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In My Unending Quest

15 Sep

To turn the web purple (must be a phase) I’d like to introduce you to my latest redesign. Lets face it, the site needed it. It was getting just a tad ramshackle around the edges.

Where the old design was heavy on colour, this goes back to my more minimalist roots. I’ve ditched SIFR in place of dynamically generating images for headings on the server. I’ve made sure shorter blog entries don’t look like crap, the underlying code is tighter and more robust and generally its all a bit spick and span.

The biggest change was upgrading from my creaky WordPress 1.5 admin engine to this sleek lovely WordPress 2.0 admin engine. Its a big improvement and was really the main reason this whole redesign was done. Thought I might as well tart up the whole thing.

For those of you with the new Windows Vista default font sets installed you should be seeing them. For those visiting in Firefox, Moz and Safari, things are golden. For those visiting in IE6 and 7 there are minor layout issues with the right column. Same for Opera. If this was a clients site, it wouldn’t be OK to leave these things unaddressed. But its not. And frankly, I can’t be bothered :o)

Have a dig around, let me know if anything’s broken.

Better Late Than Never

12 Sep

Joseph meme-clobbered me with a book meme awhile ago. This is a serious thing as I love books. Fiction, Non-Fiction, prose, poetry – love it all. I had to think long and hard about this.

One book that changed my life

Fiction: Lord of the Rings. My mum read it to me and my brother when we were kids and I was utterly captivated by the depth and strangeness of it all. It sparked a life long (so far) deep abiding affection for fantasy, sci-fi and horror novels and films. Its one of the books I re-read at least once a year.

Non-Fiction: HTML 4 For the World Wide Web by the wonderful Liz Castro. Up to this point I’d been flashturbating like crazy. This book changed my whole approach to web development.

One book that you’ve read more than once

Fiction: The Dune series (not the shitty new ones just the Frank Herbert ones). These are the only works of fiction I know that even approach Tolkien for depth and pure story telling. The first in the series is as close to perfection as a book can get.

Non-Fiction: Simon Schama’s History of Britain Book II: The British Wars – It’s Tudor-tastic!

One book you’d want on a desert island

Sorry, this is silly. One book? I refuse to divulge anything less than a top five. I would recommend everyone has these books.

1) Koko by Peter Straub (probably the best chiller/horror ever written. Classy, reserved, menacing).
2) Flashman and The Dragon by George MacDonald Fraser (if you ever need cheering up Flashy will do it. He’s a literary character – from Tom Browns School Days – placed in Victorian Britain at the height of the Empire. Coward, bastard, rake, hero, poltroon).
3) Only Forward by Michael Marshall Smith. Better known for his ‘Straw Men’ series of chillers, this is an innovative and witty sci-fi. His first published novel.
4) The Shining by Stephen King. His best book IMO. I still can’t look at the numbers 217 without shivering.
5) Fever Pitch by Nick Hornby. A book of empathy. I gave it to my wife to try and explain why football matters. She loved the book but still thinks footy’s crap.

One book that made you laugh

All the Flashman book by George MacDonald Fraser. Seriously, buy one. Read it. You won’t regret it. Oh yeah – Catch 22 as well.

One book that made you cry

OK, here’s where I reveal my inner big girls blouse: Little Women had me in bits.

One book you wish you had written

None really. Pleasure is in the reading.

One book you wish had never been written

Can’t think of anything bad enough to warrant never having been written.

One book you’re currently reading

Fiction: The Last Witchfinder by James Morrow. Great book for skeptics ;o)

Non-Fiction: Designing Visual Interfaces: Communication Oriented Techniques by Kevin Mullet

One book you’ve been meaning to read

The Design of Sites: Principles, Processes and Patterns for Crafting a Customer-centered Web Experience by Douglas K.Van Duyne is top of my Amazon Wish List :o)

Autism Speaks: Don’t Speak For Me

17 Jul

Following on from the furore created by the very misleading Autism Every Day film, I’ve set up a petition to make sure that the film-makers realise that not all parents of autistic people, or autistic people themselves, or professionals who work with autistic people are harbouring thoughts of murder. Neither do we appreciate our lives being intentionally misleadingly portrayed in order to gain a pressure group a bit more money.

