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Better Dead Than Autistic

24 Aug

So its true.

A five year old autistic boy died on Tuesday while receiving chelation.

Since this blog began and I started addressing Chelation I’ve had numerous responses telling me I was wrong to attack Chelation as it was perfectly safe. That I was a child abuser because I refused to chelate my child. That it was better to try an unknown and unproven proceedure then to leave them in the hell of autism.

RFK Jr raised his profile with it, David Kirby made his name from it, lots of people marched for their right to practice it. Erik Nanstiel has a website that proudly shows parents chelating their kids.

When this story first started doing the rounds I checked into the Evidence of Harm mail list. They are very upset about this because they’re mostly parents…..right? No. Because they’re worried about how it might affect their political campaign and how upsetting it might be for the Practice concerned:

Yeah, just imagine big pharma jumping on this to try to shut down our efforts to help our children get well again!

EoH List

This will hit Dr. Usman especially hard…she is a VERY caring Physician whose own child died (from a food allergy incident- not chelation but to experience the death of a child….) so you can see how this will devastate her personally

EoH List

And how many children died during the night of mercury poisoning that we will never hear about? How many have died of mercury induced seizures, peanut allergy, ….?

No treatment — nothing is without risk. To date, chelation has been the only hope many of our families have. And what are the alternatives? Life in a gastro hell with seizures.

My hearts and prayers go out to this family. But it only strengthens my and my husbands resolve to do everything we can to help our Ryan. His life was a tortured hell before biomedical — and he was one of the kids who was actually improving before intervention.

EoH List

I commented on leaking out tidbits of information because when there is nothing verifiable, it’s just fear mongering. this could be a bad setback for treatments and doctors.

EoH List

I shed tears for the parents and other loved ones and have compassion and empathy for the doctor and their staff.

EoH List

Its easy to see what the priorities here are. Lots of worry that ‘the cause’ might be affected. And lots of expressions of sympathy for the family and Doctors concerned. However I went through 22 messages and _not once_ did anyone on that list express sorrow for the dead autistic 5 year old. I wonder why.

Better dead than autistic. Better dead than an inconvenient ‘parents worst nightmare’. Better dead than making me get off my fat arse and work _with_ my child.

Who’s to say this boy’s parents didn’t read the EoH list and resolve to Chelate due to what they read? Maybe they were inspired by the buffoons at Moms Against Mercury. Maybe they were terrified by Kirby’s book. Maybe RFK Jr’s rhetoric and ego spurred them into action. Maybe Erik Nanstiel’s video’s led them to try it.

Whatever. You people set the cost. This 5 year old boy paid it. Sacrificied on the alter of your ignorance and political goals.

Think of this boy everytime you upload another video to your site, or write another inflammatory piece of rhetoric, or get your boy-reporter face on TV or persuade some other ignoramus that chelation is totally safe. He wasn’t a political tool, he was just a little boy who’s only ‘crime’ was that he was born autistic to a set of parents unable to see the value in that or even just try and meet him halfway.

Chelation: Fatal

24 Aug

Awful, awful news.

I hate to report sad news, but this story needs to be told. Today, a story will come out in the news about a family whose five year old child with autism died while undergoing chelation therapy. The family, from the Pittsburgh area, was seeing a “doctor” who claimed to follow the DAN! protocol. (Details are sketchy at this time — we are unsure of the doctor’s qualifications. We will keep you posted.)

The child died in the doctor’s office, while undergoing therapy.

Cindy Waeltermann
AutismLink Director

This isn’t the time for anger or condemnation but I would urge everyone who uses Chelation to please think long and hard about it. Unproven science is frequently deadly science. I’m sure I’ll have something more passionate to say on the issue at some point but right now all I can feel is pity for a dead little autistic child.

David Kirby On ‘Meet The Press’

4 Aug

David Kirby will be appearing on a US show ‘Meet The Press’ soon. There is already a ‘mobilisation’ from within the anti-thimerosal/mercury group to bombard the show’s feedback page with questions for his opponent from the IOM. I’d suggest that anyone who has some questions they’d like David Kirby to answer also post their messge. The address is here:

http://www.msnbc.msn.com/id/3032608/

Here’s what I submitted. I’m not sure how much weight a UK parent will carry though.

Mr Russert,

I understand the the author David Kirby will be a guest on your show in regard specifically to his book ‘Evidence of Harm’.

I should also mention that I am the UK parent of a classically autistic dughter of 5 years.

I’ve developed a very deep suspicion of David Kirby, his motives and the consequences of his book since its publication.

You may or may not know that the official website that supports the book (evidenceofharm.com) had its domain bought and administered at one time by the single-issue anti-mercury group SafeMinds. When this was noticed, control of the domain was quickly switched over to Mr Kirby. You should further know that the designer of the website itself is Wendy Fournier who is the President of the NAA, another anti-mercury activist. I often debate the issue of mercury in vaccines with Kirby’s supporters who claim that official studies that support the safety of thimerosal are paid for by shills with compromised impartiality. I’d like to know if David Kirby shares this view and if he does, how that stacks up against his own clear non-impartiality.

I’d also like to draw your attention to an open letter penned by another parent who like me, does not believe our childrens autism was caused by thimerosal or any other vaccine. It concerns the behaviour of certain people who promote David Kirby’s book on an email form that Kirby himself is a member of. You can find the letter here: http://www.neurodiversity.com/evidence_of_venom.html

David Kirby will no doubt make reference to the ‘autism epidemic’ but this epidemic almost certainly does not exist. New research states there probably is no ‘epidemic’ see: http://www.ont-autism.uoguelph.ca/fombonne-prevalence.html

You might also be interested in this site where David Kirby can be shown to have ‘flubbed’ on his intepretation of the latest autism figures: http://citizencain.blogspot.com/2005/07/kirby-flubs-autism-data.html

Kirby will also no doubt on Mercury’s undoubted role as a toxin. I’d be keen to discover what his thoughts are on the use of Warfarin in medicine.

