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Mark Blaxill Thinks Bloggers Are Mean

4 Feb

Mark Blaxill, the token man of the mercury moms at SafeMinds, has written a lip-trembling post over on Age of Autism about how mean bloggers can be. Lets have a bit of fun with it shall we?

The rapid evolution of the Internet has created a host of fascinating, exhilarating and occasionally despicable new things. The Age of Autism is a blog and we’re proud to be a part of a new phenomenon called the blogosphere……But as one might expect with any new form of cultural expression, there’s a bizarre variant of the blogosphere out there. It’s a strange hybrid: it looks like a regular low end blog, based almost entirely on opinion, a dressed up version of the typical online discussion groups and chat rooms….In a disturbing way, this new hybrid has found its way into the debates and controversies around autism science…..Often connected with the so-called “neurodiversity” movement, many of these game players seem to define themselves by their own “autism”

So if I’m understanding Marky Mark, the blogosphere is a ‘new phenomenon’ upon which the light of the countenance of the Age of Autism has charitably fallen.

This ‘new phenomenon’ actually was first realised nine years ago Marky Mark. I await with bated breath Marky’s breathless announcement come 2017 that Age of Autism has discovered a ‘new phenomenon’ called Facebook. Truly the interweb is a wondrous thing. A piece of advice though Mark – never, ever type ‘Google’ into Google.

And these ‘low ends blogs’….my, my whomever could he be referring to? Surely not Autism Diva’s blog with a Google PR of 5 on the home page and over 1,150 Google backlinks to it? Or maybe Orac’s with a PR of 7 for the home page and which has over 6,100 Google backlinks to it? or maybe my own which has a PR 6 on the home page of the blog and over 2,700 Google backlinks to it.

Or maybe ‘low end’ might refer to a blog which has a PR of 3 on its home page and Google link operator can find no back link data for. I wonder, can anyone suggest a blog with user stats that low end?

Anyway, Marky Mark has a point to make and by god he’s eventually going to get around to making it dammit! Even if he has to rhetoricise our asses into verbal comas!!

But unlike people that engage in the blogosphere using their real names and identities, these avatars all have one thing in common.

They’re cowards.

Hmmmm, really? Is that why some people choose to blog anonymously?

I really hate to break this piece of news to Marky Mark but passing opinions online predates the web. Why go back to the old BBS’s and you’d find a whole bunch of people chatting away with (gasp!) fake names. In fact, I hear tell that some CB radio enthusiasts use fake names too!! The dirty cowards!

There’s a damn good reason why some people blog anonymously Marky Mark as I have good reason to know about – people who espouse similar views to you Marky Mark, target their children. People like John Best for example are very good reasons for preserving anonymity. Here’s what happens when one of his friends annoys him. What do you suppose he has in store for my child?

But who Marky Mark is really pouting about is Do’C and Interverbal, two bloggers who took the time out to look at a recent paper that Marky Mark was counting on to support his kook hypotheses. So annoyed by these two ‘low end’ bloggers (PR 5 on each of their blogs) that he elected to censor out the name of the blog they wrote at!

“Unfortunately, the main bloggers of [censored wackosphere site name] have taken the time to respond to almost all of the other blogs about this article

‘wackosphere’ (tee-hee!!) is the name Marky Mark has bestowed upon autism related blogs more popular than his it seems. That’s a lot of blogs.

So shocked was I at this blatant censorship that I nearly contacted the Ever So Important Editor on Age of Autism to ask if they would write a piece about this – after all they penned 10 blog entries last week decrying censorship – they must really hate it!

In fact so grasping does Marky Mark become that he actually says:

In fact, at a deeper level, there’s a widespread pattern of scientific intimidation and censorship underway in autism science that relies on a wide range of attack dogs…

Hey yeah – I know what you mean Marky Mark like what happened to Dr Paul Offit at the hands of the mercury militia:

….as Paul Offit, a vaccine expert who served on the committee, tried to make his way through the crowd, one of the protestors screamed at him through a megaphone: “The devil—it’s the devil!” One protester held a sign that read “TERRORIST” with a photo of Offit’s face. Just before Offit reached the door, a man dressed in a prison uniform grabbed Offit’s jacket. “It was harrowing,” Offit recalls.

….
He has since received hundreds of malicious and threatening emails, letters and phone calls accusing him of poisoning children and “selling out” to pharmaceutical companies. One phone caller listed the names of Offit’s two young children and the name of their school. One email contained a death threat—”I will hang you by your neck until you’re dead”—that Offit reported to federal investigators.

Or Paul Shattuck, also from the mercury militia:

One person said, “Don’t be surprised if you get a knock on your door in the middle of the night and I’ll be there.” Another message said it was easy in the age of the Internet to find out where people live.

