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David Kirby vs Accuracy

20 Jul

As I’ve said before, I like David Kirby personally. We exchange friendly emails. We even recently discussed the idea of having a private blog – readable by all but one that allowed only two posters (David and I) and no commenters. This would, I suggested, give us the opportunity to have a civil debate.

Unfortunately, David was too busy, which was a shame. However, the offers always open should he find a bit more time.

He did have time yesterday to blog a piece for the Huffington Post in which he discussed Amanda Peet and said she was ‘against the medical establishment’ for taking the stance she did. He cited a few things to support his point. I’d like to discuss these things but before I do I’d like you Dear Reader to take note: someone who was at the IACC meeting David talks about (he wasn’t there) will hopefully be posting their account of proceedings on LB/RB.

Anyway. Lets proceed. David’s first piece of rhetoric to support the idea Amanda Peet was against the medical establishment was:

A workgroup report of the IACC (the Interagency Autism Coordinating Committee, which includes HHS, CDC, NIH and others) says that some members want “specific objectives on vaccine research” included in the new, multimillion-dollar national autism research program, as mandated by Congress in the Combatting Autism Act.

I’m sure that some members do want this. Lynn Redwood and Mark Baxhill to be precise. As the upcoming IACC account will show, I don’t think any other IACC workgroup members were interested. (Please see this correction of an ignorant Limey’s take on the US system.)

I would also like to correct David on his characterisation of the Combating Autism Act. The Act contains no mention of vaccines. It specifies environmental research but the words ‘vaccine’, ‘vaccination’ ‘immunize’, ‘immunization’, ‘mmr’ or ‘thimerosal’ appear nowhere in the CAA. I hope David will correct his HuffPo piece accordingly.

Notes from the meeting indicate that workgroup members want federal researchers to consider “shortfalls” in epidemiological studies cited as proof against a vaccine-autism association (by Offit, Peet, et al); as well as a specific plan “for researching vaccines as a potential cause of autism.” The workgroup also says that the final research agenda should “state that the issue is open.”

Once again, David’s notes are coming from two people, Lynn Redwood and Mark Blaxill and indeed – they asked for all these things. The account of the meeting I have heard (from someone who was there) differed somewhat. As a flavour of how much the majority of the working group listened to Redwood and Blaxill, I enclose a teaser quote from chairperson Tom Insel:

“Lyn, your community is not the whole community and there are many people with well thought out concerns about ethics of the concept of prevention and if we want to be inclusive we will not do this.”

Back to David:

July 14, 2008 – Rep. Brad Miller (R-NC), Chairman of the House Subcommittee on Investigations and Oversight, (Committe on Science and Technology) writes to HHS Secretary Michael Leavitt to complain that current federal autism research “shows a strong preference to fund genetic-based studies,” even though there is, “growing evidence that suggests a wide range of conditions or environmental exposures may play a role” in autism.

I blogged that episode here. Suffice it to say that a _politician_ is not representative of the medical establishment. I would urge everyone reading this to read that piece as it suggests amongst other things that Generation Rescue and SafeMinds be responsible for a Board that would serve as a liaison between the IACC and parents of autistic people and autistic people themselves!. After reading that I would urge everyone to contact the following people to express your thoughts (politely!) to the decision makers:

HHS Sec Mike Leavitt (mike.leavittAThhs.gov)
NIMH director/IACC director Tom Insel (tinselATmail.nih.gov)
Everyone here: http://science.house.gov/about/members.htm

Once again, back to David:

Dr. Bernadine Healy, former head of the NIH and the American Red Cross and current Health Editor of US News & World Report tells CBS News that, “Officials have been too quick to dismiss the hypothesis as irrational,” and says they “don’t want to pursue a hypothesis because that hypothesis could be damaging to the public health community at large by scaring people.”

I still can’t get over the fact that David is using this person to back up his points! He continues to trumpet the opinion of Bernadine Healy who actually did assert that cigarettes do not cause cancer and worked closely with Philip Morris to do so. She also totally reneged on her stance on fetal tissue research when she found herself in the same camp as President Bush. In AoA language she’s a shill.

David then goes on to cite al three Presidential Candidates – as if a politicians opinion in an election year means anything! I definitely fail to see what any of them have to do with being part of the medical establishment.

Onwards:

March 29, 2008 – Dr. Julie Gerberding, Director of the CDC, speaking about the Hannah Poling case on CNN says: “If a child was immunized, got a fever, had other complications from the vaccines, and was pre-disposed with the mitochondrial disorder, it can certainly set off some damage (including) symptoms that have characteristics of autism.”

Er, so? I’m really not sure how this is a ‘point’ for David (or anyone else who thinks its supportive of the idea vaccines cause autism). If she’d said ‘yes, vaccines caused autism in Hannah Poling’s case’ (which no-one ever has by the way, despite statements to the contrary) than _that_ would be a bombshell. As it was Dr. Gerberding was simply speaking what is obvious.