In closing Mr Russert, I suspect you’re going to get a lot of comments from parents keen for you to praise Kirby and flame his opponent. I urge you not to do that. The whole issue of thimerosal in vaccines has been subject to some very bad science which has been repeated by Kirby. Ask to see his sources for studies he quotes and then do a simple check for the on the validity of those sources. They frequently don’t stand up to close scrutiny.

Autism is a serious matter for parents, serious enough to depend on decent science – please don’t go down the route of thinking that Kirby speaks for all, or even the majority, of parents of autistics because he doesn’t.

Thanks for your time.

Vaccinations & Autism

2 Aug

This post is going to be a fairly rambling affair for which I’ll apologise in advance. It was prompted by the upsurge in my inbox over the last month or so of news alerts surrounding vaccines and epidemics relating to parents not vaccinating their kids. On the surface not necessarily a subject directly related to autism but as the vast majority of us parents with autistic kids know, of late a lot of anti-vaccination people with an agenda have attempted to hijack autism as being the result of vaccine damage.

Here’s a selection of quotes from the Evidence of Harm email list (with thanks to Kathleen who compiled them and used them in her own post first) regarding these anti-vaxxers. These are people who are (or claim to be) parents/relatives of an autistic child:

My stance is this: for “public consumption” I am just anti-mercury. No one can argue with that. Privately, for myself and family, I feel so betrayed by our public health organizations that I don’t forsee ever getting another vaccine for myself or my family.

I am saying… “We just want safer vaccines” (for your kids)…. Meanwhile I am thinking (No way is my kid getting any more vaccines, especially not Hep B, Chicken pox, etc….)

just b/c I am very anti vaccine, does not mean I let that be the message. I always speak about the mercury and we all should.

I can say that my daughter will never be vaccinated UNLESS she is in need of a tetnus shot.

I don’t know if it’s common here or not, but I will never give my kids any vaccine again, mercury or not. They just aren’t safe.

One goal that we as a community must relentless pursue is undermining whenever possible the credibility of the fda/cdc and vaccine industry.

Please see the link to Kathleen’s piece above for all references.

Its clear to see that for a sizable proportion of the mercury = autism crowd, their mission goes far far deeper than thimerosal and touches on the eradication of vaccines totally:

Mercury seems to be getting tons of coverage. When that deal is settled and we win, we need to go after another ingredient. We’ll dismantle the vaccine industry ingredient by stupid ingredient if we have to. Who is with me?

Mothering.com

This is pretty disturbing stuff. Firstly, we have the fact that this negativity regarding vaccines is unwarranted with no evidence _whatsoever_ indicating that thimerosal or MMR causes autism (and if anyone wants to disagree with me then remember to cite your peer reviewed science please) and yet a sizable minority not only believe it but are aggressively politicising the issue to a point where a number of us are growing alarmed about the future of autism research and, more importantly, concerned about the stigmatic consequences this will have for our kids as they grow up with people believing they are poisoned.

However, there is another incredibly disturbing outcome directly related to the actions of people on the Evidence of Harm email list, their supporters and those like them on other lists:

In the course of 10 days, officials confirmed four pertussis cases, including the hospitalization of one child to treat respiratory symptoms. All of the cases afflicted children under 5 years old, and one in an infant just a couple of days old, according to Ravalli County Public Health Nurse Judy Griffin…..There have been more than 450 cases of pertussis in Montana so far this year, according to the Department of Health and Human Services. The infection rate is much higher than average years, when about 30 cases are reported….”Parents should check immunization records and make sure they’re up to date,” Nurse Judy Griffin said.

Ravalli Republic.

(Columbia) The state health department said yesterday that an infant has died from whooping cough. It is the first death reported in South Carolina from the disease in nearly three years….The health agency said it’s important children receive pertussis vaccinations on schedule.

WLTX News.

A whooping cough epidemic has hit Deschutes County. Health officials say that in the past six weeks, 18 cases of pertussis have been identified in the county. In all of 2004, there were only two cases of pertussis in Deschutes County.

KATU 2.

An increase in cases of the highly contagious whooping cough is prompting state health officials to urge stricter compliance with childhood immunization schedules….Cases have increased annually from 22 statewide in 1996 to 120 last year…Oklahoma’s childhood immunization levels continue to lag behind those nationally, officials said.

RedNova News

Kids are dying again. And in some areas of the US the disease causing those deaths is at epidemic (real epidemic as oppose to autism epidemic) proportions. And thats just one disease that vaccination removed the sting from for many years. In my country (UK) we’ve recently had a Mumps epidemic due to Andrew Wakefield’s unfounded scaremongering regarding the MMR vaccine.

How can this be in any way a good situation? At a recent ‘March for Truth’ rally in the US, a small collection of parents and professionals expounded the evils of thimerosal (or thiomersal for us Brits). One of the placards they carried read:

Vaccines are weapons of mass destruction

Now, as far as I’m aware, autism isn’t fatal but as we’ve seen above, Whooping Cough is. If you don’t vaccinate you not only increase your own kids chances of getting it, you increase the chances of them passing it on as well. Thats how an _actual_ epidemic works.

During the 1970s, widespread concerns about the safety of pertussis immunization led to a rapid fall in immunization levels in the United Kingdom. Within several years, a series of pertussis epidemics occurred; greater than 100,000 cases and 36 deaths due to pertussis were reported in one epidemic in the mid-1970s.