Shattuck also had various utterly untrue allegations made about him by the NAA.

Or how about Arthur Allen and Professor Roy Grinker who have also been on the receiving end of threats of violence:

these people need to be horse whipped…

Or how about Ray Gallup, Director and co-founder of the Vaccine Autoimmune Project? here’s what he had to say recently:

Dear ****:

Since you seem to follow what is going on with the Leitch list let me know if Leitch, Deer and the others get hit with a fast moving truck or bus that leaves their carcasses mangled and bloodly on the street.

I will be devotely praying night and day that something like this happens to them and their followers. Especially since these creeps say such hurtful things to parents. They deserve all the best in something terrible happening to every last one of them and I will pray daily.

I usually pray for good things for families that suffer but in their case I will make a big exception.

Ray Gallup

Or what about this Marky Mark?

A-YEAR-and-a-half ago, a vaccines expert in the eastern US received a phone call at home. The man on the line did not identify himself; he simply stated the names and ages of the researcher’s two children and the schools they attended, then hung up. The threat was shocking, but not a surprise. “I get hate mail every day,” says the researcher, who asked not to be named.

Many vaccine scientists in the US have received similar threats in recent years. They are thought to come from a hard core of parents who, in the face of overwhelming evidence to the contrary, are convinced that small amounts of mercury in vaccines have made their children autistic. What’s more, they believe that researchers are complicit in the scandal.

How about what EoH member and mercury militia jackass Brian Hooker did to Dr Sarah Parker? He harasses her to the point her campus security services had to get involved and she sent this email to Hooker – which he proudly displayed online:

Date: Tue, 19 Apr 2005 14:03:17 -0600
From: Sarah Parker
Subject: Re: Sarah Parker on the show “To The Point”
To:
Cc:

I have received your phone messages (yesterday evening and today) and emails. I would like to inform you that due to your previous threat to me in November and the tone and content of these current calls and emails I consider these as threats/harassment as well and am documenting them with the campus police department. I respect your right to disagree and wish you would respect that same right with me. Please do not contact me again in the future.

Sarah Parker

How about Brad Handley of Generation rescue saying to me:

If we were on a rugby pitch, Kev, I’d put my boot in your eye and twist…

Marky Mark is quite right that there are wacko’s in the online autism community. All he has to do to find them is look to his left and right. He closes his diatribe with:

We need to defend some minimum standards for how people are permitted to participate in a public debate. At the top of the list of these standards should be this: if anyone wants to participate in a debate about autism, put your real self on the line: your real name, your actual body of work (if you have any) and your professional accomplishments and reputation. Put the things that really matter — your family’s future and your personal career prospects — out in public for everyone to see if you want to exercise the privilege of participation in civil society. If you’re willing to do that, then you have a right to be heard. If you’re not, then you should go back to your game and keep playing with yourself. Let serious people do serious work.

And he’s serious. He means it. How he:

a) Expects to set himself up as the arbiter of whats acceptable online and;
b) Expects people to be comfortable using their real names when he stands alongside the people listed above

I really can’t imagine. Believe me, if I’d known that pond scum like John Best shared a planet with me I would never have used my real identity. Its also quote clear that Mark Blaxills friends and colleagues hold no compunctions about besmirching reputations with groundless attacks and or threats of violence upon them or their children.

Look around you Marky Mark. That rarefied air you’re sucking down? Its the polluted air of the real wackosphere. A land where threats against children is fair game and where killers and paedophiles are welcomed in with no checks and open arms and the leaders of the many antivaccine kook organisations encourage and salivate after violence against anyone who disagrees with them.

Saint Stone of Kooks and the Removal of Gloves

2 Feb

The Eli Stone thing is very closely following the ‘fallout’ trajectory of the MMR/Wakefield program (Hear The Silence)over here a few years ago in that the protagonists were virtually canonised and the evil medicos painted as uncaring, duplicitous swine.

If the path of trajectory continues to be followed then Eli Stone’s canonisation should enjoy a brief, bright blaze followed by a long slow loss of interest from the general public and he will be relegated to one more point of disagreement that only matters to Age of Autism readers.

However, I do wonder if the Legal Editor at Age of Autism might be coming ever so slightly detached from reality:

Thanks to Eli Stone, our new patron saint of autism, we are no longer “Lost” to the mainstream media.

Well now I consulted my Reality Editor and they reminded me that Eli Stone is a fictional TV character. Maybe my Reality Editor needs to have a word with Age of Autism’s beloved Legal Editor. Then again, reality is not the strong suit of these guys.

Back in the real world:

Nancy J. Minshew is finally ready to take off the gloves.

After years of sitting back and hoping the science would speak for itself, the director of the University of Pittsburgh’s Center for Excellence in Autism Research has decided it’s time for her to take a personal stand.

