Archive by Author

Flattery Will Get You Everywhere

4 Aug

Rob had himself a bit of a CSS compo a few weeks ago which I couldn’t resist. Here was the brief:

The idea I have is this: make the page easy to read, well-styled, efficient and reproducable. It’s up to you if you use graphics or not, if you use boxes or not. Just make it Good. Some rules do apply, and they make this the challenge it is: use a maximum of three images (read that correctly, please: three image files), make it work in modern web browsers (IE6 support would be nice, but it’s not a requirement) and go wild on the CSS3 you know. The funkier the better.

So Rob did the markup and we were to style it. I have to say I thoroughly enjoyed it and the judges had the dubious taste of awarding me a joint runners-up spot. The winner was a thoroughly impressive entry from Terry. A deserved winner, it pushed mine and Faruk’s entries into joint runners up.

In the interests of shameless ego-growth here’s what Jeff had to say about my entry:

In his entry, Kevin comes out swinging with some crafty CSS, a nice three column layout, and a lot of orange (and who doesn’t love orange?!). I especially like the navigation, which is flexbile in width can looks nice no matter how wide it gets. The use of auto-generation content with the after pseudo-class to create a chevron on hover is a nice touch, as well. I was especially impressed with the way Kevin dealt with the blockquote. He uses attribute selectors in combination with the after pseudo-class and content generation to put the referenced URL neatly beneath the quote. Lovely. It’s too bad it can’t be a link, but I don’t believe this would be possible without bringing javascript into the equation. Although it is most certainly a hack, and not something I’d recommend doing in the real world, Kevin also come up with a very creative solution for the main header of the page. Rob had the entire header, “Funkin’ with CSS. Using CSS to the max” wrapped in an h1, but Kevin wanted to use the two sentences separately. In order to do this, he hid the actual h1 in the background (by making it the same color) and used auto-content generation to add one sentence before the header and one after. Again, this is definitely not the ideal solution (ideally you’d put a span in the h1 or use image replacement), but it shows great ingenuity in dealing with the restriction of not being able to modify the XHTML markup. Crafty!

So, many thanks to Rob and Jeff and deserved congrats to Terry and Faruk.

David Kirby On ‘Meet The Press’

4 Aug

David Kirby will be appearing on a US show ‘Meet The Press’ soon. There is already a ‘mobilisation’ from within the anti-thimerosal/mercury group to bombard the show’s feedback page with questions for his opponent from the IOM. I’d suggest that anyone who has some questions they’d like David Kirby to answer also post their messge. The address is here:

http://www.msnbc.msn.com/id/3032608/

Here’s what I submitted. I’m not sure how much weight a UK parent will carry though.

Mr Russert,

I understand the the author David Kirby will be a guest on your show in regard specifically to his book ‘Evidence of Harm’.

I should also mention that I am the UK parent of a classically autistic dughter of 5 years.

I’ve developed a very deep suspicion of David Kirby, his motives and the consequences of his book since its publication.

You may or may not know that the official website that supports the book (evidenceofharm.com) had its domain bought and administered at one time by the single-issue anti-mercury group SafeMinds. When this was noticed, control of the domain was quickly switched over to Mr Kirby. You should further know that the designer of the website itself is Wendy Fournier who is the President of the NAA, another anti-mercury activist. I often debate the issue of mercury in vaccines with Kirby’s supporters who claim that official studies that support the safety of thimerosal are paid for by shills with compromised impartiality. I’d like to know if David Kirby shares this view and if he does, how that stacks up against his own clear non-impartiality.

I’d also like to draw your attention to an open letter penned by another parent who like me, does not believe our childrens autism was caused by thimerosal or any other vaccine. It concerns the behaviour of certain people who promote David Kirby’s book on an email form that Kirby himself is a member of. You can find the letter here: http://www.neurodiversity.com/evidence_of_venom.html

David Kirby will no doubt make reference to the ‘autism epidemic’ but this epidemic almost certainly does not exist. New research states there probably is no ‘epidemic’ see: http://www.ont-autism.uoguelph.ca/fombonne-prevalence.html

You might also be interested in this site where David Kirby can be shown to have ‘flubbed’ on his intepretation of the latest autism figures: http://citizencain.blogspot.com/2005/07/kirby-flubs-autism-data.html

Kirby will also no doubt on Mercury’s undoubted role as a toxin. I’d be keen to discover what his thoughts are on the use of Warfarin in medicine.