PKids.

These anti-vaccinationers (and don’t be fooled, they’ll tell you they’re not but remember – they have a ‘public consumption’ stance and a private stance) also aim to affect availability of vaccinations. One of the things that gets them all riled up was (and I’m not a US citizen so forgive my poor terminology) was an amendment to a bill stating that the vaccine making industry should be immune from citizens being able to sue them. As the US (and to a lesser extent the UK) seems to have lost its collective mind and now believes compensation to be synonymous with responsibility, this news was greeted with howls of outrage. But in reality, when you calm down and examine the reasons, it makes sense.

The cost of lawsuits and government regulations forced vaccine makers out of the business in the 1980s. Although Congress responded with a law to minimize their liability, most never returned to the marketplace. Today, only five companies make vaccines for U.S. distribution, compared to about 30 before the liability crisis. These firms live with the daily fear of being hauled into court.

and

In 1988, Congress created a no-fault system designed to compensate families for adverse effects of childhood vaccines. Without that protection, no manufacturer could bear the risk of the multibillion-dollar lawsuits that trial lawyers routinely threaten on behalf of their clients.

and

The fund has reduced (but not stopped) the lawsuits. In a pending class-action case, parents of children with autism are blaming vaccines containing mercury for damage to their children’s brains during critical stages of development. According to Senate Majority Leader Bill Frist, R-Tenn., one such lawsuit seeks $30 billion in damages, even though the entire vaccine market is valued at only $5 billion. Mercury (thimerosal) is not a covered ingredient under the fund.

All quotes from The Saturday Evening Post.

So, parents of autistics in the US have the power to bring the vaccine industry crashing down and in the past, lawsuits have come close to destroying the industry. What effect on child health do we think this may have? Whats important here? A parental need to get rich or the lives of children?

“Power Of Truth” Rally And EoH Maillist PhotoBlog

Placard reading: Autism Sucks! Get Mercury Out!

Placard reading: Here's the point - autism is just another name for mercury poisoning. Hey Dubya, I got your weapons of mass destruction right here.

Bumper sticker reading: Have vaccines caused autism? Read the evidence.

Yeah, definitely not anti-vaccine at all.

Evidence of Harm List Gets Flakier

10 Jul

Alongside the main players on the Evidence of Harm mail list such as Lujene Clarke and Lenny Schafer are starting to appear some truly fascinating people. It really is becoming quite an education watching this list descend into a fever pit of conspiracy theory, suspicion, paranoia, quasi-religious (and out-and-out religious) hysteria and ravings.

A sure sign of how strong one’s argument is is the quality of its support. In this respect, the EoH list is in increasingly bad shape. Alongside J.B Handley and the illogical Lujene Clarke who believes you can contract Aspergers at age 8 and upwards are some real off-the-wall whackos:

Herman Hugh Fudenberg, M.D.

Fudenberg, who has posted several times on the EoH list is possibly the most tainted supporter EoH/Mercury/Thimerosal has.

In November 1995, the South Carolina medical board found Fudenberg “guilty of engaging in dishonorable, unethical, or unprofessional conduct,” fined him $10,000, ordered him to surrender his license to prescribe controlled substances (narcotic drugs), and placed his license on indefinite suspension. The Board’s order, shown below, said that he could apply for probationary status if he underwent a neuropsychiatric examination and was judged capable of practicing medicine safely. In March 1996, he was permitted to resume practice under terms of probation that did not permit him to prescribe any drugs. His license expired in January 2004; and in March 2004, he applied to have it reinstated. However, after a hearing in which the Board considered a neuropsychatric report issued in 2003, Fudenberg agreed to remain in a “retired” status and withdrew his application for reactivation of his license. The South Carolina board’s Web site lists his license as “lapsed.”

Casewatch.

Fudenberg is a big mate of Andrew Wakefield:

Andrew Wakefield had filed patent claims for a vaccine and a possible cure for autism, based on a fringe theory of “transfer factors”. His collaborator and “co-inventor” was Hugh Fudenberg, who claimed in a 2004 interview with Brian Deer to cure autistic children with his own bone marrow.

Brian Deer.

There are, of course, plenty of genuinely disturbing kooks on the EoH list. Lenny Schafer, for example who doesn’t care if he’s right or wrong – its become a political battle for him:

The message here is that the autism-mercury cabal is committed to winning – even if they are wrong! They have clearly abandoned any pretense of scientific inquiry and are striving for a political solution.

Prometheus.

Everything that the cabal disagrees with is never argued with. Its simply shunted aside by either referring to it as written by ‘autism holocaust deniers’ or ‘Big Pharma’. In this way, unpalatable truths are casually tossed aside. I’d really really like to know how many EoH listers privately go back and read up on this stuff. I know a lot of them read this blog for example (you can deny it but yours and Yahoo’s referrer logs cannot lie my friends) and if you’re one of these people, please try and see the science past your conspiracy theory. I’ve no doubt US (and UK) Pharma companies act badly on occasion but you have moved the goalposts way beyond ‘Big Pharma’ culpability. Ask yourself if you really believe that everyone from your President right down to _and including_ your local family Doctor are all in collusion. Because thats what it would take – the collusion of just about every health care professional in your country – to keep this conspiracy alive.

David Kirby: Impartial Journalist.

7 Jul

David Kirby’s superb, even-handed account of the investigation into this ongoing, high-stakes controversy is fascinating and compelling

Bernard Rimland, Autism Research Institute; Autism Society of America

Kirby doesn’t offer his own verdict on the debate…

Polly Maurice, The New York Times Book Review

Walking the middle line, Kirby’s book remains one of the most thoroughly researched accounts of the thimerosal controversy thus far…

Publishers Weekly (Starred Review) ***

Evidence of Harm explores both sides of this controversy…

All quotes available on EOH.