Autism is not caused by vaccinations, she says, and those who continue to push that theory are endangering the lives of children and misdirecting the nation’s scarce resources for autism research.

“The weight of the evidence is so great that I don’t think there is any room for dispute. I think the issue is done,” said Minshew, who runs one of nine top autism research centers funded by the National Institutes of Health.

Good for her. Its about time the scientific establishment stopped leaving this up to one or two public figures like Paul Offit or Eric Fombonne and started addressing the issues in the real world.

Epidemic or greater awareness?

4 Oct

OK, this one has been beaten to death. I am amazed that it still think that there is evidence of an “epidemic”. This is especially true of those who rely on the California Department of Developmental Services (CDDS) data. These data are so muddy as to be able to hide a real increase or a real decline.

These data have severe limitations as noted before on this blog. They are not “epidemiological” data. They are not a census of those with autism in California. They are a count of who is getting services and this can and does vary dramatically over time and geography.

1984 Birth CohortThat said, let’s take a look at how service rates change with time for a given birth cohort. (click to enlarge). [edit: this is the 1984 cohort] This is much as you would expect. Kids start being listed at age 3. The number increases year after year until a plateau is reached. This happens at about age 7 or 8. There is some slope to the curve: additional kids are being added to the roll even after 8 years old.

This is very straitforward and expected. But, what happens over a longer time to this cohort? Click to enlarge this graph.1984 Birth Cohort CDDS Data Ignoring the obviously leading arrow and label for now, it is abundantly clear that something unexpected has happened. A second large increase in the number of clients is observed. Why would this happen? Well, one of the possible explanations is shown by the arrow. In 1997, the “epidemic” was declared. Autism awareness increased dramatically.  One possibility is that the 1984 cohort was still in school where people might notice them and identifiy them. This cohort nearly doubled in numbers from 1997 to 2003. 

This brings up so many questions, many of which we just can’t answer with the data we have access to.

It would be interesting to see if there was substitution. Were these kids (heck, teenagers) listed by CDDS under a different label?

How did roughly half the kids in this cohort avoid detection? I think the new phrase is “it’s like missing a forrest fire”. Well, these forrest fires were blazing for 13 years before people started noticing them.

Also, what happened to other cohorts? Well, for one thing, a similar jump in cohort size around 1997 is observed for birth years in the 1980’s and early 1990’s. It isn’t as clear or as consistent birthyear-to-birthyear as you go back in birthyears, but it is observable in some birth cohorts. One example where one can see this is the 1960 birth cohort, which increased about 15% around year 2000.

That last paragrah wasn’t clearly written, I admit. But if you are thinking, “what? The CDDS ‘found’ 15% more 40 year olds?” you read it right.CDDS clients by year as listed in 1986 and 2007 This graph (click to enlarge) shows the number of CDDS autism clients as listed in 1986 and 2007 by birth year. The 1986 (in black) data are the same as shown before. The drop in the client count in the early 1980’s is an artifact: those kids weren’t identified yet in 1986. The 2007 client count (in red) show something very interesting, at least to me.

There is an increase in autism clients for almost all the birth year groups. 40-year olds, 50 year-0lds, even older people were added to the client list as “autistic”. Again, we don’t know if or how these people were classified before the “epidemic”. They could have been (and likely were, in my opinion) clients listed in another category in 1986.

Let’s take a look at the difference between these two curves. I included data for people with birthdays in the early 1980’s, but these are not reliable. Those people weren’t through the first round of identification by 1986. 

CDDS Autism Clients in 1986 and 1997 by birth yearThe graph shows the difference as a percentage increase. This allows us to see the older cohorts easier. At the same time, it allows people to accuse me of doctoring the data to make it seem like a bigger effect than it really is. That would be an obvious way to try to divert attention from the fact that the “epidemic” caused a roughly 40% increase in CDDS autism clients born in the 1960’s. For those clients born from 1940-1955, the increase was 70+/-28%.

Think about that a second. Autism amongst forty year old people increased by 70% during “the epidemic” years.

How can this be? How could CDDS have missed people with autism for forty or fifty years? Sure, some of these people may have moved into the state. Some of them may have been cared for by family and not been served by CDDS. The trends of these birth cohorts with time do not show the sharp rise in the late 1990’s as observed above for 1980’s cohorts.  For me, this is suggestive that the those who could be identified in the school systems, were.

Obviously there are a lot of open questions here.  How and why these increases were observed is a big question.  Why no one has seen fit to mention this before is another question.  The CDDS did not create these data sets for me.  Someone else has been paying for that for some time, according to Mr. Kirby…who also hasn’t mentioned this.