In closing Mr Russert, I suspect you’re going to get a lot of comments from parents keen for you to praise Kirby and flame his opponent. I urge you not to do that. The whole issue of thimerosal in vaccines has been subject to some very bad science which has been repeated by Kirby. Ask to see his sources for studies he quotes and then do a simple check for the on the validity of those sources. They frequently don’t stand up to close scrutiny.

Autism is a serious matter for parents, serious enough to depend on decent science – please don’t go down the route of thinking that Kirby speaks for all, or even the majority, of parents of autistics because he doesn’t.

Thanks for your time.

The Dangers Of Putting Poison In Medicines

3 Aug

There is a known toxin placed into medicines that is described as ‘very toxic’ by peer reviewed researchers. In fact:

Maximum mortality was 11 of 12 at 0.08% concentration for 2 or 3 days, or 0.1% concentration for 2 days

I never realised this stuff was so toxic. Lots of people told me and I didn’t listen. Lots of people warned me about the possible dangers of putting in medicines and I didn’t listen. Now I have to find a way to live with the awful knowledge of what I’ve done.

I also found out that its use is:

complicated by the fact that it is known to interact with many other medications and other chemicals which may be present in appreciable quantities in food

Again, people warned me – I was told.

general tendency to bruise and bleed is raised somewhat, and [a] proportion develops a cerebral hemorrhage or a gastrointestinal bleed, both of which need urgent medical attention.

May cause harm to the unborn child, toxic [and there is] danger of serious damage to health by prolonged exposure.

How could I have been so blind? Surely its common sense isn’t it? YOU DON’T PLACE TOXINS IN MEDICINE!!!! Did no-one think of the possible consequences? Here we are with a known toxin being placed into medicines since the first half of the 20th century! And it occurs naturally too! What we have here is a massive environmental risk that our appointed health-givers and law-makers not only failed to spot but _actively encouraged the use of!_

Surely there has to be some accountability here? I can now understand exactly why people want to sue – now that I’ve found out for myself the nature of this evil (and surely anyone who doesn’t agree must be some kind of Holocaust denying, brain eating child abuser!) all I want to do is get as much money as I can so I can bankrupt the Satanic institutions that promote the use of this Beelzebub of medicine.

Who’s with me? Altogether – BAN WARFARIN NOW!

Vaccinations & Autism

2 Aug

This post is going to be a fairly rambling affair for which I’ll apologise in advance. It was prompted by the upsurge in my inbox over the last month or so of news alerts surrounding vaccines and epidemics relating to parents not vaccinating their kids. On the surface not necessarily a subject directly related to autism but as the vast majority of us parents with autistic kids know, of late a lot of anti-vaccination people with an agenda have attempted to hijack autism as being the result of vaccine damage.

Here’s a selection of quotes from the Evidence of Harm email list (with thanks to Kathleen who compiled them and used them in her own post first) regarding these anti-vaxxers. These are people who are (or claim to be) parents/relatives of an autistic child:

My stance is this: for “public consumption” I am just anti-mercury. No one can argue with that. Privately, for myself and family, I feel so betrayed by our public health organizations that I don’t forsee ever getting another vaccine for myself or my family.

I am saying… “We just want safer vaccines” (for your kids)…. Meanwhile I am thinking (No way is my kid getting any more vaccines, especially not Hep B, Chicken pox, etc….)

just b/c I am very anti vaccine, does not mean I let that be the message. I always speak about the mercury and we all should.

I can say that my daughter will never be vaccinated UNLESS she is in need of a tetnus shot.

I don’t know if it’s common here or not, but I will never give my kids any vaccine again, mercury or not. They just aren’t safe.

One goal that we as a community must relentless pursue is undermining whenever possible the credibility of the fda/cdc and vaccine industry.

Please see the link to Kathleen’s piece above for all references.