David again:

The CISA Network (Clinical Immunization Safety Assessment), headed by the CDC, receives a report from top researchers at Johns Hopkins University that 30 typically developing children with mitochondrial dysfunction all regressed into autism between 12 and 24 months of life. At least two of them (6%) showed brain damage within one week of receiving simultaneous multiple vaccinations.

Now, I can’t answer this as much as I’d like to. I have spoken to people involved in the preparation and writing of this report (as has David) and I was given two take home points from our email chat:

1) The science is _not yet complete_ . The paper is not published.
2) The authors feel ‘disappointed’ in the slant David has put on their work and are loth to discuss it with anyone else due to that. I was told that David might be rather surprised when everything comes out later in the year.

David once more:

Medical Personnel at HHS concede an autism case filed by the family of Hannah Poling in the federal Vaccine Injury Compensation Program, before the claim can go to trial as a “test case” of the theory that thimerosal causes autism. Though portrayed by some (ie, Dr. Offit) as a legal decision, it is in fact a medical decision. HHS doctors admit that the “cause” of Hannah’s “autistic encephalopathy” was “vaccine-induced fever and immune stimulation that exceeded metabolic reserves,”

First of all, I beg to differ with David. The concession was a legal one. By definition the phrase “autistic encephalopathy” does not exist in mainstream science so if it was used (a fact which has yet to be determined – I invite David once more to link through to the document where this is stated). A simple test of its non-existence is to search for the phrase on PubMed. I got:

Quoted phrase not found.

So we have a multitude of uncertainties here:

1) Nowhere (except in David’s writings) can we find evidence of HHS apparently saying “autistic encephalopathy” caused Hannah Poling’s autism.

2) The phrase itself (“autistic encephalopathy”) does not appear in the entire PubMed database, thus causing me to doubt its use by the medical establishment.

3) Is the concession legal or medical? If a diagnosis does not exist but is used in a legal document then by definition it must be legal – thats my opinion anyway.

David also mentions a HHS Vaccine Safety Working Group meeting but I know next to nothing about that so can’t comment.

I have to say that based on the above, David seems to be attempting nothing more than an intellectual ‘land grab’ i.e. to attempt to paint those who claim vaccines cause autism as part of the medical establishment and those who stand against them as not. Its a good political idea but I don’t think its going to work. There are just too many holes in this particular boat for it to float for long.

Cookie Mag talks to the expert (not plural)

18 Jul

Cookie Magazine has found itself getting a lot more traffic than normal as of late. Amanda Peet was featured and spoke out for vaccines.

Lock the doors! How could someone say vaccines are good!

Well, we all know how people can jump on that subject. All too well. Amanda Peet got her information by talking to an expert of vaccines, Dr. Paul Offit. She was pretty darned lucky to have a connection like that, in my view.

Long story short, after statements, an apology (but not backpedaling!), lots of internet discussion, a threat here and there, Cookie Magazine now has posted some interviews with Dr. Offit (vaccine expert) and, huh?, Dr. Jay Gordon.

Oh, Kay. Dr. Jay, on the same level as Dr. Offit?

Actually, I think I’ll print out the Dr. Offit interview for people with questions. As for Dr. Jay, well, here’s the final quote:

How do you reconcile the notion of not vaccinating with the public health benefit that you mentioned earlier?
I think that the public health benefits to vaccinating are grossly overstated. I think that if we spent as much time telling people to breastfeed or to quit eating cheese and ice cream, we’d save more lives than we save with the polio vaccine.

People seem to think there are two sides to this discussion. Yep, there’s preventing disease and stopping people from eating cheese.

Amanda Peet Aplogizes…

17 Jul

…about the word parasite but at the same time, she holds her ground on the issues surrounding vaccines.

She notes that the term “parasites” was “mean and divisive”.

I wanted to address my comment in Cookie magazine that “parents who don’t vaccinate their children are parasites.” I believe in my heart that my use of the word “parasites” was mean and divisive; I completely understand why it offended some parents, and in particular, parents of children with autism who feel that vaccines caused their illness. For this I am truly sorry. Since my mom has Parkinson’s Disease, I know what it feels like to want a concrete cause, and a concrete cure, as soon as possible.

Cookie Magazine deserves the click-through, so go ahead and read the entire statement. Here’s another taste, though:

However, I still believe that the decision not to vaccinate our children bodes for a dangerous future. Vast reductions in immunization will lead to a resurgence of deadly viruses. This is as indisputable as global warming. I know a lot of parents who secretly use as a justification, “Well, enough other people are vaccinating, so therefore, we don’t have to.”

Unfortunately, the apology is not being met well in some circles. I’ve already read people comment that she couldn’t have written that herself. Just a thought here: she graduated from Columbia, not Google U.