People keep saying, “you can’t have a genetic epidemic”.  Well, you can’t have an epidemic of a childhood onset “disease” in forty-year-olds either.

____________________________________________

Edit: 

CDDS Clients vs. year for multiple birth cohorts First, note that the birth cohort in the first figue above is from 1984.  That is not clear.  Second, here is a graph with multiple cohorts.  Note that all the cohorts have an upswing in the client-numbers in the late 1990’s.  Even the 1990 cohort does this.  It does not appear to be based on age, but on calendar year.

Dear Dr. Kartzinel

3 Oct

Transcript.

Jenny McCarthy Again

2 Oct

McCarthy was at the latest TACA bunfight recently and took to the stage to give the crowd some of her patented Sale Increasing Controversial Big Fat Mouth. Her victim was a long time favourite of American news, Barbara Walters (whos now deceased sister was born ‘developmentally disabled).

About 3:15 today at the picnic on main stage jenny mccarthy in the most lisa ackerman style of feisty adorable commented that barabara walters said our kids CANT EVER GET BETTER and called her a bitch and said something about naysayers can stick her microphone up their BUTTS!
PRICELESS. This is perfect way to get sensationalistic 6:00 news attention to get this aired NOW!!!!!!!

Isn’t that lovely? I hope all those who were puzzled by the series of posts on here decrying Mccarthy’s self-appointed role as autism advocate can begin to appreciate why I – and plenty of others – feel as we do. That McCarthy is doing no favours to the autism community with this sort of behaviour. of course, some people, even within TACA realize this probably isn’t the best course of action:

What Jenny said at the picnic was for the benefit for TACA families, not for the 6 o’clock news or Entertainment Tonight. Jenny is doing a beautiful job of being our spokesperson, so let’s let her publicist and TACA’s publicist handle the media for right now. I know it was exciting stuff but let’s let this issue rest for now.

Well, no, actually. I don’t want to let the issue rest. This person has appointed herself spokesperson not just for TACA but apparently for autism itself. She needs to back off, grow up and start thinking about her actions for those of us without a celebrity income. Calling someone ‘a bitch’ at en event that you _know_ will be covered by the media is a stupid thing to do and gives the general public the idea that we’re all as childish as Jenny McCarthy. I would like once again to distance myself from this person publicly.

In the meantime, please enjoy this blog entry I found today. I don’t know who it is but I liked it.

History teaches: Quackery – hard to kill. People – not so much.

29 Sep

New Scientist had an article recently describing the history of the use of X-rays as a beauty treatment. Who knew that radiation’s ability to make a person’s hair fall out was once exploited as a hair remover?
Histories: The perils of X-ray hair removal

FOLLOWING Wilhelm Roentgen’s discovery of X-rays in 1895, doctors around the world turned their primitive X-ray machines on everything from their own hands to patients with cancer and tuberculosis. To Albert Geyser, a brash German immigrant who graduated from a New York medical school in that heady year of discovery, X-rays were clearly the future of medicine.

Researchers quickly noticed that exposure to X-rays had a remarkable side effect: it made hair fall out. In Austria, physician Leopold Freund recommended it as a treatment for excess body hair, or hypertrichosis. “Hair begins to fall out in thick tufts when lightly grasped, or it is seen on the towel after the patient’s toilet,” he observed in 1899. … Tests followed across Europe and North America with apparent success, … There were already hints that all was not well, however. In France, some doctors reported that their patients had fallen ill. Loath to admit that X-rays were responsible, Freund blamed “the hysterical character” of French patients.

Now working at Cornell Medical College in New York, Geyser embraced X-rays with enthusiasm. Like many others, he paid a high price for his zeal: radiologists were belatedly realising that frequent exposure to X-rays could be dangerous, and Geyser suffered burns that claimed the fingers of his left hand. Undeterred, he invented the Cornell tube – an X-ray vacuum tube of leaded glass with a small aperture of common glass, meant to direct lower-energy, or “ultrasoft”, X-rays directly onto a small area of skin. With the Cornell tube, “the X-ray is robbed of its terrors”, declared The New York Times. By 1908 Geyser had administered about 5000 X-ray exposures with his tube, for a variety of skin ailments. Others remained suspicious of X-rays, and the County Medical Society’s lawyer warned Geyser that “the time is coming soon when if a man is burned, the doctor will be held liable… Don’t use the X-ray unless you know what you are doing with it.”

The article goes on to explain how the use of the Cornell tube’s “ultrasoft” hair-removing rays became known as the “Roentgen therapy for hypertrichosis,.” In 1915, Geyser published an article in, The Journal for Cutaneous Diseases, he assured his readers that “no protection of any kind, either for patient or operator” was needed when using his Cornell tube. In 1924, Dr. Geyser and his son founded Tricho Sales Corporation. They advertised the glories of the Tricho System in hundreds of advertisements that went into newspapers throughout North America. Promises in these ads included: “no injury to skin will result.” Explanations of how it worked noted that it used a “hair starvation process” and that it worked by way of, “radio vibration.” Female relatives of physicians just swore by it, apparently.