Its clear to see that for a sizable proportion of the mercury = autism crowd, their mission goes far far deeper than thimerosal and touches on the eradication of vaccines totally:

Mercury seems to be getting tons of coverage. When that deal is settled and we win, we need to go after another ingredient. We’ll dismantle the vaccine industry ingredient by stupid ingredient if we have to. Who is with me?

Mothering.com

This is pretty disturbing stuff. Firstly, we have the fact that this negativity regarding vaccines is unwarranted with no evidence _whatsoever_ indicating that thimerosal or MMR causes autism (and if anyone wants to disagree with me then remember to cite your peer reviewed science please) and yet a sizable minority not only believe it but are aggressively politicising the issue to a point where a number of us are growing alarmed about the future of autism research and, more importantly, concerned about the stigmatic consequences this will have for our kids as they grow up with people believing they are poisoned.

However, there is another incredibly disturbing outcome directly related to the actions of people on the Evidence of Harm email list, their supporters and those like them on other lists:

In the course of 10 days, officials confirmed four pertussis cases, including the hospitalization of one child to treat respiratory symptoms. All of the cases afflicted children under 5 years old, and one in an infant just a couple of days old, according to Ravalli County Public Health Nurse Judy Griffin…..There have been more than 450 cases of pertussis in Montana so far this year, according to the Department of Health and Human Services. The infection rate is much higher than average years, when about 30 cases are reported….”Parents should check immunization records and make sure they’re up to date,” Nurse Judy Griffin said.

Ravalli Republic.

(Columbia) The state health department said yesterday that an infant has died from whooping cough. It is the first death reported in South Carolina from the disease in nearly three years….The health agency said it’s important children receive pertussis vaccinations on schedule.

WLTX News.

A whooping cough epidemic has hit Deschutes County. Health officials say that in the past six weeks, 18 cases of pertussis have been identified in the county. In all of 2004, there were only two cases of pertussis in Deschutes County.

KATU 2.

An increase in cases of the highly contagious whooping cough is prompting state health officials to urge stricter compliance with childhood immunization schedules….Cases have increased annually from 22 statewide in 1996 to 120 last year…Oklahoma’s childhood immunization levels continue to lag behind those nationally, officials said.

RedNova News

Kids are dying again. And in some areas of the US the disease causing those deaths is at epidemic (real epidemic as oppose to autism epidemic) proportions. And thats just one disease that vaccination removed the sting from for many years. In my country (UK) we’ve recently had a Mumps epidemic due to Andrew Wakefield’s unfounded scaremongering regarding the MMR vaccine.

How can this be in any way a good situation? At a recent ‘March for Truth’ rally in the US, a small collection of parents and professionals expounded the evils of thimerosal (or thiomersal for us Brits). One of the placards they carried read:

Vaccines are weapons of mass destruction

Now, as far as I’m aware, autism isn’t fatal but as we’ve seen above, Whooping Cough is. If you don’t vaccinate you not only increase your own kids chances of getting it, you increase the chances of them passing it on as well. Thats how an _actual_ epidemic works.

During the 1970s, widespread concerns about the safety of pertussis immunization led to a rapid fall in immunization levels in the United Kingdom. Within several years, a series of pertussis epidemics occurred; greater than 100,000 cases and 36 deaths due to pertussis were reported in one epidemic in the mid-1970s.

PKids.

These anti-vaccinationers (and don’t be fooled, they’ll tell you they’re not but remember – they have a ‘public consumption’ stance and a private stance) also aim to affect availability of vaccinations. One of the things that gets them all riled up was (and I’m not a US citizen so forgive my poor terminology) was an amendment to a bill stating that the vaccine making industry should be immune from citizens being able to sue them. As the US (and to a lesser extent the UK) seems to have lost its collective mind and now believes compensation to be synonymous with responsibility, this news was greeted with howls of outrage. But in reality, when you calm down and examine the reasons, it makes sense.