Signatories will be stating that they:

Utterly repudiate the notion of murder being an acceptable response to disability.

Vehemently deny that most parents of autistic – or otherwise disabled – children harbour thoughts of murder

Testify that the false ‘reality’ concocted by Autism Speaks film ‘Autism Every Day’ is not a true reflection of the reality of parenting an autistic child.

Call for a public apology from Lauren Thierry for increasing ignorance regarding autism.

Please sign the petition.

Autism Hub Updates

9 Jul

I’ve introduced a few changes to the Hub over the last few days.

Firstly, the whole site has had a substantial redesign. This has (I hope) made things a bit easier on the eye, a bit easier to read the content you’re interested in and generally behave better across a wider range of devices.

There’s still some ongoing backend work which needs to be completed before I start accepting potential new members and there’s a few more front end tweaks to get slotted in to make users lives even easier but these won’t require any substantial aesthetic alterations or any downtime at all.

Secondly, I’ve introduced a range of t-shirts that you can buy via the Hub. Its a very small range at the moment but I’ll be designing and adding more over time.

The reasons I’ve done this is mainly due to the unexpected success and popularity of the Hub. It took me very much by surprise how quickly it took off and the long and short of it is that the Hub needs to start paying for itself fairly quickly.

There are several ways I could’ve gone about getting revenue but I despise adverts on sites (or – even worse – in RSS feeds) and I ‘m very much against the idea of paid-for content in this context so this seemed the best solution – the buyer gets something and I get a cut to go towards the cost of running the site.

I’ve no idea how (un)successful this idea might be as I’ve never done anything like this before but if I do make any money beyond the requirements of the site to sustain itself then I’ll be donating the excess to pro-neurodiversity websites and projects at the end of each year.

Lastly, I’ve just set up a new part of the Hub which is free for anyone to use.

It’s called the ‘autisticus’ and it works in exactly the same way as del.icio.us – it allows you to save interesting stories and blog entries to a central location.

All you need to do is head to the autisticus site, create an account and then add pages/stories/blog entries you want to bookmark. You can tag entries in exactly the same way as del.icio.us and there’s even a draggable bookmark shortcut for your browser. Over time, as more entries get added and tagged, there’ll be a big resource of searchable tags and entries to read and research at your leisure. You cn even add any existing del.icio.us entries you may already have.

So, go join up and start adding entries!

Indefensible And Unprotested

26 Jun

The McCarron family and the Leitch family have become close over the last few weeks. We have never met. We have never heard each others voices. We have only seen pictures of each other and communicated by email but in that communication has been a sharing of warmth, emotion and desire to connect such as some people never seem to get in their lives. We have swapped addresses as well as photos and they know should they ever want to come to the UK they have a home here. We know that the reverse is true also.

And yet I wish it wasn’t so. A part of me heartily wishes I’d never spoken with Mike. I’m sure he feels the same. This is because of the circumstances that led to us meeting. The murder of his granddaughter, Katie McCarron. If I could ensure a return to life in the arms of her dad, sister and grandparents by swapping that for the friendship of one of the kindest, bravest families I’ve ever met then I would do it in an heartbeat.

Mike refuses to see Katie portrayed as a burden, or as someone in pain. This is because she wasn’t. He also refuses to let people directly or indirectly attempt to absolve Katie’s killer by making murder the responsibility of an uncaring society. This is because it wasn’t. It was murder.

Recently, Stephen Drake of Not Dead Yet, wrote a press release calling for restraint when reporting these kind of murders – i.e. murders of disabled kids.