So, according to himself, David Kirby is a thorough, impartial, dedicated boy-scout of a reporter. He offers an ‘even handed account’ that ‘doesn’t offer his own verdict’ and which ‘walks the middle line’ and thus explores ‘both sides’ of the controversy.

All these things are what you would expect from a journalist with some amount of ethics – after all, what is journalism that is one sided but fancily spun propaganda? – and so it must be something of a relief to most that such an important issue as the cause of autism is entrusted to such a thorough and ethical journalist.

So it comes as something of a surprise (well, no, it doesn’t really) to find that actually, despite good PR to the contrary, David Kirby is neither ethical nor impartial in his role as a journalist. He is in fact simply a partisan hack.

David Kirby’s website is ‘designed’ (and speaking as a web designer myself I use that phrase in its loosest possible sense) by ‘Wendys Webs‘. Interested to see who had done such an, um, _interesting_ design job on Kirby’s site, I performed a WHOIS on the domain and the owner was revealed as one Wendy A Fournier.

‘Well, so what?’ , I hear you ask. For an answer to that question you’ll need to head on over to the National Autism Association but make sure to use Internet Explorer as whoever (ahem) designed and built their website made it unworkable in Gecko based browsers.

And there on the Listed Directors page you will find Wendy Fournier – the President of the National Autism Association. Lets read her brief biog:

When Wendy’s youngest daughter was diagnosed with autism, doctors gave her little to hope for. She began to research treatment options via the internet. Here she discovered that there is indeed a great deal of hope. Hope comes in the form of biomedical treatments, therapies, enlightened medical professionals, a few brave politicians and an amazing group of parents around the world who are fighting for their children.

Aha, biomedical treatments, therapies, enlightened medics and brave politicos. Sound familiar at all? These are all code for ‘mercury causes autism’. Here’s how impartial Wendy Fournier is:

Wendy Fournier (Portsmouth, RI), parent and president of NAA, asks [referring to Mercury/Thimerosal], “Why would Shih, Johnson or any parent deliberately give their child a substance that’s label contains a Jolly-Roger symbol?”

Yahoo.

…according to Aventis, removal of Thimerosal from the flu shots may present vaccine shortages and a higher risk for a flu outbreak. Parent Wendy Fournier says when you look at all the information, you quickly realize it’s a weak excuse. “They’ve had years to create mercury-free batches. Thimerosal is cheap — that’s why they want it in there,” she says.

Royalrife

So, David Kirby’s (who offers an ‘even handed account’ that ‘doesn’t offer his own verdict’ and which ‘walks the middle line’ and thus explores ‘both sides’ of the controversy remember) website is designed and built by someone who blames mercury for autism. How very impartial your propaganda is turning out to be Mr Kirby.

I’m also aware that at some point in the past the domain evidenceofharm.com was listed as being owned by SafeMinds. These details have been changed now but it is another nail in the coffin of Kirby’s impartiality. I wonder how much he was paid by Safeminds for his propaganda and I wonder how much of that came from charitable contributions?

Letter To Dr Rashid Buttar, Chelationist

24 Jun

Dear Doctor Rashid Buttar,

I understand that you sell an autism cure called TD-DPMS (Trans Dermal DPMS). As the parent of an autistic child I’m very curious about this product and how it helps autistics.

I’m led to believe that TD-DPMS is not FDA approved and that David Kirby (author: Evidence of Harm) reports that:

one manufacturer of it told compounding pharmacists not to make up transdermal patches of the stuff because some kids had had bad reactions with rashes and even bleeding and scarring.

AutismDiva

Is this true? Is this bad reaction the reason you decided to turn to making TD-DPMS a cream instead of a patch? How does this affect the effectiveness of the product? As I’m sure you know being a Toxicologist, Chelation agents need to absorb a certain amount of the product in order to even begin to be effective. Where are the studies I can get hold of to see the rates of absorption for myself?

In fact, this brings me neatly onto a related matter. Such an important scientist as yourself must surely have peers flocking to review your work. As such an august scientist you are no doubt aware of the most basic scientific precept of subjecting your scientific work for review so that others may critically appraise your work and replicate it. I was surprised therefore to discover that a search of http://www.pubmed.gov – the site that lists all scientific articles in peer-reviewed scientific literature – and found nothing when searching for ‘Rashid Buttar’. Did you submit your thesis under a pseudonym perhaps? I’m positive this must be an oversight and that the safety and efficacy of a product that you regularly use on children has been regularly tested and re-tested by both yourself and your peers as to do otherwise is tantamount to admitting one is afraid to submit one’s work for peer review – I’m certain that can’t be the case for you! The commenter below must surely be mistaken?

To be listed in PubMed, you have to have published scientific articles in the peer-reviewed scientific literature. It’s just that simple. Apparently Dr. Buttar couldn’t be bothered to submit his work to real scientific journals. It’s hard to be taken seriously as a researcher or scientist if you aren’t published in peer-reviewed scientific journals. Certainly, I don’t take him seriously. In Buttar’s own words, he doesn’t know how much of the stuff is going in to the kid or how long it stays there.

Orac Knows (comments)

Moving on, I was heartened to read in a PDF of yours that:

In a study due to be released by the winter of 2004, conclusive data was accumulated regarding the efficacy of a specifically formulated transdermally applied combination of DMPS conjugated with a number of peptides, called TD-DMPS

drhirani.com

Although I was unable to find a copy of any report containing any data – conclusive or otherwise – and I was concerned to note that its now fully 6 months after your stated deadline (trouble with Secretary’s?), I feel sure that once this report is subjected to the rigours of scientific peer review in a scientific journal will fully vindicate the use of your TD-DPMS. I look forward particularly to seeing data on the long term effects of chelation on children and the incontrovertible proof that Chelation cures autism in all cases. Could you provide a definitive date of publication and details of which Medical Journal it will be appearing in please.