The cost of lawsuits and government regulations forced vaccine makers out of the business in the 1980s. Although Congress responded with a law to minimize their liability, most never returned to the marketplace. Today, only five companies make vaccines for U.S. distribution, compared to about 30 before the liability crisis. These firms live with the daily fear of being hauled into court.

and

In 1988, Congress created a no-fault system designed to compensate families for adverse effects of childhood vaccines. Without that protection, no manufacturer could bear the risk of the multibillion-dollar lawsuits that trial lawyers routinely threaten on behalf of their clients.

and

The fund has reduced (but not stopped) the lawsuits. In a pending class-action case, parents of children with autism are blaming vaccines containing mercury for damage to their children’s brains during critical stages of development. According to Senate Majority Leader Bill Frist, R-Tenn., one such lawsuit seeks $30 billion in damages, even though the entire vaccine market is valued at only $5 billion. Mercury (thimerosal) is not a covered ingredient under the fund.

All quotes from The Saturday Evening Post.

So, parents of autistics in the US have the power to bring the vaccine industry crashing down and in the past, lawsuits have come close to destroying the industry. What effect on child health do we think this may have? Whats important here? A parental need to get rich or the lives of children?

“Power Of Truth” Rally And EoH Maillist PhotoBlog

Placard reading: Autism Sucks! Get Mercury Out!

Placard reading: Here's the point - autism is just another name for mercury poisoning. Hey Dubya, I got your weapons of mass destruction right here.

Bumper sticker reading: Have vaccines caused autism? Read the evidence.

Yeah, definitely not anti-vaccine at all.

Semantics Is The New Black

30 Jul

Every year around January time, the design/development community make a few predictions as to what will be the big thing for the upcoming year. Predictions range from popular colours, site types, font choices as well as more esoteric things such as concepts (AJAX was touted as the coming thing this year with some apparent justification) but a few things become popular due to events or industry leaders making them news (for example Andy Clarke’s recent post about accessibility and societal control and SiteMorses recent footshooting debacle has placed accessibility back to the forefront of the community’s collective mind).

And then some things quietly and unobtrusively instill themselves into our design/development lives with scarcely a ripple.

The ongoing movement towards semantics on the web is something that does seem to pass by even us in the community responsible for its promotion. I want to take a look at a few things that we might not even have thought of as examples of web based semantics and how they are affecting us on a daily basis.

What we mean by semantics as they apply to the web is the principle of the ‘thing’ itself having meaning as well as the message that the ‘thing’ is overtly conveying. A prime example of this:

This is a paragraph.

You can’t get much more semantic than that! We use a ‘paragraph’ element to convey the covert meaning on the section in question as well as to display the text in that element overtly.

But these days, semantics cover a much wider range of possibilities and meanings than a simple markup element. Lets take a look at Search.

Search engines such as Google, Yahoo and MSN will place an increasing amount of importance on semantics. This process is already underway – I’ve discussed before how Google are implementing a process called Latent Semantic Indexing – and will only increase pace. But what does semantics mean for search engines? It can mean lots of things. Firstly there is the semantic relationship between the search word/phrase you use to generate results and the actual results themselves. Obviously, the better that match is the more accurate your SERPs (Search Engine Results Pages) will be.

From a web developers point of view, semantics affect our sites relationship with search engines in two major ways. Firstly if you want to promote the phrase ‘bad credit loans’ on your site then creating phrases that share a semantic meaning with that phrase or the words in that phrase is a good idea ‘bad credit loans’ could be semantically matched with ‘debt consolidation’ or ‘secured loans’ or ‘credit worries’. The second way semantics is important to us comes in terms of the sites that link to us. If I’m in charge of a travel insurance website then my automatic assumption might be to get lots of backlinks from finance related sites. However, the semantic way of looking at the relationship would be to get links from sites that share a common or similar theme – holiday sites, airline sites etc.

A more intriguing and tantalizing possibility regarding semantics and search engines is the possibility that search engines are capable of determining the _type_ of site. By this I mean is the site an e-commerce site? Is it a forum? Is it a basic brochure site? Is it a blog? This semantic relationship between the underlying code of a site, its structure and its overall purpose does seem detectable by engines albeit in a fairly basic ‘brute force’ way – so far.