I’ve been told recently that it’s really neat how both sides of a story can be told. So, in that spirit, here’s a link to Jenny McCarthy’s apology to Dr. David Tayloe of the AAP and Dr. Harvey Karp, for shouting “bull****” at them on TV. I promise to put it up when I get it. Maybe I missed it.

In searching for a possible Jenny McCarthy apology, I tried a search for jenny mccarthy apology. What I got was a lot of hits to the Amanda Peet apology. Including AutismVox.

Amanda Peet and the Streisand Effect

16 Jul

I had never heard of the “Streisand Effect” until a few months ago. That’s when Clifford Shoemaker subpoenaed.

The basic idea is simple: someone tries to censor or remove some piece of information from the internet, and, instead, the actions cause the information to be much more widely spread than it would have been otherwise.

In the case of the subpoena, many (MANY) people heard about the neurodiversity.com site and, especially, some of the actions of Mr. Shoemaker, than would have happened had the subpoena not been issued.

I was reminded of this phenomenon today when I found that the Amanda Peet story has started to catch on big. Amanda Peet was quoted in Cookie Magazine with a very pro-vaccine stance. She had been scared by…

….the amount of misinformation floating around, particularly in Hollywood

So, what did she do? She asked a medical professional for advice. Dang, what a concept! She was very fortunate that her brother in law is a doctor and, even more luckily, he works at Children’s Hospital of Philadelphia (CHOP) where Paul Offit works.

Dr. Offit knows vaccines. Not in the, “I’ve read a ton in the internet” version of “knows” vaccines. No, He researches and develops vaccines. He is also a vocal spokesperson against the idea that vaccines cause autism. That, as you can imagine, makes him very unpopular with some segments of the autism community.

So, you can imagine what happened when Amanda Peet came out pro vaccine, against the vaccine-autism connection and stated that she got information from Dr. Offit. Yes, she got the usual hate-filled reception. And make no mistake, I am not downplaying that. I would not be surprised if she, like others before her, have had to forward emails or phone calls to the authorities because they seem threatening.

But, as time goes on, the message isn’t getting quashed. Salon.com picked up the story today and stated,

Now, Peet vs. McCarthy is the celebrity smackdown du jour. Sure, we’d all be better off taking our medical advice from doctors and nurses rather than celebrities. Yet, everyone from the American Academy of Pediatrics to Salon columnist Dr. Rahul Parikh has tried to reassure parents that vaccines don’t cause autism. Meanwhile, public health officials worry when public confidence in vaccinations continues to erode, in part because of high-profile celebrity advocacy, like McCarthy’s Green Our Vaccines march and rally held in Washington, D.C., in June.

And, what was that “smackdown du jour”? Looks like E! picked up the story as well.

All these web stories give the usual crowd an opportunity to add comments. The forums and comment sections for those stories are filled with people trashing Amanda Peet. I wish those people would catch a clue–have someone outside the autism community read what they write. The comments are strident, rude and, in general, really make the autism community as a whole look bad. It’s one thing to rant away in a closed yahoo group or in the comment section of the Age of Autism blog, but the public doesn’t know (and I wish they didn’t) just how mean and nasty these “advocacy” groups can be.

This story isn’t going away. Amanda Peet is now a spokesperson for Every Child By Two, a pro-vaccine organization founded by former first lady Rosalynn Carter. (as an aside–the Carters are one of the best ex-first-families the U.S. has seen).

Now that Amanda Peet has come down against the idea that vaccines cause autism, pretty much everything she says will be picked apart and analyzed. One comment that is giving a lot of ammunition to her detractors is this: “Frankly, I feel that parents who don’t vaccinate their children are parasites.”

Read the comments and how many people try to make it sound like Amanda Peet is calling autism parents “parasites”. (Hint, she didn’t).

Let’s take a quick look at that term, parasite.

a person who receives support, advantage, or the like, from another or others without giving any useful or proper return, as one who lives on the hospitality of others.

Now, let’s take a look at what Dr. Sears, one of the people often quoted by vaccine rejectionists, has to say about the MMR vaccine:

“I also warn them not to share their fears with other neighbors, because if too many people avoid the MMR, we’ll likely see the diseases increase significantly.”

So, he appears to this reader to be telling parents who don’t give the MMR vaccination to their children to keep mum, or the herd immunity will be compromised and the advantage to those parents will be lost.

Sweet. That doesn’t sound like “receiving advantage” without giving anything useful in return, does it?

Don’t get me wrong. For people with real reasons to avoid some or all vaccines (one regular commenter on this blog comes to mind). But, “I am scared of MMR causing autism so I am not going to vaccinate my kid, but I’ll hide in the herd immunity” doesn’t sit very well.

Also, where is the compassion for those who really need the protection of herd immunity? Where is the “Consider that your neighbor’s kids could use the advantage of your child’s immunity”?