Researcher Dick Sobsey has documented an increase in the murders of children by their parents in Canada in relation to well-publicized and sympathetic coverage of the murders of children with disabilities. Articles about the alleged murder of a person with a disability should not contain more about the disability than about the victim as a person. More space should be devoted to grieving family members than sympathetic friends of the accused killer.

And yet, yesterday, the Chicago Tribune released a piece of journalism that can be best described as callow.

The piece starts off by portraying members of the mercury/autism connection as the inheritors of the sort of stigma that those who actually were persecuted by Bettlehiem underwent:

It has been nearly 50 years since mothers shouldered the blame for their children’s autism. Yet for many parents, echoes of that painful era remain……

In the 1950s and ’60s, the medical community accepted University of Chicago psychoanalyst Bruno Bettelheim’s assessment that “refrigerator mothers”–those with a supposedly cold, unloving demeanor–brought on their children’s disorder.

Although we now know that autism is a neurological disorder and not the result of bad parenting, the exact cause remains a mystery.

Many parents, however, are convinced they’ve found the answer. And most experts are on the opposing side.

Indeed, few medical battles are more charged than that between parents who believe mercury in their children’s vaccines brought on autism and the medical establishment that has found no evidence to support that claim.

Where the ground really starts to shift is the next association made – that it was this society induced guilt that led poor heroic Karen McCarron into killing her vaccine-injured ‘heavy toll’ inducing daughter.

Some who knew McCarron through her work with an autism support group say the physician blamed herself for allowing her daughter to be vaccinated, and feared that the available remedies wouldn’t make enough of an improvement to her daughter’s quality of life. Others suggest that perhaps working among other doctors skeptical of the vaccine connection created an emotional tug of war for McCarron

I think I know Mike well enough now to be absolutely sure that he and his family would be _outraged_ at these utterly vacuous statements. To besmirch the memory of Katie McCarron by trying to empathise with her murdering mother and to try and absolve her and by implication blame the mainstream medical community is appalling.

In fact, the reverse is almost certainly true – the utter hopelessness that groups such as Autism Speaks like to foment are much more likely to have led to any depression Katie’s murderer might’ve had. And if she felt that vaccines caused her daughters autism then she long ago crossed the line into quackery. In this case, fatal quackery. There is still absolutely zero evidence that vaccines cause autism. Anyone – and I mean _anyone_ who has had a hand in perpetuating that myth bears some responsibility for the murder of Katie McCarron.

On the 22nd of June, Kellie A. Waremburg attempted to kill her four year old daughter. Thankfully she failed. Her daughter has cerebral palsy.

Shortly afterwards, the same barrage of testimonials commenting on how good a mother Waremburg was came out and how difficult it is to parent a child with cerebral palsy:

“She’s always been a good mom. She’s always interacting with her (daughter),” said next-door neighbor Katie Gardiner.

Families face challenges, there’s no question about it. Children have varying degrees of impairment. For some families, there is a minimal impact to families who need to take every aspect of their child’s care – feed them, dress them, toilet them,” said Morgan, who also is the chief of the section of child development within the Department of Pediatrics at University of Illinois College of Medicine at Peoria.

So? So what? Get over it, get on with it. If you can’t, then hand your child over to family members or social services and let someone who doesn’t put themselves first get on with it.

I want to clue these killer parents and those parents and groups who ‘understand’ killer parents into something: Your child is not your property. You have no rights over them. You have an obligation to parent them, love them, feed them, clothe them, teach them and let them be who they are. When you have a child, you put yourself last. If your career suffers – that’s not their fault. If you can’t go out as much as you used to – that’s not their fault. If money is a problem – that’s not their fault. Stop transferring your unhappiness about the way your life has changed into excuses for killing, or understanding the killers of, children.

I’ve had two themes running through this blog of late. One is this one – the murder of disabled children. The other one is what’s going on at the Judge Rotenberg Centre where electric skin shock is used to punish autistic and non-autistic students. People who believe in the concept of neurodiversity have been outraged and blogged both of these events continuously and thoroughly.