Soon there were Tricho clinics in over 75 cities in the U.S.. The process was tidy and painless, the only thing that operators or clients might have noticed was a “faint hum and a whiff of ozone.” The women only need to be exposed to the X-rays for a few minutes, and voila, some time later their hair fell out.

You may be asking, “Approximately, how many women underwent this thoroughly modern beauty treatment?” The New Scientist article says the New York City clinic alone claimed 200,000 clients. These clients would have paid from a “few hundred to over a thousand dollars” for a course of treatments. That’s a huge chunk of change in 1920’s dollars.

OK… so are we all waiting for the other shoe to drop here?

Tricho’s triumph was short-lived.

In 1926, Ida Thomas of Brooklyn sued Frank Geyser (the son) for “a staggering $100,739 – the cost of her facial treatments plus $100,000 in damages.” Ms. Thomas sued because her skin had thickened and wrinkled following the treatments. Two years later Frank Geyser “was arrested following a similar complaint.” Then things got really ugly. Clients now were suffering from “wrinkling, mottling, lesions, ulcers and even skin cancer.” The Journal of the American Medical Association commented on this new health problem, “In their endeavor to remove a minor blemish, they have incurred a major injury.” In July 1929, the AMA condemned the treatment as dangerous.

What was Tricho’s tactical response to all these people–like the AMA–bunch of killjoys–trying to bum them out, bring them down? What action could rescue the Tricho Sales Corporation from losing revenue by the handful, not unlike a radiation poisoning victim losing hair?

Well, if you’ve been following the saga of Defeat Autism Now! and similar groups, and their history of promoting questionable and even plainly dangerous quack therapies, you may have at some point thought to yourself:

“What could rescue autism quackery and it’s adherents from the doldrums induced in part by the death of Abubakar, but also by the criminal charges being brought against the DAN! doctor who killed him, the lack of a promised drop in the numbers of children being diagnosed with autism following the reduction of the use of thimerosal in childhood vaccines, the ridiculous show put on by so-called “expert witnesses” chosen by the Petitioners Steering Committee in the Cedillo vaccine hearing, accumulating evidence tending to exonorate vaccines as not being a cause of autism, and even the exposing of Andrew Wakefield’s seeming ethical problems in his General Medical Counsel hearing in London?”

Or, “What does autism wingnuttery need, right now, to give it life again, you know, fluffliness and bounce and shine, like a good salon-quality shampoo can do for listless hair?” Maybe autism quackery could borrow a page from the Tricho corporation playbook…what DAN! and company needs NOW is and what Tricho Sales Corporation got in their hour of need …

A celebrity endorsement!

Ann Pennington

Ann Pennington, was played as Tricho’s “trump card,” according to the NS article. She was the star of 1929’s hit film, Gold Diggers of Broadway.” The article continues:

And if clients had any lingering doubts, the elder Geyser’s impeccable medical credentials probably reassured them. Yet closer inspection of Geyser’s record would have shown that although he carried out research at a prestigious medical college, some of his work was decidedly dubious: he had used electric shocks to treat all sorts of conditions, from gonorrhoea to asthma, and had made unsubstantiated claims to have found cures for tuberculosis and anaemia.

Inevitably, more Tricho victims appeared in JAMA, including a patient in Washington DC “so depressed as a result of the disfigurement of the X-ray burn that she attempted suicide”. Geyser, it seemed, had either been too greedy to heed any warnings, or had convinced himself that his Cornell tubes really were safe. Whatever his motivation, he had installed poorly regulated X-ray machines across the country, and tens of thousands of women – perhaps even more – were exposed to massive doses of radiation on their faces and arms. They had also received wildly varying doses: some women had as few as four treatments, others as many as 50. And because X-ray exposure rises as an inverse square of distance, even a slight shift in sitting position could double or treble a client’s dose.

With the prospect of being sued for millions of dollars, the Tricho Sales Corporation collapsed in 1930. …

If we all feel a sort of vicarious relief at this point, turns out, it’s premature. Other companies noticing the financial success of the Tricho clinics developed their own “copycat operations.” If the training was miniscule for the Tricho clinicians, it seems that it was even less among these newcomers to the game. Medical and business groups responded by trying to close down these outfits, too. But they just went underground. The article says that in 1940, San Francisco detectives were on the trail of what they thought was an illegal abortion clinic. To their surprise, no doubt, the place in question was instead one of these hair-removal-by-radiation shops. And such shops were still taking in customers “at least” into the 1950’s.