Moving away from search a little bit we should take a look at how blogging has powered a massive increase in constructing a semantic structure to its particular environment. Sites like Technorati which are essentially search engines for blogs have a core functionality which lists all the other sites a particular site is receiving links from – in the blogosphere links are awarded by bloggers who feel the linkee shares a common goal/spirit/language/understanding with them and hence Technorati’s Cosmos feature is a foundation of semantics – communication going beyond just the overt. With blogs becoming increasingly popular its no wonder the big search engines are interested in matching sites like Technorati’s semantic influence.

Then of course there are the blogs themselves – categorisable and taggable as sites never have been before and capable of creating a vast community based not just on what each blogger finds interesting but on the way that blogs store, produce and display information. Again, the way its said is as important as whats actually _being_ said. And as new formats and new offshoots appear (del.icio.us/ and flickr for example) that semantic relationship between blogs that share no visual similarities and _who might not even be aware of each other_ builds and builds. Flickr and del.icio.us can be fed into a lot of blogs and blogs can export their content in meaningfully rich ways via RSS.

So, semantics – its the new black. As our understanding of what can be achieved by making sure we write to a common format and how relationships between codable structures fire relationships between people increases so will our ability to have a web that can finally begin to bring things to us with increasing accuracy. The future isn’t Search, the future is Delivery.

IE7 Developer Beta Released

28 Jul

No, I haven’t got an MSDN acct so I can’t play with it. Bah.

However, I did download and look through the technical overview. The meat of it is in a section called ‘Platform Enhancements’.

First impressions are mixed. If you’re a reader of the IE Blog then there’s nothing new here at all. If you’re not a reader then its worth going over them.

CSS

The IE team say that:

The work Microsoft has done includes fixing some positioning and layout issues related to the way Internet Explorer 6 handles

tags

And thats the most specific sentence they make on the issue. Let me say that that in and of itself is a big improvement and I for one thank Microsoft for addressing these layout issues. I am however concerned that no mention is made of _how_ IE7 will address these layout issues – if its done badly, all our CSS positioning hacks for IE could fail badly and immediately.

I’m also disappointed that the IE team felt unable to commit to a web standard and meet it. I understand that they would’ve had to make very substantial alterations to the core rendering engine but isn’t that the point of whole version upgrades? To make big changes?

PNG

The IE team say:

With an alpha channel, designers can use special effects that were not previously supported

Which I assume means they’re supporting it. If so then ‘well played lads’. Nothing further to add.

And thats that for designers. As I say, I’m appreciative of that fact that the IE team listened and I’m aware this is only a Beta release but I can’t help but be disappointed that the changes aren’t more far reaching and show more commitment to web standards.

*Update*:

CSS Updates – Internet Explorer 7 includes fixes for issues with the Cascading Style Sheets (CSS) feature. Both the peekaboo and guillotine bugs have been addressed, and work on other issues is under way to provide web developers with reliable and robust CSS functionality.

SDK Documentation.

I really can’t understand the fuzziness of these statements. If you’re going to tell us what _has_ been fixed, why not just tell us what you’re _going_ to fix at the same time?

Comorbidity & Autism (aka Targetting Problems)

25 Jul

Every so often I get emails (as well as blog comments) about my stance on a cure for autism. Here’s a fairly typical example (although its way more polite than most!):

You say it is find (sic) to be autistic and we should seek no cure.So you are happy with a child that smears faeces all over the walls and attacks other children. Bites her mother so badly that her arms are covered in bruises. Cannot be taken outside without two adults controlling her. Where some autistic children cry all the time and look in so much distress. Other autistic children have ill health with high tempertures, excissive (sic) thirst, rashes, bowel problems and the sad thing is parents are blamed for their childs condition.

Its very worrying that so many people (family members, friends and even ‘professionals’) have no understanding of the concept of comorbidity as it relates to autism. Comorbidity is:

[E]xisting simultaneously with and usually independently of another medical condition.

So, there are somethings that autism _is_ and some things that autism _isn’t_ but which may be comorbid to autism. Such as behavioural issues (resulting in biting, hair pulling, smacking, fecal smearing etc), bowel problems, excessive thirst etc etc. The *only things* that can be said to be autistic are those found on the diagnostic criteria. Anything not in the diagnostic criteria is comorbid.