There is however, one section of people who has remained utterly and totally silent on both issues. The self styled ‘autism community’ who perpetuate the ongoing myth of vaccines causing autism.

Autism Speaks released a short movie about the horrors of having to live life with an autistic child. I’ve seen no movies about the JRC, or investigations into electric shocks for autistic people.

The NAA who regularly (and falsely) denounce good science and promote bad released a damp squib of an online petition and then fell totally silent on the issue.

Safe Minds? Nothing.

ACHAMP? Nothing.

These, don’t forget, are the people who call themselves the autism community. Seems to me like they care about one issue and one issue only.

And how about the anti-mercury bloggers? The grass-roots ‘autism community’.

Adventures in Autism? Nothing.

UPDATE: Ginger informs me that she’s temporarily not blogging at all and hadn’t even heard of Katie McCarron. In this light, it doesn’t seem fair to place AiA here.

Injecting Sense? Nothing.

Whilst these people continue their obsession with trying to find some kind of spurious link between vaccines and autism the world continues to turn. Whilst they present themselves to politicians and media outlets as the autism community, the world continues to turn. Whilst they attend single issue conferences, the world continues to turn.

Unless you’re Katie McCarron. Then the world doesn’t turn at all.

Unless you’re Lexus Fuller. Her world is shattered as she must grow up knowing her mum tried to kill her.

Unless you’re a student at the JRC where the world and time must appear to stand still as you are electrocuted for non-compliance.

Kevin Leitch: Big Pharma Shill

25 Jun

I’m involved in a protracted discussion with a bunch of anti-vaccinationistas on what claims to be an autism support forum. Amongst them is the hilarious srniath who is treating is child with Lupron but who didn’t know what CPP or PPP was and didn’t know that excess testosterone could be caused by vitamin and supplements.

Another one is someone one calls themselves ‘respect’ and who is an out-and-out anti-vaxxer:

I think we are missing the forest for the trees. Will we all go out and vaccinate our kids with 20 vaccinations before the age of 18 months just because there is no mercury in them? The issue here must the vaccination, and not just the mercury.

Source.

Other regulars there include Erik ‘PR for the Geier’s’ Nanstiel and various other posters – I’ve heard various conspiracy theories totuted around including the eye-popping theory that the World Trade Center terrorist attacks were perpetrated by shadowy US government figures.

Basically, there’s a few good people there but they are drowned out by the louder wingnuts.

Anyway, I’m involved in a discussion regarding the nature of neurodiversity (srinath is again involved so you’re assured of the odd good belly laugh) and it seems that I’ve been outed as a pharma shill! Again!

‘repect’ googled for “kevin leitch pharmaceutical” and damn – got a result!

Department for International Development (DFID)

Kevin Leitch
Programme Officer
Department for International Development (DFID)
HPD, Level 8 West, 1 Palace Street
London SW1 5HE
United Kingdom
Phone: 44.020.7023.1121
Fax: 44.020.7023.0428/0174
Email: k-leitch@dfid.gov.uk

Oh man – who would’ve thought that using my real name would’ve led me to being outed? I would’ve gotten away with it too, if it weren’t for you darn kids!

I admit this really tickled my funny bone – how desperate do you have to be to discredit a broke web developer from the West Midlands?

Anyway, just in case there’s any confusion in the future I’d like to make clear that I am not Kevin Leitch. Nor am I Kevin Leitch, or Kevin Leitch, or Kevin Leitch, or Kevin Leitch, or Kevin Leitch and sadly not Kevin Leitch.

Katie McCarron

12 Jun

Since the horrifying news that three year old Katherine ‘Katie’ McCarron was killed by her mother, a few of us have been in contact with Katie’s Granddad – Mike McCarron.

