As already blogged by Steve and Orac, Generation Rescue have undergone a change in both website and message.
Up until this week and for the last two years, Brad Handley – GR Head Honcho has promoted a message quite unequivocal:
“Autism is treatable. It’s reversible. It’s nothing more than mercury poisoning,†said JB Handley, founder of Generation Rescue.
In fact, giving a reason for the redesign of the site on Orac’s blog, Brad said:
From my perspective, our website and its message have always been broader than “its ONLY mercury”…
Huh. Weird. Maybe its just me but I detect a teensy-weensy inconsistency between those two statements. Lets switch to the video!!:
And for the non-video-blessed amongst us, what Brad said was:
We immediately realised…and I think this is something that is a big surprise to people….um, that autism is a misdiagnosis for mercury poisoning.
Riiight. So let me see if I can summarise the position. When there is no science to have an informed debate about mercury, and when there’s lots of scary sounding stuff like ‘the Amish aren’t vaccinated and have no autism’ or ‘CDDS proves the epidemic’ floating around then the situation is:
“Autism is treatable. It’s reversible. It’s nothing more than mercury poisoning”.
Now that there’s no science to establish a causative link between mercury and autism, plenty of epidemiology to refute it and now that the first piece of science on the Amish has shown that actually they do vaccinate and that the penny has finally dropped, even for David Kirby, regarding CDDS’ inability to support the epidemic, what is the Generation Rescue position now? Lets see shall we?:
Our children are experiencing epidemics of ADD/ADHD, Asperger’s, PDD-NOS, and Autism. We believe these neurological disorders (“NDs”) are environmental illnesses caused by an overload of heavy metals, live viruses, and bacteria.
Wow. So we’re now no longer talking about just autism. We’re now talking about ‘neurological disorders’, including ADD/ADHD which is not even classed as being on the spectrum. That is quite some turnabout.
And look at this! Now, we’re talking about a _combination_ of causative agents: heavy metals (not just mercury any more), live viruses and bacteria.
Incredible. Makes you feel almost sorry for poor old mercury don’t it? Last week it was the Terror of the High Seas. Now it doesn’t even make it as a distinct causative agent.
The ‘live viruses’ is in there to placate the Wakefield Worshipers who think the MMR also (or in combination with mercury) caused autism. The ‘bacteria’ mention is I’m guessing a nod to the Martha Herbert theory of mold causing autism – a theory that was described thusly last time Martha took it to court:
Dr. Herbert’s publications indicate that she is an outspoken advocate of increased attention to the possibility of environmental influences. Even she, however, despite that acknowledged perspective, speaks in her published work of possibilities and potentialities, rather than of the ‘reasonable degree of medical certainty’ to which she offers to testify under oath in this case. Neither Dr. Herbert’s publications, nor any others cited, identify mold exposure as even a suspected, still less a known or proven, trigger of autism
Going back to MMR and taking a brief side journey for a minute, here’s the latest update from the Autism Omnibus proceedings. When last we left it, Petitioners had put forward one family as a ‘test case’ to see if the whole Omnibus proceeding had enough merit to proceed. There were supposed to be three. Awhile ago, the court told Petitioners to hurry up and identify the other two. They couldn’t. Respondents replied with:
The Court ordered the PSC to find two cases (similar enough to the first) to present the same basic theory of causation…..the essence of its (PSC’s) response is that it does not know of any case presenting the same causation issues as are implicated in Cedillo.
Ouch. How long has this been dragging on? Five years or something? And out of the 4,700 cases in the Omnibus no other case can be found to match the first one put forward. The only people who must be enjoying this are the lawyers.
Anyway, back to Generation Rescue.
Of particular note is the much vaunted, never seen ‘California-Oregon Unvaccinated Children Survey’ of described thusly by GR:
no studies have ever been done to compare neurological disorder (“ND”) rates of unvaccinated children to vaccinated children. We commissioned a national market research firm to survey more than 17,000 children in California and Oregon.
National market research firm eh? How very scientific. Researching popular chewing gum, researching autism causation. Yep, they’re the same. Souds very much like a a ‘convenience sample’ where people are called up. Here’s a friend of Brad’s describing what a convenience sample is and is not:
So. Not data according to David Kirby. Bummer.
Generation Rescue have also revamped their ‘Testimonials’ section. This is the section I looked at I August of last year and reached a (very) rough figure of a 5% success rate for the kids talked about on the GR site where ‘success’ is losing the diagnosis:
Out of these 59 success stories, just 3 describe their child as having been reclassified as no longer meeting a diagnosis of ASD. That’s a ‘recovery’ rate of 5%. Interestingly, one of these cases states they did not use chelation at all. That puts the Generation Rescue chelation success rate at a little over 3%.
Now, Generation Rescue have 76 ‘success stories’ (except they’re not called that any more, now they’re ‘testimonials’). Of that number, 6 claim full recovery with total loss of diagnosis. That’s a percentage of 7.8%. A heady leap of over 2%. Woo-hoo.
I was drawn to some of the newer testimonials, particularly the 6 year old ones as Meg only recently turned 7. One of them, about a girl called Liz was fascinating.
Our daughter Liz was diagnosed with low functioning autism at age three. We blamed the DTP vaccine which she had a bad reaction to. She would have very long lasting meltdowns, she would smear faeces, she would exhibit self injurious behaviour, she did not talk at all, she avoided eye contact and her only activity was that involving toys that spun. She walked on her tip toes and the doctor said she had a low IQ (below 70). We were told by mainstream medicine that she was ‘unreachable’.
Today Liz is six and after following biomedical interventions (and some other things) Liz will talk – on Christmas morning this year I went to wake her up and she said ‘good morning’ to me. She no longer smears faeces and is 99% toilet trained, she can write notes to people and knows all the letters of the alphabet and can count up to 40 unprompted. She can use a computer mouse unaided and has numerous favourite websites. The self injurious behaviour is vastly lessened, as are the meltdowns. Her eye contact is now perfect and overall her sensory issues seem 99% under control. She can drink out of a normal cup and use a knife, fork and spoon to eat whilst sitting at the table.
In so many ways, this is a different child.
Why was I drawn to this little girl so much?
Because it’s Megan’s story. I assumed a false name – Mr Clarence House – and emailed it to the Generation Rescue site. ‘Clarence’ received an email saying it was going to be on the new site which I was very happy about.
All of it is true except the name. The biomedical treatments I was talking about were multi vitamins, fish oil and a steroid inhlaer for her asthma. The ‘other things’ were love, acceptance, patience and education.
Why do this? To prove a point. You can make anyone’s story fit your own beliefs if you twist it hard enough.
Don’t worry, if it disappears I took a loving screenshot.
Brad Handley has tried to shift his goalposts as his first guess wasn’t working out. As evidenced above, he has latched on to items that are equally silly. As evidenced above he is incapable of seeing autism. He only sees mercury. As evidenced above, improvement is not limited – or even related to – detoxification of heavy metals.
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