By the way, I know your cream is specifically geared towards kids as your remarks here make that clear:

Our success has been all under the age of nine, nine or under. Now since then, when I presented to Congress I told them that I didn’t think this would be effective for older children because the older children would use it, I didn’t see — they got better, they started talking, but they’re not in my book considered normal. They can read, but they’ll never do much more than flip hamburgers for a living, that type of thing.

Dr Rashid Buttar.

In fact, it was after reading this that I decided to contact you. Anyone with such an obvious empathy and deep understanding of autism and autistics is just the sort of person I’d like involved in my daughters treatment. Its also good to see how concerned you are with treating non-verbal autistics as a matter of choice. Such selfless dedication can only be lauded in this day and age and lets face it – those autistics who can talk aren’t probably such an inconvenience to their parents and possibly don’t look quite as heart-wrenching in your parents videos. Its OK – I’m fully aware of the need to be marketable and nothing pulls at the heart strings as much as a child trapped in the ‘abyss of autism’ as one person recently called it.

It was a bit puzzling though. I know of several autistic adults who were diagnosed as low functioning in childhood who later grew up and became reclassified as high functioning. How could that happen do you think? Possibly a naturally occurring ‘hot spring’ of TD-DPMS they fell into? A kind of ‘Old faithful’ of Chelation? I mean, they claim they just ‘developed’ as they grew up but that can’t be right can it? People don’t just develop with age do they? Especially kids?

I was also interested to see that you test for high levels of Mercury by using hair analysis. The reason I was interested in this is that the AMA say that:

The AMA opposes chemical analysis of the hair as a determinant of the need for medical therapy and supports informing the American public and appropriate governmental agencies of this unproven practice and its potential for health care fraud.

and that

A recent 2-year study of students exposed to fumes from metal welding found that hair analysis did not consistently reflect blood levels of 11 heavy metals.

Quackwatch.

So now I was confused. On one hand I had the AMA and their 2 year peer reviewed study and on the other I had you. Now don’t get me wrong – I’m *sure* you’re really really late close to releasing your data for scientific review but you’ll forgive me if I entertained a moment of doubt. I mean, these guys seem to really know their stuff:

Hair mercury levels are not an accurate indicator of mercury exposure. Hair testing has never been standardized to provide meaningful information.

They then go on to list a whole load of reasons why not and then say:

Thus it should be obvious that analyzing hair for mercury is a waste of time and money and cannot be used to diagnose mercury poisoning. A competent practitioner would easily know this. It is fraudulent to use hair analysis to diagnose “toxic levels” of mercury (or any other heavy metal) or to assess nutritional status (and claim someone is “deficient” and prescribe or sell them supplements).

OK, so I was getting a little annoyed now. These guys were calling you a fraud! I mean here they were with their reams and reams of scientifically validated evidence and there you were with your cream and they had the temerity to call you a fraudulant quack! The cheek of some people!

And talking of cheek, I read that:

Dr. Buttar is the Vice-Chairman of the American Board of Clinical Metal Toxicology and holds a position of Visiting Scientist at North Carolina State University

And yet when I visited the NCSU website I couldn’t find any mention of you – don’t worry though, I emailed the site and asked them to confirm your status so no doubt they’ll be rectifying this error soon. Actually, now that I think about it it was a few days ago I mailed them and I haven’t had a response yet. Hmmm. Odd.

And the American Board of Medical Specialties – whats wrong with those guys? They say:

The American Board of Medical Specialties does not recognize the American Board of Chelation Therapists, the American Board of Clinical Metal Toxicology, the American Board of Chelation Therapy, and the Board Of Medical Toxicology

Casewatch.

The way they word it – you know, making Chelationists put this paragraph on consent forms and everything – makes it look like they don’t trust you and think you’re all a bunch of quacks. Man, you must long for the days when the medical community just closed ranks against all outsiders. People had proper respect for alternative medical practitioners then I bet.

On that note, I was fascinated to read some of your other patients testimonials. The guy who says that:

He (Dr Buttar) told me that most of his patients were much worse off than I and that God had Blessed me by giving me a wake up call and that he could enable my body to heal itself! Now that is the first time I have ever heard a Doctor say he could enable my body to heal cancer.

CajunCowboy.

Impressive stuff! Is the cancer cure done with cream too? I actually telephoned NHSDirect to see if they’d heard of this treatment but I didn’t get a straight answer. Actually they sounded a bit weird. There was a lot of what sounded like giggling on the other end of the line. Not very professional is it?

I was also interested in your Anti-Aging stuff:

As an anti-aging specialist, I have read many of the popular health and longevity books. Very few have impressed me. For this reason, I probably never would have read Natural Hormonal Enhancement had my associate not insisted, after reading it himself. Admittedly, I picked-up the book with a negative predisposition, assuming it would be more of the same. I couldn’t
have been more wrong in that assumption. Natural Hormonal Enhancement is very well-written and well-researched and it contains information that even many of my peers don’t understand or don’t recognize. I highly recommend this book.

Dr Rashid Buttar

The book in question being described on that site as:

Finally a Rational Approach to Health and Fitness! The Revolutionary Breakthrough that Renders Conventional Exercise and Diet Programs Obsolete! Harness the Most Powerful Biological Force in the Universe – Your Own Hormones – to Reshape Your Body and Turn Back the Hands of Time on Aging!