Since all radiation-poisoning “fallout” isn’t noticeable immediately, you can imagine how the story of the customers of the Tricho clinics kept coming up again and again in doctors offices into the 1960’s and 70’s.

One 80-year-old woman arrived with a grapefruit-sized tumour in her head; another refused treatment until she had “a huge and deep crater occupying practically the whole lower half of the breast and the chest wall immediately below it”. By 1970, US researchers were attributing over one-third of radiation-induced cancers in women to X-ray hair removal.

Given cancer’s long latency and the many years that Tricho parlours and their ilk persisted, the procedure may not yet have claimed its final victim. Tricho’s most famous customer, though, had reason long ago to regret her endorsement. After spending her final years as a recluse in a small hotel room off Broadway, Ann Pennington died in 1971. Her cause of death, it was reported, was a brain tumour.

Now, no one is wishing a grapefruit sized tumor on to Jenny McCarthy or anything. For one thing, in the updated case of quack driven nonsense, the gullible celebrity endorser is not the one who is being subjected to questionable therapies. It’s her son. And no one wishes any harm to come to Jenny’s son in the least. He looks like an adorable boy. It’s a shame his mother has been fooled into believing the whole “most of these kids are practically saturated with candida yeast, it’s the reason they go all stimmy … it makes them act crazy…put them on a prescription antifungal and a restrictive diet and you’ll get your kid back,” thing (not to mention the whole anti-vax and autism epidemic thing). If his mom and doc sent a blood sample off to Immunosciences lab before it was closed (this past July) then she likely got a bogus positive result. Then the fool doctor could write a prescription for a toxic antifungal (all drugs are toxic, don’t you know, depends on the dose) that the kid likely didn’t need–just to make mommy feel like she’s doing all she can to “pull her son through a rapidly closing window” and give her something to write about besides.

One really scary lesson from the Tricho debacle is that this deadly quackery hung around for so long. In this case, bad news, the news that these radiation machines could easily cause a client’s slow death, besides creating some really ugly skin, didn’t seem to travel quickly enough. Tricho shut down in 1930, but the technique and hype they developed was still be employed forty years later on new suckers, the ones born every minute. The Candida yeast (as cause of dozens of chronic disorders) business was a stupid health fad in the 1980’s. The fad died for the most part, but apparently Jenny didn’t know about it, or didn’t take a clue from it, and here she is in 2007 promoting it as the thing that stood between her autistic son and being a typical kid.

It was interesting that the Tricho company was founded by an apparently unethical doctor, Albert Geyser, who had a pretty respectible looking CV, and who claimed to have great insights into and treatments for many different diseases. Albert went into business with his son. Hmmm. Who does that remind one of? Someone else with a German name that sounds a bit like Geyser. There’s also a creepy and creepier brother duo in autism quackery with a similarly questionable looking, but less impressive-looking background.

When one compares the seeming safety profile of Mr. and Dr. Yasko’s (and Garry Gordon’s) ridiculous RNA yeast soup, or the homeopathic water drops said to be favored by Katie Wright, with something like Lupron and IV chelation, one can almost be grateful for such benign, if expensive and reprehensibly misrepresented, “cures.” But there are major question-marks hanging over the safety of things like long-term, high-dose methyl B12 injections given to kids who are not deficient in B12. There are questions about high doses of any vitamins for anyone. Some mineral supplements are contaminated with heavy metals, so are some chelators, apparently. Lots of biomedded kids take vitamin and mineral supplements. There are questions about the dangers of hyperbaric oxygen therapy, like what if the kid is susceptible to seizures and you put him in the HBOT tank and the extra oxygen kindles these seizures?

As for the recent Jenny McCarthy road show and it’s effect on the DAN! dox customer base, it’s hard to say who needed whom more–DAN! suffering from a series of bad PR breaks, or Jenny suffering from a sagging career and a failed attempt at making a go with the Indigomom Crystalkid schtick. It’s hard enough for a talented actress to keep getting work at age 35, they say, imagine what it’s like for short-on-talent Jenny with her now famed post-pregnancy stretch-marks “that glow in the dark … for some reason!”.

DAN! and Jenny McCarthy deserve each other. Let’s hope they both quickly skulk out of the limelight and into obscurity and may they take their quack therapies, benign or not, with them.

Paul Collins is the writer of the above mentioned New Scientist article. The writing style would seem to indicate that it’s the same Paul Collins who is the author of the fantastic book, “Not Even Wrong.” If so, this Mr. Collins is the father of a beloved autistic boy.

McFungi

28 Sep

From the transcript of Larry King’s interview of Jenny McCarthy last night on CNN:

KING: What is autism?