So where does that leave us? Hopefully it demonstrates that I don’t find any of the comorbid conditions my correspondent listed as acceptable. I believe interventions in all instances should be rigorously pursued. Their treatment will not, however, impact in any way on the fact of the child’s autism.

No one I know in the Neurodiversity/autistic pride movement says that autistics do not require interventions or help in some circumstances. One of the founders of AspiesForFreedom regularly comments (not that I can find any to link to! Arggh!!) that he’ll always be grateful for his Speech Therapy.

There is a monumental difference between curing autism and treating/intervening in certain comorbid (and even non associative) conditions. One seeks the total eradication of self. The other aims to help the individual whilst preserving their right to be who they are.

*Update!*

Tesla Coyle makes a vital point in the comments below. I want to repeat it here so its not missed by anyone:

IF the kid needed some sort of behavioral consequences to get him to stop biting, that should be reasonable, but first find out if he trying to “tell” you something important, like he’s terrified.

The Importance Of Critical Thinking

21 Jul

Introduction

Over the last few days I’ve had a flurry of activity in the comments sections of some of my older posts regarding mercury and Rashid Buttar in particular. Most of the commenter’s believe that I am being very unfair to Dr Buttar and am not taking responsibility for my daughters biomedical needs (yes, that old chestnut again). Here’s a few choice quotes:

I am so very grateful that my daughter and son-in-law were dedicated from the very beginning to find a cure for Gavin. It has been a long hard journey and well worth the effort!! And Gavin is not the only recovering autistic child. There are lots of others. With your atitude, Megan will not be one of them and she and her grandmother will most likely miss out on that joy! Such a shame.

In my opinon, by attacking this problem with just therapy, and supplements and not by chelation to remove the Mercury and the other heavy metals is giving your child nothing more than a bandaid …you have left your child in a lonely austic world that keeps him isolated from his family and loved ones.

Hey Kev, do you have a Bill of Rights for The Autism Movement? I think that the first ammendment in your Bill of Rights should be, freedom of speech! Now that’s sarcasm!

Your dead wrong about Dr. Buttar and the children of the parents that listen to you are the ones that are really being banned! Banned from a typical life that is available through what you label as quackery. They will not benefit from mommys with hairy armpits and daddys with ponytails that like to get all wrapped up in movements.

NONE OF HIS TREATMENTS WERE DONE ON A WHIM. They were and still are being done responsibly. And Gavin’s life has changed dramatically from the age of 2 to the present age of 7 next month, FOR THE BETTER! [ed – thats right, this poor kid had been ‘treated’ for 5 years and the family thought that was normal!]

You state what yours are, but truly I think there is more to the story regarding yours. I would trust you as much as I would trust the generationrescue people. Which is not a lot.

Who the hell are you really?????? Do you really have a child with autism????

There’s a lot of heat and not much light generated in discussions like these. We all have our beliefs and entrenched positions and I’ll be the first to admit, I give as good as I get in situations like this. I’m not one for being polite and humble when someone starts ranting all over my blog.

Beliefs vs Research

If you read through the comments in their entirety you start to notice patterns in thinking and behaviour from a lot (if not all) of these people – the threads themselves move and resolve themselves in a consistent fashion. People such as the above *believe*. They don’t look at the science as they believe it is tainted, they don’t think the situation through in a critical way as they’re caught up in the emotion of the situation. I can totally empathise with that as I used to be exactly the same. Here’s a quote from me in my first ever post to this blog.

Megan was born on 17-02-00 weighing slightly more than usual. The first few months of her life were totally normal- we didn’t feel concerned about her health or well-being at all. That changed however when she had her DTP jab. I know there’s been a lot about the jabs (particularly the combined MMR jab) in the news but we (or rather I, Naomi was a lot more dubious than me but I managed to convince her) decided to go ahead with it and on the night of her first lot of jabs Megan began projectile vomiting and developed a temperature that peaked at 102 degrees. We phoned for an Ambulance and took her to A and E where they brought her temperature down, then told us they couldn’t find much wrong with her. We were relieved but by the end of that week we knew something was wrong with Megs. She seemed subtely different. There was nothing you could put your finger on as such but the difference was there, she was late walking and was uncomfortable around others.