Blimey! You’re one busy guy! Cures for autism, cancer and even old age! Now, I know many people would find this suspicious but not me. Anything that says they can ‘reshape my body’ without exercise or diet gets my vote! Can I still drink beer?

In closing then Dr Buttar, I’d really appreciate answers to the questions I’ve posed you here, particularly on the effectiveness of TD-DPMS. I have a fairly large website that gets around 1300 unique visitors a day (that’s a few hundred thousand hits) and I’ve posted a copy of this email up so all my visitors can read it – I’ll be happy to post any response you can give me up there too. I know lots and lots of people who are asking questions about you.

In closing, my apologies for leaving the HTML in place in this email – I couldn’t be bothered to do my job properly. I’m sure you know what I mean. Look forward to hearing from you very very soon.

I Am A Child Abuser

22 Jun

Some of the comments coming from Generation Rescue’s ‘Rescue Angels’ are getting scarier and scarier. This was posted to a Parents.com thread:

The problem is that doctors keep telling people that autism is not caused by mercury to cover their asses. They screwed up by giving our kids way too much mercury. Those of us who know this don’t like seeing unknowing parents allowing their kids to rot in the abyss of autism. Wake up and smell the coffee is approprite. Anyone who is not chelating to get rid of the mercury is guilty of child abuse. Every doctor who is not telling their patients to chelate is guilty of malpractice. There was no autism until Eli Lilly started putting mercury in vaccines. Aside from fragile X which some say is not really autism, it is all caused by mercury. Any parent who listens to the doctors tell them that there is no known cause or cure for autism is too damn stupid to have kids.

Parents.com

Now aside from the factual errors, isn’t that the most frighteningly, almost fascist, shivers-down-your-spine-hair-stand-on-end-uh-oh-here-come-the-fundie-whacko’s genuinely disturbing thing you’ve read in awhile?

This is a self-styled ‘Rescue Angel’ of Generation Rescue.

Autism And Mercury – Defining the Battle Ground

19 Jun

Autism is Mercury poisoning because:

The symptoms match so closely. Well, thats what the regular claim of the ‘no mercury’ crowd is. So lets see. Mercurysafety.co.uk lists the clinical symptoms of Mercury poisoning as:

Low Dose Exposure

  • Erethism (nervousness, irritability, mood instability, blushing)
  • Tremor
  • Personality change
  • Suicidal tendency
  • Paraesthesia
  • Impaired hearing
  • Speech disorders
  • Visual disturbance
  • Abnormal reflexes
  • Disturbed gait
  • Gingivitis (inflammation of the gums)
  • Impaired nerve conduction
  • Renal damage
  • Adverse outcome of pregnancy
  • Infertility
  • Pneumonitis (lung disease)
  • Glioblastoma (brain cancer)
  • Immune system dysfunction

High Dose Exposure

  • Gastroenteritis (stomach upset)
  • Mouth pain
  • Abdominal pain
  • Vomiting
  • Excessive salivation
  • Anuria (urine production stops)
  • Uraemia (urine products appearing in the blood)
  • Nephritis (kidney disease leading to kidney failure)
  • Anorexia (lack of appetite)
  • Ataxia (difficulty in moving)

Now I have to say immediately that this sounds nothing like the autistics (mainly kids) that I’ve met, including my daughter. There may be a case for arguing ‘speech disorder’ and/or ‘visual disturbance’ but even then you’d be stretching it. By contrast lets have a look at the diagnostic criteria for ASD.

A. Abnormal or impaired development is evident before the age of 3 years in at least one of the following areas:

(1) receptive or expressive language as used in social communication;

(2) the development of selective social attachments or of reciprocal social interaction;

(3) functional or symbolic play.

B. A total of at least six symptoms/signs from (1), (2), and (3) below must be present, with at least two from (1) and at

least one from each of (2) and (3):

(1) Qualitative abnormalities in reciprocal social interaction are manifest in at least two of the following areas:

(a) failure adequately to use eye-to-eye gaze, facial expression, body posture, and gesture to regulate social interaction;

(b) failure to develop (in a manner appropriate to mental age, and despite ample opportunities) peer relationships that

involve a mutual sharing of interests, activities, and emotions;

(c) lack of socio-emotional reciprocity as shown by an impaired or deviant response to other people’s emotions; or lack of modulation of behaviour according to social context; or a weak integration of social, emotional, and communicative behaviours;

(d) lack of spontaneous seeking to share enjoyment, interests, or achievements with other people (e.g. a lack of showing, bringing, or pointing out to other people objects of interest to the individual).

(2) Qualitative abnormalities in communication are manifest in at least one of the following areas:

(a) a delay in, or total lack of, development of spoken language that is not accompanied by an attempt to compensate through the use of gesture or mime as an alternative mode of communication (often preceded by a lack of communicative babbling)

(b) relative failure to initiate or sustain conversational interchange (at whatever level of language skills is present), in which there is reciprocal responsiveness to the communications of the other person.

(c) stereotyped and repetitive use of language or idiosyncratic use of words or phrases;

(d) lack of varied spontaneous make-believe or (when young) social imitative play.

(3) Restricted, repetitive, and stereotyped patterns of behaviour, interests, and activities are manifest in at least one of the following areas:

(a) an encompassing preoccupation with one or more stereotyped and restricted patterns of interest that are abnormal in content or focus; or one or more interests that are abnormal in their intensity and circumscribed nature, though not in their content or focus;

(b) apparently compulsive adherence to specific, non-functional routines or rituals;

(c) stereotyped and repetitive motor mannerisms that involve either hand or finger flapping or twisting, or complex whole body movements;

(d) preoccupations with part-objects or non-functional elements of play materials (such as their odour, the feel of their surface, or the noise or vibration that they generate).