MCCARTHY: Wow! Well, it differs for a lot of people. But — or opinions. But I believe that’s — it’s an infection and/or toxins and/or funguses on top of vaccines that push children into this neurological downslide which we call autism.

Source

McInfection?
McToxins?
McFungi?

Vaccines?

Since she’s not talking about what autism “is”, rather, what might be speculated about with regard to etiology…maybe it can be the smoke. I’m not saying it is, just suggesting that it’s one possibility.

As all of you know, being a mother changes you in ways that you never thought you could imagine. I went from chain smoking and eating cheeseburgers to Hepa air filters and eating vegetarian after my son was born.

Source

Emphasis mine. Here’s a couple of mildly interesing abstracts (in the links) for Jenny.

“The risk of autism was associated with daily smoking in early pregnancy (OR = 1.4; CI = 1.1-1.8)”

Source

“Maternal smoking during pregnancy is linked to high fetal testosterone (FT), and an increased risk in offspring for autism…”

Source

CDC: “Thank you, Sallie, May We Have Another?”

27 Sep

A CDC study released yesterday found no evidence to support “a causal association between early exposure to mercury from thimerosal-containing vaccines and immune globulins and deficits in neuropsychological functioning at the age of 7 to 10 years.” In other words, vaccines don’t scramble your brain.

The study didn’t examine autism as an outcome, although that is almost certainly what it was intended to get at. Instead, it looked for whether children’s exposure to thimerosal before birth or in infancy had any relationship to their later performance on 42 standardized tests which one would expect to be affected by autism. For each of the 1,047 children in the study, the researchers assessed speech and language; verbal memory; achievement (letter and word identification); fine motor coordination; visuospatial ability; attention and executive function; behavior regulation; tics; and general intellectual functioning.

CDC tried so hard. They invited one of the queen mercury moms, Sallie Bernard of “SAFEMINDs,” to participate in the planning of the study. They brought on a panel of outside advisors. The team spent at least two years administering forty-seven separate tests to each of the children and analyzing and writing up the results. They printed every piece of data generated in a companion volume to the published study.

They got kicked in the teeth, but don’t feel bad for them. They should have known better.

The autism-vaccine contingent has responded by spluttering about the study not having been large or random enough, and by accusing the researchers of being biased and of ignoring important associations in the data. It’s no news that these people don’t believe anything that comes from CDC – they’ve said as much, very clearly. But one would think that if you let the antivaxers in on the process from day one, if you were totally transparent, they couldn’t object, could they? They’d have to see the light when the results came back and say, “Well! I guess it’s not the vaccines after all!”

CDC, if you really thought that would happen, you were so, so wrong.

The appearance is that Sallie Bernard was going along with all this up until the day the results came in and – shockingly! – showed thimerosal didn’t do one bit of harm. If she’d thought from the outset, as a SAFEMINDs press release now claims, that there weren’t enough kids in the study or the sampling were biased, does anybody think this gadfly would have nodded and smiled and gone right along with it?

No, everything was fine and dandy as long as she was enjoying being fawned over as a “representative of the autism community” and a fellow-scientist instead of the commercial marketer she actually is. Here’s a clue, Sallie: If you’re going to play scientist, you have to follow the rules of science, and that means you stand by your results. You don’t get to say “heads I win, tails you lose” by waiting to see the outcome before deciding whether the study was any good.

And you really don’t get to have CDC at your beck and call, spend hundreds of thousands of taxpayer dollars to do a study to your specifications, then turn around and call them liars when you don’t like how it comes out.

And you, CDC? You’re not just a victim here. Every time you say “let’s do more research” or “we are examining this issue” in order to appease the mercury moms, you increase the chances that kids will go unvaccinated because you failed to give their parents confidence in the safety of vaccines. When you say a study is reassuring and then highlight what is virtually certain to have been a chance finding (a statistical association between higher thimerosal exposure and transient tics in boys) without making it abundantly clear that some false associations were inevitable given the study design, you defeat the purpose of doing the study. People who understand statistics weren’t the ones who needed to be convinced thimerosal is safe; the antivax crowd will never be convinced no matter what. You needed to speak to the well-meaning parents who worry about the rumors they hear at playgroup, and not only did you give them something new to worry about and whiff the opportunity to show them that the likes of Sallie Bernard are all about the rhetoric – you managed to tee up for yet another round of Righteous Long-Suffering Parents vs. Heartless Government Scientists.

Haven’t you learned yet who wins that one? Or are you going to invite Sallie back for another round of research?

Postscript: More commentary on this study by Arthur Allen, Orac, Joseph, Interverbal, and Kristina Chew.

