CDC Set To Release New Autism Numbers

pD–

I’ll try to find out. Keep in mind, the monitoring sites are not CDC people. The CDC partners with groups in the states. CDC can’t force groups or researchers to stay in the network.

Here is a list of members of the team from the 2009 report (looking at data from 2006, for kids born in 1998…it gets complicated fast!):

Information in this report was provided by ADDM Network Surveillance Year 2004 and 2006 principal investigators: Beverly Mulvihill, PhD, Martha Wingate, PhD, University of Alabama, Birmingham; Russell S. Kirby, PhD, University of South Florida; Sydney Pettygrove, PhD, Chris Cunniff, MD, F. John Meaney, PhD, University of Arizona, Tucson; Lisa Miller, MD, Colorado Department of Public Health and Environment, Denver; Cordelia Robinson, PhD, University of Colorado at Denver and Health Sciences Center, Denver; Gina Quintana, Colorado Department of Education; Marygrace Yale Kaiser, PhD, University of Miami, Coral Gables, Florida; Li-Ching Lee, PhD, Johns Hopkins University, Baltimore, Maryland; Rebecca Landa, PhD, Kennedy Krieger Institute, Baltimore, Maryland; Craig Newschaffer, PhD, Drexel University, Philadelphia, Pennsylvania; John Constantino, MD, Robert Fitzgerald, MPH, Washington University in St. Louis, Missouri; Julie Daniels, PhD, University of North Carolina, Chapel Hill; Ellen Giarelli, EdD, Jennifer Pinto-Martin, PhD, University of Pennsylvania, Philadelphia: Susan E. Levy, MD, The Children’s Hospital of Philadelphia, Pennsylvania; Jane Charles, MD, Joyce Nicholas, PhD, Medical University of South Carolina, Charleston; Maureen Durkin, PhD, DrPH, University of Wisconsin, Madison, Catherine Rice, PhD, Jon Baio, EdS, Kim Van Naarden Braun, PhD, Marshalyn Yeargin-Allsopp, MD, Division of Birth Defects and Developmental Disabilities, National Center on Birth Defects and Developmental Disabilities, CDC. Data collection was coordinated at each site by ADDM Network project coordinators: Meredith Hepburn, Neva Garner, University of Alabama, Birmingham; Kristen Clancy Mancilla, University of Arizona, Tucson; Andria Ratchford, MSPH, Colorado Department of Public Health and Environment, Denver; Yolanda Castillo, MBA, Colorado Department of Education; Maria Kolotos, Johns Hopkins University, Baltimore, Maryland; Rob Fitzgerald, MPH, Washington University in St. Louis, Missouri; Paula Bell, University of North Carolina, Chapel Hill; Rachel Meade, University of Pennsylvania, Philadelphia; Lydia King, PhD, Medical University of South Carolina, Charleston; Carrie Arneson, MS, University of Wisconsin, Madison; Anita Washington, MPH, Research Triangle Institute, Atlanta, Georgia; Susan Graham, MSPH, Division of Birth Defects and Developmental Disabilities, CDC. Additional assistance was provided by project staff including data abstractors, clinician reviewers, epidemiologists, and data management/programming support stff. Ongoing ADDM Network support was provided by Rita Lance, Northrup Grummon, contractor to CDC; Lori Plummer, Lekeisha Jones, Research Triangle Institute, contractors to CDC; Joanne Wojcik, Nancy Doernberg, National Center on Birth Defects and Developmental Disabilities, CDC.

My guess it that they would like to have monitoring sites in all states, but that the cost is an issue. Even within each state they don’t survey everyone.