Mike contacted me after viewing the WMV file of [my daughter] I uploaded to counter the idea that autism was a tragedy and that a killing like this was in any way understandable and we’ve swapped emails since then. I have to come to have an inordinate amount of respect for Mike not just for his utterly transparent love for his grand-daughter but also his lucid refusal to countenance the idea that her death can be in any way rationalised or painted as understandable, despite the mealy mouthed efforts of a few journalists and a couple of bloggers who should know better.

Mike sent me the picture of Katie a week or so ago but asked me not to blog it which was totally understandable. However, as the ‘this is justifiable’ nonsense has increased, Mike feels that its time to show people the beautiful child that we’re supposed to believe it was ‘understandable’ to kill.

Here’s a comment from Mike over on Kristina’s AutismVox blog:

I would like to say something about Katie. Some newspapers have reported that this was done to end Katie’s pain; let me assure you that “Katie was not in pain”. She was a beautiful, precious and happy little girl. Each day she was showered with love and returned that love with hugs, kisses and laughter. Katie loved music; she would fill in some of the words in children’s songs as my wife would sing along with the CD that would be playing, their own version of “karaoke” . She liked to dance, she loved to do the “hooky poky”. She loved being in among flowers and tall grass. She would say “I like grass”. She enjoyed the zoo and because of all of the drills and flashcards she could identify the animals. Which I thought was pretty amazing for such a young child. She was also the only little child in her non-autistic play group that could identify an octagon. My wife and son had a party for her the day they heard that from the teacher.

I’m not ashamed to state that I have cried numerous times since corresponding with Mike. In horror that something so appalling could happen to someone so young and innocent, in recognition of the most abrasive pain I could imagine when talking to Mike and in awe that he remains so lucid and how directed and purposeful his very real anger is:

But in the meantime I can assure you that no one will describe her murder as “understandable” or devalue her in anyway without my personal challenge to them and the organizations they represent.

Everyone should have such a Grandpa.

UPDATE: Stephen at Not Dead Yet also received some photo’s of Katie, as did Kristina.

Great Ormond Street Appeal

11 Jun

Got an email from my friend Marty yesterday:

Over the past few months I’ve played a very tiny part in a VERY special auction which is now live. Some facts that might bore a few of you but:-

“In 2005 Lancasters armourie were contracted by the BBC to build a number of prop swords for the Christmas special episode of the hit revival of Doctor Who.

Used by Doctor Who actor David Tennant and the leader of the Sycorax race the swords were seen by 10 million viewers.

Now Lancasters are auctioning the prototype of the sword (above) in aid of London’s Great Ormond Street Hospital.

And, as if owning this unique piece of television history wasn’t enough Lancasters have been aided in their fundraising effort by the generosity BBC Wales and actors David Tennant and Sean Gilder who have provided their signatures for engraving on the blade.

The sword will be auctioned via ebay. Clive Lankford of Lancasters tell us they “are not shy about the fact that we want this to make as much money for GOSHCC as possible”.

See Marty’s site for more details: http://www.mayorwatch.org.uk/news.php?article_id=300

Autism Hub News

7 May

You may remember that earlier this year, I launched Autism Hub in an effort to centralise the blogging efforts of people who blogged along themes associated with autism – what they all have in common is no interest in curing autism. Some bloggers are parents, some are autistic people, some are scientists – some are all three!

However, I was totally unprepared for how successful the Hub would become in such a short space of time. There are now over 30 members whereas the Hub began with less than 20. I have at least 4 applications sitting in my inbox right now waiting for me to deal with them. The Hub sends each of its members a simply mind-boggling amount of traffic. I don’t know if any of the other Hub members are as obsessive about stat tracking as I am (and seeing as not a few are with Blogger, that would prove to be tricky) but every _week_ sees an increase – and from an increasingly diverse audience. Personally, I’ve had referrals from a .uk.gov source, a .nhs.uk source, the CDC in the US, the FDA in the US – what _seems_ to be the Canadian autism association – the Times, Guardian, Daily Mail (snigger) and erm, The Sun newspaper in the UK and a variety of US newspapers I don’t know very well aside from the New York Times and (I think) the Boston Globe.