Looking back on that now it seems an almost alien time for me. I knew nothing about autism or autistics and I knew nothing about the ways of thinking logically and examining carefully *all* the variables (or as many as possible) in any given situation. Its only as I’ve increased my exposure to both scientific evidence and actually talked to a lot of autistics that I’ve learned that applying critical thinking to the theories regarding autism is vital. Take the above quote from me: I talk about how ill Megan was that night and she was but the only connection between her illness and the DTP jab was the one we made in our minds. Subsequent examinations of our daughter revealed no damage at all. I also talked about ‘knowing something was different’ but really, I didn’t. I’d already decided that the DTP jab was the culprit and my judgement regarding Megan’s ‘difference’ was then formed retroactively, based on that erroneous assumption.

After that realisation I decided that we needed to try and put Megan’s needs first and not our own selfish need to find a cause – Megan was/is autistic and our energies needed to be redirected into finding a cause into finding a way to intervene in the situations that cause her problems.

We were firmly in that pattern and it was only gradually, and only after abandoning the *belief* system in favour of the *research* system, that we started to see significant changes in the areas Megan needed help in. I’m not entirely comfortable discussing private medical issues on a public blog but suffice it to say Megan’s main area of concern in the triad of differences were social, emotional and communicative. But these are ASD, these are not however, specific problems. Specific problems can and should be targeted. A specific problem based on Megan’s communication problems is getting her to communicate so _thats_ what we work on. We don’t try and remove the autism as it can’t be removed. If I could offer one piece of advice to parents with newly diagnosed kids its this – abandon your *beliefs* in favour of *impartial research*, identify the *specific problems*, not the *general condition* and formulate interventions to address those specific problems. In that whole process however, I freely recognise that this most difficult part is abandoning belief in favour of research.

Its difficult as it means that you have to apply rigorous scientific criteria to everything that touches your children’s lives. This means:

1- Is it logical?
2 – Is it peer reviewed?
3 – Has it been published in a respected Journal?
4 – Is it safe?
5 – What are the known and suspected side effects?

Why are these things important? Because if a treatment has not been tested or peer reviewed or had data about it published then it is *an unknown quantity*. It is everybodies free choice to use whatever they feel comfortable about using but I think it is irresponsible for me as a parent to use a treatment that little to nothing is known about. I also feel its my duty as the parent of an autistic to inform other parents of autistics of anything – either positive or negative – I’ve personally found out about a particular person, treatment or system.

Its also interesting (and a little disturbing) to see so much odd belief _about_ autism. Some people believe that stimming is painful for autistics! Some people believe that bowel and digestive problems are symptoms of autism. Some people believe that the symptoms of mercury poisoning and autism are the same. I find it bewildering how anyone could believe any of these things as they are simply not true. But it all comes back to the power of *belief* over *research*. Whilst these people believe they have thoroughly researched the issues, a lot of the time they haven’t. What they actually do is research until they find a theory that fits with their own beliefs. Again, I can understand why thats an attractive thing to do but its simply flawed logic. if you want to be in the best position to know what stands the best chance of helping in a given situation you must abandon your beliefs and be prepared to look objectively at the science. You must accept when studies you thought were sound were not and you must accept that a study without peer review or a treatment without published data is useless and potentially very very dangerous.

The Ethics

A lot of comments lately have found humour in the idea of a global autism rights movement. They seem to feel that autism is all about children. they also seem to feel that the autistic rights movement doesn’t want help or interventions where they are needed. Again, this is down to belief over research. A lot of families may read the odd book by Temple Grandin and assume they know everything about how autistics think and feel when nothing could be further from the truth. Reading books by Temple Grandin gives you an idea of how Temple Grandin thinks and feels. Nothing more.

I find it worrying that so many parents, grandparents, godparents and siblings are so unprepared to accept the fact that their son/nephew/grandson/brother is autistic and will be for life. I find it worrying that they don’t do more to research what its like to be an adult autistic and most of all I find it incredibly worrying that to them the idea of autistics having rights is a source of humour.