Now do these two things look even vaguely similar to you?

Autism started to be discovered at the same time as mercury/thimerosal was used in vaccines.

Proponents of the autism/thimerosal/mercury link say that autism and mercury became known at the same time – that the first cases of autism were diagnosed immediately after thimerosal was added to vaccines.

The dramatic rise in autism rates correlates with the increase in mercury doses. Thimerosal was first marketed in the mid 1930’s and autism was first described as a new never before seen disorder in 1943, in children born in the 1930’s.

No Mercury

However, its simply not true. There have been numerous reports that describe autistic people going back to Victorian Britain. The only thing that differs in these cases its the actual label of autism but there were certainly autistics long before either dental amalgams came into widespread use or vaccines were being used at all.

I also have anecdotal evidence of my own. 2 members of my family both born between 1910 and 1920 were diagnosed AS in the 90’s. However, they’d been the way they were since birth my grandparents claim – long before thimerosal was ever used in vaccines.

Autism cannot be genetically based because you cannot have a ‘genetic epidemic’

A very misleading argument as it presupposes the idea of an autism epidemic. It also supposes that even if there is an autism epidemic that mercury is the cause.

So, is there an autism epidemic? No. No Gvmt has declared epidemic status for autism at all. The phrase is simply part of an increasingly shrill demonisation of autism in increasingly disrespectful and shameful terms. Other phrases coined include ‘autism tsunami’ (distastefully coined after the events of last Boxing Day), the ‘hell’ of autism ‘autism is our enemy’ and many, many more.

In fact, as is usually the case in situations like this, the real reason is misunderstanding of stats:

The reason why some states show an “almost infinite” increase is that when you increase from zero to 100 the increase is “almost infinite” One does not measure a change from zero in percentage. If the change is from 2 to 100, one can say the number has gone up 50 times.

AutismDiva

Proponents of the ‘autism epidemic’ tout a figure of 1 in 166 for prevalence of autism. This figure is entirely bogus.

There has been no autism epidemic, whether or not there has been an increase at all is debatable.

AutismDiva

The reason there is an apparent increase in ASD is because of two things – better training allowing people to ‘spot’ ASD and more places one can get an official diagnosis:

Variation in the administrative prevalence of ASD is associated with education-related spending, which may be associated with better-trained educational staff who can recognize the problem, and more and better trained in-school specialists who can provide screening. It is also associated with the availability of health care resources. Increased access to pediatricians and school-based health centers may lead to improved recognition of ASD. Interstate variability in the identification of ASD should be taken into account when interpreting the results of prevalence studies based on administrative data and the associated system characteristics taken into account by policy makers working to improve the recognition of ASD.

David S. Mandell, ScD; Raymond Palmer, PhD

The incidence of research-identified autism increased in Olmsted County from 1976 to 1997, with the increase occurring among young children after the introduction of broader, more precise diagnostic criteria, increased availability of services, and increased awareness of autism. Although it is possible that unidentified environmental factors have contributed to an increase in autism, the timing of the increase suggests that it may be due to improved awareness, changes in diagnostic criteria, and availability of services, leading to identification of previously unrecognized young children with autism.

William J. Barbaresi, MD; Slavica K. Katusic, MD; Robert C. Colligan, PhD; Amy L. Weaver, MS; Steven J. Jacobsen, MD, PhD

federal and state administrative changes in policy and law favoring better identification and reporting of autism are likely contributing factors to the prevalence increases and may imply that autism spectrum disorder has been underdiagnosed in the past.

James G. Gurney, PhD; Melissa S. Fritz, MPH; Kirsten K. Ness, MPH; Phillip Sievers, MA; Craig J. Newschaffer, PhD; Elsa G. Shapiro, PhD

But surely the autism/thimerosal crowd have some stats of their own to counter these? Well, no they don’t. What they have (so they claim) is an absence of facts. A bizarre piece of ‘scientific’ reasoning that apparently ignores a basic precept of science: absence of proof is not proof of absence.

If the epidemic is truly an artifact of poor diagnosis, then where are all the 20-year-old autistics?

Boyd Haley

Its a shoddy piece of ‘logic’ repeated by David Kirby in Evidence of Harm. In fact, Haley knows very well where a lot of adult autistics are because he incurred their and their families wrath when he referred to autism as ‘Mad Child Disease‘. In the subsequent uproar that followed Haley was forced to confront the reality of adult autistics. Amusingly he also claimed he was using MAD as an acronym – Mercury Acquired Disease – obviously a better scientist than linguist he failed to spot that when lengthened out his phrase would read ‘mercury acquired disease child disease’. And in fact, he’s a pretty rubbish scientist as well.

Michelle Dawson also had something very pertinent to add to the ‘hidden hordes’ scenario:

Mr Kirby (author of Evidence of Harm who swallowed Boyd Haley’s thesis hook line and sinker) deploys the “hidden hordes” to express his disbelief in the possibility that there is no autism epidemic. Were numbers of autistics steady over the years, he argues, America would be clogged with aging hopeless autistics gruesomely burdening society. Mr Kirby cannot find us (I’m one of his “hidden hordes”) how and where he expects (doomed and confined to institutions), so he denies we exist. Szatmari et al (1989) suggests that Mr Kirby should look for his hordes in university records. In a follow-up of autistics diagnosed as children before 1970, 7 of 16 had university degrees (one was an MBA).

Michelle Dawson

Lots of studies prove a link between autism and mercury and there are none to disprove it.