But, to bring this back to where we started: Amanda Peet has hit the scene. She has jumped in with both feet, and appears to be staying for a while. A lot of voices appear to be trying to shout her down. Instead, they just seem to be giving Amada Peet’s message more coverage.

Age of Autism get annoyed at Amanda Peet

15 Jul

Remember last week when actress Amanda Peet gave a few people some home truths?

Once we had spoken, I was shocked at the amount of misinformation floating around, particularly in Hollywood,” says Peet, who quickly boned up on the hot-button controversies surrounding the topic, including the unproven link between certain vaccines and autism; the safety of preservatives like mercury-based thimerosal; and the fear that the relatively high number of shots kids receive today can overwhelm young immune systems. Her conclusion? Well, not only is Frankie up-to-date on her vaccines (with no staggering), but her mom will soon appear in public-service announcements for Every Child by Two. “I buy 99 percent organic food for Frankie, and I don’t like to give her medicine or put sunscreen on her,” says Peet. “But now that I’ve done my research, vaccines do not concern me.” What does concern her is the growing number of unvaccinated children who are benefiting from the “shield” created by the inoculated—we are protected from viruses only if everyone, or most everyone, is immunized: “Frankly, I feel that parents who don’t vaccinate their children are parasites.”

Well, today, Age of Autism posted a blog entry that gave full vent to their response:

…you have no idea who you are messing with. You have never seen the power of our numbers, our anger, our commitment, and our conviction. At present, you really have no dog in this fight.

Quite apart from the overtly threatening tone, I would like to remind these people that of _course_ Ms Peet has a ‘dog in this fight’. Everyone does. The collective health of us all clearly affects everyone. Parents who blog on Age of Autism and who blog about Gardasil have ‘no dog in that fight’ according to AoA logic.

The blog post contains one amusing little faux pas:

Ms. Peet’s decision to work with them [CDC] is analogous to the scientists in the 1950s who chose to assert that cigarettes do not cause lung cancer and work closely with Philip Morris to do so…

This is the same blog that continues to trumpet the opinion of Bernadine Healy who actually _did_ assert that cigarettes do not cause cancer and worked closely with Philip Morris to do so. Its either stupidity or a purposeful attempt to obfuscate the truth, I couldn’t possibly say.

The blog post closes with the contact details of Ms Peets advisors, along with the further threat:

…your client has chosen to align herself with him [Paul Offit]. In doing so, Ms. Peet puts herself directly in the line of fire.

If you wish to support Ms Peet’s stance, which I believe is a good one for both public health _and_ which will have a positive impact on autism in terms of moving on from this increasingly desperate and nasty campaign to convince the world vaccines cause autism, then please leave a comment in the comments section of this post, or email me (kevleitchATgmailDOTcom).

I can assure you that unlike the emails that will be sent using the details provided by the AoA blog, your comments will definitely be seen by Ms Peet.

Additional: There’s a nice piece on Amanda Peet and vaccines in Salon.com today.

Amanda Peet says it like it is

10 Jul

From Cookiemag.

Peet’s analytical urges are comical when she’s talking about kids’ gear, but not when she’s discussing a subject she feels is among today’s most pressing public-health issues: infant vaccinations. “As soon as I was pregnant, the neuroses kicked in,” says Peet, 36, who is married to screenwriter David Benioff. She began calling her older sister’s husband, a Philadelphia pediatrician, “every five minutes” with all kinds of questions, especially about shots. “I asked him, ‘Why are all of these necessary? Why are some people staggering them?’?” Eventually her brother-in-law arranged a series of phone calls between Peet and his own mentor, Paul Offit, M.D., who is chief of infectious diseases at the Children’s Hospital of Philadelphia, a co-inventor of the rotavirus vaccine, and a board member of Every Child by Two, a pro-vaccine organization cofounded in 1991 by former first lady Rosalynn Carter.

“Once we had spoken, I was shocked at the amount of misinformation floating around, particularly in Hollywood,” says Peet, who quickly boned up on the hot-button controversies surrounding the topic, including the unproven link between certain vaccines and autism; the safety of preservatives like mercury-based thimerosal; and the fear that the relatively high number of shots kids receive today can overwhelm young immune systems. Her conclusion? Well, not only is Frankie up-to-date on her vaccines (with no staggering), but her mom will soon appear in public-service announcements for Every Child by Two. “I buy 99 percent organic food for Frankie, and I don’t like to give her medicine or put sunscreen on her,” says Peet. “But now that I’ve done my research, vaccines do not concern me.” What does concern her is the growing number of unvaccinated children who are benefiting from the “shield” created by the inoculated—we are protected from viruses only if everyone, or most everyone, is immunized: “Frankly, I feel that parents who don’t vaccinate their children are parasites.“

Amanda Peet

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