The Enemy

Autism is not your enemy. It is not anyone’s enemy. It simply is. The comorbid conditions that sometimes occur in some autistics such as ADHD, Tourettes, Irlen Syndrome, lack of speech/communication, etc are all situations in which we as family members can and should intervene. The nature of that intervention however is vital. An emotive belief based response such as Chelation, crystal healing or any of the other myriad of ‘cures’ that exist won’t help at all. All the video recordings of ‘progress’ in the world don’t change that – these aren’t evidence, they are anecdotes. They don’t take any other variables into account and they aren’t undertaken in scientifically rigorous environments. If you make the choice to go ahead with these things anyway then thats your choice. All I’d ask is that you be honest with yourself about the effects these things really have. If a treatment you are trying has lasted 5 years can you really say that its working? How do you know its not just down to child development?

When full scale attacks are launched on autism, then to me that equatable to launching full scale attacks on my daughter and my friends. When people talk about curing autism I see that in terms of the removal of the person my daughter is. If you remove the autism you remove my daughter. Thats unacceptable to me.

MagpieRSS, Ajax And Behaviour: Oh My!

20 Jul

Last month I posted and documented an interesting way of using a combination of MagpieRSS and AJAX technology to serve up remote RSS feeds to your own site. Since then I’ve come across a few posts from others expressing concern about accessibility and DOM related scripting and wanted to redefine the code somewhat to make the markup a lot cleaner and more accessible.

Enter Behaviour from Ben Nolan which I came across whilst searching for ways to make AJAX markup cleaner.

The Problem

In my previous example I had this:

Dredge

Which is not very accessible at all. As Ben himself says:

After all the work of WASP and others to promote clean markup, valid pages and graceful degradation via CSS – it sucks that we’re going back to tag soup days by throwing Javascript tags into our HTML.

So he wrote an excellent piece of Javascript which he called Behaviour. Using it we can get from the above piece of code to this:

Dredge

Which is much much better and a lot more readable.

The Solution

The answer is Ben’s Behaviour. It basically allows you to use CSS selectors to specify elements to add Javascript events to. For example:

So here we use an event thats specifically set to be triggered when the ‘andy’ class of an ‘a’ element is used. How easy is that? And it makes our markup so much cleaner and more accessible.

However…

There’s always a ‘but’ or a ‘however’ right? Well, yeah there is here too. There’s no easy way to have multiple dynamic sources so what you need to do is set each new object manually in your Javascript like so:

Which is triggered by your links like so:

Now thats a bit of a ball-ache but the accessibility and semantic advantages are massive. Besides it is possible to seriously redefine the Javascript used – maybe place all feed URL’s in an array and call array elements into the object dynamically – you could even get your server side code to add to the array dynamically i.e. get PHP (or perl/Python/ASP/whatever) to open up the .js file and write to the array – it all depends on how much automation you want. For me, the prime concern was cleaning up the markup to make it more accessible – going the long way round on the behaviour side is a small price to pay. So far.

Here’s the revamped page.

Ammended!

OK, as per comment no.1 this is now form-less. The code adjustments are as follows – first we adjust our javascript Behaviour object to:

Next we alter our core AJAX script like so:

Lastly, you can remove the now obselete element from the markup – job done.

A Book Baton

19 Jul

Ben from Binary Moon has passed me a book baton which as an avid reader I feel compelled to pass on.

Number of books on the shelf

Erm: lots! I have two large bookcases and one smaller bookcase. I’d guesstimate 400 books. Have I read all of them? Except for the wifes crappy John Grisham novels of course! Several times!

Last book purchased

In The Night Room. Peter Straub. Not his best but still pretty damn good.

Book reading right now

Koko. Peter Straub. Reading a new Straub always sets me off to read Koko again which I consider one of the best books ever written.

Last 5 books read

1. Flashman on the march. George McDonald Fraser. Hilarious as ever.
2. Only Forward. Micheal Marshall Smith.
3. The Algebraist. Iain M Banks.
4. Shade. Neil Jordan.
5. Diamon Dogs, Turquoise Days. Alistair Reynolds.

Books that mean a lot to me

The Dune series. Lord of the Rings. Koko. The Flashman collection. Catch 22.

Passing this along to

1. Matthew Pennell
2. Orac
3. AutismDiva
4. Prabhath Sirisena
5. Martin Smith