Wrong on both counts. There are a few studies that suggest there may be correlation but none – none – that suggest causation at all. You can read a comprehensive review of the literature at Pediatrics online. By contrast only one study has been done which showed a link and this was shown to have flaws in methodology so severe that:

the Geiers have used shoddy study methodology and also engaged in data collection irregularities, drawing a rebuke from the CDC and suspension of Dr. Geier’s IRB approval from Kaiser-Permanente.

Orac Knows.

The Geiers in the course of their ‘investigation’attempted to compromise the confidentiality of patients on the CDC database. Nice going guys.

Of course, these studies that fail to show a link are pounced on and traduced as being produced by ‘shills’ in the pay of big Pharmaceutical companies. These same people though fail to mention that David Geier, one of the co-authors of the woeful study referenced above, works for MedCon – a company that helps vaccine injury claimants to obtain money from both the National Vaccine Injury Compensation Program and through civil litigation. Coincidently, Geier senior made (makes?) a good living on the side as a ‘professional witness’. Although as I’ve noted before – he’s not very well respected by either the judiciary or the medical systems in the US.

This point about correlation being different than causation is important to understand: On Orac’s blog Kaethe Douglass commented:

“The fact that Iowa’s 700 percent increase in autism began in the 1990s, right after more and more vaccines were added to the children’s vaccine schedules, is solid evidence alone,” says state Sen. Ken Veenstra. But Veenstra is wrong. That isn’t evidence. That isn’t anything but coincidence. The 1990s also saw a sharp increase in the use of car seats for children, but no one is blaming them. A 700 percent increase in autism, or any other diagnosis, is much more likely to indicate a growing awareness of a possible diagnosis, rather than an actual increase in patients suffering particular symptoms. And if Veenstra cared to do a little bit of research, he would see that the less specific diagnosis of “mental retardation” dropped as sharply as autism increased.

If people want to research possible causes of their kids autism then thats entirely up to them – I did it so I’m in no position to judge these efforts. But it behooves the researcher in question to apply scientific criteria to scientific data. Its no good extracting the bits that suit your argument and discarding the bits that don’t.

edit: Just noticed AutismDivas has made a very similar post to this – sorry AD!

Open Letter to Evidence Of Harm List Members

5 Jun

Let’s start off with a basic assumption.

You love your kids. I love mine.

A lot of you don’t understand where Kathleen Seidel is coming from, whereas I sometimes can’t understand where you’re coming from. I read posts on the EoH list that say you want to test Kathleen’s kids and I wonder at how you could possibly be so insensitive. I’m sure you often wonder how I, or Kathleen or anyone else on our side of the debate can be so insensitive. I visit other websites where you have all descended en masse and wonder at your behaviour – anyone who disagrees with you is attacked in highly personal ways. And to what end? How does that advance your position?

I’ve received hate mail from some of you which is both highly personal and highly inaccurate. Some of you have stooped so low as to personally attack my daughter, a five year old autistic girl, in words so personal I can’t bear to repeat them. According to some of you, I flit around various websites under a variety of assumed names for reasons that are left unexplained and on evidence that to anyone who makes their living on the web, is naive and technically incompetent. I have also heard descriptions of some of the people I think of as cohorts that verge on the libelous. I really, truly wonder what exactly you get out of this behaviour?

Now, I can’t speak for Kathleen or anyone else but for myself I think you really need to take a long hard look at your behaviour as a group. As individuals I’m sure most of you are decent people – indeed, I have received approaching 20 emails from various members of the EoH lists that apologise for the way I, or Kathleen, or Camille, or anyone else has been portrayed. Some of these people say they can see my/our position and respect me/us for it. However, it seems that the mob still holds sway on EoH itself.

I don’t believe that autism is mercury poisoning. Generation Rescue and the few people who stick to that error both in the book and on the EoH list are simply wrong. This is my main gripe with the book and with a lot of you.

I believe that some of your kids have been mercury poisoned – you say you have tests that prove it and I have no particular reason to disbelieve what you say – and that is a bad thing. I also think that the CDC in your country should release their data. Further I think there needs to be an internationally funded, independent body set up to look at rates of prevalence across the entire world. It would take time but it is badly needed in my opinion. I don’t agree with the opinion that autism is an epidemic and I object strenuously to my daughter and people like her, who have definitely not been metal poisoned being characterised in this way.

I think (sadly) that the majority of your kids who are metal poisoned have been misdiagnosed as autistic. I think that if there is an increase in prevalence then this will be one of the reasons. I also think that there will come a time when you, as a group, will have to face the fact that your kids are either not autistic and are metal poisoned, or autistic and therefore almost certainly won’t react well to treatments such as Chelation. I don’t know any of you and you don’t know me but what I do know is that autistic kids need early intervention and that the best type of intervention you can give them is love, acceptance and encouragement. Your autistic kids won’t always be kids. They will grow into teenagers and then adults. And they will still be autistic. Do you really want them to grow up feeling guilty and ashamed of who they are? Look at the examples of Temple Grandin and Donna Williams who were both diagnosed as low functioning autistics. See what they are now. Strong, independent, forthright people. Read some of the library articles at autistics.org. A lot of the contributors there were also diagnosed as low functioning as kids. But kids grow up and develop. Can you say you were intellectually at your best as a 3 year old? Did you communicate as well as a 20 year old?

I don’t want to go on being angry with a group of people I don’t really know but neither do I want my daughter to grow up characterised only by negative assumptions about who she is and how she got that way. Please, buy as many copies of Evidence of Harm as you like, but don’t let one book that only tells one side of the story distract you from the truth that autism is not solely mercury poisoning. Don’t let your zeal to find personal answers obstruct autistics who were never metal poisoned from the legitimacy of their condition, or their well meaning parents efforts to support their needs as they see them.