And of course, there’s the ever-watching, ever-silent mercury militia. Hi guys :o)

In terms of numbers, I (_this_ site) get(s) around 1000 unique visits a day via the Hub. Its difficult to tell how many visitors the Hub itself gets because its not the sort of site that _gets_visitors, more the sort of site to _distribute_ visitors, but just about every Hub members places a small (less than 5kb) graphic on their sites. So far this month (7 days) this graphic has processed 86mb of data – this means that single graphic has been seen by 17,613 people. that works out to about 75,000 unique visitors a month, or 2,500 per day. And that’s not counting the over 400 people who access the feeds direct from the 2 feeds the Hub has.

This has all happened in less than 3 months. Incredible.

And yet, the Hub itself has become a victim of this success – its not a very flexible design and is begging for a decent bit of information architecture applied to it. I’ve recently expanded both the front page and the RSS feeds – this is just the beginning of what needs to be a fairly substantial overhaul.

I am delighted that so many people are interested in a more ‘no need to cure’ point of view than some people (ahem) might feel comfortable with – it gives me a sense of hope that our children and our adult friends and colleagues may have a slightly less judgemental future than was previously feared.

The Hub bloggers are doing a great thing – they are disseminating truth, respect, positivity, objectivity and tolerance. I thank each and every one of them and I promise to continue developing a site worthy of their efforts.

CSS Reboot – Guest Reviewer

2 May

Well, the CSS Reboot is upon us once again and I thought given the prestige of the occasion, I’d hand over to a guest reviewer to review some of the entries in the Reboot.

Please welcome Guest Reviewer – Johnny Nice-Painter.

Oh hello my fellow artists….how very lovely it is to be here reviewing such a prestigious event as the CSS Reboot amongst all you young people. You may know I’m something of an artist myself, although I have to say I utilise the more conventional approach of a nice canvas and water colours. I daresay that sounds terribly old fashioned.

Anyway, lets move on shall we? Katie has my tea and medication waiting for me and I don’t want to be late…so who’s first Mr Leitch?

Oh ah, young Prabhath from Nidahas…what an exotic looking web page that is! How jolly nice! Did he win? No? Why? Because he didn’t pay to get his design listed on the front page? I don’t understand Mr Leitch – you have to pay?

Oh, only some people can pay – those who can afford it I presume – not those who come from developing countries with other priorities I would surmise…? How very strange. Anyway, which lovely website should I look at next?

Oh, ah Standards Rule…well now thats jolly nice too, what a lot of talented people we have here Mr Leitch!…what’s that? Look at the ‘source code’…whatever for? Ah…I see – using a table for layout purposes – I thought this was a CSS competition? It is? Oh dear. I don’t understand, I’m afraid. Admittedly, an old man like me can’t keep up with the latest gizmo’s and jeejaws but even I know that calling a website ‘Standards Rule’ and rebooting in a CSS competition whilst using a table for layout is a bit…well, its not cricket is it eh?

Shall we just go straight to the CSS Reboot home page Mr Leitch? No? Why not? What do you mean ‘no reason’, that sounds a bit silly – lets just click the link and…..

oh….

….there’s an awful lot of black isn’t there…….

….oh dear…Terry Ng, David Longworth, John Protasiewicz, Bryan Veloso, Doug Gibson…….

black……BLACK!!!!

ah……Christian Montoya….ARRGGHHH Christian Montoya AGAIN!!!! BLACK!!!!

You lock me in the cellar and feed me pins, where shall we sleep tonight Mother? On Father’s grave?

Alex Graul….Jonathon Snook….

They wait for me in the woods…

VEERLE MADE IT GOOD BUT IT MAKES ME SAD!!!

The black…..ITS EVERYWHERE!!!!! I MUST HIDE IN THE WARDROBE OF SUBTLE PLAGARISM DARKNESS!!!

Well…sorry about that. I guess all that black was a bit much for poor Johnny. I know how he feels.