please note: Online pre-registration will close by 5:00 p.m. the day before the meeting. After that time, registration will have to be done onsite the day of the meeting.

Schedule for meeting is subject to change.

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