A Little Good, A Little Sad

26 Apr

A couple of things happened over the last few days, both unexpected but with entirely differing perspectives.

Firstly the sad stuff. When Meg finally got her Statement (see archives 2004 for the horror story in full) she was allocated 32 and one half hours per week with an LSA (learning support assistant) whilst at school. The school in question wisely decided to split that over two people each doing 16 and a bit hours a week each.

The two people the school employed were (are) fantastic with and for Megan. I can’t tell you how much Megan has gained in confidence and ability since being under their care. Naomi and I totally trust them and most importantly, so does Megan. It wasn’t easy and there was a rocky period – Megans not so good with change and her lack of ability to communicate easily made it hard going for awhile but we all persevered and Megan benefitted.

Sadly, one of Megans LSA’s has had to hand in her notice (her husband is in the services and has been re-posted to Cyprus). Its very sad and I don’t think she’s especially happy about it herself but for Meggy its going to be tough. It means getting used to another LSA and more disruption. Totally unavoidable and nobody’s fault but a bit sad all the same.

However, on Sunday my faith in human nature was restored somewhat. I’d taken Meg for a walk down to Sainsburys and we were on our way back when we were approached by a gaggle of 8-9 year old chavs-in-training (Burberry/Hoodies/Bling) and I girded myself: these are the usual sort who see fit to take the piss out of Meg. However as they approached, one by one they strolled nonchalantly past us each nodding at us and saying “Alright Megan?”

Once I’d got my jaw up off my chest I managed to ask them how they knew Meggy and they said “we go to school with her”, looking at me like I was a nutter.

This may seem like nothing to you but for us and for all parents of disabled kids one of the hardest things about your child going off to school is coming to terms with the certainty your child will be ostracized and bullied. To have my fears exposed and so lazily thrown aside was a great, great feeling. These kids weren’t judging, or patronising, or sneering, they were just saying hi to someone they went to school with. Let me tell you – that felt great. I don’t mind saying that I was a bit teary on the way home and Naomi and I had a bit of a cry. Stupid probably but this meant so, so much to us.

6 Responses to “A Little Good, A Little Sad”

  1. Martin Smith April 26, 2005 at 15:49 #

    I could never imagine the stress of coping with a disabled child but can feel some concern on your part for the first part of this post. A great heart warming ending which as you say, restores some faith…

  2. Shannon Ahern April 27, 2005 at 00:00 #

    That is a tremendously wonderful story, and I got teary reading it. Thank you for sharing! And congratulations! 🙂

  3. Nicola April 28, 2005 at 00:35 #

    I need a box of tissues! Oh lovely Megan!

    I got told tonight at Parents Evening that my son has a definite but small circle of real friends at school now and the teacher was so chuffed to report it to me too!

  4. Andrew April 28, 2005 at 22:01 #

    Sounds like you’ve found a great school for Meg.

    Still a while off for us, but I hope we’re as lucky here in NZ. This in an editorial in a local newspaper is a bit of a worry

    “I know of a parent who was called to her child’s school to change him because the teacher-aide was away. By the time the parent arrived from work, the child had been lying in his own excrement for more than an hour.”

  5. Andrew April 28, 2005 at 22:02 #

    Sorry, the link didn’t appear. The article is at:
    http://www.nzherald.co.nz/index.cfm?c_id=466&ObjectID=10122622

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