In 1931…

27 Sep

In 1931 Eli Lilly invented autism.  Or so the story goes.  Again, as the story goes, all autism is mercury poisoning or, more specifically, Thimerosal poisoning.  Thus, Autism didn’t  (and couldn’t) exist before the invention of Thimerosal in 1931.

Dan Olmsted has made a number of bloggish press releases on the “original” autism cases. You know, those kids that Dr. Kanner first reported on. According to that story, somehow all of the first cases (since there weren’t any before then) somehow found their way into Dr. Kanner’s practice.

Wouldn’t it be strange if there were autistic individuals born before 1931? Wouldn’t you expect Mr. Kirby or Mr. Olmsted to let us know if there were evidence of autism that didn’t fit this little model?

In a recent blog post, David Kirby noted that:

“But it turns out that a private citizen has paid the state each quarter to analyze the autism numbers according to year of birth, and not just by age group. State law requires that such privately funded analyses be made available to anyone else who asks for it

So I asked for it. What I got was rather interesting.”

Well, someone else asked for these data sets. Now I have them too.  Joseph has them as well.   And they are rather interesting.

The spreadsheets list the number of clients getting CDDS services by year of birth.  Open the most recent one and there, at the very top, are three of clients born before 1931.  Top of the list, someone born in 1920.   If you look through the past years, you will find as many as five in a single year.  There is evidence for more as some people come and go.

I can already write one of the responses to this post. “Thank you for pointing out that the number is so much less than 1:150 for the older generations”.

While you hope that we all go running after that particular red herring, reread the statement above: “..as people come and go from the system”.  Consider our now 87 year old client mentioned above.  He/she entered the system as autistic in late 1999.

Yessir, at 79 years old this person was added to the CDDS autism roll.   There are a lot of possible reasons.  He/She could have moved into the state, his/her family could have found that they no longer could handle the job alone or, and this is the big question, he/she was already in the system but was only identified as autistic at this late age.

That’s not the only example.  In 1992, a 70 year old was added to the list under autistism.  In 1992 a 64 year old was added, followed by another in early 1993. 

There are more, but you get the point.  These people, people born before the invention of Thimerosal are autistic and are being added to the CDDS lists as autistic late in life.

I do wonder why Mr. Kirby didn’t mention this.  I do wonder why he didn’t shoot a quick email to Mr. Olmsted to point this out.  One has to think that Dan Olmsted would be interested in getting the stories of the pre-Thimerosal, pre-Kanner autistics.  Then again, one has to imagine that Dan Olmsted probably has seen these data for himself already.  Why neither of them has seen fit to mention this or dig deeper into this is an open question.

For once I agree with David Kirby, “What I got was rather interesting”.

After Jenny and Oprah

23 Sep

And so, this was the week that the anti-vaccine/autism hypothesis got its first real airing in a public arena. Jenny McCarthy went on US TV and told her audience that her son was her science (quite possibly _the_ silliest thing on the show since Tom Cruise’s couch/brain malfunction).

I’m going to level with you here. I don’t really care too much about Jenny McCarthy spouting on about the evils of vaccines. She’s not the first and she won’t be the last. Despite the raptures the anti-vaccination people are having over her appearance she wasn’t on Oprah because of her vaccine ideas.

This is what bothers me: she was on Oprah because she was famous. It scares the _shit_ out of me that we can only apparently have a conversation about something after a celeb has let the light of their countenance shine down upon it.

The UK is just as ridiculous about this whole thing as the US. Its got to a stage whereby the subject under discussion doesn’t even seem to really matter to Joe Public – what seems to matter is that there’s a famous face pontificating on a subject that, in all honesty, they’ve probably only recently begun to get a firm grasp on themselves.

To put it another way, the Oprah show wasn’t about autism. It was about Jenny McCarthy. It was to sell copies of her book. Her appearance on People magazine is to increase book sales. Her upcoming appearance on Larry King is to increase book sales. None of it is about _autism_ . None of this will help the autism community. Even that subsection of the autism community who are anti-vaccine are kidding themselves if they think that after the dust settles on Jenny McCarthy’s book she will be around to lead them in their fight. Until its time for the sequel of course.

Is the autism community really so shallow that we are going into raptures because a celeb is speaking about a subject that vast majority of us could speak much more accurately and eloquently about? It seems some of us are.

In the meantime, whilst Jenny McCarthy is being lucratively controversial on Oprah, the vast majority of autistic kids are still not getting the right kind of educational placement. Whilst Jenny McCarthy’s Media Clean Up Crew are attempting hoover away every mention of her Indigo Children beliefs from the web lest they affect book sales, autistic adults are still struggling to get into appropriate work and living accommodations.

I would urge autism parents to spend the ten quid they were going to spend on Jenny McCarthy’s book on something that might actually help autistic people instead of helping line the pockets of Jenny McCarthy.